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by MissMolly
Wed May 23, 2018 5:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer-Blocked and Painful
Replies: 6
Views: 168

Re: Rectal Cancer-Blocked and Painful

Steve: I suffer from recurrent small bowel obstructions (SBO) due to scar tissue that acts to kink a portion of my small intestine. Small bowel obstructions are pure misery. Although a SBO is not the same as your rectal swelling and tumor prolapse, in common is the difficulty of passing fecal materi...
by MissMolly
Thu May 10, 2018 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: As we come up on a year
Replies: 8
Views: 537

Re: As we come up on a year

Exaussie: You bring up an important point in describing cancer as affecting the entire family. I agree. My brother was 16 years of age when he was diagnosed with a Grade IV glioblastoma multiforma (the same tumor type that was diagnosed in Senator John McCain). I was 12 years of age. The year was 19...
by MissMolly
Thu May 10, 2018 12:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peritoneal CA secondary to Colon CA
Replies: 5
Views: 474

Re: Peritoneal CA secondary to Colon CA

Even with “great veins” the benefits of a placement of a port are many. I have a port although not for chemotherapy purposes. I debated whether to proceed with a port for several months but will admit, in hindsight, that it was a wise decision to have it placed. Understand that chemotherapy medicati...
by MissMolly
Sun May 06, 2018 3:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Researching for my dad
Replies: 4
Views: 487

Re: Researching for my dad

For someone with stenosis of the colon regular/daily use of Miralax would be one area to discuss with his physician. Miralax (or similar osmotic laxative/agent; magnesium citrate powder; Milk of Magnesia) is often used by individuals with colon narrowing in order to keep fecal matter moving through ...
by MissMolly
Sat May 05, 2018 1:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Video and other stuff :)
Replies: 6
Views: 444

Re: Video and other stuff :)

DBF: I began visiting this forum after becoming acquainted with NW Girl (Belle) on the UOAA ostomy forum in 2013. Belle and I quickly became Best Favorite Friends that began with a shared ostomy experience and expanded to our mutual passion for gardening, long walks in nature, and browsing antique s...
by MissMolly
Tue May 01, 2018 10:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dr. Kemeny, NYT Article on the demise of the HAI pump
Replies: 4
Views: 936

Re: Dr. Kemeny, NYT Article on the demise of the HAI pump

Medical treatments and medical interventions that serve a low critical mass of needing patients are oft not profitable enough for health care companies to bring to market or sustain ongoing sourcing, production and design upgrade costs. It is a sad reality that people with rare conditions or low occ...
by MissMolly
Mon Apr 16, 2018 10:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Repeated Bowel Blockages After Surgery
Replies: 4
Views: 494

Re: Repeated Bowel Blockages After Surgery

James: I can definitely relate to your friends’ plight with multiple small bowel obstructions post abdominal surgery. In my case, as may be true for your friend, my history with repeated obstructions was due to scar tissue/adhesions that would tether and restrict a segment of intestine. I have had s...
by MissMolly
Sat Apr 14, 2018 5:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 896
Views: 76439

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I was able to get my insurance to double my supplies after having the doctor's office contact them citing "Chemo induced diarrhea" as the need for more . . . It's worth asking, my insurance is covering all of the additional supplies without a copay.[/quote] Shana brings up a valuable point...
by MissMolly
Sun Apr 08, 2018 9:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 896
Views: 76439

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Shana: ComFizz is a small company in the UK/England that specializes in underwater and support garments for ostomies. The company has received several awards by the English National Institute Of Health for their product quality and innovative designs. ComFizz has recently introduced a stoma protecto...
by MissMolly
Sun Apr 01, 2018 10:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erythema ab igne
Replies: 9
Views: 1004

Re: Erythema ab igne

Steph: Pain is pain is pain. You need not have a large or noticeable mass or other anatomical finding in a CT scan or MRI to have intractable pain. Pain can be of origins not visible on CT scans or imaging. Nerve irritation, nerve entrapment, tethering of scar tissue, as well as physiological altera...
by MissMolly
Sat Mar 31, 2018 2:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erythema ab igne
Replies: 9
Views: 1004

Re: Erythema ab igne

Steph: I am on Palliative Care and have been on narcotics for 2-3 years. Before considering a pain pump, I would think your Palliative Care team would offer you a long-acting narcotic such as the Fentanyl duragesic skin patch. It comes in several dosages, the medication absorbed through the skin (by...
by MissMolly
Thu Mar 29, 2018 12:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Gas/Constipation
Replies: 5
Views: 760

Re: Gas/Constipation

Beck: Your foul-smelling and excessive gas likely is due to bacterial overgrowth or imbalance of the necessary “good”/beneficial bacterial that constitutes the GI tract’s normal flora. The bacterial flora of the digestive tract serves as the home base for the body’s immune system and immune response...
by MissMolly
Sun Mar 25, 2018 2:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3b with ovarian met recurrence and healthy now
Replies: 9
Views: 1192

Re: Stage 3b with ovarian met recurrence and healthy now

DH13: Wow ! Your marathon time of 2:48 is impressive and a solid accomplishment of body, mind, and spirit. I am a former marathon runner (my best course time a more humble 3:15). I credit my natural love of long distance running with giving me a foundation in facing multiple and complex health issue...
by MissMolly
Sun Mar 25, 2018 1:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erythema ab igne
Replies: 9
Views: 1004

Re: Erythema ab igne

Steph: Your post is a valuable sharing of information for others to learn from. Erythema ab igne is not a common/routine finding and can escape diagnosis by physicians because it is not on their radar screen. I saw 3-4 cases of erythema ab igne during my years as a clinical physical therapist. Prolo...
by MissMolly
Sat Mar 24, 2018 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post obstruction ileostomy
Replies: 9
Views: 802

Re: Post obstruction ileostomy

Thank You Robin. That is very gracious of you to wrap me in a hug. I believe strongly in the power of collective GoodWill and healing energy flows. Chrissie and I have known each other since our earliest childhood days against the backdrop of strollers and a playpen, as our mothers were bestie frien...

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