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by mariane
Wed Feb 07, 2018 8:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mother stage IV, terrified
Replies: 15
Views: 1443

Re: Mother stage IV, terrified

I wish your mom good consultation with Dr. Kemeny! Good luck!


At 21 months after resection I was NED again, good labs. I am so happy I got these soon 3 years with my family and hope for more.
by mariane
Mon Feb 05, 2018 3:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Needing some information on lymph nodes
Replies: 9
Views: 558

Re: Needing some information on lymph nodes

Joannerogers wrote:Labs all good, cea 2.7!


Congratulations Joanne! With CEA low and stable everything should be good!
I had pain sometimes under ribs from I thought my scar tissue. I have a lot of it. My surgeon confirmed it and everything looked good on scans. I have less pain while doing frequent pilates.
by mariane
Mon Feb 05, 2018 9:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New "Universal" Cancer Vaccine is under development at Stanford University
Replies: 11
Views: 760

Re: New "Universal" Cancer Vaccine is under development at Stanford University

Thanks - I pop in from time to time still now after the passing of my wife back in Jun of last year. I don't comment much unless I have something to contribute. Mostly support of Maia and Tom (DK) but now that Tom is gone there seems to be less of that sort of scientific exchange going on, and I do...
by mariane
Fri Feb 02, 2018 11:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New "Universal" Cancer Vaccine is under development at Stanford University
Replies: 11
Views: 760

Re: New "Universal" Cancer Vaccine is under development at Stanford University

Thank you very much Grouseman! I honestly hoped after I saw the post that you would chime in. I appreciate all your posts and willing to share. Thank you again.
by mariane
Mon Jan 22, 2018 11:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: another anniversary
Replies: 11
Views: 380

Re: another anniversary

Congrats! Many, many more anniversaries! Go for gold, Ron! 30 more to go :)
by mariane
Mon Jan 22, 2018 8:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mother stage IV, terrified
Replies: 15
Views: 1443

Re: Mother stage IV, terrified

Hi! My tumors were so necrotic that it was impossible to find cells for genetic evaluation. The percentage of dead cancer cells matters. It is a good thing that the pathologists were not able to find living cells with undamaged DNA for analysis. I did not have biopsy. However my surgeon removed one ...
by mariane
Tue Jan 16, 2018 2:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tribute to my dear friend Anne - aka BeansMama
Replies: 39
Views: 2691

Re: Tribute to my dear friend Anne - aka BeansMama

I am very sorry to read the post about Anne's passage.

We all here loved her, cheered for her.

Her good heart brought some warmth to our group.

Prayers, dear Anne.
by mariane
Wed Jan 10, 2018 8:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mother stage IV, terrified
Replies: 15
Views: 1443

Re: Mother stage IV, terrified

I can echo Juliej. I was diagnosed in June 2015. My situation was very similar to your mom's. I had 10+ tumors in my liver. The largest was 7.5cm almost completely overtaking the left lobe of my liver, many smaller tumors, some of the around 4cm, badly located. I had HAI pump treatment by Dr. Kemeny...
by mariane
Thu Dec 14, 2017 8:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 575
Views: 86044

Re: TIL Immunotherapy at NCI

Congratulations!!! I am so happy for you!!!
by mariane
Thu Dec 14, 2017 9:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mass in cecum / liver mets
Replies: 22
Views: 1291

Re: Mass in cecum / liver mets

Dear ldbenz, I am one of the HAI people on the forum. I would contact Dr. Kemeny if possible. She likes to start patients on chemotherapy and do treatment from the very beginning. I am one of the patients who are almost completely "her own". I started treatment in hopeless situation: with ...
by mariane
Sun Dec 10, 2017 9:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV 2 years later... keeping the HOPE
Replies: 5
Views: 638

Re: Stage IV 2 years later... keeping the HOPE

Mary,
Thank you for your message. I think about you and Jesse every day.
Who knows, maybe one of this new trials will be able to open the door to cure wider.
It is so good to see little snow flake stars on this cool winter day. So many beautiful, little things each day.
I keep you in my prayers.
by mariane
Wed Nov 29, 2017 10:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED three years after lung mets surgery
Replies: 12
Views: 784

Re: Still NED three years after lung mets surgery

Sophy, congratulations!!!

I am so very, very happy!
Each year is a gift. We see our kids growing, developing. I cherish every day.
Stay in NEDville forever and enjoy!

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