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by kandj
Mon Jan 14, 2019 5:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation on mets
Replies: 8
Views: 1178

Re: Radiation on mets

DH has SRBT done in December 2017 on 4 liver Mets. He has been a year free of Mets to the liver since then and just had a good scan. So yes, it can be done. I think 4-5 is the max they like to treat though. So it might. Red to be used with other treatments.
by kandj
Mon Jan 14, 2019 5:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK patients with HAI pump - prep for Dr K meeting
Replies: 37
Views: 3925

Re: MSK patients with HAI pump - prep for Dr K meeting

The Helmsleybis great when you are staying more than a few days. They have full kitchens so you don’t have to eat out. The Marriott at 53rd is cheapest in the winter. Ask to get blood work done on Sunday when you have scans (assuming you are having Monday appointments). MAkes Monday mornings easier....
by kandj
Fri Jan 04, 2019 3:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long on Xeloda?
Replies: 2
Views: 665

How long on Xeloda?

DH had a small met removed from lung at the end of November. He was supposed to have an ablation done but they couldn't see the met clear enough so they did a wedge resection instead the next day. I am happier about that, to be honest, as I know it was cut out and done with. Recovery has been very g...
by kandj
Wed Oct 31, 2018 1:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Approach to treatment - any advice appreciated!
Replies: 7
Views: 475

Re: Approach to treatment - any advice appreciated!

Well, I think your first step is to talk to a surgeon locally and see if your mets are resectable. We live down the road from what is frequently ranked the best cancer center in the US and they were not able to help my husband at all. So we sought a second opinion from MSKCC and DH is a patient of D...
by kandj
Thu Oct 04, 2018 6:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA for lung met
Replies: 2
Views: 476

RFA for lung met

DH had a little nodule that had grown last July when they also found 4 more liver mets. Dr. K was less concerned about the nodule so the focus was on the liver Mets. He had 3 weeks of radiation on the lung Mets and several months of chemo (August 2017- May of 2018). The lung nodule disappeared after...
by kandj
Wed Oct 03, 2018 11:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Such a blow!
Replies: 9
Views: 1583

Re: Such a blow!

Have you had DNA testing done for Lynch or other cancer genes? You have either had an incredibly bad run of luck or something else is going on to have 3 cancers and a recurrence (but not a disease spread). I would want testing done ASAP and look into immunotherapy drugs.
by kandj
Tue Aug 14, 2018 10:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brain metastasis
Replies: 17
Views: 8827

Re: Brain metastasis

I am so sorry. I hope they can put forward a treatment plan for him. This is just not fair.
by kandj
Tue Jun 12, 2018 12:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 support?
Replies: 12
Views: 1071

Re: Stage 4 support?

My husband is stage 4, coming up on 3 years in August. He had the HAI pump a few months after diagnosis followed by a massive liver resection and ablation in May of 2016. Had a recurrence in July of 17 and Radiation on 4 mets in Dec '17. He is currently on a 2 month chemo break to wait and see what ...
by kandj
Tue May 15, 2018 4:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Shoulder Pain
Replies: 4
Views: 1050

Re: Shoulder Pain

DH had referred right shoulder pain for about a week before he spiked a temp. It was about 3 weeks after his liver resection. Turned out to be a 7-8cm pyogenic liver abscess. Not great news for him, but we got him in quick enough that they got antibiotics on board and drained it. He had no issues fr...
by kandj
Fri May 11, 2018 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to forum - CEA trending up while on adjuvant chemo
Replies: 14
Views: 1010

Re: New to forum - CEA trending up while on adjuvant chemo

DH had a CEA of <.5 when diagnosed and he was riddled with cancer. It got as high as 10 during chemo (both systemic and via an HAI pump). It did trend up a little (still WNL) during his reoccurrence. Right now it is up a little, but I think that is due to inflammation due to a bacterial infection he...
by kandj
Tue May 08, 2018 12:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and it's EVERYWHERE...what to do now??
Replies: 24
Views: 5652

Re: Just diagnosed and it's EVERYWHERE...what to do now??

I am so sorry! This diagnosis of nothing, just living your normal life to stage 4 cancer is so shocking and scary. We live near MD Anderson but did not get very good answers and responses from them regarding the extent of DH's cancer. We sought out a specialist at Memorial Sloan Kettering in NYC and...
by kandj
Tue May 08, 2018 12:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mystery Sepsis?
Replies: 5
Views: 874

Re: Mystery Sepsis?

...and after over 4 days the culture finally showed anaerobic, gram stain negative rods.... Anyone have mystery sepsis? Yes, I had a mystery sepsis that was eventually identified as Pseudomonas aeruginosa . Originally, they treated me with the standard one-week course of antibiotics designed for gr...
by kandj
Thu May 03, 2018 4:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mystery Sepsis?
Replies: 5
Views: 874

Mystery Sepsis?

DH came down with sudden onset chills and fever late one evening in Early April. Went from fine when he got home from work to shaking uncontrollably 3 hours later. From 10pm to 11pm I took his temp with no sign of fever on the thermometer but he could not stop shaking. His Pulse was up, Resp rate wa...
by kandj
Fri Feb 16, 2018 9:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver question
Replies: 7
Views: 1215

Re: Liver question

DH had numerous liver mets at diagnosis. His initial symptoms were some right upper quadrant pain. They were thinking referred pain from appendicitis or pneumonia. Turns out it was neither. His symptoms showed up about 3 days before diagnosis. And obviously those mets were there for a while, not jus...
by kandj
Tue Feb 06, 2018 11:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MD Anderson
Replies: 4
Views: 1166

Re: MD Anderson

I am thinking about getting a second opinion at MD Anderson. Does anyone have a specific doctor there they love? Please let me know. Thanks ' I noticed in a previous reply you are stage 4 with numerous mets to the liver. You also said you were going to go to Sloan. Did you meet with Dr. Kemeny? Did...

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