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by MissMolly
Thu Jan 18, 2018 1:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal recovery time
Replies: 16
Views: 525

Re: Reversal recovery time

Anne: A mother’s love is like no other. I am glad that you will have your mother staying with you and standing with you, by your side. My mother has been my primary support though my surgeries, and I can say that she was the person that I most needed and wanted when my embers have been low and barel...
by MissMolly
Wed Jan 17, 2018 8:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Facing a permanent stoma
Replies: 41
Views: 1355

Re: Facing a permanent stoma

Beth: I gather your colostomy Included resection of your anus and anal sphincters and your backend surgically closed. That’s a big surgery. The 6 week sitting moratorium is to keep the deep and superficial tissues of the lower pelvis free of tension, traction, or pulling forces that would separate o...
by MissMolly
Tue Jan 16, 2018 7:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Female Pains AFTER radiation, No Doc will Listen...
Replies: 9
Views: 240

Re: Female Pains AFTER radiation, No Doc will Listen...

Radiation can cause severe inflammation of the lining of the bladder and urethra. This would account for your intense pain. Picture a severe sunburn of the epitheal lining of your bladder and urethra. Ouch.
Karen
by MissMolly
Mon Jan 15, 2018 11:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beansmama is gone.
Replies: 37
Views: 1684

Re: Beansmama is gone.

Hearing this news was enough to suck the oxygen right out of me. The passing of BeansMama is a significant loss to this community. BeansMama gave everything she had to overcoming her cancer. She held back nothing. I remember her last posting before Christmas, where she was hospitalized with pleurisy...
by MissMolly
Sun Jan 14, 2018 9:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Phantom rectum pain
Replies: 4
Views: 406

Re: Phantom rectum pain

Kristi: The lower rectum and urogenital structures of the lower pelvis are highly innervated by an abundance of sensory nerves. Next to the hands/fingers, the lower pelvis has the second highest preponderance of sensory nerve endings. You have had physical therapy with I take it some success. Has an...
by MissMolly
Sun Jan 14, 2018 4:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Holiday Weekend Fistula
Replies: 4
Views: 205

Re: Holiday Weekend Fistula

Apple tree: Oh . . how distressing for you. Rectovaginal fistulas can be agonizing simply due to the personal natural of foul-smelling vaginal discharge and leakage of liquid feces. My aunt, with whom I was very close, developed rectovaginal fistulas as an unfortunate byproduct of radiation for ovar...
by MissMolly
Sun Jan 14, 2018 1:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly unnecessary open liver surgery
Replies: 2
Views: 170

Re: Possibly unnecessary open liver surgery

One possibility . . . Many surgeons will not perform laparoscopic abdominal surgery if there has been a prior abdominal surgery. The limiting concern is the development of scar tissue and adhesions that are silently lurking - tethering to other organs, tethering to the abdominal wall, tethering to a...
by MissMolly
Sat Jan 13, 2018 5:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery scheduled, clinical study for Lifeseal, questions about recovery
Replies: 20
Views: 414

Re: Surgery scheduled, clinical study for Lifeseal, questions about recovery

Caat: I am somewhat familiar with LifeSeal and its clinical study and pending FDA approval. It is an ingenious product, and if you have the opportunity to participate through Stanford it might be well worth the additional time/energy of travel to the Stanford University medical campus. Lifeseal is a...
by MissMolly
Sat Jan 13, 2018 9:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Miss Molly, Hope you are okay. . .
Replies: 18
Views: 1061

Re: Miss Molly, Hope you are okay. . .

Gosh . . . I had no idea that this thread was generating positive karma into the wider universe until Peanut (Terri) dropped me a note. I am humbled by the messages of condolence and kindness, as I am only a periphery member of this forum. That Molly was my soul-mate is an understatement. I think so...
by MissMolly
Sat Jan 13, 2018 9:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR June 20 2017 passing blood now!!
Replies: 4
Views: 250

Re: LAR June 20 2017 passing blood now!!

Chickspeed: I think your blood-tinged mucus discharge is a non-serious illustration of what is termed “diversion colitis.” You can google the term to become more familiar with it. With a loop ileostomy, a common problem is inflammation of the diverted and resting/healing portion of large intestine. ...
by MissMolly
Fri Dec 22, 2017 3:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 622
Views: 40234

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Mike: Be aware that fresh pineapple is known to be problematic for individuals with an ileoatomy. The problem with pineapple that makes it a high risk is it’s high insoluble fibrous content. The pineapple, even well chewed, is known to form a stingy bolus as it oasses through the small intestine giv...
by MissMolly
Fri Dec 15, 2017 5:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Life - Awsome Life :)
Replies: 8
Views: 595

Re: Stoma Life - Awsome Life :)

Anna: You have my utmost of respect for the choices that you made in coming to a permanent colostomy. You will be a valuable resource for forum members faced with the prospect of an ostomy - bringing a sorely needed real life and day-to-day perspective. I have been sharing space on my abdomen with a...
by MissMolly
Wed Dec 13, 2017 6:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mental status changes
Replies: 9
Views: 848

Re: Mental status changes

He may want to get a "liver panel" or CMP (Comprehensive metabolic panel) to make sure his liver is working well and removing toxins. I agree with Turtle that laboratory blood work is in order - liver enzymes and complete metabolic panel. A liver may look A-OK on a CT imaging scan (anatom...
by MissMolly
Wed Dec 13, 2017 6:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery is over!
Replies: 46
Views: 1568

Re: Surgery is over!

For those individuals who are wondering why the placement of a temporary ileostomy, Ann (Aqx99) has expressed the reasoning and rationale. It was explained to me that the tissue was so fragile after chemoradiation that the temporary ileostomy was needed to allow for proper healing. It's also why I t...
by MissMolly
Mon Dec 11, 2017 12:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Daily Enemas before Ilio Reversal to prevent LARS?
Replies: 4
Views: 236

Re: Daily Enemas before Ilio Reversal to prevent LARS?

Big Jay: An antegrade enema means an enema where water is infused through the mucus stoma (or non-working stoma), effectively flushing the segment of diverted large intestine that is resting and healing from the LARS surgery. A retrograde enema means an enema where water is infused via the rectum, c...

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