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by kandj
Wed May 01, 2019 9:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared with Questions
Replies: 8
Views: 910

Re: Scared with Questions

First off, take a deep breath. And then another one. You are making giant leaps here. My first assumption would not be cancer, it would be hemorrhoids. And no, the ED would not schedule your for a Colonoscopy or scans. You are not presenting with an emergency. The ED gets you stable and either admit...
by kandj
Tue Apr 30, 2019 7:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mild ascites and jaundice - cancer spread to liver?
Replies: 17
Views: 1385

Re: Mild ascites and jaundice - cancer spread to liver?

FWIW, my husbands liver was riddled with tumors in just about every lobe (11+ tumors) and he had no ascites. His bilirubin was slightly up, I think like a 1.5 but all his other liver function numbers were elevated (he was stage 4 at diagnosis, so nothing to previously compare to). If you are still c...
by kandj
Mon Apr 29, 2019 8:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OFF TOPIC: Specialists in silos, patient suffering as result
Replies: 17
Views: 1049

Re: OFF TOPIC: Specialists in silos, patient suffering as result

If this person is on Medicaid the. They would most likely qualify for a social worker as well. I would contact the local hospital they frequent the most and speak to someone in patient advocacy and inquire about a social worker for adult care.
by kandj
Mon Apr 29, 2019 8:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo pushed back twice, so I'm doing another half.
Replies: 13
Views: 763

Re: Chemo pushed back twice, so I'm doing another half.

You are amazing. I hope you danced at the finish line. Susan I looked at my finish line photos...I looked...intense. :lol: I ran intervals for most of the race, since I haven't done anything resembling training in quite some time. But as soon as I turned the corner and saw the finish line, i picked...
by kandj
Mon Apr 29, 2019 8:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 116
Views: 15428

Re: My CRC with liver mets journey

It makes me teary thinking about it. They have good hearts and are growing up to be such good kids. Sounds like a reflection of their home life. I am sorry you have been feeling so shitty. I don’t know if this will help, but I found DH always seemed to feel better post chemo if he got a bag or two ...
by kandj
Wed Apr 24, 2019 1:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV, what happens after surgery?
Replies: 21
Views: 1067

Re: Stage IV, what happens after surgery?

DH had chemo before and after his liver resection. 6 months of adjuvent after the liver resection. He then had more chemo when he had a recurrence. He had radiation done, and then more chemo. And now he had a lung met removed. Chemo before and after that surgery too. Honestly, if I were you I would...
by kandj
Wed Apr 24, 2019 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does your Medtronic pump TICK?
Replies: 7
Views: 572

Re: Does your Medtronic pump TICK?

Ok, this might not make you laugh, but you saying something about the alarms made me think of when a smoke detector in the house is low on batteries and it gives that annoying beep, which always seems to happen at 2am. I just imagine the alarm going off at 2 am like a smoke detector! Did they say if...
by kandj
Wed Apr 24, 2019 11:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV, what happens after surgery?
Replies: 21
Views: 1067

Re: Stage IV, what happens after surgery?

DH had chemo before and after his liver resection. 6 months of adjuvent after the liver resection. He then had more chemo when he had a recurrence. He had radiation done, and then more chemo. And now he had a lung met removed. Chemo before and after that surgery too. Honestly, if I were you I would ...
by kandj
Wed Apr 24, 2019 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 116
Views: 15428

Re: My CRC with liver mets journey

I've been able to keep working too. Before my surgery I was working more than full-time and traveling almost every week. Now that I'm back my bosses are trying to keep my schedule a little more manageable, which I appreciate. But it makes me feel lazy. If I'm at home, I want to be in bed! And I fee...
by kandj
Tue Apr 23, 2019 5:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update on supplements with some history
Replies: 39
Views: 2665

Re: Update on supplements with some history

. edited I will choose to be kind and not rude. Have a great day.
by kandj
Tue Apr 23, 2019 3:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update on supplements with some history
Replies: 39
Views: 2665

Re: Update on supplements with some history

. In short, my husband was given the green light to stay on a "multi-vitamin," vitamin D at 5000 iu, magnesium (after I repeatedly reminded the nurse that he is deficient without supplementation), and green tea. Everything else was stricken. No discussion. ... Her mind is simply closed of...
by kandj
Wed Apr 03, 2019 12:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recovery time after liver resection
Replies: 15
Views: 981

Re: Recovery time after liver resection

DH's wasn't bad all the time either. It was pain at night, when he would lay down. Went on for about a week like that. Even flew home like that. He spiked a fever a few days later and the rest is history. It probably is residual fluid irritating nerves for you. Just make sure to call if it gets wors...
by kandj
Wed Apr 03, 2019 12:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recovery time after liver resection
Replies: 15
Views: 981

Re: Recovery time after liver resection

Still have some abdominal and residual shoulder pain, which is annoying but manageable. Keep an eye on that. Referred shoulder pain can be due to fluid in the abdomen or other issues. If it is not getting better, ask for imaging. DH had shoulder pain pop up about 2 weeks post liver resection and bl...
by kandj
Tue Apr 02, 2019 5:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Slowly rising CEA..
Replies: 5
Views: 666

Re: Slowly rising CEA..

My DH's CEA was less then .5 at diagnosis. Peaked to 10.5 during treatment. His goes up during treatment for some reason. I assume it is inflammation related.
by kandj
Tue Apr 02, 2019 5:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery or not? And Doctors in MD Anderson
Replies: 17
Views: 1441

Re: Surgery or not? And Doctors in MD Anderson

Hi Dan. First off, I am so sorry you and your wife are in this boat. Especially after having a baby! We are in Texas, fairly close to MDA, and we were not given much hope by the surgeon that we saw at MDA. we sought a second opinion at MSKCC and DH has been fighting this beast for 3.5 yrs. Is your w...

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