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by plastikos
Thu May 24, 2018 4:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 27
Views: 3956

Re: Switching back to Pembro

plasricos wrote: I have been taking Vit D3 supplements since diagnosis in 2014. Even my onc was on board with it. But I kept on getting recurrences. Now I read that Vit D3 actually affects the immune response negatively by reducing inflammation. Your words make me worried. My DH is also taking Vit ...
by plastikos
Wed May 23, 2018 8:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 27
Views: 3956

Re: Switching back to Pembro

Hi guys, Those of you who are on pembro or Opdivo, have you considered adding aspirin to your daily regime. Please discuss with your med oncologist. It seems at least opdivo gives a better bite for the buck in combination with aspirin. http://www.bioworld.com/content/nonsteroidal-anti-inflammatory-...
by plastikos
Thu May 03, 2018 8:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 27
Views: 3956

Re: Switching back to Pembro

Hi. Things are good overall I think. Recent developments. Had a PET scan last week which showed a small area of FDG uptake with no corresponding lesion on CT. They ordered an MRI with liver specific contrast which is supposedly the most sensitive/specific imaging for liver mets and it showed nothin...
by plastikos
Thu May 03, 2018 8:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 27
Views: 3956

Re: Switching back to Pembro

Hi. Things are good overall I think. Recent developments. Had a PET scan last week which showed a small area of FDG uptake with no corresponding lesion on CT. They ordered an MRI with liver specific contrast which is supposedly the most sensitive/specific imaging for liver mets and it showed nothin...
by plastikos
Tue Apr 24, 2018 2:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Loco-Regional Hyperthermia
Replies: 4
Views: 602

Re: Loco-Regional Hyperthermia

I’d say there’s no evidence to either support or debunk the practice. But my take on all these non-conventional therapies is as long as it doesnt hurt you or interfere with conventional therapy (the assumption is you are getting evidence-based treatment) then it’s ok. Anecdotally, at one point I pur...
by plastikos
Mon Apr 23, 2018 11:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 27
Views: 3956

Re: Switching back to Pembro

Plastikos you might like this thread form Big Rob here http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=55586 He started it with that mention of that trial but ended up with pembro /Keytruda. Wonderfullymade , I do know you already have read that thread. Thanks Maia. Sorry between wo...
by plastikos
Mon Apr 09, 2018 9:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lentin/Biobran/MGN3
Replies: 5
Views: 615

Re: Lentin/Biobran/MGN3

Just looking for non-toxic supplements that may boost immune function to (in theory) act synergistically with immunotherapy. Open to suggestions.
by plastikos
Mon Apr 09, 2018 12:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lentin/Biobran/MGN3
Replies: 5
Views: 615

Re: Lentin/Biobran/MGN3

O Stoma Mia wrote:Try searching the Forum for:

LENTINAN

or

SHIITAKE

I’ll do that. Thanks.
by plastikos
Mon Apr 09, 2018 12:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lentin/Biobran/MGN3
Replies: 5
Views: 615

Lentin/Biobran/MGN3

Hi all. I have used the search function of the forum and have not come up with any results. Has anyone by any chance had any experience with these supplements which supposedly boost one’s immune system specifically NK cell function? As far as I can tell they all seem to be one and the same. Thanks.
by plastikos
Fri Feb 23, 2018 12:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon resection now abcessed
Replies: 3
Views: 542

Re: Colon resection now abcessed

Sorry to hear this. Had a somewhat similar experience with an abscess after liver resection. Treatment is to drain and give antibiotics. If it’s any consolation some people say the stimulation of one’s immune system caused by the infection can “theoretically” improve one’s odds of cure. Hope it goes...
by plastikos
Wed Feb 07, 2018 8:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 30
Views: 4368

Re: Keytruda? What else is new?

Another article on duration of immunotherapy after good response http://cancergrace.org/cancer-101/2016/09/14/io-duration/ Hi Henry. First of all congrats on your results on Opdivo. I have been on Keytruda for a year and I am doing well save for the toll it is taking financially. Where I live the d...
by plastikos
Wed Feb 07, 2018 7:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 years from diagnosis, 1 year on Keytruda
Replies: 13
Views: 1049

Re: 3 years from diagnosis, 1 year on Keytruda

henry123 wrote:Congratulations on achieving NED.
Are you continuing with Keytruda for now?
Any discussion with your medical oncologist on that front.

Hi Henry. Yes as of now the plan is to continue with Keytruda up until 2 years though I might bargain with him if he’s ok with reducing the frequency.
by plastikos
Tue Feb 06, 2018 10:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 years from diagnosis, 1 year on Keytruda
Replies: 13
Views: 1049

3 years from diagnosis, 1 year on Keytruda

I don’t post often but I just wanted to share my experience so far. I joined this forum late 2014. At that time I was just diagnosed with St IV colon cancer with liver mets. Since then I have had 2 recurrences, 2 major surgeries with postop complications, 30+ rounds of chemo, 2 biliary stenting proc...

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