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by LeonW
Mon Jun 17, 2019 5:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 396
Views: 113993

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

. . . I'm left with 2 more cycles and will be using a new arm for that, I'm hoping nothing too bad will happen !! Why would you use a new arm for these final two cycles? Knowing that chemo is hard on the veins, I carefully alternated left and right arms for each cycle. Gives them 6 weeks to recover...
by LeonW
Mon Jun 17, 2019 5:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 147
Views: 19169

Re: My CRC with liver mets journey

Dr Kemeny said she didn’t want to introduce it prior to surgery because it could damage the liver too much.. That's consistent with the approach of my surgeons took (though I had Oxi in mix): my liver surgery was 2½ month after end-of-chemo Sorry to hear that the chemo stopped being effective. Best...
by LeonW
Mon Jun 17, 2019 10:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV (with liver cyst) - 6 yrs NED
Replies: 6
Views: 433

Re: Stage IV (with liver cyst) - 6 yrs NED

these benign masses can grow and shrink significantly. A family friend of ours had a huge one, which was like 10 cm if I remember correctly . . . . Didn't know that they could grow at all, Leave alone to such size. All CT's I've had, have shown the same bunch of them (5 or 6) and none of my docs ha...
by LeonW
Sat Jun 15, 2019 11:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV (with liver cyst) - 6 yrs NED
Replies: 6
Views: 433

Stage IV (with liver cyst) - 6 yrs NED

Good day to all! Had an (on-line) peek into the results of my annual exam in preparation for a review with my docs next week. Blood work and scans didn't find anything significant and concluded that there are no indications for relapse or new mets. :D Must say that, despite that normal life has most...
by LeonW
Tue Jun 11, 2019 5:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo - Port vs non-port for Oxi?
Replies: 18
Views: 849

Re: Mop up chemo - Port vs non-port for Oxi?

I did six rounds without a port. I did not have any issue at all. I did it in my arm at inside the elbow joint. Cynthia Same here. Found it very doable, switching arms/elbows each cycle. I believe the hot packs that the nurses diligently applied may have made the difference. Keeping the receiving a...
by LeonW
Tue Nov 06, 2018 4:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For those previously advised no surgery.....
Replies: 14
Views: 2124

Re: For those previously advised no surgery.....

Hi Trying, I was in your shoes 6 yrs ago when docs decided it was best to attack the colon first, as liver mets were too big for surgery. Chemo started some 6 weeks after the colon job. Mets shrunk from cycle three. All in all the liver resection was almost 9 months after the colon job: first 6 week...
by LeonW
Wed Oct 10, 2018 5:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 54
Views: 8917

Re: Stage 4 to NED- Please tell us

and here's a one! Just past the 5yr mark, despite bleak prognoses back in 2012. Initial years were tough, but normal life has returned, mostly. Still visiting ColonClub occasionally, though less frequently then earlier in the battle. Anxieties have gone too. Fully aware how lucky I've been. I hope y...
by LeonW
Sat Sep 22, 2018 10:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally....some really great news!!!
Replies: 85
Views: 26550

Re: Finally....some really great news!!!

Am very happy to see how things are working out for you. Congrats again.
Leon
by LeonW
Tue Aug 14, 2018 11:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage 4 long term survivors/cured ?
Replies: 26
Views: 8364

Re: Any Stage 4 long term survivors/cured ?

Danielito82 wrote:Did you guys change your diet ??

Nope. But we (DW+myself) were never excessive diners and continue to enjoy any types of meat, (shell)fish, veggies, pastas and an occasional drink.
L
by LeonW
Mon Aug 13, 2018 9:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage 4 long term survivors/cured ?
Replies: 26
Views: 8364

Re: Any Stage 4 long term survivors/cured ?

I believe there are a lot if cured survivors I've been clear since liver resection of Oct 2013, despite 'palliative' diagnosis (inoperable liver mets) end 2012. Chemo killed all mets - see sign. Promoted to annual surveillance (CT + CEA) in June. I don't think I'm officially 'cured', but life is ba...
by LeonW
Thu Jun 14, 2018 4:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have a little drinky drink during chemo?
Replies: 16
Views: 4815

Re: Does anyone have a little drinky drink during chemo?

I didn't until well after the liver job - mostly Expecting that chemo would be challenging for the liver, I decided to leave it doing its things without alcohol throughout chemo. We did however celebrate completion of each (3 week) Xelox-Avastin cycle with a fancy/restaurant dinner that included a (...
by LeonW
Wed Jun 06, 2018 6:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post Bowel / Liver Resection Post-Op Symptoms - Q for Those Who Have Been There
Replies: 4
Views: 543

Re: Post Bowel / Liver Resection Post-Op Symptoms - Q for Those Who Have Been There

Has anyone had groin / testicle swelling a month out from surgery? No, I did not. But could it be caused by insufficient blood supply? After my colon resection (immediately following diagnosis - liver resection was done 9 mos later), surgeon mentioned that he had removed cancer growths all over the...
by LeonW
Wed Jun 06, 2018 6:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No, we don't have the best healthcare system
Replies: 24
Views: 5247

Re: No, we don't have the best healthcare system

I'd have to understand what they mean about costs. I've written about my experiences in where sticker prices is often far higher than the price that insurance actually pays or that people actually pay (a lot of medical bills simply don't get paid). The study that the article is based on, measured t...
by LeonW
Wed Jun 06, 2018 5:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No, we don't have the best healthcare system
Replies: 24
Views: 5247

Re: No, we don't have the best healthcare system

My out of pocket health care expenses at a minimum for this year will be $22,400 (annual insurance premiums $15,600 + annual $6,800 deductible). This does not include medical expenses that I will incur that are not covered by medical insurance Wow, that's big money . . . . . In our system (Netherla...
by LeonW
Wed Jun 06, 2018 6:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No, we don't have the best healthcare system
Replies: 24
Views: 5247

Re: No, we don't have the best healthcare system

If we look at world rankings, we find that 17 out of the top 20 hospitals are in the United States with the United States also holding the top 7 spots. http://hospitals.webometrics.info/en/World And then you have the NCI which can develop treatments that even the top cancer hospitals in the US don'...

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