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by LeonW
Thu Jan 04, 2018 5:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diagnosed 9 years ago TODAY! 1/2/2009
Replies: 17
Views: 885

Re: Diagnosed 9 years ago TODAY! 1/2/2009

Wonderful, well done. What a great way to kick off a New Year!
Best wishes, L
by LeonW
Sun Dec 10, 2017 8:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSS and Nivolumab (Opdivo)
Replies: 9
Views: 699

Re: MSS and Nivolumab (Opdivo)

Hi Steph,

Tom Marsilje, no longer with us now, often shared his expert knowledge on MSS treatments, incl Opdivo. See today's post by Henry123.

Henry's signature says that he started Opdivo in June 2016.
We'll miss Tom
Leon
by LeonW
Fri Dec 08, 2017 6:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaked out.
Replies: 9
Views: 624

Re: Freaked out.

My guess is its in the area of the spleen. I had colon removed @ splenix junction. If this is any help: my 'lump' also varied between soft (hardly palpable) to fairly solid - walnut size. But at the front (not deep/at the back, as yours) Started to feel it Q1 2015 . Had an extra colonoscopy immedia...
by LeonW
Thu Dec 07, 2017 9:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaked out.
Replies: 9
Views: 624

Re: Freaked out.

. . . lump on my left side just under the rib cage at the back. It comes and goes but it's just noticeable . . . I have/had something similar a early 2016. Felt a hardened spot, left under rib cage. Walnut size. It came and went. Not really hard, but not soft either. Had it at the front. Docs had a...
by LeonW
Thu Dec 07, 2017 5:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 years ago
Replies: 13
Views: 701

Re: 5 years ago

Congrats. Best wishes for Feb
L
by LeonW
Thu Dec 07, 2017 5:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling “NED”
Replies: 12
Views: 603

Re: Feeling “NED”

Wow, Basil, congrats on the results so far.
And pathology concluding that you have Complete Response is exceptional - very promising. With pCR you're in a very different branch of the probability tree that overall survival statistics are based on.
Leon
by LeonW
Thu Dec 07, 2017 5:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan Just came in Liver Met (one)
Replies: 62
Views: 2205

Re: CT Scan Just came in Liver Met (one)

Don't panic about things that you cannot influence << I agree - easier said than done >>. As Basil said, there are many options these days. Keep in mind that you're in the hands of docs who have spent half their lives understanding cancer. One good thing is that you already know is that your CEA may...
by LeonW
Wed Dec 06, 2017 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV, very happy to be still NED after 4 years
Replies: 7
Views: 500

Re: Stage IV, very happy to be still NED after 4 years

More Good News
Had the official review. Onc proposes to do the next checkup in June and then move to annual.
Feels like I'm slowly getting off the hook . . . .
L
by LeonW
Tue Dec 05, 2017 10:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 years Stage IVB and NED again last 6 months!!
Replies: 8
Views: 440

Re: 5 years Stage IVB and NED again last 6 months!!

Congrats. I think I understand how happy you must be
Leon
by LeonW
Sat Dec 02, 2017 7:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV, very happy to be still NED after 4 years
Replies: 7
Views: 500

Stage IV, very happy to be still NED after 4 years

Hi dear ColoncClubbers, I'm now 5 yrs after Dx and 4 yrs after liver surgery. Did progress to bi-annual checkups in Nov 2016, and had a routine CT with blood work Thursday (Nov 30). Funny that, although life has returned to almost normal and check-ups have become routine, I'm always short fused some...
by LeonW
Sat Dec 02, 2017 5:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with Stage IVa just do Xelolda or 5-fu?
Replies: 90
Views: 5932

Re: Anyone with Stage IVa just do Xelolda or 5-fu?

mpbser wrote:. . . Husband will be completing Cycle 3 on Wednesday and he is doing really great . . .

Thanks for the update. Congrats that round 3 is almost under the belt.
Hope that things continue to be manageable and that you can celebrate more victories.
Best wishes, L
by LeonW
Tue Sep 26, 2017 8:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I cannot turn it off, scared about bone stuff
Replies: 6
Views: 741

Re: I cannot turn it off, scared about bone stuff

. . . Still, NED! 5.5 years cancer free almost 7years from stage iv dx. Wonderful!! . . . ortho will have to follow up . . . . most commonly occurs in the hip . . . sounds a little scary . . . I googled Avascular Necrosis ( :shock: yeah, I still google sometimes), it seems there are various ways to...
by LeonW
Thu Sep 21, 2017 8:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 384
Views: 19179

Re: NEW-Need some positivity here.

'teacher2017 signature' (Sept 19) wrote:Peritoneum & retro unremarkable
Ctscan says no spread but who knows!
Resection this Friday - Sept 22

Best wishes for tomorrow.
Greetings L.

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