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by kandj
Fri Dec 20, 2019 7:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Memorial Sloan Kettering Hotel Option Question
Replies: 10
Views: 1153

Re: Memorial Sloan Kettering Hotel Option Question

We usually bounce between the Courtyard on 3rd at 53rd or the Helmsely Medical tower. the Helmsely is 273 a night for the cheapest room but there are no taxes or fees since it is a non profit. You just pay the 273. The studio has a kitchen as well, so nice for cooking or even buying stuff you can ea...
by kandj
Fri Nov 29, 2019 1:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 43
Views: 5218

Re: Please help, input needed

I am so sorry you are going through this. I would like to echo previous posters though, the google numbers do not reflect what we see in actual practice. My DH was diagnosed at 36 with stage 4 cancer that had spread to his liver. He has had a few recurrences, and further spread to his lungs and adre...
by kandj
Fri Nov 15, 2019 12:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad symptoms every 5 days
Replies: 8
Views: 797

Re: Bad symptoms every 5 days

I had the flu shot. I don't think it's any type of flu. the flu shot only covers flu a and b. the "stomach flu" is not an actual flu virus, just called that because of how virulent it is. Gastroenteritis can last a few weeks, but usually the acute stages (vomiting, nausea, fever, etc) las...
by kandj
Tue Nov 05, 2019 11:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SCAN QUESTIONS
Replies: 9
Views: 784

Re: SCAN QUESTIONS

Wish we could do this. However, we have to travel and get the scans within 18 hours of the oncologist consult the following day. The reports never get released until at least 48 hours after the scan and that's when they are on weekdays. Because we come from out of town and my husband's schedule is ...
by kandj
Fri Oct 18, 2019 2:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question- how do you count years of survival?
Replies: 22
Views: 1410

Re: Question- how do you count years of survival?

I have always looked at Overall Survival rates being from day diagnosed. So for DH he has passed the 4yr OS mark. For NED I count the day no scans or tests show cancer. So for his current bout, it would be NED since Nov. 2018. He has been NED before twice, with the clock restarting with each new met...
by kandj
Sun Oct 06, 2019 1:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long oxilaplatin can be taken?
Replies: 6
Views: 937

Re: How long oxilaplatin can be taken?

My DH didn't do Oxaliplatin with Xeloda, but he did have Folfox and had 13 rounds of oxi( I think! may have been 11). Had to stop when he started having trouble swallowing and was choking due to neuropathy in his throat. edited to add that the only residual side effects a few year later is some mino...
by kandj
Sun Oct 06, 2019 1:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In hospital.
Replies: 8
Views: 1141

Re: In hospital.

So sorry you are ill but so glad they caught it early and you listened to your body! DH just got out of the hospital after a nasty bout of pneumonia. Hope you can get some rest and be out soon to recuperate at home.
by kandj
Sun Sep 15, 2019 11:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ...progression...
Replies: 27
Views: 3873

Re: ...progression...

I'm sure I know but can't quite remember but what kind of side effects does one have after HAI placement? What are the chances that they will resect (the colon) during that surgery? To be honest, the actual side effects of the pump chemo are not noticeable. You are also on systemic at the same time...
by kandj
Thu Sep 12, 2019 8:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer households should not have to deal with lice
Replies: 13
Views: 855

Re: Cancer households should not have to deal with lice

Ugh. I feel you. my oldest caught lice on the bus. The kids sit 3 across (which seems insane for junior high kids!) and their heads are so close. It was my first experience with lice on my kids. I was tempted to shave everyones heads that day. I didn't go nuts though with the cleaning, as I have rea...
by kandj
Wed Sep 11, 2019 3:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ...progression...
Replies: 27
Views: 3873

Re: ...progression...

With the amount of mets your husband has, I would think the possibility of liver resection gives him the best chance at a cure. HAI is the way to do that. I would not do SIRT until you have met with someone about HAI (preferably at MSKCC if you can swing it)
by kandj
Mon Sep 09, 2019 9:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment at MSK
Replies: 25
Views: 2358

Re: Treatment at MSK

Amazing that they were able to remove so many mets from your husband's liver!! It sounds like their surgeons are extremely competent. Fingers crossed over here!!! [/quote] It was amazing. I think Dr. DeMatteo (who is no longer at MSKCC, he is the chair of surgery at the med school at Univ of Penn n...
by kandj
Mon Sep 09, 2019 8:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment at MSK
Replies: 25
Views: 2358

Re: Treatment at MSK

We called MSK after our second opinion at MD Anderson ended in a big fat no. Gathering the paperwork was a bit of a hassle. I had to hound a few offices to send the info over. After that got sent over, they reviewed it and said she would see DH. ... Hi kandj, Could you clarify " ... after our ...
by kandj
Sat Sep 07, 2019 1:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment at MSK
Replies: 25
Views: 2358

Re: Treatment at MSK

Hi everyone, I would love to know more about anyone's experiences at MSK and specifically with Dr Kemeny! Those of you who have/had her as your doctor, how did you manage that? Was it difficult to become her patient? We called MSK after our second opinion at MD Anderson ended in a big fat no. Gathe...
by kandj
Sat Aug 24, 2019 10:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here... anyone with multiple liver mets surgery experience ?
Replies: 2
Views: 424

Re: New here... anyone with multiple liver mets surgery experience ?

My husband was diagnosed 4 years ago with primary in his sigmoid colon and many, many lesions in his liver. No lobe was untouched. We were given a fairly bleak prognosis by a surgeon at MD anderson. We sought a second opinion at Memorial Sloan Kettering in NYC and my husband was a candidate for the ...
by kandj
Thu Aug 22, 2019 6:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung metastasis - advice and hope needed
Replies: 9
Views: 1205

Re: Lung metastasis - advice and hope needed

Dr. Kemeny likes to use Dr. Park for surgeries at MSK and Dr. Solomon for IR stuff (ablation). My Dh had a lung met removed last November. They attempted to ablate it but it was too small to find and due to it being at the bottom of his lung, hard to locate and ablate. The did a lung resection the n...

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