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by MissMolly
Sat Feb 17, 2018 1:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Black
Replies: 8
Views: 519

Re: Black

Cinder: I will second CR Guy to discuss the role and dosing of the corticosteroids that you are receiving (likely dexamethasone) as part of your chemotherapy infusions as contributing to your emotional darkness. I have primary adrenal failure (Addison’s disease) and am dependent on exogenous cortico...
by MissMolly
Thu Feb 08, 2018 1:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back in the fight
Replies: 60
Views: 3076

Re: Back in the fight

Macpudd: Reading about your brain tumor diagnosis figuratively hit me directly in the gut. My brother had a similar diagnosis of a Grade1V Glioblastoma multiforma when he was 16 years of age. The tumor was an infiltrating spider web involving his right temporal-partial lobe (and motor cortex and spe...
by MissMolly
Tue Feb 06, 2018 1:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery scheduled, clinical study for Lifeseal, questions about recovery
Replies: 67
Views: 2135

Re: Surgery scheduled, clinical study for Lifeseal, questions about recovery

Susan: Take a moment and look at the line of ostomy designed undergarments and “belly bands” from a family owned company in England called ComFizz. http://www.comfizz.com ComFizz has been awarded several awards for innovative product excellence through the British NHS. I have worn their ostomy under...
by MissMolly
Sat Feb 03, 2018 7:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constipation after reversal?
Replies: 9
Views: 221

Re: Constipation after reversal?

Ann/Aqx99: Your reversal surgery involved handling and manipulation of the intestines by the surgeons. Intestines, as a general rule, are sensitive to touch and manipulation and easily irritated/upset by any surgical procedure. Slowing of intestinal motility is a common post-surgical by-product - i....
by MissMolly
Sat Feb 03, 2018 10:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal surgery
Replies: 19
Views: 532

Re: Reversal surgery

Hi Heidders: it's interesting how the Coloplast Mio ostomy products have not worked for me at all. I heard that they were the "nicer brand," and yet their adherence to my skin is lacking. . . Meanwhile, the Hollister products which I received in the hospital have passed with flying colors ...
by MissMolly
Mon Jan 29, 2018 9:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal is Over
Replies: 52
Views: 1553

Re: Reversal is Over

Ann: Congratulations on your ileostomy reversal and becoming pouch free. Positive karma, lucky lady bugs, and the vested powers of an Irish 4 leaf clover for full healing in the days and weeks ahead. You took a open approach with your ileostomy, breaking down faulty assumptions associated with havin...
by MissMolly
Sat Jan 27, 2018 4:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Well, hell.
Replies: 25
Views: 1662

Re: Well, hell.

Jenn: With a loop ileostomy it is normal and expected to pass fecal material (in all ways similar to an actual bowel movement) and mucus (ranging in color from white/pasty to light-brown/honey tinged as a “mucus poop”). It is also normal and expected to have rectal pressure and fullness that is simi...
by MissMolly
Fri Jan 26, 2018 11:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried 19 years old with the symptoms of possible colorectal cancer.
Replies: 2
Views: 236

Re: Worried 19 years old with the symptoms of possible colorectal cancer.

Inflammation of the large or small intestine (often referred to as colitis) would be a reasonable possible source of your symptoms and distress. You can google “inflammatory bowel disease” (IBD) to learn more and see if the profile of IBD has similarities with your symptoms. Ulcerative colitis and C...
by MissMolly
Sun Jan 21, 2018 12:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adhesions
Replies: 11
Views: 695

Re: Adhesions

Risto: I have had a rocky course with post-surgical adhesions/scar tissue. For me . . Pain related to a partial “kink” of intestine is quite intense, with a rolling wave like quality. Waves of pain. This pain get my full attention. On first symptoms, I cease eating any solid food. Clear liquids only...
by MissMolly
Sat Jan 20, 2018 10:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: those of you with a colostomy
Replies: 14
Views: 597

Re: those of you with a colostomy

Betula: Lee offers a good suggestion in offering the United Ostomy Association of America (UOAA) and its on-line support forum as a positive outreach for your husband to visit. I have a permanent due to a serious intestinal perforation and am a regular poster on the UOAA. http://www.ostomy.org There...
by MissMolly
Thu Jan 18, 2018 1:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal recovery time
Replies: 16
Views: 755

Re: Reversal recovery time

Anne: A mother’s love is like no other. I am glad that you will have your mother staying with you and standing with you, by your side. My mother has been my primary support though my surgeries, and I can say that she was the person that I most needed and wanted when my embers have been low and barel...
by MissMolly
Wed Jan 17, 2018 8:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Facing a permanent stoma
Replies: 41
Views: 1739

Re: Facing a permanent stoma

Beth: I gather your colostomy Included resection of your anus and anal sphincters and your backend surgically closed. That’s a big surgery. The 6 week sitting moratorium is to keep the deep and superficial tissues of the lower pelvis free of tension, traction, or pulling forces that would separate o...
by MissMolly
Tue Jan 16, 2018 7:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Female Pains AFTER radiation, No Doc will Listen...
Replies: 31
Views: 1019

Re: Female Pains AFTER radiation, No Doc will Listen...

Radiation can cause severe inflammation of the lining of the bladder and urethra. This would account for your intense pain. Picture a severe sunburn of the epitheal lining of your bladder and urethra. Ouch.
Karen
by MissMolly
Mon Jan 15, 2018 11:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beansmama is gone.
Replies: 37
Views: 2329

Re: Beansmama is gone.

Hearing this news was enough to suck the oxygen right out of me. The passing of BeansMama is a significant loss to this community. BeansMama gave everything she had to overcoming her cancer. She held back nothing. I remember her last posting before Christmas, where she was hospitalized with pleurisy...
by MissMolly
Sun Jan 14, 2018 9:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Phantom rectum pain
Replies: 4
Views: 466

Re: Phantom rectum pain

Kristi: The lower rectum and urogenital structures of the lower pelvis are highly innervated by an abundance of sensory nerves. Next to the hands/fingers, the lower pelvis has the second highest preponderance of sensory nerve endings. You have had physical therapy with I take it some success. Has an...

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