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by plastikos
Thu Jun 20, 2019 5:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nine Year Anniversary
Replies: 13
Views: 1131

Re: Nine Year Anniversary

Hello friends, I just saw my oncologist for the now annual exam and I’ve cleared the nine year mark since my Stage 4 dx. I wanted to send an optimistic message to all who are doubting the possibility for themselves. Exactly how or why I’m doing so well, I don’t know. I remain cautiously optimistic ...
by plastikos
Tue Jun 11, 2019 7:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Probiotics while on Immunotherapy. Good or bad?
Replies: 4
Views: 348

Probiotics while on Immunotherapy. Good or bad?

Hi all. Title explains it all. I have been seeing conflicting data (well not super hard evidence since they aren’t from trials). Any opinions on this? I used to take probiotic pills while on Keytruda but stopped them now. My response on Keytruda has been splendid. Now just loading up on “natural” pr...
by plastikos
Tue Jun 11, 2019 7:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant immunotherapy
Replies: 24
Views: 2641

Re: Adjuvant immunotherapy

I am MSI-H as well. Did FOLFOX + Erbitux as well as FOLFIRI as adjuvant chemo after surgeries. Had recurrences after both. After that I was put on Keytruda and I am about to hit my 2 year mark on the drug. I have been NED for almost the whole time on immunotherapy. I know it’s useless to think abou...
by plastikos
Tue Jun 11, 2019 7:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 72
Views: 30304

Re: Switching back to Pembro

Hi all. Been gone for a while. Chemo took it's toll. As an update I have finished 4 rounds of chemo after a single dose of Keytruda in early December. Latest PET-CT showed almost all tumors (liver, nodes) have shrunk and are metabolically inactive save for one node (peripancreatic) which still has ...
by plastikos
Mon Mar 11, 2019 2:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 34
Views: 3836

Re: Starting immunotherapy next week

Hello, could those who have been on keytruda or mono immunotherapies of the like please chime in with your experiences based on the following?: colon cancer was diagnosed about 4 years ago, surgery to remove the mass and total colectomy was performed followed by 6 months of folfox and was NED for l...
by plastikos
Tue Mar 05, 2019 9:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 34
Views: 3836

Re: Starting immunotherapy next week

Trevor, best of luck on your immuno. Hope it works as well for you as it has for me.
by plastikos
Mon Feb 11, 2019 10:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 72
Views: 30304

Re: Switching back to Pembro

Updating my own thread: On my 2nd to the last dose of Keytruda as standard dosing (200mg every 3-4 weeks). I saw my oncologist in Singapore (I have 2 for multiple opinions) and he suggested that I stop treatment completely at the 2 year mark since that’s what he does with his other patients in compl...
by plastikos
Mon Feb 11, 2019 9:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant immunotherapy
Replies: 24
Views: 2641

Re: Adjuvant immunotherapy

I am MSI-H as well. Did FOLFOX + Erbitux as well as FOLFIRI as adjuvant chemo after surgeries. Had recurrences after both. After that I was put on Keytruda and I am about to hit my 2 year mark on the drug. I have been NED for almost the whole time on immunotherapy. I know it’s useless to think about...
by plastikos
Tue Feb 05, 2019 8:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Multiple reoccurrence survival stories
Replies: 5
Views: 1018

Re: Multiple reoccurrence survival stories

I’ve had 2 since my initial diagnosis and surgery in 2014. I am NED now. Don’t lose hope.
by plastikos
Fri Feb 01, 2019 8:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda
Replies: 21
Views: 2748

Re: Keytruda

Yes. I had a good result on Keytruda. See my sig below.
by plastikos
Sun Jan 27, 2019 11:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What to do after immunotherapy works
Replies: 11
Views: 1403

Re: What to do after immunotherapy works

henry123 wrote:https://clinicaltrials.gov/ct2/show/NCT03631641

A clinical trial for maintenance/prevention dose of Nivolumab for Lynch Syndrome patients.
They are giving it for 2 years every 3 months.

This is interesting. Thanks. Does anyone know the science behind the 3 month interval dosing?
by plastikos
Tue Jan 15, 2019 11:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any comment on Hyperthermia treatment?
Replies: 9
Views: 1272

Re: Any comment on Hyperthermia treatment?

Hi. I read your post and I just thought I’d chime in. The bottomline is there is no real clinical evidence that hyperthermia works. I have explored that option as well as many other alternative treatments in the past and I can’t say they made any difference. I read your sig. You’re in a relatively e...
by plastikos
Tue Jan 15, 2019 6:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What to do after immunotherapy works
Replies: 11
Views: 1403

What to do after immunotherapy works

Hi. I decided to start a new thread since I needed some opinions and there doesn’t seem to be a specific thread for this topic. I am sure some others here may need or will be needing opinion on this as well. Brief backgrounder: I am about to hit my 2 year mark on Keytruda monotherapy and have been N...
by plastikos
Tue Jan 15, 2019 6:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 72
Views: 30304

Re: Switching back to Pembro

This is such great news for you! I am so happy to read this. It’s been along time since I’ve been on this site but I read occasionally. As with everyone with this diagnosis or a family member who has colon cancer, it’s been a very tough year. My mom did not respond well to chemo, in fact it almost ...

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