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by Annemiek
Fri Nov 17, 2017 2:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 745
Views: 252883

Re: For Stage III's: NED for how long now?

Woop woop! Just had my Ct scan for my three year cancerversary ( counting from surgery) and the nurse called an hour later for something unrelated saying, oh yeah, your scan is clear! Cea stable at 1.9. This three year mark is prrrrrretty big! Feels like, 10 yrs have just been added to my life. Work...
by Annemiek
Fri Aug 25, 2017 2:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 745
Views: 252883

Re: For Stage III's: NED for how long now?

Aaaand an other small milestone towards permanent residence in NEDville, 2 yrs and 8 months since my HIPEC operation stage 3c. Cea came back today at 1.8. And I actually forgot the appointment date to give blood, signs that it's no longer in front of my brain, but just in the back of my mind. Will r...
by Annemiek
Mon May 29, 2017 6:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3-Year Scan results
Replies: 34
Views: 5494

Re: 3-Year Scan results

Hey NZJay, Congratulations! I'm the proud owner of an 2,5 yr ultrasound with clear long and liver and a cea of 1.9 Still fatique, having a hard time combining work and home life, it used to be coming home from work doing exercise and physical activity would give me energy. Now the balance is totally...
by Annemiek
Mon May 29, 2017 6:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another anniversary
Replies: 12
Views: 1733

Re: Another anniversary

Hey Leon! Great news! Sunnyweather in Amsterdam! Brilliant! :lol: Oh and congrats on your latest. Are you still on half year checks as well? They allow me to come back every three months for cea ( 1.9!! ) and half year ct/ ultrasound I've just got my 2,5 yr ultrasound back, all still clear. Lots of ...
by Annemiek
Sat Nov 26, 2016 3:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED three years after recurrence
Replies: 16
Views: 2418

Re: Still NED three years after recurrence

Thanks!
Am asking for a person on a dutch forum who has a tiny problem with lungmets :roll:

Congrats again!!

Annemiek
by Annemiek
Thu Nov 24, 2016 7:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reason to Celebrate
Replies: 29
Views: 3602

Re: Reason to Celebrate

And??? Godess still smiling?
by Annemiek
Thu Nov 24, 2016 7:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED three years after recurrence
Replies: 16
Views: 2418

Re: Still NED three years after recurrence

Congratulations!!
Here's hoping you may live in NEDville for a long time.
Will you continue to take ADAPT? For how long?
And may I ask who was your docter in the UK?

Thanks,
Annemiek
by Annemiek
Fri Nov 11, 2016 6:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reason to Celebrate
Replies: 29
Views: 3602

Re: Reason to Celebrate

So make that today :lol:
Having lots of cake and friends to celebrate, already have my most precious present!! Living oife to the fullest!!

Annemiek
by Annemiek
Thu Nov 10, 2016 4:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 745
Views: 252883

Re: For Stage III's: NED for how long now?

Very happy to report I had my CT scanresukts this morning and I am still NED!!! Two years!! It'/ been a hekk of a ride, but I'm over the worst now back at work, energy is back, still neuropathy in feet.but I'll take it and run with ir! As fast as I can away from cancer! Tomorrow is my 45 birthday. D...
by Annemiek
Thu Nov 10, 2016 3:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reason to Celebrate
Replies: 29
Views: 3602

Re: Reason to Celebrate

Leon
,this morning I got my scan results, I have made it to 2 years NED!!! I'm still clean!!
Emotional moment, now I am over the big hump and the chance of mets is decreasing dramatically!!
Tomorrow my 45th birthday.


* happy dance*

annemiek
by Annemiek
Tue Nov 01, 2016 3:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reason to Celebrate
Replies: 29
Views: 3602

Re: Reason to Celebrate

Ha Leon!
So glad I chose to drop by the colon club tonight, and so good to hear you are still doing well!
Congrats on this cancerversary!
Tomorrow is my two year scan, can you believe it!
Hope to post NED news next week as well when I get it.

Let's meet in Amsterdam next time!!

Annemiek
by Annemiek
Tue Sep 06, 2016 8:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Silly vanity . . . I know I shouldn't complain, but I will anyway
Replies: 16
Views: 2279

Re: Silly vanity . . . I know I shouldn't complain, but I will anyway

After 6 rounds of folfox I no longer referred to the stuff on my head as hair, but as 'feathers'. A year later it has returned to :D normal. However, i also lost all my hair under my armpits, and IT'S STILL GONE! :D :D :D :D :D Didn't happen to the legs, had an involuntary landingstrip at some point...
by Annemiek
Sat Sep 03, 2016 9:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Kenny is gone
Replies: 33
Views: 5475

Re: Kenny is gone

Snif. Kenny thank you.
by Annemiek
Sun Aug 28, 2016 2:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: First round of FOLFOX today -Advice?
Replies: 24
Views: 2276

Re: First round of FOLFOX today -Advice?

Fellow engineer here, first few rounds were ok for me, cold sensitivty ( getting bread from the freezing became annoying) and warm lemonade, feeling ill, but getting back up. Most difficulty is becoming the repeating sequence of the two weekly circle of pump, feeling ill, feeling better and as soon ...
by Annemiek
Sun Aug 28, 2016 2:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Results of my clinical trial - pls read, VERY important
Replies: 31
Views: 5861

Re: Results of my clinical trial - pls read, VERY important

Stella, Thank you for taking time to post, I know time is precious for you and many more people. Although I am in the lucky position I do not have to come and visit often ( I seem to be given some more time) you were a source of inspiration when I was at my lowest point, and I agree with others that...

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