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by Shân
Sun Apr 03, 2016 8:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lymph nodes mets
Replies: 7
Views: 1818

Re: lymph nodes mets

Fabulous news Felicitym23, so delighted to hear.

I am in the same place (but have rising CEA concerns).

Praying for you that NED will last forever.

Shân
by Shân
Sat Apr 02, 2016 8:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IVa and all clear at 4 years NED
Replies: 8
Views: 1100

Re: Stage IVa and all clear at 4 years NED

Thank you for your news, so delighted for you. You give hope some much hope to us all Stage 4 ers, so vitally important to read such successful stories, thank you.
by Shân
Fri Apr 01, 2016 8:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NED but rising CEA
Replies: 7
Views: 1476

Re: NED but rising CEA

Thank you all for your replies. Bluebird in answer to your question " if convenient, can you share more info what you have done during this period? how the cancer cells from lymph nodes are removed? by chemo or others?", here goes ":- I started chemo 3 weeks after surgery (12 rounds o...
by Shân
Thu Mar 31, 2016 5:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NED but rising CEA
Replies: 7
Views: 1476

Re: NED but rising CEA

Thanks midlifemom, feel better already with your advice :)
by Shân
Thu Mar 31, 2016 5:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA rise; partial blockage mostly resolved
Replies: 30
Views: 3981

Re: CEA rise opinion

That's exactly where I am having had a clear scan last week and have been reminded that the rise can be for a number of reasons, most likely inflammation. I like the advice to not worry and keep an eye on the trend.
All the very best to you.
Shân
by Shân
Wed Mar 30, 2016 4:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NED but rising CEA
Replies: 7
Views: 1476

NED but rising CEA

I just got NED results on Pet and CT scans this week but CEA rose from 4.3 to 6.1 in 2 weeks. I've had severe chest pains caused by neulasta so am hoping my increased CEA is a result of inflammation not something more sinister, but difficult not to worry about it! Anyone else had a similar experienc...
by Shân
Wed Mar 30, 2016 4:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For those who are NED--how much does your CEA typically vary from one measurement to the next?
Replies: 19
Views: 3112

Re: For those who are NED--how much does your CEA typically vary from one measurement to the next?

I just got NED results on Pet and CT scans this week but CEA rose from 4.3 to 6.1 in 2 weeks. I've had severe chest pains caused by neulasta so am hoping my increased CEa is a result of inflammation not something more sinister, but difficult not to worry about it!
by Shân
Mon Feb 15, 2016 7:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update tchan8888: Pembrozilumab Clinical Trial
Replies: 11
Views: 2569

Re: Update tchan8888: Pembrozilumab Clinical Trial

I am so delighted for you, very exiting indeed, thanks for posting.
S
by Shân
Wed Feb 03, 2016 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Checkmark in the good news column
Replies: 13
Views: 1654

Re: Checkmark in the good news column

So so happy to read this, thank you for posting and here's to many more years of good health and happiness.
Shan
by Shân
Tue Feb 02, 2016 6:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fasting and Chemo benefits
Replies: 5
Views: 2955

Re: Fasting and Chemo benefits

I fasted through 12 cycles of irinotecan and avastin and found that I had greatly reduced side effects to those that I was warned of, mainly fatigue and diarrhea. I fasted 36 hours prior to treatment plus the day of and broke the fast on the third day, so somewhere between 60 and 72 hours altogether...
by Shân
Tue Feb 02, 2016 4:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I have distant lymph node spread only with no organ involvement
Replies: 13
Views: 2887

Re: I have distant lymph node spread only with no organ involvement

Hi All, I'm new to this too so not entirely sure how to reply correctly to you all, but here's goes! Thank you Lee, and dianetavegia I am immensely grateful for you who continue to post now that you are NED, you are such inspiration and give me so much hope. I started chemo again today, Avastin and ...
by Shân
Sun Jan 31, 2016 9:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I have distant lymph node spread only with no organ involvement
Replies: 13
Views: 2887

I have distant lymph node spread only with no organ involvement

Does anyone else have distant lymph node metastasis only with no organ involvement? Need to decide on next course of treatment. Avastin again, since it gave me 5 months NED? Erbitux, Cyramza, Stivargo? Looked at new trial Pembrolizumab and radiation but my disease is not measurable enough yet!! Woul...

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