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by ozziej
Tue Aug 13, 2019 4:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ULAR + ileo tips welcome!
Replies: 16
Views: 1524

Re: ULAR + ileo tips welcome!

Hi Rob
If you are still having problems with high output you might try eating white marshmallows, they slow things down.
by ozziej
Tue Jul 23, 2019 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ULAR + ileo tips welcome!
Replies: 16
Views: 1524

Re: ULAR + ileo tips welcome!

Glad to hear things went well. Give your stoma a name and boss it around. Things called Eakin seals (like playdough rings) are a big help if experiencing leaks. Remember to stay well hydrated and eat low residue, avoiding skins, seeds etc. Chew, chew, chew. Change your bag in the shower. If you find...
by ozziej
Sat Jul 20, 2019 3:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ULAR + ileo tips welcome!
Replies: 16
Views: 1524

Re: ULAR + ileo tips welcome!

Hi Rob I'm also an Aussie and live in rural Victoria. I had a ULAR with temp ileo in March 2015, reversal in May 2015, so I'm 4 years out. However, my surgery was open rather than laparascopic, so my recovery time was probably longer than what you might experience. I was in hospital for 10 days. Had...
by ozziej
Sat Jun 22, 2019 8:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Having a really hard time with ileostomy
Replies: 7
Views: 789

Re: Having a really hard time with ileostomy

Hi, so sorry you're having a rough time. The first few weeks are challenging dealing with a temporary loop ileostomy. It's important to remember that an ileo is much harder to manage than a colostomy so please don't beat yourself up. Here are some ideas i found useful: give your stoma a name, then b...
by ozziej
Sun May 26, 2019 3:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another post-reversal output issue thread
Replies: 9
Views: 1108

Re: Another post-reversal output issue thread

If you are passing gas and faeces then it's unlikely you have a blockage. Your experience is not unusual. Many members of my LARS group wonder where all the poo comes from proportionate to their intake. If you are clustering it can seem as though you are passing a lot more than you actually are. By ...
by ozziej
Sun May 26, 2019 3:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Our Miss Molly/Karen going into hospice
Replies: 47
Views: 7292

Re: Our Miss Molly/Karen going into hospice

Go peacefully Karen, and know that you have made an enormous impact on many lives. May you have a pain free journey.
Jan xxx
by ozziej
Sat May 18, 2019 1:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did anyone ever decide to go back to ileostomy after reversal
Replies: 34
Views: 4757

Re: Did anyone ever decide to go back to ileostomy after reversal

Within our LARS support group several members have opted for a reversal of the reversal but they have gone to a permanent colostomy rather than the loop ileostomy they had to allow the anastomosis to heal. As Miss Molly points out on her excellent post on this issue on this board, a permanent colost...
by ozziej
Thu May 16, 2019 1:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: APR surgery for low rectal tumor
Replies: 16
Views: 1728

Re: APR surgery for low rectal tumor

Having had a ULAR myself, and now having Low Anterior Resection Syndrome (LARS), I would suggest that you fully explore the possibility that your husband may well end up with LARS if his tumour is extremely low.. Recent research suggests that people with a permanent colostomy have as good as, or eve...
by ozziej
Sun Mar 17, 2019 9:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lower Anterior Resection Syndrome
Replies: 9
Views: 1199

Re: Lower Anterior Resection Syndrome

I'm expecting to suffer same as I have had a ULAR and being reversed on Thursday, I'm not on Facebook OSM but would appreciate any tips in regards to anything helpful, pictullarly foods !!!! THAT HELPED OR AGRIVATED???! I am the type of person that predicts worst case scenario, then anything less i...
by ozziej
Sun Mar 17, 2019 7:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lower Anterior Resection Syndrome
Replies: 9
Views: 1199

Re: Lower Anterior Resection Syndrome

Sorry to hear you're having a rough time. LARS sucks. Did you know that there is a Facebook group called Living with Low Anterior Resection Syndrome? If you're not a member already, you will be made most welcome and find lots of support and information. Best wishes.
by ozziej
Fri Feb 22, 2019 6:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Preparing a facts & to-do-list for "newcomers"?
Replies: 35
Views: 4845

Re: Preparing a facts & to-do-list for "newcomers"?

Following on from number 3 'LARS is a thing': ask your doctors about the possibility of watch and wait as an alternative to resection, especially if your tumour is/was very low.
by ozziej
Mon Feb 18, 2019 7:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is a ileostomy reversal worth it for a 60 year old guy?
Replies: 13
Views: 1391

Re: Is a ileostomy reversal worth it for a 60 year old guy?

Yes. I have no rectum, straight coloanal anastomosis. However, my anal sphincters are intact. For those where anal sphincters are compromised, an APR with permanent colostomy is usually necessary. Fifteen years ago I would have had to have a permanent colostomy too but ULAR is now possible.
by ozziej
Mon Feb 18, 2019 5:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ESD (Endoscopic submucosal dissection) Anyone??
Replies: 3
Views: 602

Re: ESD (Endoscopic submucosal dissection) Anyone??

I had an endoscopic mucosal resection after a large flat polyp (that was supposedly benign) was found during a colonoscopy. Unfortunately, although the polyp was succesfully removed, the second biopsy identified adenocarcinoma so I was referred to a colorectal surgeon and went on to have a ULAR. I d...
by ozziej
Mon Feb 18, 2019 4:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is a ileostomy reversal worth it for a 60 year old guy?
Replies: 13
Views: 1391

Re: Is a ileostomy reversal worth it for a 60 year old guy?

Hi Steve, Your question is very valid. It's a tough one. I can only give my opinion based on my personal experience. I had a ULAR at age 56, losing all of my rectum and sigmoid colon. I was reversed 12 weeks after the resection. I now have major LARS. It's manageable but, like you, so was my tempora...
by ozziej
Sun Dec 30, 2018 12:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rough time after 6 month Follow ups/ibs
Replies: 3
Views: 820

Re: Rough time after 6 month Follow ups/ibs

Hi
You may possibly have LARS (Low Anterior Resection Syndrome ). There is a Facebook support group called 'Living with Low Anterior Resection Syndrome' that may be helpful.
Best wishes for improvement.

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