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by TracieLynn
Wed Sep 07, 2016 3:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Results of my clinical trial - pls read, VERY important
Replies: 31
Views: 7279

Re: Results of my clinical trial - pls read, VERY important

Thank you so much for sharing this information. I wish for continued success with these alternative treatments that our doctors do not discuss. I am not on CC very often but will likely be starting FOLFIRI/AVASTIN soon or looking for a trial. I'll be watching for updates. Best of luck!
by TracieLynn
Thu Jun 16, 2016 10:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dr Kemeny and HAI pump...APPROVED
Replies: 24
Views: 3667

Re: Dr Kemeny and HAI pump...APPROVED

I have a silly question. Maybe a ridiculous and scary question, from someone with liver and lung mets who has had two resections and watching two more lung spots. I have had read about the HAI pump and Dr K but never considered myself a candidate as I was told I was operable and had liver resected. ...
by TracieLynn
Thu Jun 16, 2016 9:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Glucose deprivation and KRAS mutation
Replies: 8
Views: 1541

Re: Glucose deprivation and KRAS mutation

Very interested in Metformin. Just confirmed I'm KRAS mutant. Thanks for posting Nik! Anyone taking it? Do you need to get a rx from dr? Thx!
by TracieLynn
Wed May 18, 2016 3:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 CC and no scans for first 5 months of treatment?
Replies: 14
Views: 2648

Re: Stage 4 CC and no scans for first 5 months of treatment?

SuseB, I was VERY unhappy with my treatment in the Chicago Suburbs (Dupage Medical Group). Oncologists with poor bedside manner and they refused to give me any Magnesium/Calcium with my FOLFOX treatments. I had one infusion with them and "walked" out like a stroke victim-hugging the wall, ...
by TracieLynn
Mon May 16, 2016 7:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 CC and no scans for first 5 months of treatment?
Replies: 14
Views: 2648

Re: Stage 4 CC and no scans for first 5 months of treatment?

Michelle, I noticed before, you mention going to Northwestern in Chicago? Are you in the area? I am stage IV and trying to decide next steps after I can in next few weeks. Recovering from lung met surgery now, hoping no more buggers appear. Was wondering if your Onc at NW referred you for Keytruda? ...
by TracieLynn
Wed Mar 09, 2016 7:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: new-Liver met and lung things...advice?
Replies: 4
Views: 1220

new-Liver met and lung things...advice?

I'm stage 3b, and finished Xeloda/Oxi in November (2015). Had my scan in December and there was a suspicious spot on my liver. rescanned with CT and PET a couple of weeks ago and Boom! 7mm spot on right lobe liver considered a met and a few suspicious spots on the lungs. My Onc at Northwestern flat ...
by TracieLynn
Fri Jan 22, 2016 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC - one year out of chemo :) NED
Replies: 21
Views: 2792

Re: mCRC - one year out of chemo :) NED

LOVE hearing this!!! So happy for you!!! In respect to NED, I hope many of us hear that in 2016! Congrats!
by TracieLynn
Fri Jan 15, 2016 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Log: Experience,Problems, Q & A's
Replies: 436
Views: 92870

Re: Reversal Log: Experience,Problems, Q & A's

Just an update, I'm 18 days post reversal and feel great!! The surgery and recovery was as expected (tired and sore) butt once I took some MoM per dr suggestions-things started rolling with some regularity. Don't get me wrong-I'm still going to the bathroom 5-10x a day, sometimes with gas just to be...
by TracieLynn
Thu Jan 14, 2016 8:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hope
Replies: 13
Views: 2141

Re: Hope

Very glad to hear this!! I'm always looking for Hope! And hearing you're kicking some ass is great news!!
by TracieLynn
Thu Jan 14, 2016 8:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peejay
Replies: 13
Views: 4265

Re: Peejay

Very sorry to hear this. I didn't know PJ; I did bookmark his podcasts for when I'm ready to listen...I do know it's a terrible loss, anyone so young just makes it worse in my opinion. Sending my thought and prayers to his family. Im grateful to still be in the ring fighting.
by TracieLynn
Mon Jan 11, 2016 7:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Your list. Help needed.
Replies: 41
Views: 5299

Re: Your list. Help needed.

Well. I agree with the others and I think the replies cover most everything I've heard so far. Mine was rectal cancer which makes the topic harder for some folks. I'll just add one thing I LOVE. I love when people drop me a line/email/text/call to tell me they're thinking of me. And I love the peopl...
by TracieLynn
Mon Jan 11, 2016 6:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OT :travelling with colostomy, holiday in California!!
Replies: 22
Views: 4311

Re: OT :travelling with colostomy, holiday in California!!

I'm so happy for your holiday trips!! I'm planning one for this summer as week-my post chemo and ostomy vacation! I flew a few times in the USA and to Germany/London with my bag. No problems at airport-just maybe an extra pat down. My experience was that I did not being enough supplies to feel comfo...
by TracieLynn
Wed Dec 30, 2015 2:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Log: Experience,Problems, Q & A's
Replies: 436
Views: 92870

Re: Reversal Log: Experience,Problems, Q & A's

Well I am in the car heading home from hospital-ostomy reversed Monday. I imagine this is the calm before the storm...only moving a little gas and waiting for the games to begin. This thread has helped me prepare mentally and I've stocked up on a few bathroom essentials. Diet suggestions also apprec...
by TracieLynn
Sun Dec 13, 2015 8:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not coping with ileo
Replies: 43
Views: 4933

Re: Not coping with ileo

Lydia, Miss molly and others gave you great advice. I have had temp ileo for 6 months and the first 6-8 weeks were hardest. Now it's a breeze and I never get leaks. For me it was a lot of trial and error-changing every part of solution that didn't work. I wear two wafers (one slim and one normal). A...
by TracieLynn
Sun Dec 13, 2015 8:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Log: Experience,Problems, Q & A's
Replies: 436
Views: 92870

Re: Reversal Log: Experience,Problems, Q & A's

Going in my for my reversal 12/28/15; watching this thread and grateful for the advice!

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