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by kandj
Thu Jan 14, 2021 8:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 70
Views: 7552

Re: Covid 19 vaccine

Dh got the pfizer shot last week. I know everyone has their own opinions (some informed, some not so much) about vaccinations but I am all for them. Our three boys have also or are going to receive the HPV vaccine (youngest will get his in 2 yrs). Anything we can do to keep from infecting others or ...
by kandj
Wed Dec 30, 2020 6:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin Dosage - Call Off
Replies: 24
Views: 2174

Re: Oxaliplatin Dosage - Call Off

My husband is the zebra apparently. He had 11 doses of FOlFOX with he Oxaliplatin before he had neuropathy in his throat that was causing swallowing and choking issues. He went off that, then had a recurrence a year later and got another 6 rounds of FOLFOX before they dropped the Oxailplatin. His on...
by kandj
Wed Dec 30, 2020 5:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's come back - :(
Replies: 25
Views: 3359

Re: It's come back - :(

Thanks for all your replies! I really appreciate it. Have today received a new plan of attack - adrenal gland is going to be removed prior to chemo. The endocrinologist now involved said there is a small chance it’s actually a benign growth. She can remove it by keyhole surgery and then we can get ...
by kandj
Tue Dec 22, 2020 1:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 70
Views: 7552

Re: Covid 19 vaccine

I was at MSK today and the nurse told me they haven’t gotten them yet - they will first go to healthcare workers treating Covid patients. Last week, my Northwestern nurses had heard nothing about timing etc. That is so weird. My husband was there the same day as you and he said the MSK vaccine clin...
by kandj
Tue Dec 22, 2020 1:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's come back - :(
Replies: 25
Views: 3359

Re: It's come back - :(

I am so sorry you have had to join the shitty Stage 4 group. My DH has also has a met on his adrenal gland. There are a few others here. His has been a pin to deal with. I highly suggest having it taken out surgically if that is an option for you. DH had his treated with ablation, that had to be sto...
by kandj
Sun Sep 27, 2020 11:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid delays
Replies: 7
Views: 1152

Re: Covid delays

That is an insane wait time for CTs. Here in Texas we are staying consistent in our current wave (although not as bad) but DH has been able to make all his CT appts no problem. He has had to be tested before the ones in NYC though, makes sense coming from Texas though. I am sorry, this isn't fair to...
by kandj
Sun Sep 27, 2020 11:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 375
Views: 93627

Re: My CRC with liver mets journey

Sent an email to MSK with about four questions and they answered only one of them - confirming when to schedule my scan. Getting frustrated. I don't want my local doctor to be making calls about my treatment by default because I can't get Dr K to address whether I should reinstate irinotecan my nex...
by kandj
Thu Sep 24, 2020 5:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood clots and low oxygen and hospice OH MY
Replies: 44
Views: 6828

Re: Blood clots and low oxygen and hospice OH MY

I am so sorry. We will keep your entire family in our prayers.
by kandj
Fri Sep 18, 2020 8:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood clots and low oxygen and hospice OH MY
Replies: 44
Views: 6828

Re: Blood clots and low oxygen and hospice OH MY

I am so sorry. The crabiness with pain. I hope your kiddos have good memories to offset some of the bad near the end. :cry:
by kandj
Thu Sep 03, 2020 11:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood clots and low oxygen and hospice OH MY
Replies: 44
Views: 6828

Re: Blood clots and low oxygen and hospice OH MY

I am so sorry. This cancer is so brutal and unrelenting sometimes. I will pray for your husband and also pray for your strength as you navigate this.
by kandj
Thu Sep 03, 2020 11:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA and bloodwork
Replies: 4
Views: 1262

Re: CEA and bloodwork

My husbands CEA was less than .5 when he was diagnosed, and his liver was riddled with mets. The highest it ever was was 10.5 and that was when there were no active tumors and he was on chemo, but nearing the end of a 6 month cycle.
by kandj
Tue Aug 18, 2020 8:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: another HAI pump question and a short rant...
Replies: 15
Views: 2943

Re: another HAI pump question and a short rant...

Another one here that has a husband who would not be here without Dr. K! He just hit his 5yr cancerversary. We are still battling things, but he is here to battle them and he's living life. As for DH, he has dozens of tumors as well. Every lobe was affected. He had HAI chemo for 6 months and then su...
by kandj
Fri Aug 07, 2020 2:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to go about getting 2nd opinion or advice
Replies: 2
Views: 749

Re: How to go about getting 2nd opinion or advice

All of what Julie Said! My DH was told by a liver surgeon at MD Anderson that he wasn't nor would he ever be a candidate for surgery (well, he said there was a 5% chance chemo could work, but he damn near rolled his eyes when he said so). That was almost 5 yrs ago! He got the liver surgery, has had ...
by kandj
Thu Jul 09, 2020 12:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Girlfriend wants to come to appointments
Replies: 13
Views: 2078

Re: Girlfriend wants to come to appointments

You do what you feel is best. If you are concerned about the need to put on a brave face, then tell her that. Whatever you do, be honest. I like to go to any big appointments my husband has because I always have questions. He rarely asks any and I tend to come up with a lot. I had originally gone to...
by kandj
Fri Jun 26, 2020 6:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dad diagnosed last week, stage iv with innumerable mets
Replies: 4
Views: 1230

Re: Dad diagnosed last week, stage iv with innumerable mets

I am sorry you are here, but welcome you! My husband also had innumerable mets to his colon (but no ascites). After getting a bad review of possible surgery from a surgeon at MD Anderson we sought out Dr. Nancy Kemeny at Memorial Sloan Kettering. MSK is in NYC, which I know with all that is going on...

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