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by LeonW
Tue Sep 26, 2017 8:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I cannot turn it off, scared about bone stuff
Replies: 6
Views: 659

Re: I cannot turn it off, scared about bone stuff

. . . Still, NED! 5.5 years cancer free almost 7years from stage iv dx. Wonderful!! . . . ortho will have to follow up . . . . most commonly occurs in the hip . . . sounds a little scary . . . I googled Avascular Necrosis ( :shock: yeah, I still google sometimes), it seems there are various ways to...
by LeonW
Thu Sep 21, 2017 8:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 356
Views: 14854

Re: NEW-Need some positivity here.

'teacher2017 signature' (Sept 19) wrote:Peritoneum & retro unremarkable
Ctscan says no spread but who knows!
Resection this Friday - Sept 22

Best wishes for tomorrow.
Greetings L.
by LeonW
Sun Sep 17, 2017 8:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 356
Views: 14854

Re: NEW-Need some positivity here.

So depressed tonight. The waiting for surgery is horrific. I need to stop feeling so hopeless. Your stories help. But I still read all the terrible endings. I feel just lost... Hi Teacher, sorry to see you in distress. We've all been there. The uncertainty of the first weeks are especially difficul...
by LeonW
Thu Sep 14, 2017 9:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What was everyone's symptoms of colon cancer
Replies: 20
Views: 3314

Re: What was everyone's symptoms of colon cancer

None that I worried about. Had (one day only) a tiny bit of blood in stool, that I neglected. Went into retirement a few months later and then had a relaxed chat with our family doctor on ageing and the kind of support that I (don't) want in the years ahead out of the principle that those things sho...
by LeonW
Tue Sep 12, 2017 1:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GI Surgeon wants chest added back to my ct scan
Replies: 23
Views: 3184

Re: GI Surgeon wants chest added back to my ct scan

Obvious: CAP=chest abdomen pelvis. Thanks DE/CR for clarifying.
DE wrote: . . . why the protocol is to take chest off of the scans if the first year ct scans are normal?

I'm on 6-mos scans now (stage IV - approaching 4 yrs since surgery):
- abdomen/pelvis each scan
- chest added every other one (=annual)
by LeonW
Tue Sep 12, 2017 6:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GI Surgeon wants chest added back to my ct scan
Replies: 23
Views: 3184

Re: GI Surgeon wants chest added back to my ct scan

CR, what does C-A-P stand for?
CRguy wrote:I believe C-A-P CT scans are warranted for CRC follow ups ... UNTIL proven otherwise
by LeonW
Sat Sep 02, 2017 6:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: new board member
Replies: 12
Views: 1357

Re: new board member

. . . eating pickles while on chemo will help with my taste buds. anyone ever hear of that or have any thoughts or ideas if that will work My experience: try anything that you can think of. I've had pleasure from pickles; avocado/bacon sandwiches; ham/cheese toast; tonic water/coca cola (cuts throu...
by LeonW
Fri Sep 01, 2017 9:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to this board and colon cancer
Replies: 11
Views: 1239

Re: New to this board and colon cancer

Downbutnotout wrote:I'm struggling and oddly terrified about having the Staples removed next week.

I was terrified about the removal of the staples too. Had plenty after the liver resection - must have been 25 or 30 or so.
It turned out not bad at all - all fear subdued once the first 3 or 4 went out easily.
by LeonW
Fri Sep 01, 2017 9:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA during chemo
Replies: 16
Views: 1709

Re: CEA during chemo

Achilles Torn wrote: Some papers show a CEA rise at the start of Chemo followed by a drop is a good prognostic factor.

I had the same trend and docs said the same thing: rise and drop is good. They added that this showed that for me CEA is a good indicator and they keep following it closely
by LeonW
Tue Aug 29, 2017 4:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband broke down last night
Replies: 79
Views: 6597

Re: Husband broke down last night

. . . surgeon 'prescribed' chewing gum already when hubby was in hospital recovering from surgery. I wonder if many others get that advice? . . . During recovery from the colon job, hospital staff (nurses) suggested and provided chewing gum to get colon going. It did ultimately, but took 12 days. U...
by LeonW
Fri Aug 25, 2017 7:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband broke down last night
Replies: 79
Views: 6597

Re: Husband broke down last night

[quote="mpbser"So glad he is sleeping at home now. Finally, some good rest.[/quote]
Sad to hear
Wish both of you recovery. Hope you can take it easy / can rest for a while.
L
by LeonW
Fri Aug 25, 2017 5:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda VS 5-FU
Replies: 37
Views: 5324

Re: Xeloda VS 5-FU

. . . I personally prefer taking capecitabine because you are less attached to the clinic and you feel less like a cancer patient . . . Yep. I've no pump experience so cannot compare, but me too - I liked (yes, really) the three week cycle: a well-marked start (=infusion day), then one week patient...
by LeonW
Thu Aug 24, 2017 10:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband broke down last night
Replies: 79
Views: 6597

Re: Husband broke down last night

mpbser wrote:Leon, The liver plan was aborted but the colectomy happened.


Thanks for confirming. Am happy that it seems to have helped getting his pain under control. Let us know what your docs come up with next.
Take care / greetings to DH
L
by LeonW
Thu Aug 24, 2017 9:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Juicing
Replies: 5
Views: 748

Re: Juicing

. . . i would like to continue this and be permanently part of her lifestyle . . . I understand that you're concerned and you wish the best for your mom - looking for the certainty we all need during/after the ordeal. But what works for one, is not necessarily a solution for everyone: not all find ...
by LeonW
Wed Aug 23, 2017 5:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband broke down last night
Replies: 79
Views: 6597

Re: Husband broke down last night

liver surgeon could not do the "chip" of the left lobe and the RFA of the right lobe that was planned for today. He called me to tell me this just as the colorectal surgeon was getting started on the colon resection . . . Are you saying that the colon resection was also cancelled, that yo...

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