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by MaryannW
Fri Aug 24, 2018 3:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Enemas to manage LARS
Replies: 4
Views: 1144

Re: Enemas to manage LARS

Thanks for the reply Mike. If I find a dedicated group I’ll let you know.
by MaryannW
Fri Aug 24, 2018 3:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Enemas to manage LARS
Replies: 4
Views: 1144

Re: Enemas to manage LARS

Thanks Rockhound, I’m a member of the LARS FB page but wanted something additional relating to enemas because it will most likely be my lifelong management tool. I will check out the rectal cancer group on Colontown as I’ve not been there before. Thanks for your reply. My quality of life has picked ...
by MaryannW
Tue Aug 21, 2018 4:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Enemas - HELP
Replies: 10
Views: 2072

Re: Enemas - HELP

Not sure why his is happening. How much water do you use? Sometimes I get a breakthrough in less than 24 hours but this is because of diet variation. How far out from reversal are you?
by MaryannW
Mon Aug 20, 2018 5:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Enemas to manage LARS
Replies: 4
Views: 1144

Enemas to manage LARS

Hi all, I suffer with major LARS following ULAR and neoadvujant radiation therapy. I have found great relief from daily enemas and am looking for an enema specific support group online, so that I can post any questions I might have and share information. Does anyone know of such a support group onli...
by MaryannW
Thu Dec 28, 2017 12:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowel "Urgency" - help!
Replies: 23
Views: 4775

Re: Bowel "Urgency" - help!

I haven’t considered surgery as there’s a risk of incontinence and Botox is temporary. It comes down to my function is terrible.
by MaryannW
Mon Nov 06, 2017 8:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoughts on chemo for stage II patients?
Replies: 16
Views: 2642

Re: Thoughts on chemo for stage II patients?

Stage 2a, rectal cancer. I opted to do the mop up chemo of six rounds of xeloda. No regrets, even though neoadjuvant radiation and chemo blasted most of my tumor away, only microscopic traces left, and tumor was found not to be in blood supply post surgery, I’m pleased I did the mop up. I wanted to ...
by MaryannW
Mon Nov 06, 2017 8:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowel "Urgency" - help!
Replies: 23
Views: 4775

Re: Bowel "Urgency" - help!

Me too, so glad I got over my reluctance to take the leap. I’m still experimenting with frequency of enemas, but I have two rules. No more sleepless nights and no more clustering. My pattern is I have two or three good days and then a backup which starts the clustering especially during the night. I...
by MaryannW
Mon Nov 06, 2017 8:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Enema equipment
Replies: 3
Views: 1008

Re: Enema equipment

I use the rubber catheters as I’ve a chronic fissure which is what pushed me to finally take control with enemas. I’m 18 months out from reversal and have tried everything. Such a relief and should have done it sooner. Here is a link: http://www.midwesthealthandnutritioninc.com/ecommerce/enema-suppl...
by MaryannW
Sun Nov 05, 2017 12:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowel "Urgency" - help!
Replies: 23
Views: 4775

Re: Bowel "Urgency" - help!

I have begun to use enemas in my arsenal thanks to people like tammylane giving me the confidence to try. It takes a lot to think that you need an enema to go to the toilet but in reality it’s quite easy. 20 minutes, a cup and a half of water and I’m good for 1.5 days. I’m still trailing frequency o...
by MaryannW
Thu Aug 03, 2017 10:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation induced menopause
Replies: 31
Views: 13592

Re: Radiation induced menopause

I'm following this with interest. I was not told about this by radiologist and now have stenosis and scarring. Sex is impossible and it makes me so sad to lose this in my life along with everything else cancer takes away. I have tried pessaries but not that much difference and dilators but damage is...
by MaryannW
Wed May 25, 2016 9:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Log: Experience,Problems, Q & A's
Replies: 436
Views: 92786

Re: Reversal Log: Experience,Problems, Q & A's

Thanks tammylane for the encouragement. It is a marathon not a sprint and patience is the key. I'm confident I can get to a new and acceptable normal with time. And in between time I'm taking it as easy as I can and not putting too much pressure on myself.
by MaryannW
Wed May 25, 2016 9:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 weeks post-reversal
Replies: 11
Views: 6344

Re: 5 weeks post-reversal

I am 7 weeks out and have the things you describe. Multiple BMs leave the butt very sore. Yesterday because I ate onions I clustered from 5am-9am with about 12 BMs. I don't have diaorreah so these movements were very painful - firmish and well formed, and I'm sore and sorry today. I eat lots of solu...
by MaryannW
Sun May 15, 2016 10:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Log: Experience,Problems, Q & A's
Replies: 436
Views: 92786

Re: Reversal Log: Experience,Problems, Q & A's

I'm five weeks out from the reversal and struggling a bit like everybody else has at one time or another. It is incremental improvement that I notice more in weeks and months rather than days. I'm one of those ones that falls somewhere in between really bad and possibly good. My urgency is getting b...
by MaryannW
Fri Mar 25, 2016 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: repeat rectal adenomas/LAR?
Replies: 13
Views: 1877

Re: repeat rectal adenomas/LAR?

Ok I was ''y' ed to stage 1 post surgery. I think my original post said I was downstaged following radiation and chemo which is a correct use of the phrase in a sentence rather than to strictly follow medical terminology. I have now wasted precious time on semantics and explanations of processes I'm...

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