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by ozziej
Tue Sep 12, 2017 4:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diet struggles after illeostomy reversal
Replies: 6
Views: 1292

Re: Diet struggles after illeostomy reversal

Hi Jancy, Karen has given you excellent advice. Life after low rectal resection is often challenging. As you can see from my signature, I am about 28 months post reversal after a ULAR for stage 1 low rectal cancer. I didn't have chemo or radio either. It is certainly still early days for you so plea...
by ozziej
Thu Aug 24, 2017 7:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What are the "right" questions for CRC survivorship research?
Replies: 3
Views: 497

What are the "right" questions for CRC survivorship research?

Hi there, I recently completed a survey investigating the post treatment challenges for CRC survivors. I was not alone in noting that the survey "didn't ask the right questions". As a rectal cancer survivor I have my own ideas about what the "right" questions might be, but I woul...
by ozziej
Thu Aug 24, 2017 7:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Journal -- just had the surgery this morning.
Replies: 89
Views: 6707

Re: Reversal Journal -- just had the surgery this morning.

Hi Malleous, From one rectal reversalist to another, you seem like you are doing really well. I just wanted to clarify one thing though. From looking at your "blow by blow" diary, I would say that what you have is "frequency" rather than "clustering". Frequency is multi...
by ozziej
Wed Aug 16, 2017 2:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: T3N0M0 Rectal Cancer- refuse surgery?
Replies: 46
Views: 6152

Re: T3N0M0 Rectal Cancer- refuse surgery?

Just wanted to say what pioneers I think you guys are. As a person who has experienced severe LARS, I have been researching new directions for RC. Seems to me that once the oncological safety of sphincter saving surgery was established the focus shifted to functional outcomes, which is where the whe...
by ozziej
Tue Aug 15, 2017 12:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Two Years Ago and a Thank You
Replies: 14
Views: 1103

Re: Two Years Ago and a Thank You

Happy cancerversary Judy. If only I were closer we could celebrate by participating in that drinking game :mrgreen:
Best wishes
Jan :D
by ozziej
Fri Aug 04, 2017 9:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I Have a Life Again! Updated for those who are interested
Replies: 23
Views: 2183

Re: I Have a Life Again!

Hey Judy, greetings from Down under. It is wonderful that you have finally found a routine that works for you, especially after everything you have been through. So happy for you. I'm happy to say that 2 years out from reversal i too have found what works for me. At the end of May I had a partial ob...
by ozziej
Tue Jul 18, 2017 4:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colorectal Surgery (Rectal) post op?
Replies: 12
Views: 2577

Re: Colorectal Surgery (Rectal) post op?

Hi Stacy I had an ultra low anterior resection for rectal cancer in 2015. The surgery took about 3 hours. Post op I had a drain tube, a urinary catheter and a temporary ileostomy. I had a morphine pump for pain relief for about 5 days. Up and showered the following day then the catheter was removed....
by ozziej
Tue Jun 27, 2017 3:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Anterior Resection Syndrome: Do you have it?
Replies: 36
Views: 13941

Re: Low Anterior Resection Syndrome: Do you have it?

Hi Jeanee
I have LARS too and would like to join your Facebook group. However I can't get the link to work and I have tried searching for LARS or Low anterior resection syndrome with no luck. What is the name of your group?
by ozziej
Sun Jun 25, 2017 5:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What to expect?
Replies: 24
Views: 5540

Re: What to expect?

I just wanted to let you know that it is possible to have low rectal cancer and not have a permanent colostomy. I went into surgery not knowing whether i would have an ultra low anterior resection with a temporary loop ileostomy or an APR with a permanent colostomy. The surgeon said it was just too ...
by ozziej
Sun Jun 18, 2017 6:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about low grade dysplasia
Replies: 3
Views: 546

Re: Question about low grade dysplasia

Hi Laura, when I had a colonoscopy in June 2014 a sessile polyp was found that was biopsied but not removed due to its shape and lack of skill of the GI. Pathology came back benign, but I ended up seeing another GI to have the polyp removed by EMR. On removal pathology came back malignant. I was tol...
by ozziej
Sun Jun 18, 2017 5:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things Not to Say and the Responses I want to Make (Rant)
Replies: 113
Views: 15327

Re: Things Not to Say and the Responses I want to Make (Rant)

Came up with this one today: Dude: Heard "X" will cure cancer. Me: Yeah, how much? What's the dosage? What kind? How many times a week? The green or the yellow one? Do I eat it or shove it up my ass? They got the point. Hahaha...oh Rob, that is precious...Can't wait to use the last senten...
by ozziej
Fri Jun 09, 2017 10:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: bowel resection and catheter
Replies: 5
Views: 695

Re: bowel resection and catheter

Hi Effie, I was a bit older than your mum when I had a ULAR for rectal cancer. I had a catheter in for about 4 days post op but even after it was removed i had difficulty urinating. Just a tip for your mum once the catheter is removed. Rocking back and forth whilst sitting on the loo seems to help s...
by ozziej
Thu Jun 08, 2017 10:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 1 with no surgery...any thoughts?
Replies: 26
Views: 3088

Re: Stage 1 with no surgery...any thoughts?

Hi Trig, I was diagnosed with Stage 1 rectal adenocarcinoma 2 years ago. Mine was sessile and located via colonoscopy. Too large/tricky for the GI to remove but the biopsy he did take showed it as benign. Three months later it was removed by endoscopic mucosal resection by an EMR specialist and foun...
by ozziej
Wed May 03, 2017 8:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 135
Views: 33882

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

You may be interested in the TESAR trial currently being conducted in the Netherlands. For T1/2 N0 M0 rectal cancer. Participants have all had local excision and then randomized into ULAR/APR or chemo radiation. This interests me because I had tumour removed by EMR but then the two options given wer...
by ozziej
Wed Apr 12, 2017 8:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recommended Stage 1 follow up?
Replies: 11
Views: 1296

Re: Recommended Stage 1 follow up?

I guess the variation in protocol might relate to presence or absence of high risk features such as degree of cell differentiation. My surgeon said the risk of regular scanning is greater for stage 1 than the risk of recurrence. I would have had mop up chemo if it had been offered but again this is ...

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