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by kandj
Fri Feb 16, 2018 9:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver question
Replies: 7
Views: 436

Re: Liver question

DH had numerous liver mets at diagnosis. His initial symptoms were some right upper quadrant pain. They were thinking referred pain from appendicitis or pneumonia. Turns out it was neither. His symptoms showed up about 3 days before diagnosis. And obviously those mets were there for a while, not jus...
by kandj
Tue Feb 06, 2018 11:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MD Anderson
Replies: 4
Views: 537

Re: MD Anderson

I am thinking about getting a second opinion at MD Anderson. Does anyone have a specific doctor there they love? Please let me know. Thanks ' I noticed in a previous reply you are stage 4 with numerous mets to the liver. You also said you were going to go to Sloan. Did you meet with Dr. Kemeny? Did...
by kandj
Sun Jan 14, 2018 12:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beansmama is gone.
Replies: 37
Views: 2340

Re: Beansmama is gone.

:(

This is just so sad. I hate cancer.
by kandj
Fri Oct 20, 2017 3:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High Liver ALT and AST
Replies: 6
Views: 787

Re: High Liver ALT and AST

DH has never had his chemo cancelled due to liver functions being high and his are over those numbers regularly. I was told that it was when they see them in the 5-6x the normal values that they worry. He has had the FUDR in his liver pump cancelled due to high ALP though.
by kandj
Mon Oct 16, 2017 9:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Right side pain --mets?
Replies: 13
Views: 1254

Re: Right side pain --mets?

I am so sorry for the bad news. I hope a HIPEC is something they can do for you. I wanted to answer the original question in case this comes up for someone in a search. DH presented with side pain as his only symptom. For him it lead to a diagnosis of colon cancer with 10+mets to his liver (that was...
by kandj
Mon Oct 16, 2017 9:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What did you tell the kids?
Replies: 14
Views: 1308

Re: What did you tell the kids?

Our boys were 5, 7, and 10 when my husband was diagnosed. Unfortunately we had to dive right into the issue because they saw their daddy taken away via ambulance from the doctor's office (he went in on my instance, us thinking it was his gallbladder, then he passed out at the docs and they called an...
by kandj
Wed Oct 11, 2017 8:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GOOD NEWS ON BEANSMAMA
Replies: 122
Views: 11597

Re: GOOD NEWS ON BEANSMAMA

Wonderful news! I am so happy Larry is gone and Bean is kicking ass.
by kandj
Wed Oct 11, 2017 8:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver spot seen on CT...Should I be concerned??
Replies: 32
Views: 3285

Re: Liver spot seen on CT...Should I be concerned??

I am so sorry this is worrying you. It is never easy. My husband had a completely normal CEA when he was diagnosed and he was stage 4 with 10+mets in his liver. So obviously, for some people, CEA is crap at predicting recurrence. I would ask about maybe getting a scan a little earlier than 4 months....
by kandj
Mon Oct 02, 2017 9:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stella (vilca11) went home (more than a month ago)
Replies: 21
Views: 2019

Re: Stella (vilca11) went home (more than a month ago)

I met Stella Last year when she received the bad news at MSKCC that things were progressing. She was a spitfire for sure! She will be missed. Prayers for her family as they deal with this loss.
by kandj
Fri Sep 29, 2017 4:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rooms at MSK Hospital
Replies: 9
Views: 894

Re: Rooms at MSK Hospital

I think we are going to just play it by ear. Hopefully he will have a considerate roommate, I just want him to be able to get some rest but I guess that will come once he gets home. I'm glad to hear everyone has had great experiences there with nurses, etc. because I won't be able to stay in NYC wi...
by kandj
Thu Sep 28, 2017 5:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rooms at MSK Hospital
Replies: 9
Views: 894

Re: Rooms at MSK Hospital

If you do end up doing the private room option, the room might include a sofa for you to sleep on. Mass General Hospital's private rooms have them, so I am considering that for when my husband has his liver surgery. However, at $400/night, we might not be able to swing it. Unless you get the privat...
by kandj
Thu Sep 28, 2017 10:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rooms at MSK Hospital
Replies: 9
Views: 894

Re: Rooms at MSK Hospital

DH has been a patient twice at MSKCC. The first time we requested a room change due to an obnoxious roommate. He kept talking really loud, had tons of visitors, and would leave the TV on all day. Loudly. DH had problems with his pain management due to the epidural not covering about 1 inch of the in...
by kandj
Sat Aug 12, 2017 1:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need a little hope
Replies: 44
Views: 8976

Re: I need a little hope

Well I got my second opinion, pretty much same as the first. Not really sure where to go from here it just feels like with surgery off the table there is no real hope of ever reaching remission. They think the liver tumors are too spread out as well as lymph nodes in multiple regions making the pos...
by kandj
Sat Aug 12, 2017 1:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need a little hope
Replies: 44
Views: 8976

Re: I need a little hope

Well I got my second opinion, pretty much same as the first. Not really sure where to go from here it just feels like with surgery off the table there is no real hope of ever reaching remission. They think the liver tumors are too spread out as well as lymph nodes in multiple regions making the pos...
by kandj
Fri Jul 28, 2017 11:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung met cryoablation tomorrow
Replies: 12
Views: 1733

Re: Lung met cryoablation tomorrow

I prayed a bit late since I just saw this, but God still hears it! Hopefully you are well on your way to NED

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