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by Lydia666
Thu Feb 15, 2018 9:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver question
Replies: 7
Views: 445

Re: Liver question

Thank you all. Occasionally i worry that something is wrong, wherever i happen to feel something different. Maybe it's just stress. I have scan soon, we'll see what's up. Hopefully nothing.
by Lydia666
Wed Feb 14, 2018 7:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver question
Replies: 7
Views: 445

Liver question

Hello,
I was wondering if those who had liver cancer or liver mets had any symptoms before diagnosis or you just found out at scanning.

Thanks!!
by Lydia666
Mon Nov 20, 2017 9:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ileostomy
Replies: 13
Views: 544

Re: ileostomy

Chickspeed wrote:I can't seem to ever get more than 1 day out of my appliance without itching and burning.

How long do you get?

It was the same for me- 2 days max, but usually 1!
by Lydia666
Mon Oct 09, 2017 8:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Wife Passed Away Today
Replies: 29
Views: 4367

Re: My Wife Passed Away Today

I am really sorry. Sending love.
by Lydia666
Thu Sep 14, 2017 5:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Positive news- Cancer free two years in
Replies: 12
Views: 1309

Re: Positive news- Cancer free two years in

I just wanted to say that I am now 2 years since rectal surgery and i am cancer free. In my scan in May, there were a couple of lung spots under watch (i had a bad cold when i was scanned) but 4 months later the scan is clear. I have a rare genetic mutation which predisposes me to multiple cancers,...
by Lydia666
Wed Sep 13, 2017 10:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just told I have a mass in rectum
Replies: 46
Views: 6950

Re: Just told I have a mass in rectum

It is in the rectum. I was told that I would not need a bag because of the location. Thank you so much for all the information, I've been reading as I can. It's so much to take in. It's so hard. But reading the post here has really helped. Oncologist on Tuesday. PET on Thursday Thanks Hi Kathy, Thi...
by Lydia666
Wed Sep 13, 2017 10:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 391
Views: 21576

Re: NEW-Need some positivity here.

weisssoccermom & ValZen - Thank you so much! I have to stop googling. It makes me crazy. Thank you all for your input! I have so many questions...If it is an old and large tumor is it a stage 4? Will Chemo make me lose my hair? Can I still work? How do I tell a 12 and 15 yr old that their mothe...
by Lydia666
Wed Sep 13, 2017 10:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Positive news- Cancer free two years in
Replies: 12
Views: 1309

Positive news- Cancer free two years in

I just wanted to say that I am now 2 years since rectal surgery and i am cancer free. In my scan in May, there were a couple of lung spots under watch (i had a bad cold when i was scanned) but 4 months later the scan is clear. I have a rare genetic mutation which predisposes me to multiple cancers, ...
by Lydia666
Fri Aug 04, 2017 10:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I heart FOLFOX
Replies: 21
Views: 4820

Re: I heart FOLFOX

Great news because radiations suck! I wish i had folfox instead of radiations, but they might have saved my life, or at least prolong it, so i should not complain.
by Lydia666
Sat Jun 17, 2017 12:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: on and off bleeding for 5 years - no pain
Replies: 10
Views: 1101

Re: on and off bleeding for 5 years - no pain

Get a colonoscopy! Yes, they can tell you precisely the source of the bleeding. The colonoscopy does not hurt given the sedation, and it's over in 15 min. It is really not too bad but the prep sucks, i admit. But you really don't have a choice at this stage. Get the colonoscopy to get an answer!
by Lydia666
Sat May 20, 2017 9:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help!! Newly diagnosed stage 3a signet ring cell carcinoma
Replies: 7
Views: 1003

Re: Help!! Newly diagnosed stage 3a signet ring cell carcinoma

I had some signet cells, but it was called adénocarcinoma with signet ring. I am still here, it's been two years since diagnosis. So far , so good. I changed a lot since my diagnosis. Like Dory, i don't read about stats anymore. Whatever happens, happens. I try to enjoy life that i do have. And of c...
by Lydia666
Wed May 17, 2017 8:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mets and CEA
Replies: 10
Views: 1196

Re: Mets and CEA

Thank you for everyone 's input. I will keep you posted.
by Lydia666
Mon May 15, 2017 8:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NED 4.5 year after lung recurrence
Replies: 10
Views: 905

Re: NED 4.5 year after lung recurrence

Wow! Wishing you a long healthy life! Your outcome is amazing! I also had DCIS after CRC. What treatment did you do for that one?
Thank you very much for posting.
by Lydia666
Sat May 13, 2017 8:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mets and CEA
Replies: 10
Views: 1196

Re: Mets and CEA

With all the challenges you've endured these last few years, you have every right to be scared. Butt the fact that you were diagnosed stage II with this cancer is generally a good indication that they caught this cancer early. Is there a concern about your breast cancer? If you think this will cons...
by Lydia666
Sat May 13, 2017 2:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mets and CEA
Replies: 10
Views: 1196

Mets and CEA

I was wondering if anyone on here had extremely low CEA and had mets at the same time. My CEA isn't deemed representative since it was 0.9 at diagnosis and had stayed that way throughout. Most recently, it was 0.4. Now i have these 2 lung spots which need to be rechecked in months and I wonder, if t...

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