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by Ceebo
Sat Feb 20, 2016 5:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Now on Hospice-How to Live While Dying????
Replies: 16
Views: 3110

Now on Hospice-How to Live While Dying????

Quick update that got us to this point: my DH had to have an ileostomy done on 1/25/16 due to a small bowel obstruction from the peritoneal mets. They also inserted a Gastric tube to use if needed. He's had problems with dehydration, he just can eat very small amounts and he's had a lot of abdominal...
by Ceebo
Tue Dec 29, 2015 3:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need some new trial options/Running out of Time
Replies: 7
Views: 1941

Re: Need some new trial options/Running out of Time

Your mom started the Xilonix trial? Where is your mom going for her trial treatment?? Looks like we are both from Michigan! --Cindie
by Ceebo
Mon Dec 28, 2015 10:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need some new trial options/Running out of Time
Replies: 7
Views: 1941

Re: Need some new trial options/Running out of Time

O Stoma mia : Thanks for the trial sites in CA. --Cindie
by Ceebo
Sat Dec 26, 2015 7:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need some new trial options/Running out of Time
Replies: 7
Views: 1941

Need some new trial options/Running out of Time

Good Morning!! Hope everyone had a wonderful holiday with your family or friends--although I know there are some of you that are actively struggling today due to this disease! Unfortunately, I know that is just the reality of where some of us are on this cancer journey! I just wanted to update you o...
by Ceebo
Sat Dec 26, 2015 7:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 608
Views: 175925

Re: TIL Immunotherapy at NCI

So glad to hear you are doing so well!! Wonderful news--enjoy the holidays with your family!! --Cindie
by Ceebo
Fri Dec 18, 2015 6:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lonsurf worth it?
Replies: 5
Views: 7412

Re: Lonsurf worth it?

My DH was only able to complete 2 cycles of the Lonsurf. CT scans were done yesterday after only 2 cycles because he was losing a little weight and had a little abdominal pain for a couple of days. The scans showed significant disease progression in the liver and the peritoneum. The lung scan result...
by Ceebo
Tue Dec 08, 2015 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Avastin and blood thinners , does anyone here do both? How bad is this idea?
Replies: 5
Views: 924

Re: Avastin and blood thinners , does anyone here do both? How bad is this idea?

My husband was on both Avastin and Lovenox (due to a DVT) for approximately 14 months and didn't have any problems. He had to stop the Avastin when the FOLFIRI was discontinued due to disease progression. ---Cindie
by Ceebo
Fri Dec 04, 2015 7:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lonsurf worth it?
Replies: 5
Views: 7412

Re: Lonsurf worth it?

My DH started taking it the end of Seotember, 2015. He has completed 2 cycles of it and is scheduled for the next cycle next week. He has had minimal side effects--a little fatigue and some neutropenia. He has been able to stay very active. Unfortunately, we don't know yet how effective the drug is ...
by Ceebo
Tue Dec 01, 2015 5:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC/Immunotherapy Expert Roundtable Meeting This Week
Replies: 9
Views: 3970

Re: CRC/Immunotherapy Expert Roundtable Meeting This Week

I will be praying that some new research ideas for those that are CRC MSS come out of this exciting meeting! My DH is running out of viable treatment options! He continues to be in the TAS-102 trial, but we don't have another good option after thal! Thank you for keeping us updated about this landma...
by Ceebo
Wed Nov 18, 2015 6:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TAS 102
Replies: 15
Views: 2693

Re: TAS 102

Trial Update: My DH's neutrophil count came back up without any injections, so we are thankful for that. He started the 2nd cycle of the meds this week. He's a little more fatigued, but still very functional. He isn't scheduled for any scans until the 3 month mark. I asked our oncologist if he could...
by Ceebo
Tue Nov 17, 2015 8:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC-Specific Immunotherapy Research Partnership Announced
Replies: 2
Views: 752

Re: CRC-Specific Immunotherapy Research Partnership Announced

That is such exciting news!!! Thanks so much for all of your help with this important new research focus!
by Ceebo
Mon Nov 16, 2015 8:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sorry quiet for a few days
Replies: 4
Views: 820

Re: Sorry quiet for a few days

I look forward to hearing more info from you! I always learn something new! You will be in my prayers as you restart chemo! My DH had 18 treatments with FOLFIRI and AVASTIN. Overall, he tolerated it quite well! It kept him stable for 9 months.
by Ceebo
Sun Nov 15, 2015 8:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Two more PD-(L)1 Combo Trials Hoped to Make MSS-CRC Tumors "Hot" Towards the Immune System (IDO1 & CD73)
Replies: 19
Views: 5816

Re: Two more PD-(L)1 Combo Trials Hoped to Make MSS-CRC Tumors "Hot" Towards the Immune System (IDO1 & CD73)

DK, Thanks for the information on how to find out more about other trial locations and also thanks for the words of wisdom and caution! --Cindie
by Ceebo
Mon Nov 02, 2015 8:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Two more PD-(L)1 Combo Trials Hoped to Make MSS-CRC Tumors "Hot" Towards the Immune System (IDO1 & CD73)
Replies: 19
Views: 5816

Re: Two more PD-(L)1 Combo Trials Hoped to Make MSS-CRC Tumors "Hot" Towards the Immune System (IDO1 & CD73)

Thank you so much for this information! It gives us hope!

What is the best way to find out what other additional sites/locations are accepting patients in these trials?

Thanks, Cindie
by Ceebo
Sat Oct 31, 2015 10:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TAS 102
Replies: 15
Views: 2693

Re: TAS 102

My DH finished the first month of the TAS-102. He felt great! No significant side effects. We just went back to get lab work done and get his 2nd months supply of meds. But, we just found out his neutrophil count is too low to restart the meds and now he has to wait and get more lab work done to see...

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