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by Robinf
Tue Nov 01, 2016 3:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life Insurance Accelerated Death Benefit Rider
Replies: 11
Views: 2071

Re: Life Insurance Accelerated Death Benefit Rider

I had an accelerated death benefit on my insurance and took advantage of it last year. Each policy can and will be different on all kinds of deails, meaning how much they pay out, life expectancy required for payout etc. The terms of my policy was that they would payout 50% of my life insurance amou...
by Robinf
Tue Mar 08, 2016 6:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Silly Question on Disability or Life Insurance
Replies: 10
Views: 1632

Re: Silly Question on Disability or Life Insurance

The pre-existing condition clause only applies for health insurance, not disability or life insurance, just fyi.
by Robinf
Thu Mar 03, 2016 7:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC question
Replies: 6
Views: 1660

Re: HIPEC question

My surgeon went off of scans, no laparoscopic procedure in advance.

Robin
by Robinf
Tue Mar 01, 2016 1:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Joint & Muscle Pain
Replies: 2
Views: 800

Joint & Muscle Pain

I just wrapped up 14 rounds of FOLFIRI (the last 3 w/ Avastin), I'll be transitioning to Xeloda and Avastin next week. About 3 - 4 weeks ago, I started experiencing some muscle and joint pain. I have attributed it to not being active enough - basically the price of being too sedentary. With that, I'...
by Robinf
Fri Jan 15, 2016 9:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life Insurance Question
Replies: 9
Views: 2049

Re: Life Insurance Question

Every single life insurance plan will be different, both in the amount of the payoff and when you can collect it. I am in the process of doing this myself and I can collect 75% of my plan amount up to 500k based on doctor certifying I'm terminal and my life expectancy is less than 24 months. Again, ...
by Robinf
Tue Dec 22, 2015 2:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: post-op pain
Replies: 5
Views: 1410

Re: post-op pain

I had HIPEC in May, had an 'easy' early recovery and then about 10 days after the surgery had some wound dishesence issues. The wound is just aboutbhealed up (finally!!) but I still have a fair amount of pain. For me, its in the lower keft quadrant and upper right. The pain can go from annoying to e...
by Robinf
Wed Nov 25, 2015 8:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Percutaneous Liver RFA
Replies: 2
Views: 840

Percutaneous Liver RFA

Hi everyone, I'm scheduled for a percutaneous liver rfa next Friday. It's an OP procedure and the doc's nurse has said to expect to take a coupke of weeks off of work to recover. She said I'd be very sore and achy. Compared to my HIPEC last spring, it sounds like a cake walk. :D So, can anybody give...
by Robinf
Tue Nov 17, 2015 11:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX +Avastin vs. FOLFIRI + Avastin... Symptomatic and Efficacy Differences
Replies: 5
Views: 1375

Re: FOLFOX +Avastin vs. FOLFIRI + Avastin... Symptomatic and Efficacy Differences

For me FOLFIRI is much better than FOLFOX. The diarrhea and nausea were much worse on FOLFOX, and the added cold sensitivity and neuropathy made FOLFOX pretty miserable for me. I have more fatigue on FOLFIRI and while my hair has thinned I havent lost it. As others have said, everyone is different b...
by Robinf
Mon Oct 26, 2015 12:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Travel Anxiety - anyone else?
Replies: 4
Views: 958

Travel Anxiety - anyone else?

I'm still working full time and my job requires occasional travel. I'm supposed to leave on a trip tomorrow, it should be an easy one, short plane flight, just 2 nights gone... No brainer, right? The closer the trip gets, the more anxiety I have... What if something happens? I find myself getting ve...
by Robinf
Wed Oct 14, 2015 1:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer treatment center of America
Replies: 3
Views: 1130

Re: Cancer treatment center of America

CTCA is a private, for profit treatment center which always makes me a little suspicious. That being said, my total charges for the last year (my first year post dx) are close to 1 million $. Remember though that insurance typically (as in almost never) doesn't pay what is charged, they pay a negoti...
by Robinf
Sun Oct 11, 2015 9:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you've had peri mets -- did you have any symptoms?
Replies: 19
Views: 3941

Re: If you've had peri mets -- did you have any symptoms?

I have peri mets, have no symptoms. Some have been too small to be seen on a scan, others have been visible. My CEA isnt a good marker for me. Good luck with your scan.
by Robinf
Thu Sep 10, 2015 10:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peritoneal Carcinomatosis
Replies: 4
Views: 1549

Re: Peritoneal Carcinomatosis

I had peri mets with no liver lung involvement. I also went the HIPEC route, my surgeon is now at MDA - Gary Mann. Loved him btw!

I have had a reoccurance so HIPEC isnt a silver bullet, but its a shot.

Good Luck!
by Robinf
Fri Sep 04, 2015 5:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFIRI and hair loss
Replies: 6
Views: 1778

Re: FOLFIRI and hair loss

Thanks all for the info, I appreciate it!
by Robinf
Fri Sep 04, 2015 5:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC
Replies: 4
Views: 1619

Re: HIPEC

I also had HIPEC in May and have had a recurrence, 2 spots in my liver and 1 in the peritoneum. I would (and at some point probably will) do it again in a heartbeat! My surgeon was great, Dr Gary Mann. He was at Univ of Washington when I had my surgery but has since left UW and is at MD Anderson. I'...
by Robinf
Thu Sep 03, 2015 11:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFIRI and hair loss
Replies: 6
Views: 1778

FOLFIRI and hair loss

My 3rd FOLFIRI tx is next week and by now I was expecting to be losing hair at a faster rate than I currently am. It almost seems like the thinning has slowed down. I'm all set up with my wig and I've had nothing but bad hair days for what feels like months as its thinned from my rounds of FOLFOX la...

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