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by boxofrain
Fri Jun 05, 2015 7:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to get Sloan (MSKCC) treatment/chance for cure?
Replies: 10
Views: 2069

Re: How to get Sloan (MSKCC) treatment/chance for cure?

thanks so much for the thoughtful and comprensive replies! vilva, special thanks for replying to this and other of my posts!

boxofrain
by boxofrain
Thu Jun 04, 2015 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to get Sloan (MSKCC) treatment/chance for cure?
Replies: 10
Views: 2069

Re: How to get Sloan (MSKCC) treatment/chance for cure?

thanks, maia and arizona, for excellent and useful info!
i am getting care at ucla now, and my onc is dr.wainberg

I hope i'm wrong, but he did not seem optimistic
about surgery. any other of his patients in the club?

boxofrain
by boxofrain
Thu Jun 04, 2015 3:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trip to Sloan
Replies: 20
Views: 3109

Re: Trip to Sloan

Thanks for the useful info! what kind of studio/apt. did you get for the money you paid? sorry to be so nosy but i know little about nyc real estate...

boxofrain
by boxofrain
Thu Jun 04, 2015 11:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to get Sloan (MSKCC) treatment/chance for cure?
Replies: 10
Views: 2069

Re: How to get Sloan (MSKCC) treatment/chance for cure?

thanks, peanut, for your helpful reply to this and other of my posts!
boxofrain
by boxofrain
Thu Jun 04, 2015 11:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trip to Sloan
Replies: 20
Views: 3109

Re: Trip to Sloan

hi jalusa, hope your insurance is approved! did sloan refer you to an apt or did you fid it on your own? do you have it on a monthly basis? about lhow much? surprised you bought flight tix and rented apt. without knowing if your insuurance is acceptable... any more info about how sloan can assist th...
by boxofrain
Thu Jun 04, 2015 11:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to get Sloan (MSKCC) treatment/chance for cure?
Replies: 10
Views: 2069

How to get Sloan (MSKCC) treatment/chance for cure?

i have read several accounts of the superb treatment provided by Dr. K at MSK but my insurance coverage, through Covered California, is invalid out of state. i would like to get my rectal tumor resected and HIPEC installed. anyone have any idea what this surgery would cost, hopefully with cash disco...
by boxofrain
Thu Jun 04, 2015 10:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trip to Sloan
Replies: 20
Views: 3109

Re: Trip to Sloan

I've heard great things about Dr. K at sloan, and for stage 4 folks like me, with a met to liver and possibly to lung, treatment there would be a dream come true. my insurance through covered california is not good out of state. i am 63 and do not qualify for medicare until 65. i don't qualify for d...
by boxofrain
Sun May 24, 2015 12:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood in stool
Replies: 3
Views: 948

Blood in stool

Rectal bleeding led to my cancer diagnosis, and it stopped after i began folfox treatments... last night it started again, for the first time in 10 weeks. Any ideas about the cause of this and its implicatioms?

boxofrain
by boxofrain
Mon May 18, 2015 11:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Social Security Disability Benefits
Replies: 30
Views: 3908

Re: Social Security Disability Benefits

i've been working overseas for the last 5 plus years, making me ineligible for any disability payments :)
by boxofrain
Sat May 16, 2015 6:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: probably a stage 4 question....
Replies: 23
Views: 2488

Re: probably a stage 4 question....

dear jill, i understand your feelings very well, though my diagnosis was just three months ago. if i don't qualify for rectal cancer surgery, (mets to liver and possibly lungs) i will probably face chemo until it or cancer kills me. Not a death with dignity. hard to think of anything else, especiall...
by boxofrain
Thu May 14, 2015 7:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone have an opinion about the usefulness of cannabis oil?
Replies: 11
Views: 1130

Re: Anyone have an opinion about the usefulness of cannabis oil?

I have heard that one begins with a drop or so of the oil and works up to about a gram per day. any idea of the cost of a first month's supply? how about the cost of 30grams...2 grams more thsn an ounce? another question...would afull gram of the oil have a very strong effect leading to paranoia and...
by boxofrain
Wed May 13, 2015 3:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: question about missing chemo appointment
Replies: 8
Views: 1333

question about missing chemo appointment

hello, after 3 folfox 6 treatments abroad, i have returned to the us for treatment here. my next chemo should start5/18, but i will not be able to get it here so soon. is it ok if the4th tteatment is one week late? 2 weeks late? please advise! i don't want to undo the benefits of the previous sessio...
by boxofrain
Mon May 11, 2015 7:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ucla ~ dr. wayneberg
Replies: 1
Views: 637

ucla ~ dr. wayneberg

i came back from china to LA for rectal cancer treatment and found just one doc is available...mondays only. is anyone else getting treatment at jonsson~ucla? has any one worked with dr. waynesberg? thoughts?

boxofrain
by boxofrain
Thu May 07, 2015 5:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Who are the longest stage 4 survivor's on here?
Replies: 136
Views: 73729

Re: Who are the longest stage 4 survivor's on here?

also, would like to know of those who were treated outside the US.

boxofrain
by boxofrain
Wed May 06, 2015 11:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 Month all clear... Still left almost crying... ???
Replies: 24
Views: 2694

Re: 3 Month all clear... Still left almost crying... ???

THanks, Vilca! i've been told by onc that my chance for surgery isvery small due to mets in lung and liver. anyone know oftreatment options other than continuing folfox6?

might Cedars or UCLA be better than City?
boxofrain

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