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by mariane
Tue Dec 04, 2018 11:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lymphedema
Replies: 8
Views: 335

Re: Lymphedema

Hi Lydia, We were diagnosed at approximately the same time. I remember your story from back then. If I could recommend you something, it would be genetic profiling of the tumor. Sometimes cancer mutates quickly. More mutations could mean more susceptible to chemotherapy meds. I am sure, you have gre...
by mariane
Sat Nov 17, 2018 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 - liver mets disappeared
Replies: 16
Views: 928

Re: Stage 4 - liver mets disappeared

It sounds in a way like my situation. I had complete pathological response and complete radiological response in smaller metastases. However, my oncologist suggested using the HAI pump. I would recommend it highly. There is much less recurrence. I posted a few articles about complete radiological an...
by mariane
Mon Nov 05, 2018 12:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospitals that install HAI pump?
Replies: 39
Views: 2293

Re: Hospitals that install HAI pump?

A surgeon, who is implanting HAI pump is answering the question a about the pump on Colontown - facebook based group. First hand info available from him
by mariane
Thu Nov 01, 2018 11:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HOPE officially three years clean
Replies: 11
Views: 811

Re: HOPE officially three years clean

Congratulations!!! Fantastic news ! Thank you so much for letting us know. Many more happy, healthy years!
by mariane
Thu Oct 25, 2018 9:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Hope
Replies: 30
Views: 3068

Re: Stage 4 Hope

Stu, congratulations to your mum! I am so happy for you both. Your mum looks amazing.
You are a great cheerleader to your mum and us all here, Stu. Thank you.
by mariane
Tue Oct 23, 2018 9:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tell me any Genome testing
Replies: 3
Views: 465

Re: Tell me any Genome testing

Hi! I can recommend you HAI pump. I used it myself with 10+ liver mets. The largest was 7.5cm. I had 3 liver resections to cut them out but I am here, doing good, off chemo. I went to MSKCC seeking Dr. Kemeny's help. I also used FOLFIRINOX/FOLFOXIRI at first line chemo. At that time (2015) there wer...
by mariane
Mon Oct 22, 2018 9:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quality of life on Folfox and others
Replies: 19
Views: 2130

Re: Quality of life on Folfox and others

I can recommend walking and exercising. I walked even with chemo attached and it helped me to stay in good shape through chemo. Gardening and prayer also helped. I was able to fall asleep and to relax. I tried to eat small portions but often. It was important for me to at least maintain weight. The ...
by mariane
Fri Oct 12, 2018 9:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 46
Views: 4635

Re: Stage 4 to NED- Please tell us

I am still clear as well. 3.5 years after my diagnosis in June 2015. I had 10+ mets in my liver. I got FOLFIRINOX as first line chemo, than HAI pump. Last surgery in May 2016. Off treatment.
I wish you best of luck!
by mariane
Thu Sep 13, 2018 9:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nik Colon - ritz75
Replies: 15
Views: 5596

Re: Nik Colon - ritz75

I am very sorry. I remember Nick very well. She was very active in 2015 when I got diagnosed and struggled with my disease.
Nick tried to help others as much as she could dealing with her own anxiety.
RiP dear Nick!
by mariane
Sun Sep 09, 2018 9:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Encouragement
Replies: 15
Views: 4828

Re: Encouragement

Congratulations!!! Many, many happy years in NEDville!
by mariane
Sun Sep 09, 2018 9:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bev G
Replies: 50
Views: 16181

Re: Bev G

Such sad, unexpected news. I am so sorry. She was a kind friend on this journey. RiP dear Friend!
by mariane
Fri Jul 27, 2018 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy 14 year cancerversary to me
Replies: 19
Views: 5776

Re: Happy 14 year cancerversary to me

Congratulations!!! Happy 14th and many, many more!!!
by mariane
Wed Jun 27, 2018 6:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying Keytruda Off-Label (MSS with a Twist)
Replies: 41
Views: 8639

Re: Trying Keytruda Off-Label (MSS with a Twist)

Cynthia, I am so happy! These are wonderful news for you and other MSSs!!! Thank you for sharing!
by mariane
Sun Jun 17, 2018 11:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom's surgery 5/23 (HAI pump)
Replies: 5
Views: 779

Re: Mom's surgery 5/23 (HAI pump)

I am very happy that your mom has already been recovering after her surgeries. Clear nodes and margins are excellent news! I wish her super response to FUDR from the pump.
Thank you for letting us know!

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