Search found 683 matches

Go to advanced search

by mariane
Sun Nov 22, 2020 10:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My fiance , 33, gets Stage 4 diagnosis...
Replies: 23
Views: 2522

Re: My fiance , 33, gets Stage 4 diagnosis...

FOLFIRINOX/FOLFOXIRI is the same chemo I had as first choice of chemo. It gave me complete pathological response and hope.
by mariane
Sun Nov 22, 2020 10:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My fiance , 33, gets Stage 4 diagnosis...
Replies: 23
Views: 2522

Re: My fiance , 33, gets Stage 4 diagnosis...

Hi! I am one of Dr. Kemeny's patients. I got diagnosed in June 2015 with 10+ mets in my liver. I recommend second opinion at MSKCC, Dr. Kemeny truly saved my life. I have been NED since 05/2016, off chemo, living my normal life. There is many of us, pumpers, now. We have facebook group where you can...
by mariane
Fri Aug 21, 2020 10:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: another HAI pump question and a short rant...
Replies: 15
Views: 2934

Re: another HAI pump question and a short rant...

Hi! When I got diagnosed in June 2015 almost without symptoms; I was living happy, active life in Europe. My husband, who worked in the States called Dr. Kemeny's office for me. ( I was reading forums to find a trace of hope since I was given zero chance to survive past 2 years on chemo, and 3 month...
by mariane
Thu Aug 13, 2020 9:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: another HAI pump question and a short rant...
Replies: 15
Views: 2934

Re: another HAI pump question and a short rant...

Hi! I had tumors all over the liver as well, badly located near important structures. The largest was 7.5cm. I was told by 3 oncologists that there is zero chance for me. I signed a consent form for palliative chemo. I found an info about Dr. Kemeny and HAI pump reading online forums. I ended up hav...
by mariane
Sun Jul 19, 2020 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For those who have had HAI pump .. I have a question
Replies: 4
Views: 930

Re: For those who have had HAI pump .. I have a question

Good Luck! It sounds like perfect candidate for HAI. I met Dr. Kemeny in August 2015 with 10+ liver mets, no further spread. I am doing well, NED off chemo since 05/2016.
by mariane
Mon Jun 01, 2020 10:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dr. K patients-what’s the plan?
Replies: 4
Views: 1458

Re: Dr. K patients-what’s the plan?

I am so grateful for this thread, Kathleen! Greetings for Joe! My scans got rescheduled from April to June 21/22. I had last scans in November... So weird... Additionally, my husband got furloughed and only God knows, how long we will keep the insurance, and when he gets another job with decent bene...
by mariane
Thu Oct 24, 2019 7:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 1/2 years post Stage IV liver resection
Replies: 10
Views: 1197

Re: 7 1/2 years post Stage IV liver resection

Congratulations Diane! I am so very happy. Enjoy beautiful Southern fall.
by mariane
Wed Aug 28, 2019 8:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sad News About Arizona Mom
Replies: 3
Views: 1745

Re: Sad News About Arizona Mom

I am so sorry.
I remember Lara. She helped me during hard months between my surgeries in 2015.
RiP, Lara.
by mariane
Mon Aug 26, 2019 11:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Where is the best place to go in the Atlanta area to go for surgery/treatment
Replies: 5
Views: 789

Re: Where is the best place to go in the Atlanta area to go for surgery/treatment

I had all my surgeries in NY. Unfortunately I cannot recommend you anybody here.

We both have twins. My turned 10 in April. I have just the twins and a 12 weeks puppy.
by mariane
Sun Aug 25, 2019 4:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 45
Views: 8051

Re: Liver and lung mets

Have been receiving treatment in Lyon, France where they're planning this MSS Immunotherapy combo. My onc' mentioned this one yesterday saying that this may be an option for me. Will let you guys know. Kilian, yes, please let us know if you get in the trial! Also, if you decide to go for the HAI pu...
by mariane
Sun Aug 25, 2019 4:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 45
Views: 8051

Re: Liver and lung mets

I was lucky to have an insurance because of my husband's job. I don't know much about the hospitals doing HAI pump in Europe. A couple of years ago I exchanged a few messages with a patient from France who was going to pursue HAI. I haven't seen him here for awhile. I need to search forum to find th...
by mariane
Sun Aug 25, 2019 4:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Where is the best place to go in the Atlanta area to go for surgery/treatment
Replies: 5
Views: 789

Re: Where is the best place to go in the Atlanta area to go for surgery/treatment

Hi! I live in Cumming. I am shared patient of MSKCC in NY and Piedmont Cancer Instytute. Piedmont works closely with MSKCC and MD Anderson. They sent patients to MSKCC for consultations sometimes. I had multiple liver mets. Piedmont nurses flush my hepatic pump every couples of weeks so I don't have...
by mariane
Fri Aug 23, 2019 12:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 45
Views: 8051

Re: Liver and lung mets

Hi! I was diagnosed with rectal cancer with metastases to the liver (10+) in June 2015. I am originally from Poland. With the extensive spread of my cancer I was offered only palliative therapy. I found online Dr. Kemeny from MSKCC (Memorial Sloan Kettering) in New York who is successfully treating ...
by mariane
Thu Aug 15, 2019 9:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm 10 years out!
Replies: 18
Views: 2554

Re: I'm 10 years out!

Congratulations!!!

Go to advanced search