Search found 630 matches

Go to advanced search

by MissMolly
Wed Apr 17, 2019 6:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 46
Views: 6290

Re: Anyone doing xelox and xeloda. Please help

Jolene: Your night sweats and temperature dysregulation could well be correlated to the corticosteroids you are receiving (dexamethasone). Your insomnia and interrupted sleep and heightened energy could also be correlated to the corteocosteroids. You may want to discuss with your oncologist a dose r...
by MissMolly
Wed Apr 17, 2019 11:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dexamethasone
Replies: 12
Views: 406

Re: Dexamethasone

I have posted about dexamethasone before and will do so again, as a “public safety announcement” of sorts. I am not a cancer patient. I am an individual with adrenal failure (Addison’s disease) and know well the unfortunate consequences that glucocorticosteroid use can ravage on the body. Dexamethas...
by MissMolly
Mon Apr 15, 2019 12:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 37
Views: 2409

Re: Vaginal stenosis - an issue for women with rectal cancer

Jolene: The addition of local Premarin cream seems like a wise strategy. It will provide the vaginal and labial tissues with the “nourishment” that they need. I used Premarin cream 3 x a week for about 9 months, and then went on a low dose birth control pill for an additional nine months. Then no fu...
by MissMolly
Mon Apr 15, 2019 12:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - my furbaby has cancer....hard last weekend - UPDATED
Replies: 18
Views: 604

Re: O/T - my furbaby has cancer....hard last weekend

Jaynne:
Thinking of you this morning . . .

Sending you comfort and prayer.
Karen
by MissMolly
Sat Apr 13, 2019 5:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally reached the 'forgot I had cancer' spot!
Replies: 12
Views: 538

Re: Finally reached the 'forgot I had cancer' spot!

Diane: You have always written so lovingly of your immediate family and the close relationships shared between each of you, so it is especially meaningful that you have shared this photograph of you and your family. You and your mother are “Two Peas in a Pod.” The resemblance between the two of you ...
by MissMolly
Sat Apr 13, 2019 1:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - my furbaby has cancer....hard last weekend - UPDATED
Replies: 18
Views: 604

Re: O/T - my furbaby has cancer....hard last weekend

Jay Anne: I am totally in synch with your post and narrative. I am a HUGE animal lover and have found the human-canine bond to be a sustaining and comforting presence in living with compromised health. In saying good-bye to Roxy . . . There is no way to prepare for that which is unpreparable. But kn...
by MissMolly
Thu Apr 11, 2019 11:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom’s bag won’t stop leaking
Replies: 37
Views: 1378

Re: Mom’s bag won’t stop leaking

Punky: There are packets that you can add to an ostomy pouch that aide in changing the liquid ileostomy output to a thicker consistency (like jello), which can be successful in reducing the incidence of leaks. These packets go by different names. Ileo-sorb is one product name. Emptying and draining ...
by MissMolly
Thu Apr 11, 2019 11:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 37
Views: 2409

Re: Vaginal stenosis - an issue for women with rectal cancer

Jolene: I find your oncologist’s negative connotations of hormone replacement therapy concerning. I read a recent article in Medscape just this week discussing the importance of EARLY intervention of localized/vaginal estrogen or low dose systemic birth control for menopausal symptoms. Especially re...
by MissMolly
Sat Mar 30, 2019 6:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom’s bag won’t stop leaking
Replies: 37
Views: 1378

Re: Mom’s bag won’t stop leaking

Punky44 wrote:MissMolly is this the one you have?

https://www.coloplast.us/sensura-mio-1- ... en-us.aspx


Yep this is the one I have. !
by MissMolly
Sat Mar 30, 2019 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom’s bag won’t stop leaking
Replies: 37
Views: 1378

Re: Mom’s bag won’t stop leaking

Punky: I am glad that Lee has posted with her input and suggestions. Thanks for hoping onboard to this thread, Lee. You can certainly use the Hollister adaptic rings that you have with another competing brand of wafer. Given that leaks are your mother’s nemesis (and, honestly, leaks are the nemesis ...
by MissMolly
Sat Mar 30, 2019 4:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom’s bag won’t stop leaking
Replies: 37
Views: 1378

Re: Mom’s bag won’t stop leaking

Plunky: I adore Coloplast and have been a loyal customer. I was started on Hollister in the hospital and had problems from the get-go with leaks and always having a slight odor to me. Coloplast was like a shining rainbow for me. I can now live my life without worry about my ostomy. Here is the Colop...
by MissMolly
Sat Mar 30, 2019 2:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom’s bag won’t stop leaking
Replies: 37
Views: 1378

Re: Mom’s bag won’t stop leaking

Punky: Gatorade with no added sugars may be fine. I am not a fan of foods where I cannot understand a list of ingredients or foods with chemical additives. I purchase at Whole Foods. Your mother’s intestinal tract has been traumatized by the recent surgery. Keep in mind that foods that are highly pr...
by MissMolly
Sat Mar 30, 2019 11:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom’s bag won’t stop leaking
Replies: 37
Views: 1378

Re: Mom’s bag won’t stop leaking

Punky: A word of caution on Gatorade and PowerAide . . . . Energy drinks with high added sugars and high fructose corn syrup will add to problems with diarrhea and excessive water loss for those with a new ileostomy. Gatorade and Powerade and similar are NOT your mother’s friends. Do NOT place these...
by MissMolly
Thu Mar 28, 2019 9:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom’s bag won’t stop leaking
Replies: 37
Views: 1378

Re: Mom’s bag won’t stop leaking

Punky: Come on over to the United Ostomy Association of America support forum for assistance from its ranks of stoma-sporting members. http://www.uoaa.org A few ideas to get you through the immediate crisis of leaks: 1. Ostomy nurses are not all knowledgeable. You will find a number of individuals w...
by MissMolly
Tue Mar 26, 2019 12:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 37
Views: 2409

Re: Vaginal stenosis - an issue for women with rectal cancer

Jolene: Your gynecologist does seem to hold to a high level of caution regarding consideration of systemic hormone replacement therapy and/or local vaginal application of estrogen/Premarin. Remember . . . Systemic hormone replacement therapy (HRT) need not be a lifelong dosing regimen. There are low...

Go to advanced search