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by MissMolly
Wed May 22, 2019 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 44
Views: 4414

Re: Vaginal stenosis - an issue for women with rectal cancer

I am a month out from radiation for rectal cancer and having a lot of brownish vaginal discharge. Is this normal?? I was told by my doc it was but it seems like a lot and I am worried. CMarie: I believe your physician is correct in lowering your alarm level with regards to the brownish vaginal disc...
by MissMolly
Tue Apr 30, 2019 5:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OFF TOPIC: Specialists in silos, patient suffering as result
Replies: 17
Views: 1235

Re: OFF TOPIC: Specialists in silos, patient suffering as result

Looking to hire a private case manager might be an option well worth the expense for your client. The private hiring of a case manager can be a real asset when medical services lacks cohesiveness among speciality providers or when a person lacks immediate family to provide support/advocacy. Private ...
by MissMolly
Sun Apr 28, 2019 10:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need Support - Told today I'm on Palliative Care
Replies: 34
Views: 7657

Re: Need Support - Told today I'm on Palliative Care

Forgive my ignorance, but aren’t all stage 4 people that cannot be cured (most) technically on palliative care? I am on Palliative Care and can speak to its benefits. My Palliative Care includes a multi-disciplinary team of clinicians. In many instances, clinicians come to me in my home. My immedia...
by MissMolly
Sun Apr 28, 2019 9:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OFF TOPIC: Specialists in silos, patient suffering as result
Replies: 17
Views: 1235

Re: OFF TOPIC: Specialists in silos, patient suffering as result

Mpbser: You mention that no solid clinical diagnosis has been rendered for your client but that there are suggestive sub-clinical findings. Welcome to the world of medicine as is experienced by many. Fibromyalgia. This is a diagnosis of exclusion. It is a term to describe CNS hypersensitivity when t...
by MissMolly
Sat Apr 27, 2019 1:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OFF TOPIC: Specialists in silos, patient suffering as result
Replies: 17
Views: 1235

Re: OFF TOPIC: Specialists in silos, patient suffering as result

I have a small nuclear family. One brother (with cognitive deficits from a prior brain tumor) and a mother (healthy but 86 years of age). That’s it. I have made careful estate planning. It includes a Living Trust in my name. The Living Trust will be activated when I cannot manage my own affairs. It ...
by MissMolly
Sat Apr 27, 2019 1:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan contrast injection and kidneys, advice, please
Replies: 12
Views: 1063

Re: CT Scan contrast injection and kidneys, advice, please

Ethel: I would listen to your nephrologist and take to heart his recommendations for IV hydration. Once an IV medication or IV contrast is administered there is no way to double-back and siphon out the infused medication or contrast. Example: Once-a-year IV infusions of ReClast, an osteoporosis medi...
by MissMolly
Fri Apr 26, 2019 4:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy Care
Replies: 5
Views: 401

Re: Ileostomy Care

Deep, Your ileostomy output at 600 ml for 24 hours is on the low end of what one would expect. But you are having output from the stoma. That indicates that you are passing digestive food matter. A good sign. It is common for the intestine to be under-powered for the first several weeks after surger...
by MissMolly
Fri Apr 26, 2019 9:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dexamethasone
Replies: 24
Views: 1924

Re: Dexamethasone

Nate: I think the conversations that you have engaged with your father’s oncologists will prove to be helpful in establishing a collaborative relationship in future discussions, as well. The body produces the equivalent of 0.8 mg dexamethasone as naturally occurring cortisol a day. Cortisol is a lif...
by MissMolly
Fri Apr 26, 2019 12:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dexamethasone
Replies: 24
Views: 1924

Re: Dexamethasone

Nate: The inclusion of dexamethasone as a pre-medication provides more than nausea control/nausea relief. Chemotherapy is a tough assault on the body. Dexamethasone has properties as a potent corticosteroid that provides benefits to lessen the experienced distress that accompanies chemotherapy. It h...
by MissMolly
Thu Apr 25, 2019 1:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom has possible leak—anecdotes welcome
Replies: 11
Views: 524

Re: Mom has possible leak—anecdotes welcome

Punky: I have had post-operative abscesses. Like CRGuy, I felt truly “crappy” - generalized malaise, fever, chills, nausea. There is little doubt that something amiss was brewing. That your mother is asymptomatic is an encouraging sign that the fluid may be a less concerning seroma or collection of ...
by MissMolly
Thu Apr 25, 2019 1:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo pushed back twice, so I'm doing another half.
Replies: 13
Views: 867

Re: Chemo pushed back twice, so I'm doing another half.

Amy: I have not commented on your prior posts as I am not a cancer patient and so tend to comment only on areas where my ileostomy and ostomy experience is appropriate. But you are nothing short of amazing. A-m-a-z-i-n-g. Your personal Finish Lines include a recent pregnancy and welcoming of Nichola...
by MissMolly
Wed Apr 24, 2019 2:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Partial bowel obstruction
Replies: 12
Views: 893

Re: Partial bowel obstruction

CF-69: I was wondering how you were doing and appreciate your post. Constipation is not a benign, ho-hum issue. Constipation due to slowed intestinal motility can be a very concerning issue after abdominal surgery. What you have, in essence, is a barely functional ileus. I have been where you are, t...
by MissMolly
Mon Apr 22, 2019 5:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Partial bowel obstruction
Replies: 12
Views: 893

Re: Partial bowel obstruction

CF-69: I remember seeing your post a day or two ago where you shared your symptoms and wondered to myself if you might be brewing a partial SBO or struggling with slow, sluggish intestinal motility. It is not uncommon for the intestinal tract to struggle with slow motility following abdominal surger...
by MissMolly
Mon Apr 22, 2019 9:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dexamethasone
Replies: 24
Views: 1924

Re: Dexamethasone

Nate: Dexamethasone is also known as Decadron. Dexamethasone/Decadron is also used to reduce cerebral edema (ex. following a head injury). The “white tongue” that you see in your father may be from the effects of dexamethasone and drying of the oral mucosa. Dexamethasone has a long half-life. The ha...
by MissMolly
Sun Apr 21, 2019 11:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Partial bowel obstruction
Replies: 12
Views: 893

Re: Partial bowel obstruction

Stewberry: A partial small bowel obstruction is most often due to adhesions/scar tissue from prior surgery(ies) that cause a temporary “kink” or narrowing of a segment of intestine. The small intestine slithers and squirms, in constant sliding motion 24-7, under the moist apron of fat called the ome...

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