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by CLD
Tue Jul 16, 2019 4:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Max out on FOLFIRI?
Replies: 1
Views: 547

Max out on FOLFIRI?

My husband recently completed his 27tx. Of these, 12 were FOLFOX, the rest (13) FOLFIRI + Avastin. (He also did 1 month of xeloda while getting radiation). Can anyone share how many FOLFIRI tx they received before it quit working and what was used as 3rd line. Most recent scan showed cancer in lungs...
by CLD
Wed Jun 05, 2019 7:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LONG OVERDUE UPDATE
Replies: 4
Views: 797

LONG OVERDUE UPDATE

Its been awhile since I have posted. Life with 6 kids keeps us busy. The last few times I posted was to share that my DH cancer spread to his lymph nodes. We visited The Hillman Center, did chemo( FOLFIRI + Avastin) then doctors decided to do radiation instead of surgery. Radiation lasted a month an...
by CLD
Fri Oct 19, 2018 2:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here. Bleeding from bum
Replies: 18
Views: 2523

Re: New here. Bleeding from bum

The symptoms you describe in your 1st paragraph, including blood dripping on the floor and staining your underwear, are identical to symptoms that sent me to a GI. I wasnt messing ariund with rectal bleeding after watching my husband suffer thriugh cancer treatment.It was determined that I had hemmo...
by CLD
Fri Oct 19, 2018 8:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New plan for para aortic lymph nodes. No surgery, radiation instead
Replies: 4
Views: 781

New plan for para aortic lymph nodes. No surgery, radiation instead

I would like to start this post by commenting that I've recently seen many new people posting with lymph node metastasis. I hope that this post helps those people. Yesterday my husband met for the second time with Dr Bartlett at the Hillman Center. We were told that a multidisciplinary team of some ...
by CLD
Wed Oct 03, 2018 12:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LN Biopsy tomorrow morning
Replies: 1
Views: 643

Re: LN Biopsy tomorrow morning

Where are the lymph nodes located that will be biopsied? My husband recently had a lymph node biopsy and his para aortic lymph nodes. It was quite a simple procedure. They gave him Twilight sleep and he said it was the world's largest needle but he had very minimal pain for the next couple of days a...
by CLD
Mon Sep 24, 2018 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA increase on FOLFIRI
Replies: 5
Views: 1134

CEA increase on FOLFIRI

I'm sitting in the infusion center trying to wrap my head around this. DH CEA now nearly 10. Was 2.8 at recurrence and 5 at initial dx...when he had a 5cm tumor and 13 positive nodes! His Dr continued chemo today, dropping Avastin in preparation for possible surgery, and next scan scheduled for Oct ...
by CLD
Fri Sep 14, 2018 5:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nik Colon - ritz75
Replies: 15
Views: 7017

Re: Nik Colon - ritz75

So sad to lead of Niks passing. I often traded advice with her and i missed her so much when she left, I searched hed her out on facebook. She always tried to reach out and help others on the forum. I assume was was the same in real life. Rest in peace, Nik.
by CLD
Fri Sep 14, 2018 5:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFIRI side effects, horrible 4th tx
Replies: 3
Views: 914

FOLFIRI side effects, horrible 4th tx

My husband completed his 4th FOLFIRI + Avastin this week. He tolerated the other 3 *ok* but is having an exceptionally hard time this time. His main complaint and my main question concern his intense rectal burning. He said his guts, genitals, and especially his anus feel like they are on fire. He w...
by CLD
Sun Sep 02, 2018 1:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH had surgery consult yesterday for para aortic nodes
Replies: 17
Views: 5287

Re: DH had surgery consult yesterday for para aortic nodes

Brearmstrong, Dr. Bartlett did not use the word cure, but he said with surgery, " it could go away and never come back or it could come back again." So I guess that's the best we could hope for anyhow. My husband's oncologist said if his scans are clean after he completes chemo he would be...
by CLD
Fri Aug 31, 2018 5:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH had surgery consult yesterday for para aortic nodes
Replies: 17
Views: 5287

DH had surgery consult yesterday for para aortic nodes

Many members on this board have received care at the big name cancer medical centers... MSKCC, MD Anderson, Mayo Clinic...well yesterday, My DH had an appointment with Dr. David Bartlett at The Hillman Center and it was quite an overwhelming experience. The hospital was run like Grand Central Statio...
by CLD
Sun Aug 26, 2018 8:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC for para aortic nodes: Surgery consult: what questions to ask??????
Replies: 5
Views: 928

Re: HIPEC for para aortic nodes: Surgery consult: what questions to ask??????

Jp81, Thanks for response. My husband's oncologist seems to think so, but we will get final answer from Dr Bartlett.
by CLD
Sat Aug 25, 2018 2:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC for para aortic nodes: Surgery consult: what questions to ask??????
Replies: 5
Views: 928

Re: HIPEC for para aortic nodes: Surgery consult: what questions to ask??????

You have provided me with more help than I could have hoped for!!! THANK you! I will let you all know how it goes!
by CLD
Sat Aug 25, 2018 7:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Palliative Radiation
Replies: 4
Views: 1117

Re: Palliative Radiation

Good luck to you. I hope the radiation lessens the pain and helps you!
by CLD
Sat Aug 25, 2018 7:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC for para aortic nodes: Surgery consult: what questions to ask??????
Replies: 5
Views: 928

HIPEC for para aortic nodes: Surgery consult: what questions to ask??????

My husband has a surgery consultation with dr. David Bartlett on Thursday. I don't even know where to begin with what questions we should ask him. If anybody has had the hipec procedure done or has had a consult if you could please tell me what questions do you suggest I ask I would greatly apprecia...
by CLD
Fri Jul 27, 2018 3:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diagnosed with multiple bone mets
Replies: 6
Views: 1247

Re: Diagnosed with multiple bone mets

Hi Teri, Bone biopsy will be done pending his scheduled MRIs the first week of August. The Interventional Radiologist said he didn't think they were cancer, so that's the hope we are clinging onto right now. I just posted todays events in a new post. Hope you are doing well.

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