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by mariane
Thu Oct 24, 2019 7:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 1/2 years post Stage IV liver resection
Replies: 10
Views: 505

Re: 7 1/2 years post Stage IV liver resection

Congratulations Diane! I am so very happy. Enjoy beautiful Southern fall.
by mariane
Wed Aug 28, 2019 8:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sad News About Arizona Mom
Replies: 3
Views: 1244

Re: Sad News About Arizona Mom

I am so sorry.
I remember Lara. She helped me during hard months between my surgeries in 2015.
RiP, Lara.
by mariane
Mon Aug 26, 2019 11:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Where is the best place to go in the Atlanta area to go for surgery/treatment
Replies: 5
Views: 507

Re: Where is the best place to go in the Atlanta area to go for surgery/treatment

I had all my surgeries in NY. Unfortunately I cannot recommend you anybody here.

We both have twins. My turned 10 in April. I have just the twins and a 12 weeks puppy.
by mariane
Sun Aug 25, 2019 4:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 36
Views: 3413

Re: Liver and lung mets

Have been receiving treatment in Lyon, France where they're planning this MSS Immunotherapy combo. My onc' mentioned this one yesterday saying that this may be an option for me. Will let you guys know. Kilian, yes, please let us know if you get in the trial! Also, if you decide to go for the HAI pu...
by mariane
Sun Aug 25, 2019 4:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 36
Views: 3413

Re: Liver and lung mets

I was lucky to have an insurance because of my husband's job. I don't know much about the hospitals doing HAI pump in Europe. A couple of years ago I exchanged a few messages with a patient from France who was going to pursue HAI. I haven't seen him here for awhile. I need to search forum to find th...
by mariane
Sun Aug 25, 2019 4:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Where is the best place to go in the Atlanta area to go for surgery/treatment
Replies: 5
Views: 507

Re: Where is the best place to go in the Atlanta area to go for surgery/treatment

Hi! I live in Cumming. I am shared patient of MSKCC in NY and Piedmont Cancer Instytute. Piedmont works closely with MSKCC and MD Anderson. They sent patients to MSKCC for consultations sometimes. I had multiple liver mets. Piedmont nurses flush my hepatic pump every couples of weeks so I don't have...
by mariane
Fri Aug 23, 2019 12:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 36
Views: 3413

Re: Liver and lung mets

Hi! I was diagnosed with rectal cancer with metastases to the liver (10+) in June 2015. I am originally from Poland. With the extensive spread of my cancer I was offered only palliative therapy. I found online Dr. Kemeny from MSKCC (Memorial Sloan Kettering) in New York who is successfully treating ...
by mariane
Thu Aug 15, 2019 9:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm 10 years out!
Replies: 18
Views: 1766

Re: I'm 10 years out!

Congratulations!!!
by mariane
Tue Jul 30, 2019 11:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4, over 4 years since diagnosis, still NED
Replies: 24
Views: 2628

Re: Stage 4, over 4 years since diagnosis, still NED

Congratulations to you! I'm wishing/hoping desperately for my own NED status. Do you attribute your success to the HAI pump? Thank you very much Tina! Dr. Kemeny told me yesterday that I wouldn't have make it, if I had not come to MSKCC 4 years ago. She was so radiant yesterday. As Julie wrote we w...
by mariane
Tue Jul 30, 2019 11:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4, over 4 years since diagnosis, still NED
Replies: 24
Views: 2628

Re: Stage 4, over 4 years since diagnosis, still NED

Congratulations and God bless you, Mariane! I feel like we two are connected - pump sisters forever!!! :D :D :D Hearing your good news warms my heart and gives me hope for all the rest of Kemeny's patients. If we, two of the least likely to survive, can make it, then others can too with the right a...
by mariane
Tue Jul 30, 2019 11:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4, over 4 years since diagnosis, still NED
Replies: 24
Views: 2628

Re: Stage 4, over 4 years since diagnosis, still NED

I am so happy for you, Mariane! I remember when your twins were just tots! So glad that you are here with them! Love, Cynthia Thank you very much Cynthia!! I will be forever grateful for your help, patience and answers to my never ending questions. I am so happy that Keytruda is working for you. It...
by mariane
Tue Jul 30, 2019 10:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4, over 4 years since diagnosis, still NED
Replies: 24
Views: 2628

Re: Stage 4, over 4 years since diagnosis, still NED

tater wrote:Such great news. My wife is coming up on two years NED, fingers crossed. Its people like you sharing your story that helps me get through this.

Tater, congratulations to your wife ! 2 years is excellent! Each month takes us closer to safety... :)
by mariane
Tue Jul 30, 2019 10:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4, over 4 years since diagnosis, still NED
Replies: 24
Views: 2628

Re: Stage 4, over 4 years since diagnosis, still NED

How Fantastic. If I knew you were over you could have popped in for tea . Or gone on a wee kayak trip with my mum . She is celebrating ten years as a stage 4 patient and went kayaking on open seas to celebrate. Not bad at 77 ! Needed a wee hand up though ! Glad you liked it ! Stu Stu, Next time, I ...
by mariane
Mon Jul 29, 2019 6:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4, over 4 years since diagnosis, still NED
Replies: 24
Views: 2628

Re: Stage 4, over 4 years since diagnosis, still NED

mpbser wrote:Awesome news. You've been an inspiration to me.

Thank you!
I owe a lot people from this forum.
by mariane
Mon Jul 29, 2019 3:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4, over 4 years since diagnosis, still NED
Replies: 24
Views: 2628

Re: Stage 4, over 4 years since diagnosis, still NED

kandj wrote:Wonderful news my friend! I remember seeing you in the hospital after your last surgery. So glad you are doing well.

Thank you! All the best for you and Joe! Time flies...

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