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by PeterG
Sat Apr 28, 2018 8:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Working during Irenotecan
Replies: 5
Views: 697

Re: Working during Irenotecan

I did many cycles of Xeloda with Iranotican and Avastin; the only work
I missed was infusion days. I had far less problems with the Iranotican side effects than I did with Oxaliplatin. But each patient is different.
by PeterG
Sun Apr 22, 2018 9:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stivarga? Opinion? Knowledge? Recommendations?
Replies: 6
Views: 917

Re: Stivarga? Opinion? Knowledge? Recommendations?

Thanks RP 1954. Keeping plan B in mind. No $ left for Chang Nesselhut esoterica. Immunotherapies are certainly developing and the possibility of a Plan C becoming widely and affordable available is the light at the end of the tunnel for a lot of long term palliative care mCRC folks. I do not yet sha...
by PeterG
Sat Apr 14, 2018 7:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stivarga? Opinion? Knowledge? Recommendations?
Replies: 6
Views: 917

Re: Stivarga? Opinion? Knowledge? Recommendations?

Thanks. The thread was very informative. Worried about side effects, but will see.
by PeterG
Fri Apr 13, 2018 6:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stivarga? Opinion? Knowledge? Recommendations?
Replies: 6
Views: 917

Stivarga? Opinion? Knowledge? Recommendations?

Just finished third round of Xelox (Xeloda with Oxaliplatin) . Lung meta stable, but side effects ( cold sensitivity, neuropathy and fatigue)are nearly unbearable for me, working full time in cold New England. Onc has recommended a few weeks off, then see if I remain stable on Stivarga. (Says we can...
by PeterG
Sat Mar 24, 2018 10:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Julie Yip Williams passed away last Monday, Mar 19th, 2018
Replies: 18
Views: 3566

Re: Julie Yip Williams passed away last Monday, Mar 19th, 2018

Sad. Julie wrote wonderfully. We connected once for a long talk over coffee in Brooklyn. Discussed similarities and differences, being in palliative care, identity, and being lawyers and parents with this loathesome, incurable disease. Hurts to see her go.
by PeterG
Fri Feb 09, 2018 8:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin and Combatting Neuropothy
Replies: 8
Views: 906

Re: Oxaliplatin and Combatting Neuropothy

Thanks Zephyr. I had read that Gabapentin was found not to work on neuropathy. Willing to try whatever is effective, I suppose, but I had read the 2007 American Cancer Society article from 2007 that I am attaching below that seemas to indicate that it doesn’t seem to help—double blind study. Do you ...
by PeterG
Fri Feb 09, 2018 6:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin and Combatting Neuropothy
Replies: 8
Views: 906

Re: Oxaliplatin and Combatting Neuropothy

So, calcium infusions (or even oral dosing) seem to have some effect. I am looking for some scientific authority. Found the linked article below that was somewhat enlightening, and will send it to my poor, overworked, indulgent ONC., but wondering if anyone else has experimented with any of the pres...
by PeterG
Fri Feb 09, 2018 6:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin and Combatting Neuropothy
Replies: 8
Views: 906

Re: Oxaliplatin and Combatting Neuropothy

Thanks, Mike. Have trouble with the “been on” part...I like to think of myself as at the beginning of the journey. I have been dealing with hand-foot effects of Xeloda for years. The Oxi is bringing this to a new leve. Short-term disability for a person with lung mets on palliative chemo who needs i...
by PeterG
Fri Feb 09, 2018 5:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin and Combatting Neuropothy
Replies: 8
Views: 906

Oxaliplatin and Combatting Neuropothy

Just began a new regime today; went from Xeloda with Iranotican with Avastin to Xeloda with Oxaliplatin and Xarelto (due to pulmonary embolism in last scan and slight growth of one tumor. Problem: I immediately felt numbness in fingers and cold sensitivity in teeth/mouth. Walking outside (into 19 de...
by PeterG
Thu Feb 01, 2018 8:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New "Universal" Cancer Vaccine is under development at Stanford University
Replies: 11
Views: 1431

Re: New "Universal" Cancer Vaccine is under development at Stanford University

Seems so promising! Anyone here have any more information? Nice that their universal group of cancers specifically mentions CRC—-so often not the case.
by PeterG
Sat Aug 26, 2017 2:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda VS 5-FU
Replies: 37
Views: 6843

Re: Xeloda VS 5-FU

Thanks KTWM: I was treated for over a year with Xeloda aand Avastin. Tolerated it relatively well. Switched to pump when I left monotherapy for Folfiri w/Avastin. My concern now is for increased toxicity with XELIRI...this has been reported in some studies. Looking for actual experience...totally ag...
by PeterG
Wed Aug 23, 2017 9:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda VS 5-FU
Replies: 37
Views: 6843

XELIRI vesus FOLFIRI

Help--looking for feedback from folks with XELIRI experience *and* analytical/clinicall/ statistical information as to strengths or drawbacks to shifting from fluorouracil (via pump) with infused irinotecan and infused AVASTIN, to oral capecitabine (XELODA) plus infused irinotecan and Avastin. Backg...
by PeterG
Sun Apr 30, 2017 10:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hair loss from Irinotecan
Replies: 10
Views: 1602

Re: Hair loss from Irinotecan

This is interesting--I am changing chemo to Folfiri in a week, and my oncologist told me that I would probably not suffer hair loss. Does anyone know whether hair loss is to be expected in all cases--I have a rather full beard, and from what I am reading here, it may be a good idea to shave it off b...
by PeterG
Sun Apr 30, 2017 10:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hair loss from Irinotecan
Replies: 10
Views: 1602

Re: Hair loss from Irinotecan

This is interesting--I am changing chemo to Folfiri in a week, and my oncologist told me that I would probably not suffer hair loss. Does anyone know whether hair loss is to be expected in all cases--I have a rather full beard, and from what I am reading here, it may be a good idea to shave it off b...
by PeterG
Sun Apr 30, 2017 10:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clinical Trial NIVOLUMAB for Non MSI-H
Replies: 3
Views: 1005

Re: Clinical Trial NIVOLUMAB for Non MSI-H

The trial you mention, NCT02060188, CheckMate142 is not just Nivolumab for MSS (that would have little chances to work: nivolumab monotherapy works well for most MSI-H, but not on itself for MSS). The trial proposed *combinations* of drugs. It has TWO arms for MSS --that is non MSI-High-- colorecta...

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