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by plastikos
Wed Feb 07, 2018 8:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 29
Views: 2530

Re: Keytruda? What else is new?

Another article on duration of immunotherapy after good response http://cancergrace.org/cancer-101/2016/09/14/io-duration/ Hi Henry. First of all congrats on your results on Opdivo. I have been on Keytruda for a year and I am doing well save for the toll it is taking financially. Where I live the d...
by plastikos
Wed Feb 07, 2018 7:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 years from diagnosis, 1 year on Keytruda
Replies: 13
Views: 485

Re: 3 years from diagnosis, 1 year on Keytruda

henry123 wrote:Congratulations on achieving NED.
Are you continuing with Keytruda for now?
Any discussion with your medical oncologist on that front.

Hi Henry. Yes as of now the plan is to continue with Keytruda up until 2 years though I might bargain with him if he’s ok with reducing the frequency.
by plastikos
Tue Feb 06, 2018 10:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 years from diagnosis, 1 year on Keytruda
Replies: 13
Views: 485

3 years from diagnosis, 1 year on Keytruda

I don’t post often but I just wanted to share my experience so far. I joined this forum late 2014. At that time I was just diagnosed with St IV colon cancer with liver mets. Since then I have had 2 recurrences, 2 major surgeries with postop complications, 30+ rounds of chemo, 2 biliary stenting proc...
by plastikos
Tue Feb 06, 2018 9:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 29
Views: 2530

Re: Keytruda? What else is new?

Another article on duration of immunotherapy after good response http://cancergrace.org/cancer-101/2016/09/14/io-duration/ Hi Henry. First of all congrats on your results on Opdivo. I have been on Keytruda for a year and I am doing well save for the toll it is taking financially. Where I live the d...
by plastikos
Tue Jan 16, 2018 9:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tribute to my dear friend Anne - aka BeansMama
Replies: 39
Views: 2718

Re: Tribute to my dear friend Anne - aka BeansMama

So sorry to hear this. I always followed her posts. Saying a prayer for her.
by plastikos
Thu Nov 16, 2017 3:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tom marsilje
Replies: 40
Views: 2759

Re: Tom marsilje

Rest in peace Tom. We never met but you made an impact in my life and I am sure in others lives as well. You will be remembered.
by plastikos
Mon Oct 30, 2017 9:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Solitary Lung Met - Looking for Positive Experiences
Replies: 19
Views: 1174

Re: Solitary Lung Met - Looking for Positive Experiences

I believe there are lots of stories here of good outcomes after treatment for solitary lung mets. That you are getting treatment for it is good. Hang in there.
by plastikos
Wed Oct 25, 2017 9:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update on DK (Dr. Tom Marsilje)...
Replies: 15
Views: 1692

Re: Update on DK (Dr. Tom Marsilje)...

I have been following Tom for some time now. He is an inspiration to us all. Praying for him.
by plastikos
Mon Oct 23, 2017 10:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here...At a Crossroad
Replies: 24
Views: 1828

Re: New here...At a Crossroad

Hi Janis. Sorry to hear about your situation. It may sound cliche but there is always hope. Other people with similar situations have reached NED status again. It is true that you may have to face the possiblity of having treatments indefinitely but even this is not a certainty. Just worry about the...
by plastikos
Tue Oct 17, 2017 11:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV long term survivors here?
Replies: 37
Views: 4932

Re: Any Stage IV long term survivors here?

Just thought I’d bump this thread up. Maybe some of us need to hear stories from time to time. I know I do. As for me, I am approaching my 3 year mark from diagnosis in late 2014. I have had some wonderful periods of being NED and hopefully will enter another one soon. Hopefully for good. A lot has ...
by plastikos
Tue Oct 17, 2017 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV Suvivor Celebrates Third Anniversary of Surgery
Replies: 17
Views: 2398

Re: Stage IV Suvivor Celebrates Third Anniversary of Surgery

First time to see this thread. First of all congrats on everything. As you can see from my sig we were basically in same boat (right sides lesion with liver mets). Bit since my surgery I have had 2 recurrences. I have never had Avastin (I wish I had the first time) but we decided on Erbitux since my...
by plastikos
Sat Oct 14, 2017 9:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets, Stage IV --- Need advice
Replies: 27
Views: 2557

Re: Peri mets, Stage IV --- Need advice

Hi. Sorry to hear about this. I know it’s jarring but don’t lose hope. You still have options. First get to a good cancer center like others have already mentioned. If you want to go aggressive explore HIPEC. You may also have your tumor tested for MSI status and try immunotherapy. Or even combine b...
by plastikos
Wed Oct 11, 2017 1:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MEDI4736 CLINICAL TRIAL (KEYTRUDA)
Replies: 41
Views: 6959

Re: MEDI4736 CLINICAL TRIAL (KEYTRUDA)

Had to stop Keytruda due to mouth sores and throat and mouth infection. Tumor grew and CEA up to 68. They are gonna change my therapy and let's see from there. Gotta gain bodyweight. Sorry to hear this Rob. Hope they find an alternative, maybe another PD-1 inhibitor. Have you ever considered SIRT f...
by plastikos
Mon Oct 09, 2017 3:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Right side pain --mets?
Replies: 13
Views: 1242

Re: Right side pain --mets?

No way to know for sure. Some mets cause pain (if they stretch the liver capsule) and some don’t. No harm in seeing a doctor or getting at least an ultrasound.

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