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by kandj
Thu Jul 09, 2020 12:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Girlfriend wants to come to appointments
Replies: 12
Views: 794

Re: Girlfriend wants to come to appointments

You do what you feel is best. If you are concerned about the need to put on a brave face, then tell her that. Whatever you do, be honest. I like to go to any big appointments my husband has because I always have questions. He rarely asks any and I tend to come up with a lot. I had originally gone to...
by kandj
Fri Jun 26, 2020 6:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dad diagnosed last week, stage iv with innumerable mets
Replies: 4
Views: 687

Re: Dad diagnosed last week, stage iv with innumerable mets

I am sorry you are here, but welcome you! My husband also had innumerable mets to his colon (but no ascites). After getting a bad review of possible surgery from a surgeon at MD Anderson we sought out Dr. Nancy Kemeny at Memorial Sloan Kettering. MSK is in NYC, which I know with all that is going on...
by kandj
Wed Jun 17, 2020 10:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dr. K patients-what’s the plan?
Replies: 4
Views: 1071

Re: Dr. K patients-what’s the plan?

I am so grateful for this thread, Kathleen! Greetings for Joe! My scans got rescheduled from April to June 21/22. I had last scans in November... So weird... Additionally, my husband got furloughed and only God knows, how long we will keep the insurance, and when he gets another job with decent ben...
by kandj
Wed Jun 17, 2020 10:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 82
Views: 22622

Re: Please help, input needed

Ugh, how do people do this? This is day 6 after my second infusion and I'm still puking and nauseated. I have to work if I don't want to be homeless and it's just so hard. I emailed the doctor to see if we can switch up the meds somehow so mornings aren't so horrible. So my husband handled the firs...
by kandj
Sat May 30, 2020 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dr. K patients-what’s the plan?
Replies: 4
Views: 1071

Re: Dr. K patients-what’s the plan?

Last week they called to ask me to book my scans locally and then have a telemedicine conference with Dr K. I’m in active chemo treatment right now, and I wish I felt better about the coordination between MSK and my local center, Northwestern. I think things will be ok, but I will feel a lot better...
by kandj
Thu May 28, 2020 6:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dr. K patients-what’s the plan?
Replies: 4
Views: 1071

Dr. K patients-what’s the plan?

Just curious what all of you Dr. K patients are hearing about your appointments and scans. We just heard they may not be in clinic by mid June which is DH’s rescheduled appt time. He last saw her March 3rd. He’s almost 3 months post lung resection and adrenal ablation. He got orders to get local sca...
by kandj
Thu May 28, 2020 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver lesions
Replies: 14
Views: 3161

Re: Liver lesions

Karen, I hope your surgeries went well and were uneventful. I’m sorry you are having to do all of this during the Covid Crisis. :(
by kandj
Tue May 19, 2020 1:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK friendly lodging in NYC
Replies: 8
Views: 1141

Re: MSK friendly lodging in NYC

Oh, and there is also the Hope Lodge. That is free but can be hard to get into. If your friend is having trouble affording accommodation, please encourage them to reach out to an MSKCC social worker. I have heard from people in the waiting room how wonderful they are at helping with lodging, sometim...
by kandj
Tue May 19, 2020 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK friendly lodging in NYC
Replies: 8
Views: 1141

Re: MSK friendly lodging in NYC

It really depends on what time of year you go. The courtyard on 3rd and 53rd is fairly reasonable most the year. Sometimes in the summer it is stupid expensive. The Residence Inn on 48th and Lex is usually a good deal. There is a kitchenette with fullsize fridge and they serve a hot breakfast. Again...
by kandj
Tue May 19, 2020 1:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung mets - Coughing up Material ?
Replies: 2
Views: 937

Re: Lung mets - Coughing up Material ?

It sounds like a mucous plug. DH had a tumor semi-blocking the lower lung on the right side and you could see the mucous plugging on the CT scan. It gets impacted and gets pretty solid. he coughed up some after having pneumonia and it was pretty gross. Similar in color to what you said and had some ...
by kandj
Tue May 19, 2020 1:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer in a lymph node
Replies: 3
Views: 929

Re: Colon cancer in a lymph node

DH has had lymph nodes enlarged for cancerous reasons (a few in his lungs for a lung recurrence, some near the original location when he was diagnosed) and for non cancerous reasons (he had one in his groin enlarged for unknown reasons. It was not cancer though, it went away on its own. My DS (15) h...
by kandj
Sun May 03, 2020 12:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 344
Views: 73412

Re: My CRC with liver mets journey

My DH had a lot of the same joint pain after being on chemo a while, Probably about 2 yrs into it. He saw a rheumotologist that works in the same office as his local oncologist and did all the RA testing. Some of it was elevated, and she prescribed some drugs (diclofenac and hydroxychlorquine). Both...
by kandj
Sun May 03, 2020 12:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT found small lung nodules
Replies: 6
Views: 1245

Re: CT found small lung nodules

4mm is so small, 2mm is almost unheard of to see on a CT scan. Did you have scan of your lungs done when you were first diagnosed to check for a baseline? DH does have on nodule, 3mm, that has always been in the same spot, always there, never changed. But then he had a new one. And it was also 3mm. ...
by kandj
Tue Apr 21, 2020 9:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SBRT
Replies: 7
Views: 1124

Re: SBRT

Also not lungs, but DH had SBRT done on his liver in Dec. 2017. He was tired, but that seemed to be his only real issue. He had 5 sessions a week for 3 weeks.
by kandj
Thu Apr 16, 2020 11:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nearly 12 years, Tele-visit with Onc, CEA up
Replies: 12
Views: 2685

Re: Nearly 12 years, Tele-visit with Onc, CEA up

Im sorry for the not great news. Glad your brain is still cancer free though! My DH had an ablation done on his adrenal gland at the end of February. We haven't had any follow up scans (should have one here at the end of April but since we travel to NYC for them at MSKCC from Texas, that is not happ...

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