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by plastikos
Wed Oct 10, 2018 10:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 46
Views: 4639

Re: Stage 4 to NED- Please tell us

There are lots of survivor stories and there is always hope. I was diagnosed as St. IV almost 4 years ago and 2 surgeries, 30 chemos, 1 SIRT, 1 biliary stent placement, several immunotherapy sessions later I am NED. Wasn’t easy but most things that are worth it aren’t. Hang in there.
by plastikos
Thu Oct 04, 2018 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA correlation with metastasis and survival??
Replies: 12
Views: 1134

Re: Baseline CEA correlation with metastasis and survival??

My CEA was normal at diagnosis and I was St. IV. Although CEA is a useful marker and is usually monitored for recurrence it is not the be all and end all for CRC. That’s why oncologists still order the scans. Staging is important and obviously everyone would want to be Stage I but what matters more ...
by plastikos
Sat Sep 29, 2018 1:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI-H with liver met, in search of help
Replies: 19
Views: 1693

Re: MSI-H with liver met, in search of help

Trevor, sorry to hear about your diagnosis. You are basically at the point where I was when I was diagnosed (see my sig). I didn’t know I was MSI-H until late and also the data supporting PD-1 inhibitors was not there yet at that time. If I had to do it all over again I would’ve opted for immunother...
by plastikos
Fri Sep 28, 2018 5:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 42
Views: 16095

Re: Switching back to Pembro

Great news Plastikos, Even my oncologist is increasing duration between fusions by a week every 3 months or so after a year of infusions every 2 weeks. It started with once every 2 weeks. It is now at once a month. Great to hear that Henry. Looks like we are kind of in the same boat right now. If i...
by plastikos
Fri Sep 28, 2018 11:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 42
Views: 16095

Re: Switching back to Pembro

Great news Plastikos, Even my oncologist is increasing duration between fusions by a week every 3 months or so after a year of infusions every 2 weeks. It started with once every 2 weeks. It is now at once a month. Great to hear that Henry. Looks like we are kind of in the same boat right now. If i...
by plastikos
Mon Sep 24, 2018 9:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 42
Views: 16095

Re: Switching back to Pembro

@bitchslapped: Re stent. Sorry missed that. :) Yup we are also debating on what to do with the stent. I think everybody would feel better if its there so the endoscopist who put it in says we can leave it there as long as its patent.
by plastikos
Sun Sep 23, 2018 12:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 42
Views: 16095

Re: Switching back to Pembro

stu wrote:Brilliant news and dilemmas of that nature are welcome . I am sure you are giving the surgeon much to smile about .
It has been fantastic following your story and seeing how far you have come .
Take care,
Stu


Thanks Stu.
by plastikos
Sun Sep 23, 2018 12:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 42
Views: 16095

Re: Switching back to Pembro

You have come a long way plastikos. Immunotherapy a BIG DEAL...a real success story thus far & @ a young age. I hope you continue to update regarding dosing frequency (not clear on that) & decision re: stent. Sometimes I'm of the mind - If it ain't broke, don't fix it, however maybe you don...
by plastikos
Wed Sep 19, 2018 9:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 42
Views: 16095

Re: Switching back to Pembro

Just bumping this same thread as an update rather than create a new one. Been on Keytruda as monotherapy for 18 months now (with SIRT somewhere in the middle of it). PET-CT last Saturday still read as NED. Stretching intervals in between doses now a week at a time. GI and I wondering what to do with...
by plastikos
Wed Sep 19, 2018 9:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MRI shows 6 new liver Mets 2 weeks after clean CT scan? CEA normal.
Replies: 20
Views: 7033

Re: MRI shows 6 new liver Mets 2 weeks after clean CT scan? CEA normal.

Been following this. Hoping the results turn out to be favorable. By the way, have you been tested for MSI status?
by plastikos
Mon Aug 13, 2018 5:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Stage IV Diagnosis
Replies: 9
Views: 1228

Re: New Stage IV Diagnosis

Why is surgery not an option? Go to a major cancer center. Look for a team willing to do the surgery. Test her tumor for MSI status. If they can take everything out and if she is a candidate for immuno or even just aggressive chemo then I don’t see why “cure” is impossible.
by plastikos
Sun Aug 12, 2018 7:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage 4 long term survivors/cured ?
Replies: 23
Views: 6602

Re: Any Stage 4 long term survivors/cured ?

I believe there are a lot if cured survivors. Congrats. You are in a good place now. Have your tumor (if possible) tested for MSI.
by plastikos
Mon Aug 06, 2018 8:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 26
Views: 6954

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Amazing news. Hoping for your continued response to Keytruda.
by plastikos
Sat Jul 21, 2018 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need any suggestions
Replies: 13
Views: 916

Re: I need any suggestions

If it’s available where she lives I would tell her to look into SIRT to shrink here liver tumors.
by plastikos
Sat Jul 21, 2018 1:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon Cancer with mets to liver
Replies: 10
Views: 944

Re: Colon Cancer with mets to liver

No growth is better than progression (growth) but not as good as shrinkage. I think continuing chemo is the right step but only if the goal is to get to a point where surgery is an option. Ask your doctors if they plan to do surgery. Of course the decision on how aggressive you want to be will depen...

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