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by mariane
Wed Jun 27, 2018 6:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying Keytruda Off-Label (MSS with a Twist)
Replies: 41
Views: 3891

Re: Trying Keytruda Off-Label (MSS with a Twist)

Cynthia, I am so happy! These are wonderful news for you and other MSSs!!! Thank you for sharing!
by mariane
Sun Jun 17, 2018 11:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom's surgery 5/23 (HAI pump)
Replies: 5
Views: 427

Re: Mom's surgery 5/23 (HAI pump)

I am very happy that your mom has already been recovering after her surgeries. Clear nodes and margins are excellent news! I wish her super response to FUDR from the pump.
Thank you for letting us know!
by mariane
Fri Jun 15, 2018 7:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Got both good news and scary news (HAI pump)
Replies: 18
Views: 1090

Re: Got both good news and scary news (HAI pump)

Sorry for the late answer. I have been living with the pump for almost 3 years. Last 2 years were happy, healthy years. I was able to run with my kids and friends, I did yoga and pilates. With time I felt the pump less and less. I feel it during harder pilates exwrcises or yoga poses but it is painl...
by mariane
Mon May 14, 2018 10:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 38 with, single with baby stage 4
Replies: 10
Views: 1043

Re: 38 with, single with baby stage 4

Hi,
I git diagnosed in June 2015 with 10+mets to the liver. AS JulieJ I seeked help in MSKCC and received HAI pump treatment. I am 2 years NED and off chemo.
I agree Julie's post. The genetic testing was the first thing I did even before coming to MSKCC.
Good luck!
by mariane
Fri May 11, 2018 7:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED, 4.5 years after lung recurrence
Replies: 10
Views: 624

Re: Still NED, 4.5 years after lung recurrence

Congratulations, Sophy!!! These are wonderful news! I am very, very happy!! Many, many happy NED years!!!

Thank you for letting us know. :)
by mariane
Wed May 09, 2018 11:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and it's EVERYWHERE...what to do now??
Replies: 24
Views: 2207

Re: Just diagnosed and it's EVERYWHERE...what to do now??

I will try to answer a few of your questions. I signed consent form for palliative treat almost 3 years ago and i am still doing good. You must have had a biopsy during your diagnostic colonoscopy. The pathology report of the tissue should provide the info about mutations, MSI/MSS status. Check what...
by mariane
Tue May 08, 2018 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and it's EVERYWHERE...what to do now??
Replies: 24
Views: 2207

Re: Just diagnosed and it's EVERYWHERE...what to do now??

I am very sorry. I would take a look at your MSS/MSI status. If you are MSI you may respond very well to immunotherapy. Somebody has already mentioned immunotherapy to you?? I would also look at your pathology report and mutation status. I would treat cancer according it's mutation status if MSS. Ma...
by mariane
Sun May 06, 2018 9:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: She’s gone...
Replies: 15
Views: 1911

Re: She’s gone...

I am very sorry.
by mariane
Tue May 01, 2018 1:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying Keytruda Off-Label (MSS with a Twist)
Replies: 41
Views: 3891

Re: Trying Keytruda Off-Label (MSS with a Twist)

Cynthia,
I wish you the best response ever!!
I remember how you reached out to me when I started my cancer story. Thank you!❤
by mariane
Tue Apr 24, 2018 10:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To all HEPATIC pump users - Dr. Kemeny
Replies: 12
Views: 1687

Re: To all HEPATIC pump users - Dr. Kemeny

Thank you very much for this message. I will certainly send a letter/email to J&J. Such a bad news for new patients. I have recently had another completely clear scan and good labs. I am 2 years past resection, almost 3 years after diagnosis and my check ups are becoming less frequent. I was giv...
by mariane
Fri Mar 23, 2018 10:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Julie Yip Williams passed away last Monday, Mar 19th, 2018
Replies: 18
Views: 3713

Re: Julie Yip Williams passed away last Monday, Mar 19th, 2018

These news hit me hard. I have followed her blog since my diagnosis. I exchanged a few emails. I prayed for her. I saw her from distance in MSKCC in mid January and started to run to meet her. She was being called for labs. I stopped in the middle of the short distance and turn around as I did not k...
by mariane
Thu Mar 22, 2018 9:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fasting During Chemo
Replies: 27
Views: 3291

Re: Fasting During Chemo

I tried to eat the low calories diet during the time our Tom posted much about the Longo approach to chemo. I had rather unpleasant experience. I tried it during my 2 treatments with 5 FU only back in 2016. Overall bad experience. I felt weak. After one of the treatments my oral Herpes virus activat...
by mariane
Wed Mar 21, 2018 2:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update Pete
Replies: 9
Views: 1320

Re: Update Pete

Fantastic news! Congratulations!!
by mariane
Fri Mar 16, 2018 4:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 591
Views: 105348

Re: TIL Immunotherapy at NCI

Congratulations!!!#
This 25% is very very exciting number!
Such a good, good news!
Thank you! And best wishes!

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