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by Lydia666
Mon Nov 20, 2017 9:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ileostomy
Replies: 9
Views: 161

Re: ileostomy

Chickspeed wrote:I can't seem to ever get more than 1 day out of my appliance without itching and burning.

How long do you get?

It was the same for me- 2 days max, but usually 1!
by Lydia666
Mon Oct 09, 2017 8:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Wife Passed Away Today
Replies: 29
Views: 3475

Re: My Wife Passed Away Today

I am really sorry. Sending love.
by Lydia666
Thu Sep 14, 2017 5:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Positive news- Cancer free two years in
Replies: 12
Views: 1189

Re: Positive news- Cancer free two years in

I just wanted to say that I am now 2 years since rectal surgery and i am cancer free. In my scan in May, there were a couple of lung spots under watch (i had a bad cold when i was scanned) but 4 months later the scan is clear. I have a rare genetic mutation which predisposes me to multiple cancers,...
by Lydia666
Wed Sep 13, 2017 10:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just told I have a mass in rectum
Replies: 46
Views: 5886

Re: Just told I have a mass in rectum

It is in the rectum. I was told that I would not need a bag because of the location. Thank you so much for all the information, I've been reading as I can. It's so much to take in. It's so hard. But reading the post here has really helped. Oncologist on Tuesday. PET on Thursday Thanks Hi Kathy, Thi...
by Lydia666
Wed Sep 13, 2017 10:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 356
Views: 14875

Re: NEW-Need some positivity here.

weisssoccermom & ValZen - Thank you so much! I have to stop googling. It makes me crazy. Thank you all for your input! I have so many questions...If it is an old and large tumor is it a stage 4? Will Chemo make me lose my hair? Can I still work? How do I tell a 12 and 15 yr old that their mothe...
by Lydia666
Wed Sep 13, 2017 10:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Positive news- Cancer free two years in
Replies: 12
Views: 1189

Positive news- Cancer free two years in

I just wanted to say that I am now 2 years since rectal surgery and i am cancer free. In my scan in May, there were a couple of lung spots under watch (i had a bad cold when i was scanned) but 4 months later the scan is clear. I have a rare genetic mutation which predisposes me to multiple cancers, ...
by Lydia666
Fri Aug 04, 2017 10:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I heart FOLFOX
Replies: 21
Views: 4568

Re: I heart FOLFOX

Great news because radiations suck! I wish i had folfox instead of radiations, but they might have saved my life, or at least prolong it, so i should not complain.
by Lydia666
Sat Jun 17, 2017 12:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: on and off bleeding for 5 years - no pain
Replies: 10
Views: 964

Re: on and off bleeding for 5 years - no pain

Get a colonoscopy! Yes, they can tell you precisely the source of the bleeding. The colonoscopy does not hurt given the sedation, and it's over in 15 min. It is really not too bad but the prep sucks, i admit. But you really don't have a choice at this stage. Get the colonoscopy to get an answer!
by Lydia666
Sat May 20, 2017 9:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help!! Newly diagnosed stage 3a signet ring cell carcinoma
Replies: 7
Views: 841

Re: Help!! Newly diagnosed stage 3a signet ring cell carcinoma

I had some signet cells, but it was called adénocarcinoma with signet ring. I am still here, it's been two years since diagnosis. So far , so good. I changed a lot since my diagnosis. Like Dory, i don't read about stats anymore. Whatever happens, happens. I try to enjoy life that i do have. And of c...
by Lydia666
Wed May 17, 2017 8:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mets and CEA
Replies: 10
Views: 1100

Re: Mets and CEA

Thank you for everyone 's input. I will keep you posted.
by Lydia666
Mon May 15, 2017 8:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NED 4.5 year after lung recurrence
Replies: 10
Views: 816

Re: NED 4.5 year after lung recurrence

Wow! Wishing you a long healthy life! Your outcome is amazing! I also had DCIS after CRC. What treatment did you do for that one?
Thank you very much for posting.
by Lydia666
Sat May 13, 2017 8:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mets and CEA
Replies: 10
Views: 1100

Re: Mets and CEA

With all the challenges you've endured these last few years, you have every right to be scared. Butt the fact that you were diagnosed stage II with this cancer is generally a good indication that they caught this cancer early. Is there a concern about your breast cancer? If you think this will cons...
by Lydia666
Sat May 13, 2017 2:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mets and CEA
Replies: 10
Views: 1100

Mets and CEA

I was wondering if anyone on here had extremely low CEA and had mets at the same time. My CEA isn't deemed representative since it was 0.9 at diagnosis and had stayed that way throughout. Most recently, it was 0.4. Now i have these 2 lung spots which need to be rechecked in months and I wonder, if t...
by Lydia666
Fri May 12, 2017 7:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scare number...lost count!
Replies: 5
Views: 706

Re: Scare number...lost count!

Thank you, Lee. Yes, my little one was 6 months old at my crc diagnosis now she is almost 2.5 yrs old as i am approaching two years since dx. I feel like i really couldn't catch my breath in these two years though. 4 surgeries, 2 diagnosis, rads, chemo, scopes, scans, ultrasounds, biopsies...sigh!! ...
by Lydia666
Fri May 12, 2017 7:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scare number...lost count!
Replies: 5
Views: 706

Scare number...lost count!

So one scare barely ended and not easily, i had to do another scope to verify my colon and it's never easy to go through the prep and the whole hospital procedure, now i had my yearly CT scan and they see 2 undetermined lung spots. I had and still have a major cold/flu/ sinus infection for which i a...

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