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by plastikos
Tue Jan 15, 2019 11:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any comment on Hyperthermia treatment?
Replies: 8
Views: 581

Re: Any comment on Hyperthermia treatment?

Hi. I read your post and I just thought I’d chime in. The bottomline is there is no real clinical evidence that hyperthermia works. I have explored that option as well as many other alternative treatments in the past and I can’t say they made any difference. I read your sig. You’re in a relatively e...
by plastikos
Tue Jan 15, 2019 6:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What to do after immunotherapy works
Replies: 0
Views: 127

What to do after immunotherapy works

Hi. I decided to start a new thread since I needed some opinions and there doesn’t seem to be a specific thread for this topic. I am sure some others here may need or will be needing opinion on this as well. Brief backgrounder: I am about to hit my 2 year mark on Keytruda monotherapy and have been N...
by plastikos
Tue Jan 15, 2019 6:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 62
Views: 23209

Re: Switching back to Pembro

This is such great news for you! I am so happy to read this. It’s been along time since I’ve been on this site but I read occasionally. As with everyone with this diagnosis or a family member who has colon cancer, it’s been a very tough year. My mom did not respond well to chemo, in fact it almost ...
by plastikos
Tue Jan 15, 2019 6:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 62
Views: 23209

Re: Switching back to Pembro

Henry: I have no specific data but antidotally, my oncologist (the one prescribing the Keytruda) stated that if after 2 years on Keytruda I had any potential cancer evident in my body (via CT scan or via CEA) he suggested, based on past experience that we maintain the course and continue treatment ...
by plastikos
Sat Jan 12, 2019 3:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 62
Views: 23209

Re: Switching back to Pembro

PET CT from yesterday came back. Still NED. Hoping for the best for us all.
by plastikos
Fri Jan 11, 2019 9:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 62
Views: 23209

Re: Switching back to Pembro

Hi, I have been NED since June 2018 . I am Lynch positive. Two thoughts regarding future course of action are going on by my oncologists . 1. Stop infusions at two year mark in June 19. Logic: further infusions don't have much effect other than increased chances of toxicity. 2. Continue maintenance...
by plastikos
Sun Jan 06, 2019 12:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 62
Views: 23209

Re: Switching back to Pembro

Wonderfullymade wrote:December scan update...
Still NED, next scan March.
Happy Holidays everyone!
Wonderfullymade

Amazing news! As for me I am approaching mg 2 year mark on Pembro. Onc and I will decide what to do then.
by plastikos
Sun Jan 06, 2019 12:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 62
Views: 23209

Re: Switching back to Pembro

Plastikos, Regarding removal of stent. I assume it involves surgery to remove it. If so , as per my understanding surgery of any type should be avoided if you are undergoing immunotherapy. This is because surgery can cause autoimmune reaction by the immune system. I was forbidden explicitly even th...
by plastikos
Wed Oct 10, 2018 10:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 46
Views: 5130

Re: Stage 4 to NED- Please tell us

There are lots of survivor stories and there is always hope. I was diagnosed as St. IV almost 4 years ago and 2 surgeries, 30 chemos, 1 SIRT, 1 biliary stent placement, several immunotherapy sessions later I am NED. Wasn’t easy but most things that are worth it aren’t. Hang in there.
by plastikos
Thu Oct 04, 2018 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA correlation with metastasis and survival??
Replies: 12
Views: 1240

Re: Baseline CEA correlation with metastasis and survival??

My CEA was normal at diagnosis and I was St. IV. Although CEA is a useful marker and is usually monitored for recurrence it is not the be all and end all for CRC. That’s why oncologists still order the scans. Staging is important and obviously everyone would want to be Stage I but what matters more ...
by plastikos
Sat Sep 29, 2018 1:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI-H with liver met, in search of help
Replies: 19
Views: 2097

Re: MSI-H with liver met, in search of help

Trevor, sorry to hear about your diagnosis. You are basically at the point where I was when I was diagnosed (see my sig). I didn’t know I was MSI-H until late and also the data supporting PD-1 inhibitors was not there yet at that time. If I had to do it all over again I would’ve opted for immunother...
by plastikos
Fri Sep 28, 2018 5:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 62
Views: 23209

Re: Switching back to Pembro

Great news Plastikos, Even my oncologist is increasing duration between fusions by a week every 3 months or so after a year of infusions every 2 weeks. It started with once every 2 weeks. It is now at once a month. Great to hear that Henry. Looks like we are kind of in the same boat right now. If i...
by plastikos
Fri Sep 28, 2018 11:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 62
Views: 23209

Re: Switching back to Pembro

Great news Plastikos, Even my oncologist is increasing duration between fusions by a week every 3 months or so after a year of infusions every 2 weeks. It started with once every 2 weeks. It is now at once a month. Great to hear that Henry. Looks like we are kind of in the same boat right now. If i...

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