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by mariane
Sat Nov 18, 2017 12:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: More questions on maintenance.
Replies: 4
Views: 337

Re: More questions on maintenance.

It seems you got complete radiological response. Congratulations! I would do PET but without stopping chemo. I think I would choose XEloda option. It would be even better to resect one of the nodes and evaluate the pathology if accesible .From your signature I assume you had your primary removed bef...
by mariane
Wed Nov 15, 2017 9:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tom marsilje
Replies: 38
Views: 1637

Re: Tom marsilje

We lost somebody unique yesterday.

RIP, Tom!
by mariane
Wed Oct 25, 2017 11:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Curious about "maintenance"
Replies: 16
Views: 1025

Re: Curious about "maintenance"

Dear LifeandPeace, I am a stage 4 cancer patient of Dr. Kemeny from MSKCC in NY. Have ever consider to consult her? I met many of her new patients and their disease often involved more than just liver. She is the "liver mets whisperer". Even without HAI pump usage , she has the greatest ex...
by mariane
Wed Oct 25, 2017 10:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GOOD NEWS ON BEANSMAMA
Replies: 108
Views: 7299

Re: GOOD NEWS ON BEANSMAMA

I am so happy!!!! Look forward to hear from you soon!
by mariane
Wed Oct 25, 2017 10:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update on DK (Dr. Tom Marsilje)...
Replies: 15
Views: 1360

Re: Update on DK (Dr. Tom Marsilje)...

Tom, if you find time to read us sometimes, I just wanted to let you know that I think about you and have been praying for you almost every day during the last 2 years. Absolutely every day since last winter. You are changing the cancer world.

You mean a lot to us. Stay strong, Brother!
by mariane
Tue Oct 24, 2017 9:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My small "cancer's death" anniversary
Replies: 20
Views: 840

Re: My small "cancer's death" anniversary

2 years ago my MSKCC oncologist came to me with my pathology report and told me that my cancer was dead ....... I am clear. There is hope! The only good cancer is a DEAD cancer ! Continued success and best wishes :mrgreen: Cheers and ALWAYS HOPE !!!!!! CRguy Thank you, CRguy! I keep living in this ...
by mariane
Tue Oct 24, 2017 9:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My small "cancer's death" anniversary
Replies: 20
Views: 840

Re: My small "cancer's death" anniversary

Stanfordmom wrote:So So happy for you! May you reside in NEDville forever!
Sha


Thank you, Sha!
May we both stay in NEDville forever! :)
I hope we meet soon in NY for check up scans and will be able to chat again.
by mariane
Thu Oct 19, 2017 11:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High Liver ALT and AST
Replies: 6
Views: 546

Re: High Liver ALT and AST

I had AlAT and AspAT around 400-500 during FOLFOX and FUDR given together during my treatment. My oncologist switched oxaliplatin with irinotecan and my AlAT, AspAT came back to 30-50. I received in all 8 FOLFIRI. Now they are in low 20 even less than 20. AlAT and AspAT show inflammation, damage of ...
by mariane
Wed Oct 18, 2017 9:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pain near belly button -- umbilical hernia?
Replies: 8
Views: 602

Re: Pain near belly button -- umbilical hernia?

I had small umbilical hernia after my laparoscopy for endometriosis before cancer. I developed hernia in the scar during my pregnancy with twins. There was a very small hole. It was indeed painful. Since it was very small it did not bother me too much. The belly muscles exercises helped me to the po...
by mariane
Wed Oct 18, 2017 9:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My small "cancer's death" anniversary
Replies: 20
Views: 840

Re: My small "cancer's death" anniversary

susie0915 wrote:Congratulations, so happy for you awesome news.


Thank you, Susie0915!
by mariane
Wed Oct 18, 2017 9:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My small "cancer's death" anniversary
Replies: 20
Views: 840

Re: My small "cancer's death" anniversary

AbbyDoo wrote:Small I think not.
I think it's a big deal. Stage 4 to NED is just assume
Congratulations


Thank you, AbbyDoo!
by mariane
Wed Oct 18, 2017 9:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My small "cancer's death" anniversary
Replies: 20
Views: 840

Re: My small "cancer's death" anniversary

Hi Mariane! So thrilled for you to hear this. Amen. Thanks for sharing the hope to others still in the midst of treatment. :D Thank you, Mary! I pray for Jesse every day since we had surgery during the same time. I think about you guys a lot. I hope we could meet one day again. I will have next sca...
by mariane
Wed Oct 18, 2017 9:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My small "cancer's death" anniversary
Replies: 20
Views: 840

Re: My small "cancer's death" anniversary

Joannerogers wrote:Marvelous! Such good news!


Thank you, my surgery buddy!
by mariane
Wed Oct 18, 2017 9:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My small "cancer's death" anniversary
Replies: 20
Views: 840

Re: My small "cancer's death" anniversary

Lee wrote:That is no "small" anniversary, that in my books is a "Big Fu**ing Deal".

CONGRATULATIONS :D May you ALWAYS reside in NEDville.

Lee

Thank you very much, Lee! I am grateful for even these good days I have been given until now. I hope for more :)
by mariane
Wed Oct 18, 2017 9:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV Suvivor Celebrates Third Anniversary of Surgery
Replies: 11
Views: 1575

Re: Stage IV Suvivor Celebrates Third Anniversary of Surgery

Congratulations!!! Thank you for letting us know!!! Many, many good, clear years!

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