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by plastikos
Fri Jun 16, 2017 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 1 with no surgery...any thoughts?
Replies: 25
Views: 805

Re: Stage 1 with no surgery...any thoughts?

Like what others have said. A very tough and personal decision. I can only say what I would do. I would get surgery since it would in theory nip the cancer in the butt. For good. Keep in mind this is from the perspective of someone who was stage 4 and has had multiple recurrences and surgeries. So 1...
by plastikos
Thu Jun 08, 2017 12:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Message of hope from a wiley crc veteran
Replies: 32
Views: 928

Re: Message of hope from a wiley crc veteran

Rob, I don't get to check in on this forum too much. Life and work gets in the way. But I'm glad I did today and read this because it's just what I needed. Thanks man.
by plastikos
Thu May 25, 2017 6:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ascites. Peritoneal mets confirmed.
Replies: 28
Views: 1867

Re: Ascites. Peritoneal mets confirmed.

Talked to the onc just now. He said ascites implies a more life-threatening outlook, so to control the symptoms ASAP, Keytruda is worth trying, considering it's potential and minor side effects, regardless of the patient's MS status. He is very willing to use Keytruda along with other drugs if the ...
by plastikos
Thu May 18, 2017 11:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Went to see the surgeon today
Replies: 18
Views: 1137

Re: Went to see the surgeon today

Awesome news. Wishing you, and everyone here, all the best.
by plastikos
Tue May 16, 2017 10:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MEDI4736 CLINICAL TRIAL (KEYTRUDA)
Replies: 32
Views: 3349

Re: MEDI4736 CLINICAL TRIAL

Hi Rob. You and I have almost the same course. I also developed jaundice last December and had a biliary stent put in. I still have it. Currently on Keytruda as well and so far so good. Feeling better, gaining weight. Wishing you the best.
by plastikos
Tue May 16, 2017 10:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 16
Views: 1163

Re: Switching back to Pembro

Plastikos you might like this thread form Big Rob here http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=55586 He started it with that mention of that trial but ended up with pembro /Keytruda. Wonderfullymade , I do know you already have read that thread. Thanks Maia. Sorry between wo...
by plastikos
Wed May 10, 2017 10:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 16
Views: 1163

Re: Switching back to Pembro

Update: Had 3 infusions of Pembrolizumab (every 3 weeks). PET-CT still shows basically the same lesions with a very minimal decreases in their respective sizes. But all of them are now non-hypermetabolic on PET. I was hoping, maybe even expecting, a more dramatic change but all in all it is still g...
by plastikos
Wed May 10, 2017 10:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 16
Views: 1163

Re: Switching back to Pembro

Thanks. Onc hasn't mentioned Avastin yet. Did you mean combination with the Pembro? Is the data on it out? I'm not aware of any data on this at this time. Was just wondering if you were thinking of it as you were "hoping for a more dramatic change" under current treatment plan. Keytruda h...
by plastikos
Mon May 08, 2017 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 16
Views: 1163

Re: Switching back to Pembro

Update: Had 3 infusions of Pembrolizumab (every 3 weeks). PET-CT still shows basically the same lesions with a very minimal decreases in their respective sizes. But all of them are now non-hypermetabolic on PET. I was hoping, maybe even expecting, a more dramatic change but all in all it is still g...
by plastikos
Mon May 08, 2017 11:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 16
Views: 1163

Re: Switching back to Pembro

Update: Had 3 infusions of Pembrolizumab (every 3 weeks). PET-CT still shows basically the same lesions with a very minimal decreases in their respective sizes. But all of them are now non-hypermetabolic on PET. I was hoping, maybe even expecting, a more dramatic change but all in all it is still go...
by plastikos
Wed Apr 05, 2017 11:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung laser surgery + ADAPT and still NED
Replies: 7
Views: 950

Re: Lung laser surgery + ADAPT and still NED

So so so HAPPY for you, Sophy!! It warms my heart each time I see your posts :) KElizabeth , some of the answers you're looking for can be found in this previous dialogue: http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=56506&start=15#p447004 and also maybe in this http://colonc...
by plastikos
Sun Apr 02, 2017 9:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung laser surgery + ADAPT and still NED
Replies: 7
Views: 950

Re: Lung laser surgery + ADAPT and still NED

I have always been intrigued by ADAPT but confess that I have never done the research. Who or what center is best to consult about it? How does one know if he is a good candidate for ADAPT? Any tests?
by plastikos
Sat Mar 18, 2017 11:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: considering vasectomy...will it affect pelvic scans?
Replies: 4
Views: 411

Re: considering vasectomy...will it affect pelvic scans?

I had one same time as my 2nd liver resection. No problems with surgery, post-op and it had no effect on scans.
by plastikos
Sat Mar 18, 2017 11:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chance for long-term NED for stage IV with chemo alone?
Replies: 6
Views: 887

Re: Chance for long-term NED for stage IV with chemo alone?

Hey LMighty. This is a question that crosses my mind a lot. I would say it is possible but only in a small percentage of cases. Praying for the best.
by plastikos
Tue Mar 14, 2017 11:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed any advice
Replies: 2
Views: 389

Re: Newly diagnosed any advice

Hi. I would give you the same advice I would've given myself during my first surgery in 2014. Get your tumor tested for MSI (microsatellite instability). Praying that chemo and rad does the trick for you but with this disease we never know what the future holds. So knowing your MSI status is just mo...

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