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by jortego128
Mon Jun 11, 2018 2:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please! Read me...
Replies: 23
Views: 1608

Re: Please! Read me...

Get second opinions on the resectability of the liver tumors, inquire about SIRT (Selective Internal Radiation Therapy) in conjunction with chemo. SIRT has a better chance (statisically) of shrinking liver tumors to resectability than just systemic chemo alone.
by jortego128
Mon Jun 04, 2018 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Metastatic Breast Cancer Patient Judy Perkins Cured with TIL Treatment...
Replies: 1
Views: 184

Metastatic Breast Cancer Patient Judy Perkins Cured with TIL Treatment...

https://www.npr.org/sections/health-shots/2018/06/04/615673436/therapy-made-from-patients-immune-system-shows-promise-for-advanced-breast-cance This is all over the news today. Seems to be a similar approach to the TIL treatment our dear Sleen had. Apparently its a first for metastatic breast cancer...
by jortego128
Mon Jan 15, 2018 4:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fasting During Chemo
Replies: 27
Views: 3180

Re: Fasting During Chemo

Our very own DK37, the late great Dr. Tom Marsilje, had an amazing writeup / self experiment on this very topic. It is incredibly interesting, and those thinking of trying fasting before chemo should read it. Long story short he claims it helped him personally a LOT with the post infusion symptoms. ...
by jortego128
Sun Jan 14, 2018 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beansmama is gone.
Replies: 38
Views: 4021

Re: Beansmama is gone.

Damnit. She just had liver resection and was recovering... What happened? She was so sweet and a heck of a fighter. This is so terrible, she will be very missed. Condolences to her family, may she rest in peace. :(
by jortego128
Tue Dec 05, 2017 6:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Durvalumab and Cediranib Clinical trial - I'm in!
Replies: 21
Views: 2134

Re: Durvalumab and Cediranib Clinical trial - I'm in!

Scan results are in and I've had significat disease progression. I'm out of the trial. Time for plan B. The doctors at NIH think Hard chemo is needed for awhile. We're considering some trials and maybe we'll start with a few desensitization treatments of Oxaliplatin while we look for other options....
by jortego128
Tue Nov 28, 2017 4:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: We may have a mile to go to see effective immunothrarpies to occur for those with MSS
Replies: 12
Views: 1132

Re: We may have a mile to go to see effective immunothrarpies to occur for those with MSS

I think the results you posted above are for the TIL (tumor infiltrating lymphocytes) therapy and specifically for our own member Sleen, who made national news because of it. She had shrinkage/obliteration of all tumors except one in her lung, which was resected.
by jortego128
Mon Nov 27, 2017 10:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa
Replies: 14
Views: 1467

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Great news Diane!! I hope you have a blessed Christmas season!
by jortego128
Fri Nov 17, 2017 5:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MGD007 compound specifially for advanced colorectal cancer
Replies: 8
Views: 829

Re: MGD007 compound specifially for advanced colorectal cancer

Im pretty sure we had a member here who was on an MGD0007 trial, she was young and had young children. I dont remember her name but I think she was on the 2015 Colondar? The name Lindsey comes to mind. In any case, she had a partial response, but then she either had progression or the drug became to...
by jortego128
Thu Nov 16, 2017 9:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tom marsilje
Replies: 40
Views: 3779

Re: Tom marsilje

I'm at a loss, heartbroken, my God-- I can't believe it. I knew things were bad over the last week due to his silence on FB, but I didnt expect this to happen so soon. Tom was a true cancer warrior, a brilliant doctor and scientist, and the absolute best advocate for CRC awareness and treatment on t...
by jortego128
Tue Oct 24, 2017 2:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update on DK (Dr. Tom Marsilje)...
Replies: 15
Views: 2130

Update on DK (Dr. Tom Marsilje)...

DK rarely posts here anymore, but still updates his FB and blog. He has been such a help and inspiration to so many here , I just wanted to "forward" info from his blog to here so others here concerned about him (like me) , can see how he's doing. It appears he has some brain mets now, but...
by jortego128
Fri Oct 13, 2017 8:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GOOD NEWS ON BEANSMAMA
Replies: 122
Views: 14307

Re: GOOD NEWS ON BEANSMAMA

Thinking about you Beans, stay strong and recover soon-- Im hoping and praying you now have a long cancer-free life ahead of you!! :D
by jortego128
Mon Oct 02, 2017 5:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stella (vilca11) went home (more than a month ago)
Replies: 21
Views: 2601

Re: Stella (vilca11) went home (more than a month ago)

This is so sad, may she rest in peace. Stella was a fighter for sure, undergoing any and all kinds of treatments that might help, and she was very knowledgeable and sweet. :(
by jortego128
Wed Sep 27, 2017 7:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Too many tumors to count... newbie here
Replies: 15
Views: 1874

Re: Too many tumors to count... newbie here

3 Options for Liver Tumors--- Had I known this info at the beginning of my moms diagnosis we would have done at least one: 1.)HAI with Dr. Kemeny at MSK-- could shrink tumors in liver to point of resection. 2.)SIRT (Selective Internal Radiation Therapy) -- A radioactive solution is injected into you...
by jortego128
Sat Sep 16, 2017 8:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom's journey is over
Replies: 31
Views: 3811

Re: My mom's journey is over

I'm very sorry. You have my deepest condolences....

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