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by MissMolly
Fri Dec 15, 2017 5:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Life - Awsome Life :)
Replies: 4
Views: 169

Re: Stoma Life - Awsome Life :)

Anna: You have my utmost of respect for the choices that you made in coming to a permanent colostomy. You will be a valuable resource for forum members faced with the prospect of an ostomy - bringing a sorely needed real life and day-to-day perspective. I have been sharing space on my abdomen with a...
by MissMolly
Wed Dec 13, 2017 6:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mental status changes
Replies: 8
Views: 556

Re: Mental status changes

He may want to get a "liver panel" or CMP (Comprehensive metabolic panel) to make sure his liver is working well and removing toxins. I agree with Turtle that laboratory blood work is in order - liver enzymes and complete metabolic panel. A liver may look A-OK on a CT imaging scan (anatom...
by MissMolly
Wed Dec 13, 2017 6:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery is over!
Replies: 29
Views: 801

Re: Surgery is over!

For those individuals who are wondering why the placement of a temporary ileostomy, Ann (Aqx99) has expressed the reasoning and rationale. It was explained to me that the tissue was so fragile after chemoradiation that the temporary ileostomy was needed to allow for proper healing. It's also why I t...
by MissMolly
Mon Dec 11, 2017 12:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Daily Enemas before Ilio Reversal to prevent LARS?
Replies: 4
Views: 135

Re: Daily Enemas before Ilio Reversal to prevent LARS?

Big Jay: An antegrade enema means an enema where water is infused through the mucus stoma (or non-working stoma), effectively flushing the segment of diverted large intestine that is resting and healing from the LARS surgery. A retrograde enema means an enema where water is infused via the rectum, c...
by MissMolly
Sun Dec 10, 2017 4:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reoccuring Digestive issues
Replies: 13
Views: 322

Re: Reoccuring Digestive issues

Hey Daddy: Adhesions (scar tissue) is a common finding after any abdominal surgery. Adhesions/scar tissue is not visualized or seen on imaging studies (not by x-ray and not by CT scan and not by MRI), unless there is an acute kink or blockage which causes dilation of the trapped or tethered segment ...
by MissMolly
Sat Dec 09, 2017 5:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 467
Views: 33802

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

“Blow outs” (I.e. failure of a wafer with dramatic leaking of liquid ileostomy fecal output) will invariably happen from time to time. Sometimes “blow outs” just happen, a perfect storm of incidental events that contribute to a wafer (and barrier ring) losing contact with the skin. A wafer that is w...
by MissMolly
Fri Dec 08, 2017 5:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HUGE amounts of Watery Leakage 24 yrs old. SCARED
Replies: 19
Views: 561

Re: HUGE amounts of Watery Leakage 24 yrs old. SCARED

Smallman: Have you applied for Medicaid? This is medical insurance for individuals below the poverty line. There are no co-pays or deductibles for those on MediCaid. Not all physicians and not all hospitals accept Medicaid, but a fair number do. Large university teaching hospitals often see and trea...
by MissMolly
Thu Dec 07, 2017 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reoccuring Digestive issues
Replies: 13
Views: 322

Re: Reoccuring Digestive issues

Hey Daddy: Your son’s case sounds similar to my own situation of recent. I do not have colon cancer but have had extensive abdominal surgeries due to a severe perforation. I have been and out of the hospital 4 times in the last three months with unrelenting bouts of vomiting and severe abdominal pai...
by MissMolly
Thu Dec 07, 2017 12:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 467
Views: 33802

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Mike: It sounds like you had a great session with the ostomy nurse, with a good exchange of conversation regarding pouching ideas and learning. I adore the Coloplast Mio. I am a dedicated Coloplast consumer. The Mio wafer has elastic polymers, which makes it highly pliable and flexible. For someone ...
by MissMolly
Wed Dec 06, 2017 4:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 467
Views: 33802

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Mike: Instead of individual packets of skin protectant, you can always use Cavilon Liquid Skin Protectant. It comes in a small 4 Oz. Spray bottle. Cavilon is hands-down The Best skin protectant and a trusted favorite of those with permanent ileostomies. Not all skin protectants are equal in quality....
by MissMolly
Tue Dec 05, 2017 6:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 467
Views: 33802

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Mike: Ann (aqx99) is giving you sound advice. Especially regarding the use of ostomy paste. If you are applying a ring of ostomy paste on the surface of the wafer, stop. Cease and decist. Ostomy paste has no adhesive property. It is not Elmer’s glue. Ostomy paste will add to leaks by provide a ready...
by MissMolly
Sun Dec 03, 2017 9:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC - MY BFF W/Appendix Cancer
Replies: 9
Views: 319

Re: HIPEC - MY BFF W/Appendix Cancer

BS aka Ethel: Sending gentle prayers for recovery and healing to your BFF. Sending a tail wag and sing-song Roo Roo Roo to you from my happy-as-sunshine Maltese, Molly. A life-long friend, as is your BFF, occupies a special and unreplaceabke place in one’s heart. I am thinking of you, sending you my...
by MissMolly
Sun Dec 03, 2017 8:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How much margin for stoma with cut-to fit?
Replies: 20
Views: 343

Re: How much margin for stoma with cut-to fit?

Mike: Ann’s (Aqx99) comments in her post above are Spot On and wise. I suspect your irritation and minor leak correlate to your use of a ring of ostomy paste on the wafer. Cease and desist this practice. Ostomy paste is not like Elmer’s glue. Ostomy paste is NOT an adhesive. It is meant to fill dips...
by MissMolly
Sun Dec 03, 2017 5:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dysautonomia, a new thing?
Replies: 26
Views: 821

Re: Dysautonomia, a new thing?

Kelley: Do you know the etiology of your hypothyroidism? Auto-immune based Hashimoto’s thyroidits? Primary/central hypothyroidism (pituitary based)? Or other? Did you have hypothyroidism prior to chemotherapy? Or did the hypothyroidism manifest after chemotherapy? Your low thyroid function might be ...
by MissMolly
Sun Dec 03, 2017 4:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How much margin for stoma with cut-to fit?
Replies: 20
Views: 343

Re: How much margin for stoma with cut-to fit?

Mike: I will look at the Hollister and ConvaTech moldable wafers and get back to you with specific product numbers. You can then request product samples. Moldable wafers provide a seamless extension of the hydrocolloid matrix (that constitutes a wafer) that extends upward from the plate of the wafer...

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