Search found 209 matches

Go to advanced search

by kandj
Tue Jun 12, 2018 12:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 support?
Replies: 12
Views: 509

Re: Stage 4 support?

My husband is stage 4, coming up on 3 years in August. He had the HAI pump a few months after diagnosis followed by a massive liver resection and ablation in May of 2016. Had a recurrence in July of 17 and Radiation on 4 mets in Dec '17. He is currently on a 2 month chemo break to wait and see what ...
by kandj
Tue May 15, 2018 4:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Shoulder Pain
Replies: 4
Views: 736

Re: Shoulder Pain

DH had referred right shoulder pain for about a week before he spiked a temp. It was about 3 weeks after his liver resection. Turned out to be a 7-8cm pyogenic liver abscess. Not great news for him, but we got him in quick enough that they got antibiotics on board and drained it. He had no issues fr...
by kandj
Fri May 11, 2018 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to forum - CEA trending up while on adjuvant chemo
Replies: 14
Views: 608

Re: New to forum - CEA trending up while on adjuvant chemo

DH had a CEA of <.5 when diagnosed and he was riddled with cancer. It got as high as 10 during chemo (both systemic and via an HAI pump). It did trend up a little (still WNL) during his reoccurrence. Right now it is up a little, but I think that is due to inflammation due to a bacterial infection he...
by kandj
Tue May 08, 2018 12:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and it's EVERYWHERE...what to do now??
Replies: 24
Views: 2178

Re: Just diagnosed and it's EVERYWHERE...what to do now??

I am so sorry! This diagnosis of nothing, just living your normal life to stage 4 cancer is so shocking and scary. We live near MD Anderson but did not get very good answers and responses from them regarding the extent of DH's cancer. We sought out a specialist at Memorial Sloan Kettering in NYC and...
by kandj
Tue May 08, 2018 12:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mystery Sepsis?
Replies: 5
Views: 682

Re: Mystery Sepsis?

...and after over 4 days the culture finally showed anaerobic, gram stain negative rods.... Anyone have mystery sepsis? Yes, I had a mystery sepsis that was eventually identified as Pseudomonas aeruginosa . Originally, they treated me with the standard one-week course of antibiotics designed for gr...
by kandj
Thu May 03, 2018 4:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mystery Sepsis?
Replies: 5
Views: 682

Mystery Sepsis?

DH came down with sudden onset chills and fever late one evening in Early April. Went from fine when he got home from work to shaking uncontrollably 3 hours later. From 10pm to 11pm I took his temp with no sign of fever on the thermometer but he could not stop shaking. His Pulse was up, Resp rate wa...
by kandj
Fri Feb 16, 2018 9:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver question
Replies: 7
Views: 976

Re: Liver question

DH had numerous liver mets at diagnosis. His initial symptoms were some right upper quadrant pain. They were thinking referred pain from appendicitis or pneumonia. Turns out it was neither. His symptoms showed up about 3 days before diagnosis. And obviously those mets were there for a while, not jus...
by kandj
Tue Feb 06, 2018 11:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MD Anderson
Replies: 4
Views: 897

Re: MD Anderson

I am thinking about getting a second opinion at MD Anderson. Does anyone have a specific doctor there they love? Please let me know. Thanks ' I noticed in a previous reply you are stage 4 with numerous mets to the liver. You also said you were going to go to Sloan. Did you meet with Dr. Kemeny? Did...
by kandj
Sun Jan 14, 2018 12:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beansmama is gone.
Replies: 38
Views: 4247

Re: Beansmama is gone.

:(

This is just so sad. I hate cancer.
by kandj
Fri Oct 20, 2017 3:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High Liver ALT and AST
Replies: 6
Views: 1105

Re: High Liver ALT and AST

DH has never had his chemo cancelled due to liver functions being high and his are over those numbers regularly. I was told that it was when they see them in the 5-6x the normal values that they worry. He has had the FUDR in his liver pump cancelled due to high ALP though.
by kandj
Mon Oct 16, 2017 9:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Right side pain --mets?
Replies: 13
Views: 1649

Re: Right side pain --mets?

I am so sorry for the bad news. I hope a HIPEC is something they can do for you. I wanted to answer the original question in case this comes up for someone in a search. DH presented with side pain as his only symptom. For him it lead to a diagnosis of colon cancer with 10+mets to his liver (that was...
by kandj
Mon Oct 16, 2017 9:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What did you tell the kids?
Replies: 14
Views: 1815

Re: What did you tell the kids?

Our boys were 5, 7, and 10 when my husband was diagnosed. Unfortunately we had to dive right into the issue because they saw their daddy taken away via ambulance from the doctor's office (he went in on my instance, us thinking it was his gallbladder, then he passed out at the docs and they called an...
by kandj
Wed Oct 11, 2017 8:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GOOD NEWS ON BEANSMAMA
Replies: 122
Views: 14794

Re: GOOD NEWS ON BEANSMAMA

Wonderful news! I am so happy Larry is gone and Bean is kicking ass.
by kandj
Wed Oct 11, 2017 8:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver spot seen on CT...Should I be concerned??
Replies: 32
Views: 5930

Re: Liver spot seen on CT...Should I be concerned??

I am so sorry this is worrying you. It is never easy. My husband had a completely normal CEA when he was diagnosed and he was stage 4 with 10+mets in his liver. So obviously, for some people, CEA is crap at predicting recurrence. I would ask about maybe getting a scan a little earlier than 4 months....
by kandj
Mon Oct 02, 2017 9:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stella (vilca11) went home (more than a month ago)
Replies: 21
Views: 2697

Re: Stella (vilca11) went home (more than a month ago)

I met Stella Last year when she received the bad news at MSKCC that things were progressing. She was a spitfire for sure! She will be missed. Prayers for her family as they deal with this loss.

Go to advanced search