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by plastikos
Mon Mar 11, 2019 2:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 33
Views: 2882

Re: Starting immunotherapy next week

Hello, could those who have been on keytruda or mono immunotherapies of the like please chime in with your experiences based on the following?: colon cancer was diagnosed about 4 years ago, surgery to remove the mass and total colectomy was performed followed by 6 months of folfox and was NED for l...
by plastikos
Tue Mar 05, 2019 9:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 33
Views: 2882

Re: Starting immunotherapy next week

Trevor, best of luck on your immuno. Hope it works as well for you as it has for me.
by plastikos
Mon Feb 11, 2019 10:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 70
Views: 28730

Re: Switching back to Pembro

Updating my own thread: On my 2nd to the last dose of Keytruda as standard dosing (200mg every 3-4 weeks). I saw my oncologist in Singapore (I have 2 for multiple opinions) and he suggested that I stop treatment completely at the 2 year mark since that’s what he does with his other patients in compl...
by plastikos
Mon Feb 11, 2019 9:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant immunotherapy
Replies: 23
Views: 2083

Re: Adjuvant immunotherapy

I am MSI-H as well. Did FOLFOX + Erbitux as well as FOLFIRI as adjuvant chemo after surgeries. Had recurrences after both. After that I was put on Keytruda and I am about to hit my 2 year mark on the drug. I have been NED for almost the whole time on immunotherapy. I know it’s useless to think about...
by plastikos
Tue Feb 05, 2019 8:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Multiple reoccurrence survival stories
Replies: 5
Views: 959

Re: Multiple reoccurrence survival stories

I’ve had 2 since my initial diagnosis and surgery in 2014. I am NED now. Don’t lose hope.
by plastikos
Fri Feb 01, 2019 8:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda
Replies: 21
Views: 2535

Re: Keytruda

Yes. I had a good result on Keytruda. See my sig below.
by plastikos
Sun Jan 27, 2019 11:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What to do after immunotherapy works
Replies: 11
Views: 1306

Re: What to do after immunotherapy works

henry123 wrote:https://clinicaltrials.gov/ct2/show/NCT03631641

A clinical trial for maintenance/prevention dose of Nivolumab for Lynch Syndrome patients.
They are giving it for 2 years every 3 months.

This is interesting. Thanks. Does anyone know the science behind the 3 month interval dosing?
by plastikos
Tue Jan 15, 2019 11:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any comment on Hyperthermia treatment?
Replies: 9
Views: 1192

Re: Any comment on Hyperthermia treatment?

Hi. I read your post and I just thought I’d chime in. The bottomline is there is no real clinical evidence that hyperthermia works. I have explored that option as well as many other alternative treatments in the past and I can’t say they made any difference. I read your sig. You’re in a relatively e...
by plastikos
Tue Jan 15, 2019 6:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What to do after immunotherapy works
Replies: 11
Views: 1306

What to do after immunotherapy works

Hi. I decided to start a new thread since I needed some opinions and there doesn’t seem to be a specific thread for this topic. I am sure some others here may need or will be needing opinion on this as well. Brief backgrounder: I am about to hit my 2 year mark on Keytruda monotherapy and have been N...
by plastikos
Tue Jan 15, 2019 6:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 70
Views: 28730

Re: Switching back to Pembro

This is such great news for you! I am so happy to read this. It’s been along time since I’ve been on this site but I read occasionally. As with everyone with this diagnosis or a family member who has colon cancer, it’s been a very tough year. My mom did not respond well to chemo, in fact it almost ...
by plastikos
Tue Jan 15, 2019 6:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 70
Views: 28730

Re: Switching back to Pembro

Henry: I have no specific data but antidotally, my oncologist (the one prescribing the Keytruda) stated that if after 2 years on Keytruda I had any potential cancer evident in my body (via CT scan or via CEA) he suggested, based on past experience that we maintain the course and continue treatment ...
by plastikos
Sat Jan 12, 2019 3:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 70
Views: 28730

Re: Switching back to Pembro

PET CT from yesterday came back. Still NED. Hoping for the best for us all.
by plastikos
Fri Jan 11, 2019 9:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 70
Views: 28730

Re: Switching back to Pembro

Hi, I have been NED since June 2018 . I am Lynch positive. Two thoughts regarding future course of action are going on by my oncologists . 1. Stop infusions at two year mark in June 19. Logic: further infusions don't have much effect other than increased chances of toxicity. 2. Continue maintenance...

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