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by plastikos
Mon Oct 23, 2017 10:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here...At a Crossroad
Replies: 7
Views: 215

Re: New here...At a Crossroad

Hi Janis. Sorry to hear about your situation. It may sound cliche but there is always hope. Other people with similar situations have reached NED status again. It is true that you may have to face the possiblity of having treatments indefinitely but even this is not a certainty. Just worry about the...
by plastikos
Tue Oct 17, 2017 11:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV long term survivors here?
Replies: 37
Views: 3797

Re: Any Stage IV long term survivors here?

Just thought I’d bump this thread up. Maybe some of us need to hear stories from time to time. I know I do. As for me, I am approaching my 3 year mark from diagnosis in late 2014. I have had some wonderful periods of being NED and hopefully will enter another one soon. Hopefully for good. A lot has ...
by plastikos
Tue Oct 17, 2017 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV Suvivor Celebrates Third Anniversary of Surgery
Replies: 11
Views: 1309

Re: Stage IV Suvivor Celebrates Third Anniversary of Surgery

First time to see this thread. First of all congrats on everything. As you can see from my sig we were basically in same boat (right sides lesion with liver mets). Bit since my surgery I have had 2 recurrences. I have never had Avastin (I wish I had the first time) but we decided on Erbitux since my...
by plastikos
Sat Oct 14, 2017 9:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets, Stage IV --- Need advice
Replies: 9
Views: 706

Re: Peri mets, Stage IV --- Need advice

Hi. Sorry to hear about this. I know it’s jarring but don’t lose hope. You still have options. First get to a good cancer center like others have already mentioned. If you want to go aggressive explore HIPEC. You may also have your tumor tested for MSI status and try immunotherapy. Or even combine b...
by plastikos
Wed Oct 11, 2017 1:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MEDI4736 CLINICAL TRIAL (KEYTRUDA)
Replies: 41
Views: 6079

Re: MEDI4736 CLINICAL TRIAL (KEYTRUDA)

Had to stop Keytruda due to mouth sores and throat and mouth infection. Tumor grew and CEA up to 68. They are gonna change my therapy and let's see from there. Gotta gain bodyweight. Sorry to hear this Rob. Hope they find an alternative, maybe another PD-1 inhibitor. Have you ever considered SIRT f...
by plastikos
Mon Oct 09, 2017 3:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Right side pain --mets?
Replies: 13
Views: 757

Re: Right side pain --mets?

No way to know for sure. Some mets cause pain (if they stretch the liver capsule) and some don’t. No harm in seeing a doctor or getting at least an ultrasound.
by plastikos
Mon Oct 09, 2017 3:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GOOD NEWS ON BEANSMAMA
Replies: 63
Views: 3473

Re: GOOD NEWS ON BEANSMAMA

Good to hear. Especially the part about the tumors being dead. Anything is possible!
by plastikos
Tue Oct 03, 2017 12:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DK37 Experimental Immunotherapy Treatment Update
Replies: 17
Views: 2115

Re: DK37 Experimental Immunotherapy Treatment Update

Hi Tom. I follow your blog when I can. I remember reading that you underwent SIRT with Y90? Is that accurate? I ask because I am about to undergo SIRT next week as well. How was it? I am also on Pembrolizumab (temporarily stopped for now but will continue after SIRT). Any thoughts on the possible a...
by plastikos
Mon Oct 02, 2017 6:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 years NED, stage 4
Replies: 26
Views: 1341

Re: 7 years NED, stage 4

Inspiring story. Especially for Stage 4s like me. Thank you.
by plastikos
Fri Sep 29, 2017 8:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone here undergo SIRT?
Replies: 8
Views: 468

Re: Anyone here undergo SIRT?

Underwent SIRT yesterday. It was a bit more painful than I expected. Had to be sedated. Fine today except for some mild crampy back pain. Hope they nuked everything. Hope to get back on Pembro soon. It’s just that nobody is quite sure when to start it again.
by plastikos
Wed Sep 27, 2017 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Too many tumors to count... newbie here
Replies: 15
Views: 1030

Re: Too many tumors to count... newbie here

Echoing what others have said. Don’t know where you live but get yourself to the nearest major cancer center for an opinion. Do not stick with a team of doctors who tell you it’s “hopeless” and there’s nothing they can do. Theres is always hope. If they can get a sample of tumor I would suggest havi...
by plastikos
Sat Sep 23, 2017 12:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone here undergo SIRT?
Replies: 8
Views: 468

Re: Anyone here undergo SIRT?

Has anyone else tried SIRT while on immunotherapy with a PD1 inhibitor?
by plastikos
Thu Sep 21, 2017 4:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone here undergo SIRT?
Replies: 8
Views: 468

Anyone here undergo SIRT?

Hi all. I am about to undergo SIRT with Y90 next week for some tumors that seem stable on immunotherapy. Of course I prefer them to be non-existent thus the SIRT. The initial mapping showed disease is confined to segment VIII and the plan is to nuke it via the right hepatic artery. I stopped Pembro ...
by plastikos
Thu Sep 21, 2017 4:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DK37 Experimental Immunotherapy Treatment Update
Replies: 17
Views: 2115

Re: DK37 Experimental Immunotherapy Treatment Update

Hi Tom. I follow your blog when I can. I remember reading that you underwent SIRT with Y90? Is that accurate? I ask because I am about to undergo SIRT next week as well. How was it? I am also on Pembrolizumab (temporarily stopped for now but will continue after SIRT). Any thoughts on the possible ab...

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