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by kandj
Fri Mar 13, 2020 10:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: People who know radiology Lung Lobe QUESTION
Replies: 6
Views: 569

Re: People who know radiology Lung Lobe QUESTION

I just got a message from Dr. Kemeny about the scan concern/question I had. She says "nothing to be concerned about." GOOD! Well that must be a relief! DH has one that was mentioned over and over again as lower right lobe. Then once it said either upper or left, can’t remember. Freaked me...
by kandj
Thu Mar 12, 2020 10:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: People who know radiology Lung Lobe QUESTION
Replies: 6
Views: 569

Re: People who know radiology Lung Lobe QUESTION

Why don't you guys want to go to the scans? It could be an error, could be something seen and not noted in the reports. Best to send a message and ask if you are concerned.
by kandj
Sat Mar 07, 2020 5:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clot-Busting in Port?
Replies: 6
Views: 560

Re: Clot-Busting in Port?

DH has had it happen a few time with no blood return. Even with the walking, laid down, tilted back, etc. they have had to do whatever the injection they do to unblock it before. It takes about 30 mins or so to work. I assume it is a major type of heparin. He’s had his port for almost 5 yrs.
by kandj
Thu Feb 13, 2020 4:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Small hiatal hernia
Replies: 4
Views: 384

Re: Small hiatal hernia

Lots of people get hernias after abdominal surgery. As long as there isn't intense pain, fever, etc with it they just leave it alone. DH has had one show up on scans for the last few years. They always note it and also note small, non obstructed bowel loop through it. It is pretty low on the surgica...
by kandj
Thu Feb 13, 2020 8:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Never able to be cured....I need u guys more than ever
Replies: 17
Views: 1725

Re: Never able to be cured....I need u guys more than ever

I emphatically agree with juliej! My husband had well over 15 mets in his liver. Well scattered and in every lobe. The surgeon at MDAnderson basically told us to keep doing chemo until chemo didn't work and he died. Such bullshit. So we went to MSKCC (MDA was a 40 min trip from our house, so they we...
by kandj
Fri Feb 07, 2020 10:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea on the rise
Replies: 67
Views: 4538

Re: Cea on the rise

Ok, so that is good he’s been getting the FUDR. That should keep any of the Mets in the liver from getting bigger (hopefully shrinking them. And yeah, it might raise his CEA a little due to inflammation but we are talking a few points, not thousands. He will get new blood work before chemo so make s...
by kandj
Thu Feb 06, 2020 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Seizure - New to Colon Talk
Replies: 9
Views: 1253

Re: Seizure - New to Colon Talk

I agree on the orthostatic hypotension. My Dh had a syncope episode the day he was diagnosed and a few months ago in urgent care when he had pneumonia. Both cases sound exactly like what you are describing. I didn't witness the first one (I was downstairs with the kids while he was seeing his doctor...
by kandj
Thu Feb 06, 2020 3:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hemoclip/ MRI question
Replies: 2
Views: 712

Re: Hemoclip/ MRI question

Man, I have no idea if DH had those or not! I will go look at his post surgical report and see. In the mean time, I did find this info sheet on them that is interesting. It says most fall out 2-3 weeks after surgery. And you may not notice them in your stool. I guess a CT to see if they are still th...
by kandj
Thu Feb 06, 2020 3:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea on the rise
Replies: 67
Views: 4538

Re: Cea on the rise

Remind me, is he working toward a liver resection? He's working toward anything that will keep him alive and kicking. These HAI doc suggested a PET and check in for systemic. Ok, sorry if I am getting this wrong, but let me recap and tell me if I am right. He has metastatic spread to the liver and ...
by kandj
Wed Feb 05, 2020 3:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOR REFERENCE - treatment of adrenal metastases
Replies: 17
Views: 1438

Re: FOR REFERENCE - treatment of adrenal metastases

I'm glad your DH is getting his adrenalectomy! My DH has one on his right side that they are going to do an ablation on (it is fairly small, about 1.5cm I think). I have read good things about ablation on them. DH had SBRT on 4 liver mets in Nov2017 and has had good results so far. His radiation onc...
by kandj
Tue Feb 04, 2020 1:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea on the rise
Replies: 67
Views: 4538

Re: Cea on the rise

What did the doctor say? DH had a non detectable level of CEA when he was diagnosed (and riddled with cancer). As he did chemo and pump chemo it did rise, but I think the highest for him was about 11. Ironically, his CEA is lowest when he has active tumors. Go figure. And yes, your DH's liver enzyme...
by kandj
Tue Jan 21, 2020 1:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA -Lung Tumour
Replies: 14
Views: 1724

Re: RFA -Lung Tumour

Dh had an RFA procedure done in 2018. They ended up aborting the procedure as the IR doctor felt he could not visualize the tumor well enough and didn't want to kill health tissue. They ended up doing a VATS the next day. Other than them not being able to see the tumor well enough (it was small, abo...
by kandj
Fri Dec 20, 2019 7:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Memorial Sloan Kettering Hotel Option Question
Replies: 10
Views: 1470

Re: Memorial Sloan Kettering Hotel Option Question

We usually bounce between the Courtyard on 3rd at 53rd or the Helmsely Medical tower. the Helmsely is 273 a night for the cheapest room but there are no taxes or fees since it is a non profit. You just pay the 273. The studio has a kitchen as well, so nice for cooking or even buying stuff you can ea...
by kandj
Fri Nov 29, 2019 1:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 46
Views: 6836

Re: Please help, input needed

I am so sorry you are going through this. I would like to echo previous posters though, the google numbers do not reflect what we see in actual practice. My DH was diagnosed at 36 with stage 4 cancer that had spread to his liver. He has had a few recurrences, and further spread to his lungs and adre...

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