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by kandj
Tue Nov 05, 2019 11:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SCAN QUESTIONS
Replies: 9
Views: 428

Re: SCAN QUESTIONS

Wish we could do this. However, we have to travel and get the scans within 18 hours of the oncologist consult the following day. The reports never get released until at least 48 hours after the scan and that's when they are on weekdays. Because we come from out of town and my husband's schedule is ...
by kandj
Fri Oct 18, 2019 2:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question- how do you count years of survival?
Replies: 22
Views: 1033

Re: Question- how do you count years of survival?

I have always looked at Overall Survival rates being from day diagnosed. So for DH he has passed the 4yr OS mark. For NED I count the day no scans or tests show cancer. So for his current bout, it would be NED since Nov. 2018. He has been NED before twice, with the clock restarting with each new met...
by kandj
Sun Oct 06, 2019 1:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long oxilaplatin can be taken?
Replies: 6
Views: 788

Re: How long oxilaplatin can be taken?

My DH didn't do Oxaliplatin with Xeloda, but he did have Folfox and had 13 rounds of oxi( I think! may have been 11). Had to stop when he started having trouble swallowing and was choking due to neuropathy in his throat. edited to add that the only residual side effects a few year later is some mino...
by kandj
Sun Oct 06, 2019 1:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: In hospital.
Replies: 8
Views: 947

Re: In hospital.

So sorry you are ill but so glad they caught it early and you listened to your body! DH just got out of the hospital after a nasty bout of pneumonia. Hope you can get some rest and be out soon to recuperate at home.
by kandj
Sun Sep 15, 2019 11:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ...progression...
Replies: 27
Views: 3587

Re: ...progression...

I'm sure I know but can't quite remember but what kind of side effects does one have after HAI placement? What are the chances that they will resect (the colon) during that surgery? To be honest, the actual side effects of the pump chemo are not noticeable. You are also on systemic at the same time...
by kandj
Thu Sep 12, 2019 8:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer households should not have to deal with lice
Replies: 13
Views: 735

Re: Cancer households should not have to deal with lice

Ugh. I feel you. my oldest caught lice on the bus. The kids sit 3 across (which seems insane for junior high kids!) and their heads are so close. It was my first experience with lice on my kids. I was tempted to shave everyones heads that day. I didn't go nuts though with the cleaning, as I have rea...
by kandj
Wed Sep 11, 2019 3:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ...progression...
Replies: 27
Views: 3587

Re: ...progression...

With the amount of mets your husband has, I would think the possibility of liver resection gives him the best chance at a cure. HAI is the way to do that. I would not do SIRT until you have met with someone about HAI (preferably at MSKCC if you can swing it)
by kandj
Mon Sep 09, 2019 9:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment at MSK
Replies: 25
Views: 2030

Re: Treatment at MSK

Amazing that they were able to remove so many mets from your husband's liver!! It sounds like their surgeons are extremely competent. Fingers crossed over here!!! [/quote] It was amazing. I think Dr. DeMatteo (who is no longer at MSKCC, he is the chair of surgery at the med school at Univ of Penn n...
by kandj
Mon Sep 09, 2019 8:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment at MSK
Replies: 25
Views: 2030

Re: Treatment at MSK

We called MSK after our second opinion at MD Anderson ended in a big fat no. Gathering the paperwork was a bit of a hassle. I had to hound a few offices to send the info over. After that got sent over, they reviewed it and said she would see DH. ... Hi kandj, Could you clarify " ... after our ...
by kandj
Sat Sep 07, 2019 1:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment at MSK
Replies: 25
Views: 2030

Re: Treatment at MSK

Hi everyone, I would love to know more about anyone's experiences at MSK and specifically with Dr Kemeny! Those of you who have/had her as your doctor, how did you manage that? Was it difficult to become her patient? We called MSK after our second opinion at MD Anderson ended in a big fat no. Gathe...
by kandj
Sat Aug 24, 2019 10:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here... anyone with multiple liver mets surgery experience ?
Replies: 2
Views: 375

Re: New here... anyone with multiple liver mets surgery experience ?

My husband was diagnosed 4 years ago with primary in his sigmoid colon and many, many lesions in his liver. No lobe was untouched. We were given a fairly bleak prognosis by a surgeon at MD anderson. We sought a second opinion at Memorial Sloan Kettering in NYC and my husband was a candidate for the ...
by kandj
Thu Aug 22, 2019 6:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung metastasis - advice and hope needed
Replies: 9
Views: 1111

Re: Lung metastasis - advice and hope needed

Dr. Kemeny likes to use Dr. Park for surgeries at MSK and Dr. Solomon for IR stuff (ablation). My Dh had a lung met removed last November. They attempted to ablate it but it was too small to find and due to it being at the bottom of his lung, hard to locate and ablate. The did a lung resection the n...
by kandj
Tue Aug 13, 2019 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How crucial is the HAI pump?
Replies: 42
Views: 2677

Re: How crucial is the HAI pump?

So question about the HAI pump... can you still receive your regular chemo treatments while you have the pump? Could you have colon or rectal surgery while the pump is installed? And I read on another thread that you can't get an HAI pump if you've undergone radiation? Is this true? If so, why? As ...
by kandj
Tue Aug 06, 2019 1:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 282
Views: 41234

Re: My CRC with liver mets journey

Dr Kemeny gave me a hard no when I inquired about Accutane, so let’s hope this works!! That is probably wise. Accutane is nasty drug when you are perfectly healthy with no ongoing treatments. Hopefully the cream your derm comes up with will help as well. Keep chugging water. It does wonders for the...
by kandj
Tue Aug 06, 2019 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How crucial is the HAI pump?
Replies: 42
Views: 2677

Re: How crucial is the HAI pump?

If you think you have any interest in pursuing this at all, I would go right now....If you are inoperable and want to pursue, do it ASAP. There's another reason for doing it ASAP , and that is that the company that makes the main pump used at MSKCC has decided to halt production of that pump, and t...

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