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by Joannerogers
Tue Mar 06, 2018 7:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV currently in NEDville? Please share any advice or tips? P
Replies: 67
Views: 8727

Re: Any Stage IV currently in NEDville? Please share any advice or tips? P

Yes at first I was told that. Dr. put me on folfox with avastin (11 infusions) and I responded amazingly! The tumors shrank so much that my liver surgeon only had to take 20% of my liver. My colorectal surgeon said that if the gi doc hadn't marked the mass in my colon he wouldn't have seen it! I wis...
by Joannerogers
Thu Mar 01, 2018 8:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV currently in NEDville? Please share any advice or tips? P
Replies: 67
Views: 8727

Re: Any Stage IV currently in NEDville? Please share any advice or tips? P

I was diagnosed stage IV 3 years sgo, Mets to liver. Had the chemo with good response, several surgeries..the last one a year ago, and so far I'm NED! I have a scan scheduled in April...not planning on any surprises.

Good luck to you!
by Joannerogers
Wed Feb 14, 2018 8:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver question
Replies: 7
Views: 889

Re: Liver question

I only had a few non specific symptoms:
Itchy skin, slight annoying pain under my right rib cage if I laid on my left side, and the skin on was chest was always red like a sunburn but didn't hurt. I had actually asked about the discoloration and my doc said it was probably sun damage.
by Joannerogers
Mon Feb 05, 2018 10:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Needing some information on lymph nodes
Replies: 9
Views: 982

Re: Needing some information on lymph nodes

Mariane,
Funny you should say that! I was just thinking this must be scar tissue and thought that yoga might help. Good to hear from you again!
by Joannerogers
Sun Feb 04, 2018 9:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fatique etc
Replies: 11
Views: 877

Re: Fatique etc

Marijuana if it's legal where you are. It really helped me.
by Joannerogers
Fri Feb 02, 2018 4:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Needing some information on lymph nodes
Replies: 9
Views: 982

Re: Needing some information on lymph nodes

Thanks all, waiting for lab results now.
by Joannerogers
Thu Feb 01, 2018 8:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Needing some information on lymph nodes
Replies: 9
Views: 982

Needing some information on lymph nodes

It's been almost a year since my final surgery to remove my rectosigmoid colon cancer(stage 4). I think I remember the doc saying I had a positive lymph node. I've been having similar symptoms to the ones I had prior to discovering that I had cancer. This has been going on for about 3 weeks. I just ...
by Joannerogers
Tue Oct 31, 2017 9:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anatomy of the female body
Replies: 4
Views: 811

Re: Anatomy of the female body

He's very hygienic, hadn't thought of condoms since I don't need birth control. That's a good idea.
by Joannerogers
Tue Oct 31, 2017 8:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anatomy of the female body
Replies: 4
Views: 811

Anatomy of the female body

I love being a woman but our anatomy is messed up! I never had a problem with uti's after sex but now it's getting ridiculous. I shower before, bathroom after and still I get an infection. Does anyone else suffer from frequent uti's after reversal surgery? Any suggestions for prevention other than a...
by Joannerogers
Tue Oct 31, 2017 2:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: treatment for liver met
Replies: 4
Views: 795

Re: treatment for liver met

I was stage 4 colorectal with many mets to liver (inoperable). My onc gave me folfox with avastin. I had 11Treatments and my liver Mets shrank considerably and was able to have a liver resection. I'm cancer free now! The treatment and surgery was rough but the end result is nothing shirt of amazing!...
by Joannerogers
Sat Oct 14, 2017 8:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T my cancer support doggy
Replies: 9
Views: 848

Re: O/T my cancer support doggy

I'm so sorry for your loss!

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