Where is this suspicious spot in the liver? You said it isn’t surgical but is it possible to radiate it? DH has had really good results with SBRT at msk. Hopefully it comes back to be nothing. The MRI being questionable is good news in my opinion. Those suckers have been able to see teeny tiny Mets ...

Second question, how long can someone stay on FOLFIRI before the side effects become too much? He's been doing FOLFIRI + avastin for over 9 months now. He's able to continue working (though he generally works from home during the treatment period) and function fairly normally. But lately he seems m...

Dh got the pfizer shot last week. I know everyone has their own opinions (some informed, some not so much) about vaccinations but I am all for them. Our three boys have also or are going to receive the HPV vaccine (youngest will get his in 2 yrs). Anything we can do to keep from infecting others or ...

My husband is the zebra apparently. He had 11 doses of FOlFOX with he Oxaliplatin before he had neuropathy in his throat that was causing swallowing and choking issues. He went off that, then had a recurrence a year later and got another 6 rounds of FOLFOX before they dropped the Oxailplatin. His on...

Thanks for all your replies! I really appreciate it. Have today received a new plan of attack - adrenal gland is going to be removed prior to chemo. The endocrinologist now involved said there is a small chance it’s actually a benign growth. She can remove it by keyhole surgery and then we can get ...

I was at MSK today and the nurse told me they haven’t gotten them yet - they will first go to healthcare workers treating Covid patients. Last week, my Northwestern nurses had heard nothing about timing etc. That is so weird. My husband was there the same day as you and he said the MSK vaccine clin...

I am so sorry you have had to join the shitty Stage 4 group. My DH has also has a met on his adrenal gland. There are a few others here. His has been a pin to deal with. I highly suggest having it taken out surgically if that is an option for you. DH had his treated with ablation, that had to be sto...

That is an insane wait time for CTs. Here in Texas we are staying consistent in our current wave (although not as bad) but DH has been able to make all his CT appts no problem. He has had to be tested before the ones in NYC though, makes sense coming from Texas though. I am sorry, this isn't fair to...

Sent an email to MSK with about four questions and they answered only one of them - confirming when to schedule my scan. Getting frustrated. I don't want my local doctor to be making calls about my treatment by default because I can't get Dr K to address whether I should reinstate irinotecan my nex...

I am so sorry. We will keep your entire family in our prayers.

I am so sorry. The crabiness with pain. I hope your kiddos have good memories to offset some of the bad near the end.

I am so sorry. This cancer is so brutal and unrelenting sometimes. I will pray for your husband and also pray for your strength as you navigate this.

My husbands CEA was less than .5 when he was diagnosed, and his liver was riddled with mets. The highest it ever was was 10.5 and that was when there were no active tumors and he was on chemo, but nearing the end of a 6 month cycle.

Another one here that has a husband who would not be here without Dr. K! He just hit his 5yr cancerversary. We are still battling things, but he is here to battle them and he's living life. As for DH, he has dozens of tumors as well. Every lobe was affected. He had HAI chemo for 6 months and then su...

All of what Julie Said! My DH was told by a liver surgeon at MD Anderson that he wasn't nor would he ever be a candidate for surgery (well, he said there was a 5% chance chemo could work, but he damn near rolled his eyes when he said so). That was almost 5 yrs ago! He got the liver surgery, has had ...