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by jortego128
Sat Oct 20, 2018 10:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Isolation
Replies: 8
Views: 196

Re: Isolation

^ Great points CRguy.

It is tough but you are right!! Many here and that have been here would take that!!

Keep your head up Dan!!
by jortego128
Wed Sep 12, 2018 4:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sorry, I can't do that, I have cancer....
Replies: 10
Views: 1606

Re: Sorry, I can't do that, I have cancer....

You know what guys, everyone with this disease can and SHOULD be able to play that card anytime you want to, and not feel even slightest bit of guilt or shame for it. F anyone who would give you sh*t for doing so...
by jortego128
Wed Sep 12, 2018 4:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nik Colon - ritz75
Replies: 15
Views: 5138

Re: Nik Colon - ritz75

This is terrible, Nik was so young. She was very active at one time on here, I spoke with her quite a bit. She really struggled mentally at times trying to deal with this horrible disease...

What a horrible week, such beautiful people were taken...

May God rest her soul... :cry:
by jortego128
Wed Sep 12, 2018 4:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bev G
Replies: 47
Views: 13157

Re: Bev G

Bev has been on my heart and in my head for a few months. Last time we 'talked' she had been deathly ill from kidney concerns from her diabetes. I think she said Diabetic Ketoacidosis. It had nothing to do with her cancer CURE. She would want you to know that her regular testing showed her still ca...
by jortego128
Sun Sep 09, 2018 6:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bev G
Replies: 47
Views: 13157

Re: Bev G

Oh wow....I'm so sad to hear this....I feel terrible but I honestly thought she was long term NED, I dont EVER remember seeing her post anything that she was again fighting her cancer. She rather always tried to comfort and educate others in need of help here. May God rest her beautiful soul.... :(
by jortego128
Mon Jun 11, 2018 2:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please! Read me...
Replies: 23
Views: 4986

Re: Please! Read me...

Get second opinions on the resectability of the liver tumors, inquire about SIRT (Selective Internal Radiation Therapy) in conjunction with chemo. SIRT has a better chance (statisically) of shrinking liver tumors to resectability than just systemic chemo alone.
by jortego128
Mon Jun 04, 2018 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Metastatic Breast Cancer Patient Judy Perkins Cured with TIL Treatment...
Replies: 1
Views: 269

Metastatic Breast Cancer Patient Judy Perkins Cured with TIL Treatment...

https://www.npr.org/sections/health-shots/2018/06/04/615673436/therapy-made-from-patients-immune-system-shows-promise-for-advanced-breast-cance This is all over the news today. Seems to be a similar approach to the TIL treatment our dear Sleen had. Apparently its a first for metastatic breast cancer...
by jortego128
Mon Jan 15, 2018 4:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fasting During Chemo
Replies: 27
Views: 5250

Re: Fasting During Chemo

Our very own DK37, the late great Dr. Tom Marsilje, had an amazing writeup / self experiment on this very topic. It is incredibly interesting, and those thinking of trying fasting before chemo should read it. Long story short he claims it helped him personally a LOT with the post infusion symptoms. ...
by jortego128
Sun Jan 14, 2018 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beansmama is gone.
Replies: 38
Views: 8368

Re: Beansmama is gone.

Damnit. She just had liver resection and was recovering... What happened? She was so sweet and a heck of a fighter. This is so terrible, she will be very missed. Condolences to her family, may she rest in peace. :(
by jortego128
Tue Dec 05, 2017 6:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Durvalumab and Cediranib Clinical trial - I'm in!
Replies: 21
Views: 2565

Re: Durvalumab and Cediranib Clinical trial - I'm in!

Scan results are in and I've had significat disease progression. I'm out of the trial. Time for plan B. The doctors at NIH think Hard chemo is needed for awhile. We're considering some trials and maybe we'll start with a few desensitization treatments of Oxaliplatin while we look for other options....
by jortego128
Tue Nov 28, 2017 4:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: We may have a mile to go to see effective immunothrarpies to occur for those with MSS
Replies: 12
Views: 1312

Re: We may have a mile to go to see effective immunothrarpies to occur for those with MSS

I think the results you posted above are for the TIL (tumor infiltrating lymphocytes) therapy and specifically for our own member Sleen, who made national news because of it. She had shrinkage/obliteration of all tumors except one in her lung, which was resected.
by jortego128
Mon Nov 27, 2017 10:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa
Replies: 14
Views: 1821

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Great news Diane!! I hope you have a blessed Christmas season!
by jortego128
Fri Nov 17, 2017 5:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MGD007 compound specifially for advanced colorectal cancer
Replies: 8
Views: 1036

Re: MGD007 compound specifially for advanced colorectal cancer

Im pretty sure we had a member here who was on an MGD0007 trial, she was young and had young children. I dont remember her name but I think she was on the 2015 Colondar? The name Lindsey comes to mind. In any case, she had a partial response, but then she either had progression or the drug became to...
by jortego128
Thu Nov 16, 2017 9:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tom marsilje
Replies: 40
Views: 4584

Re: Tom marsilje

I'm at a loss, heartbroken, my God-- I can't believe it. I knew things were bad over the last week due to his silence on FB, but I didnt expect this to happen so soon. Tom was a true cancer warrior, a brilliant doctor and scientist, and the absolute best advocate for CRC awareness and treatment on t...

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