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by mariane
Fri Oct 12, 2018 9:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 28
Views: 1045

Re: Stage 4 to NED- Please tell us

I am still clear as well. 3.5 years after my diagnosis in June 2015. I had 10+ mets in my liver. I got FOLFIRINOX as first line chemo, than HAI pump. Last surgery in May 2016. Off treatment.
I wish you best of luck!
by mariane
Thu Sep 13, 2018 9:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nik Colon - ritz75
Replies: 15
Views: 5100

Re: Nik Colon - ritz75

I am very sorry. I remember Nick very well. She was very active in 2015 when I got diagnosed and struggled with my disease.
Nick tried to help others as much as she could dealing with her own anxiety.
RiP dear Nick!
by mariane
Sun Sep 09, 2018 9:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Encouragement
Replies: 15
Views: 4409

Re: Encouragement

Congratulations!!! Many, many happy years in NEDville!
by mariane
Sun Sep 09, 2018 9:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bev G
Replies: 47
Views: 13068

Re: Bev G

Such sad, unexpected news. I am so sorry. She was a kind friend on this journey. RiP dear Friend!
by mariane
Fri Jul 27, 2018 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy 14 year cancerversary to me
Replies: 19
Views: 5389

Re: Happy 14 year cancerversary to me

Congratulations!!! Happy 14th and many, many more!!!
by mariane
Wed Jun 27, 2018 6:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying Keytruda Off-Label (MSS with a Twist)
Replies: 41
Views: 8219

Re: Trying Keytruda Off-Label (MSS with a Twist)

Cynthia, I am so happy! These are wonderful news for you and other MSSs!!! Thank you for sharing!
by mariane
Sun Jun 17, 2018 11:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom's surgery 5/23 (HAI pump)
Replies: 5
Views: 631

Re: Mom's surgery 5/23 (HAI pump)

I am very happy that your mom has already been recovering after her surgeries. Clear nodes and margins are excellent news! I wish her super response to FUDR from the pump.
Thank you for letting us know!
by mariane
Fri Jun 15, 2018 7:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Got both good news and scary news (HAI pump)
Replies: 18
Views: 4250

Re: Got both good news and scary news (HAI pump)

Sorry for the late answer. I have been living with the pump for almost 3 years. Last 2 years were happy, healthy years. I was able to run with my kids and friends, I did yoga and pilates. With time I felt the pump less and less. I feel it during harder pilates exwrcises or yoga poses but it is painl...
by mariane
Mon May 14, 2018 10:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 38 with, single with baby stage 4
Replies: 10
Views: 1350

Re: 38 with, single with baby stage 4

Hi,
I git diagnosed in June 2015 with 10+mets to the liver. AS JulieJ I seeked help in MSKCC and received HAI pump treatment. I am 2 years NED and off chemo.
I agree Julie's post. The genetic testing was the first thing I did even before coming to MSKCC.
Good luck!
by mariane
Fri May 11, 2018 7:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED, 4.5 years after lung recurrence
Replies: 10
Views: 800

Re: Still NED, 4.5 years after lung recurrence

Congratulations, Sophy!!! These are wonderful news! I am very, very happy!! Many, many happy NED years!!!

Thank you for letting us know. :)
by mariane
Wed May 09, 2018 11:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and it's EVERYWHERE...what to do now??
Replies: 24
Views: 5093

Re: Just diagnosed and it's EVERYWHERE...what to do now??

I will try to answer a few of your questions. I signed consent form for palliative treat almost 3 years ago and i am still doing good. You must have had a biopsy during your diagnostic colonoscopy. The pathology report of the tissue should provide the info about mutations, MSI/MSS status. Check what...
by mariane
Tue May 08, 2018 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and it's EVERYWHERE...what to do now??
Replies: 24
Views: 5093

Re: Just diagnosed and it's EVERYWHERE...what to do now??

I am very sorry. I would take a look at your MSS/MSI status. If you are MSI you may respond very well to immunotherapy. Somebody has already mentioned immunotherapy to you?? I would also look at your pathology report and mutation status. I would treat cancer according it's mutation status if MSS. Ma...
by mariane
Sun May 06, 2018 9:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: She’s gone...
Replies: 15
Views: 4290

Re: She’s gone...

I am very sorry.
by mariane
Tue May 01, 2018 1:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying Keytruda Off-Label (MSS with a Twist)
Replies: 41
Views: 8219

Re: Trying Keytruda Off-Label (MSS with a Twist)

Cynthia,
I wish you the best response ever!!
I remember how you reached out to me when I started my cancer story. Thank you!❤

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