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by CLD
Fri Jul 20, 2018 5:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking Out a Little
Replies: 8
Views: 240

Re: Freaking Out a Little

After 3.5 years on Colon Talk I'm still not sure how to do links but I recommend Googling "Go live your life" a song by Wade Hayes, a stage 4 colon cancer survivor (who beat a lymph node recurrence in his diaphram and originally presented with liver spread). His story is amazing and I just...
by CLD
Fri Jul 20, 2018 2:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bone biopsy experiences? Update-done, kinda
Replies: 5
Views: 281

Re: Bone biopsy experiences? Update-done, kinda

We arrived bright and early for DH biopsy at our local hospital. The Interventional Radiologist stated that he did not feel the bones were cancer at all. He said what they were but I forget the word. So that was a relief. He was still going to biopsy T11, but after an hour, the nurse came out and to...
by CLD
Mon Jul 16, 2018 10:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bone biopsy experiences? Update-done, kinda
Replies: 5
Views: 281

Bone biopsy experiences? Update-done, kinda

Hello all. If anyone here has been through a bone biopsy, I would appreciate it if you could share your experience. DH will have T11(spine) and his femur biopsied on Friday. I believe they will take a piece of the actual bone, not just the marrow??? How was recovery time? It seems like a pretty big ...
by CLD
Tue Jul 10, 2018 6:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bizarre results, please help!
Replies: 3
Views: 424

Re: Bizarre results, please help!

His CEA was 5 at diagnosis. One is an all time low. DH was scheduled today for a bone biopsy on July 20. It is frustrating to us that they cannot do the nodes as well, due to their risky location. DH was in an accident 7 years ago and broke his back in 2 places, his knee and both ankles. Our concern...
by CLD
Mon Jul 09, 2018 8:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bizarre results, please help!
Replies: 3
Views: 424

Bizarre results, please help!

I had the weekend to digest my DH PET scan results, now I have more questions than answers. His Dr is on vacation until July 19, so I would love anyone to weigh in with their thoughts, or suggestions. First, a brief background. In Feb, DH started noticing some shortness of breath upon exertion. Beca...
by CLD
Sat Jul 07, 2018 5:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Areas of high density in lungs...infection or cancer? UPDATE: BAD NEWS
Replies: 6
Views: 698

Re: Areas of high density in lungs...infection or cancer? UPDATE: BAD NEWS

I would seek a second opinion about removing the lymph nodes, if indeed only the lymph nodes were cancer. The CT, with contrast, said nothing about the bones, in fact it noted, no skeletal abnormalities. He has no bone pain at all, it wasn't even a consideration. The CT states there are lymph nodes ...
by CLD
Fri Jul 06, 2018 7:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Areas of high density in lungs...infection or cancer? UPDATE: BAD NEWS
Replies: 6
Views: 698

Re: Areas of high density in lungs...infection or cancer? UPDATE: BAD NEWS

PET scan results arrived today. Most bizarre, there was nothing of interest noted on lungs. Before the PET, both the oncologist and pulmonologist stated they would be shocked if this was cancer. However, 3 para aortic lymph nodes lit up near the kidney, as well as T11 on the spine and his left femur...
by CLD
Thu Jun 21, 2018 1:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Areas of high density in lungs...infection or cancer? UPDATE: BAD NEWS
Replies: 6
Views: 698

Areas of high density in lungs...infection or cancer? UPDATE: BAD NEWS

My DH had his scans yesterday and we got the dreaded phone call from the oncologist this morning. A bit of recent history (full history in signature): About 4 months ago DH started noticing shortness of breath upon exertion, and some wheezing. He mentioned this to his oncologist who ordered a scan a...
by CLD
Fri Apr 06, 2018 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: non-specific inflammation...what could it be?
Replies: 1
Views: 462

non-specific inflammation...what could it be?

A week ago my husband had his 3rd post cancer colonoscopy. He has them yearly because they keep finding polyps. This year, the dr removed 2 polyps (1 was precancerous) and an "area of erosion" in the ascending colon was biopsied. Well we received the report today and the area of erosion is...
by CLD
Thu Mar 29, 2018 5:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fainted during prep
Replies: 5
Views: 1097

Fainted during prep

It's been awhile since I've posted. So 1st, an update. DH is officially cancer free 3 years and change out from dx. While we celebrate his cancer free status, we mourn the loss if his brother, who died in Nov from Lung cancer. I was a daily reader of Colon Talk and still check in a couple times a mo...
by CLD
Sun Nov 19, 2017 8:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tom marsilje
Replies: 40
Views: 3990

Re: Tom marsilje

My deepest condolences to Tom's wife and family. I always enjoyed reading his posts for their empathy and wisdom. You will be missed.
by CLD
Tue Nov 07, 2017 2:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A life and a death
Replies: 4
Views: 862

A life and a death

So the results of my husband's scans came back this morning and we are grateful to God and humbled to share that he remains cancer free nearly 3 years out. I share to offer hope to those in the trenches, especially to the spouses seeking answers on this site. Cancer, however, remains an uninvited an...
by CLD
Sat Aug 19, 2017 7:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BeansMama - I'm still kicking (butt that is)
Replies: 20
Views: 3534

Re: BeansMama - I'm still kicking (butt that is)

My brother in law was denied Keytruda by Highmark for his Stage IV lung cancer. With Maia's helpful reply to my plea for advice, his wife was able to work with Merk and they are giving him the Keytruda for free (Compassionate Care). I don't know how to link back to the initial thread, but your oncol...
by CLD
Mon Jul 24, 2017 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BrownBagger ....... I don't know what to say
Replies: 117
Views: 24851

Re: BrownBagger ....... I don't know what to say

My condolences to the family. Eric was always kind and informative in replying to forum members. There will be a void here not easily replaced with his passing. I once told my husband "there's a guy on my cancer forum who has had over 100 chemos" and his eyes bugged out of his head. You we...
by CLD
Wed Jul 12, 2017 3:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone on here self pay for Keytruda?
Replies: 1
Views: 895

Does anyone on here self pay for Keytruda?

So my DH brother was dx with stage iv lung cancer last Dec. (non small cell adenocarcinoma). He was 42, same age as my husband at dx. Carboplatin worked great at first, shrinking the largest tumor in half, only to grow back, with new growth, as soon as chemo ended. A trip to Sloan Kettering in NYC p...

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