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by kandj
Thu Sep 24, 2020 5:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood clots and low oxygen and hospice OH MY
Replies: 43
Views: 3797

Re: Blood clots and low oxygen and hospice OH MY

I am so sorry. We will keep your entire family in our prayers.
by kandj
Fri Sep 18, 2020 8:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood clots and low oxygen and hospice OH MY
Replies: 43
Views: 3797

Re: Blood clots and low oxygen and hospice OH MY

I am so sorry. The crabiness with pain. I hope your kiddos have good memories to offset some of the bad near the end. :cry:
by kandj
Thu Sep 03, 2020 11:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood clots and low oxygen and hospice OH MY
Replies: 43
Views: 3797

Re: Blood clots and low oxygen and hospice OH MY

I am so sorry. This cancer is so brutal and unrelenting sometimes. I will pray for your husband and also pray for your strength as you navigate this.
by kandj
Thu Sep 03, 2020 11:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA and bloodwork
Replies: 4
Views: 689

Re: CEA and bloodwork

My husbands CEA was less than .5 when he was diagnosed, and his liver was riddled with mets. The highest it ever was was 10.5 and that was when there were no active tumors and he was on chemo, but nearing the end of a 6 month cycle.
by kandj
Tue Aug 18, 2020 8:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: another HAI pump question and a short rant...
Replies: 15
Views: 2293

Re: another HAI pump question and a short rant...

Another one here that has a husband who would not be here without Dr. K! He just hit his 5yr cancerversary. We are still battling things, but he is here to battle them and he's living life. As for DH, he has dozens of tumors as well. Every lobe was affected. He had HAI chemo for 6 months and then su...
by kandj
Fri Aug 07, 2020 2:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to go about getting 2nd opinion or advice
Replies: 2
Views: 433

Re: How to go about getting 2nd opinion or advice

All of what Julie Said! My DH was told by a liver surgeon at MD Anderson that he wasn't nor would he ever be a candidate for surgery (well, he said there was a 5% chance chemo could work, but he damn near rolled his eyes when he said so). That was almost 5 yrs ago! He got the liver surgery, has had ...
by kandj
Thu Jul 09, 2020 12:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Girlfriend wants to come to appointments
Replies: 13
Views: 1551

Re: Girlfriend wants to come to appointments

You do what you feel is best. If you are concerned about the need to put on a brave face, then tell her that. Whatever you do, be honest. I like to go to any big appointments my husband has because I always have questions. He rarely asks any and I tend to come up with a lot. I had originally gone to...
by kandj
Fri Jun 26, 2020 6:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dad diagnosed last week, stage iv with innumerable mets
Replies: 4
Views: 984

Re: Dad diagnosed last week, stage iv with innumerable mets

I am sorry you are here, but welcome you! My husband also had innumerable mets to his colon (but no ascites). After getting a bad review of possible surgery from a surgeon at MD Anderson we sought out Dr. Nancy Kemeny at Memorial Sloan Kettering. MSK is in NYC, which I know with all that is going on...
by kandj
Wed Jun 17, 2020 10:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dr. K patients-what’s the plan?
Replies: 4
Views: 1272

Re: Dr. K patients-what’s the plan?

I am so grateful for this thread, Kathleen! Greetings for Joe! My scans got rescheduled from April to June 21/22. I had last scans in November... So weird... Additionally, my husband got furloughed and only God knows, how long we will keep the insurance, and when he gets another job with decent ben...
by kandj
Wed Jun 17, 2020 10:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 82
Views: 23592

Re: Please help, input needed

Ugh, how do people do this? This is day 6 after my second infusion and I'm still puking and nauseated. I have to work if I don't want to be homeless and it's just so hard. I emailed the doctor to see if we can switch up the meds somehow so mornings aren't so horrible. So my husband handled the firs...
by kandj
Sat May 30, 2020 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dr. K patients-what’s the plan?
Replies: 4
Views: 1272

Re: Dr. K patients-what’s the plan?

Last week they called to ask me to book my scans locally and then have a telemedicine conference with Dr K. I’m in active chemo treatment right now, and I wish I felt better about the coordination between MSK and my local center, Northwestern. I think things will be ok, but I will feel a lot better...
by kandj
Thu May 28, 2020 6:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dr. K patients-what’s the plan?
Replies: 4
Views: 1272

Dr. K patients-what’s the plan?

Just curious what all of you Dr. K patients are hearing about your appointments and scans. We just heard they may not be in clinic by mid June which is DH’s rescheduled appt time. He last saw her March 3rd. He’s almost 3 months post lung resection and adrenal ablation. He got orders to get local sca...
by kandj
Thu May 28, 2020 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver lesions
Replies: 14
Views: 3399

Re: Liver lesions

Karen, I hope your surgeries went well and were uneventful. I’m sorry you are having to do all of this during the Covid Crisis. :(
by kandj
Tue May 19, 2020 1:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK friendly lodging in NYC
Replies: 8
Views: 1338

Re: MSK friendly lodging in NYC

Oh, and there is also the Hope Lodge. That is free but can be hard to get into. If your friend is having trouble affording accommodation, please encourage them to reach out to an MSKCC social worker. I have heard from people in the waiting room how wonderful they are at helping with lodging, sometim...
by kandj
Tue May 19, 2020 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK friendly lodging in NYC
Replies: 8
Views: 1338

Re: MSK friendly lodging in NYC

It really depends on what time of year you go. The courtyard on 3rd and 53rd is fairly reasonable most the year. Sometimes in the summer it is stupid expensive. The Residence Inn on 48th and Lex is usually a good deal. There is a kitchenette with fullsize fridge and they serve a hot breakfast. Again...

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