Search found 650 matches

Go to advanced search

by mariane
Mon Mar 11, 2019 10:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI pump criteria
Replies: 21
Views: 1831

Re: HAI pump criteria

My husband tried to make an appointment for me with Dr. Kemeny back in 2015. The first nurse refused him because I didn't have all the necessary scans. I had only abdominal and pelvis scans and resonance, no chest. I was recovering from the colon surgery in the hospital in Europe at that time. My hu...
by mariane
Fri Feb 22, 2019 10:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfirinox - Bad tolerance
Replies: 10
Views: 1090

Re: Folfirinox - Bad tolerance

Thank you, Paola! Hugs!
One more thing, hopefully useful. I received Atropin with Irinotecan and it really helped with diarrhea. Honestly with Atropin I had more like constipation. I am in general very sensitive to meds.
by mariane
Tue Feb 19, 2019 3:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ladies what did you do with your hair during chemo?
Replies: 18
Views: 2457

Re: Ladies what did you do with your hair during chemo?

I cut my hair short but longer than pixie cut to cover the bald patches. I started to color my hair with herbal cassia. IT is a natural conditioner. My hair became a little thicker and I survived the year of chemo. After I stopped FOLFIRINOXthe hair improved a little. It is long and decent now. I am...
by mariane
Tue Feb 19, 2019 3:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Post- Rectal Metastatic to Liver, now cured
Replies: 14
Views: 1341

Re: Happy Post- Rectal Metastatic to Liver, now cured

Thank you for letting us know, Jane. I am so happy!! Congratulations!!!
by mariane
Tue Feb 19, 2019 3:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recovery time for HAI pump placement and/or liver resection?
Replies: 4
Views: 490

Re: Recovery time for HAI pump placement and/or liver resection?

I have been in the hospital for 6 days because of the weekend and wait to check whether the pump is properly working. I had to stand up on the next day and walk a few laps on the corridor. The forum friends recommended me the laps. Walking kept me strong and active. I had 4 surgeries in less than a ...
by mariane
Tue Feb 19, 2019 2:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cimetidine help!
Replies: 2
Views: 443

Re: Cimetidine help!

Hi! I have been taking Cimetidine for almost 5 years I take 2x200 mg twice a day. I take it after I wake up and than one more dose in the evening. I call it my lucky charm. I don't know whether it is really effective but I have been NED, I have been feeling well. It doesn't hurt. It is the doses rec...
by mariane
Tue Feb 19, 2019 2:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfirinox - Bad tolerance
Replies: 10
Views: 1090

Re: Folfirinox - Bad tolerance

I completed 4 doses of FOLFIRINOX and got switched to FOLFOX for 3 doses, than 7 doses of FOLFIRI, 10 doses of 5FU, and 12 doses of hepatic pump chemo. I have been off chemo for 2.5 years, NED. I took Neupogen, 3-5 shots as you did with every FOLFIRINOX. My oncologist was very particular about getti...
by mariane
Fri Feb 08, 2019 9:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pump people recurrence question
Replies: 32
Views: 2307

Re: Pump people recurrence question

I am approaching 3 years NED with the pump and I will keep it at least until 5 years after surgery. I talked to my surgeon about their statistics. He told me that they have over 50% of recurrences but they can manage most of them using the pump and surgeries. It is just safer to keep the pump. I had...
by mariane
Wed Jan 23, 2019 7:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy New Year- Update on mom- clean
Replies: 7
Views: 813

Re: Happy New Year- Update on mom- clean

Congratulations!!! These are great news!!! Thank you for letting us know.
by mariane
Wed Jan 02, 2019 8:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dr. D'Angelica or Dr. Kingham
Replies: 7
Views: 1199

Re: Dr. D'Angelica or Dr. Kingham

I had extremely positive experience with Dr. D'Angelica in 2015/2016. My surgery was an open surgery and yes, I have scars. However, as 43 years old mother I don't care that much about my belly looks. Good lingerie can do the trick.;) I have had a nice day of New Year's skiing with my family. I was ...
by mariane
Tue Dec 25, 2018 9:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Metastatic Stage 4...Clear Scan
Replies: 46
Views: 12816

Re: Metastatic Stage 4...Clear Scan

Congratulations to mom for clear scans and to you for PA diploma!!!
These are fantastic news! Thank you!!!!
by mariane
Sat Dec 22, 2018 12:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED!!!!
Replies: 25
Views: 5111

Re: Still NED!!!!

Congratulations!!! Wonderful news!!!
by mariane
Sat Dec 22, 2018 12:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling all angels for a Christmas miracle
Replies: 12
Views: 2092

Re: Calling all angels for a Christmas miracle

I am also Dr Kemeny's patient. I have been NED for over 2.5 years. I began my cancer adventure with 10+ liver mets. The largest 7.5cm. I had good response to systemic chemo. I was given maximum 2 years if I responded to chemo at diagnosis. I am still here dping good. I wish you a great consultation!
by mariane
Fri Dec 21, 2018 10:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Met in caudate lobe and artifactual spots
Replies: 5
Views: 1263

Re: Met in caudate lobe and artifactual spots

I had a met (around 1.5-2cm) in caudate lobe, removed in 10/2015 by dr. D'Angelica in MSKCC. Still no recurrence. Dr. D'Angelica removed 10+ mets from my liver. They were all badly located near important anatomical structures - vena cava, other blood vessels, also caudate lobe. The caudate lobe met ...

Go to advanced search