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by DH2Sleen
Fri Dec 15, 2017 6:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 547
Views: 80804

Re: TIL Immunotherapy at NCI

:D Very good news today! The tumor in my lungs has remained the same size but is fading. The Dr thinks it may now be scar tissue left by the dead cancer cell. I will come back in 3 months for test. I am so glad that the Lord brought me here for treatment. Thank you to all of you that have kept me i...
by DH2Sleen
Wed Nov 29, 2017 9:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: We may have a mile to go to see effective immunothrarpies to occur for those with MSS
Replies: 12
Views: 638

Re: We may have a mile to go to see effective immunothrarpies to occur for those with MSS

Sleen info : https://cancerriot.blogspot.ca/ is her blog with a beautiful tribute to Tom (DK37) and her CClub profile can be found here DH2Sleen is her hubby who also has contributed a lot to this forum. Cheers CR That's a fascinating blog and she provided a great description of the conditions requ...
by DH2Sleen
Tue Nov 07, 2017 7:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: KRAS G12V Mutation Question
Replies: 24
Views: 836

Re: KRAS G12V Mutation Question

Hi Sharing Hope, You are right that chemo options are limited in Kras mutations. It would be helpful to have more of your story. Please add a signature so we know something about your treatment history. In general, if you are stage III or IV, you would need to get initial treatment with standard the...
by DH2Sleen
Mon Sep 18, 2017 8:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 547
Views: 80804

Re: TIL Immunotherapy at NCI

"...All patients must be refractory to approved standard systemic therapy. Specifically : Metastatic colorectal patients must have received oxaliplatin or irinotecan." When I was accepted onto the trial, I had previously only undergone treatment with FOLFOX. Celine Hi Celine, That is how ...
by DH2Sleen
Fri Sep 15, 2017 5:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 547
Views: 80804

Re: TIL Immunotherapy at NCI

DAS43 wrote::D
Had my follow up at NIH today. The tumor has shrunk to 49.8% very happy and feel blessed. My next follow up will be in December.

Awesome!!!!!! So you are officially a Partial Responder now?
by DH2Sleen
Fri Sep 15, 2017 5:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 547
Views: 80804

Re: TIL Immunotherapy at NCI

After your wife's experience do you feel that the NIH teams expertise is worth the additional time and travel involved? Three years ago, when we worked so hard to get into this trial, I would have said that it was our only option... either this trial succeeds or we have no hope. Now, I think there ...
by DH2Sleen
Thu Sep 14, 2017 5:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 547
Views: 80804

Re: TIL Immunotherapy at NCI

Hi Everyone, I have been very interested in this trial since I first heard of it and am looking into applying if my first line treatment fails, but I had a quick questions. I have been reading through the thread and there is a mention of MD Anderson as a possible site for a similar study. I am curr...
by DH2Sleen
Thu Jul 27, 2017 11:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: At Slight Crossroads and NCT01174121
Replies: 8
Views: 831

Re: At Slight Crossroads and NCT01174121

My heart rate doubled when I read you post. Sleen's status was almost exactly like your wife's. I think you are right to hold off more chemo until you've given TIL a shot. Take a look at Sleen's blog http://www.cancerriot.blogspot.com. The ironic thing about this trial is that you need to be fairly ...
by DH2Sleen
Thu Apr 20, 2017 1:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 547
Views: 80804

Re: TIL Immunotherapy at NCI

At NIH today for 3rd Keytruda tx and results of ct scan yesterday. The CT scan shows graying around the cancer tumor. My "fellow" said it's hard to tell but the cell may of shrank a small amount. No new tumors. All very good news to me. :D That is great news in my opinion. The scans I've ...
by DH2Sleen
Wed Apr 12, 2017 6:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 547
Views: 80804

Re: TIL Immunotherapy at NCI

We applied to this clinical trial by Dr. Rosenberg and we will fly down to Bethesda next week for a "final" screening. My question is, what kind of experience others have during this screening? Any details? And what to expect after the screening in terms of timeline? What can I do as a ca...
by DH2Sleen
Tue Mar 21, 2017 1:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 547
Views: 80804

Re: TIL Immunotherapy at NCI

I'm so happy for both Jed and Deb. Go TILs Go. I can hardly wait to hear about your scans in a few weeks.
by DH2Sleen
Mon Feb 06, 2017 2:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 547
Views: 80804

Re: TIL Immunotherapy at NCI

The one thing I did not know (which I may have missed reading in this post) is that they are using "your" cells for other people. Joan used a little creative license with that one. She said they would use Sleen's cells. What they will actually do is use a virus to transfer the T-Cell Rece...
by DH2Sleen
Thu Dec 29, 2016 12:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adoptive cell therapy outside of trial?
Replies: 5
Views: 506

Re: Adoptive cell therapy outside of trial?

Hi all. Currently waiting for my liver enzynes to go down so I can get back on Pembro. But as always I am looking forward to the future and planning "backups". Adoptive cell therapy seems to be the next step. Just a question. Would any of you know of any center that offers it for colorect...
by DH2Sleen
Tue Dec 13, 2016 7:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 547
Views: 80804

Re: TIL Immunotherapy at NCI

How difficult is it to get into this trial? Is it open for Kras wild type, MSI-H patients? Now that is a good question that we (Sleen and I) want everyone to understand. This trial is open to every CRC type! We have been trying to stress this fact ever since the NYT article came out. The trial is n...
by DH2Sleen
Fri Dec 09, 2016 8:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has anyone heard of schools helping out if you have to move out of state for a month or so?
Replies: 22
Views: 1268

Re: Has anyone heard of schools helping out if you have to move out of state for a month or so?

We homeschool and there are lots of online support schools for homeschoolers. I don't know MN rules for that. If you don't think online will work for you, then I don't know how you would manage it.

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