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by plastikos
Wed Sep 16, 2020 8:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 since May 2011- another clean scan 5 yr clean
Replies: 5
Views: 685

Re: Stage 4 since May 2011- another clean scan 5 yr clean

Inspiring. Big congrats to your mom. Thanks for sharing.
by plastikos
Tue Sep 15, 2020 11:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vit D and immunotherapy
Replies: 3
Views: 501

Vit D and immunotherapy

Question for everyone who’s on or has been on immunotherapy, specifically checkpoint inhibitors. Do you take Vit. D supplements or not? I used to all throughout treatment including chemo but stopped when some conflicting evidence (which I can’t find now) came out. Now I see new evidence linking it t...
by plastikos
Sun Sep 06, 2020 10:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Inflammatory lesions on PET
Replies: 2
Views: 411

Re: Inflammatory lesions on PET

I haven’t had this exact situation but I can understand your onc’s position. Uptake is borderline and it’s in an atypical location for a CRC met, and you did (what I’d consider) strenuous exercise the day prior heavily emphasising that side of your body (assuming you’re right-handed). So definitely...
by plastikos
Sun Sep 06, 2020 2:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Inflammatory lesions on PET
Replies: 2
Views: 411

Inflammatory lesions on PET

Hi everyone. Been a while since I logged on but like I always say “life gets in the way”. A good thing. But lately the pandemic gets in the way too. Not a good thing. Update: I just had my first PET-CT in 6 months after stopping Pembro infusions early this year. Although the last year my onc just ga...
by plastikos
Thu Apr 16, 2020 8:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has anyone had Y90 Radionembolization?
Replies: 3
Views: 763

Re: Has anyone had Y90 Radionembolization?

Hi. I had SIRT/Y90 in October 2017 while I was on my first year of immunotherapy (Keytruda) to take care of a lesion that although PET negative was noted to have contrast uptake on CT (meaning it still had a blood supply). By that time that was the only lesion left unresponsive and all others had di...
by plastikos
Sat Mar 21, 2020 2:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Unsure how to proceed
Replies: 1
Views: 810

Re: Unsure how to proceed

Personally I would follow your onc. Have you looked into immunotherapy? It may be an option, albeit out of protocol, as well.
by plastikos
Sat Mar 21, 2020 2:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear scans!
Replies: 20
Views: 2487

Re: Clear scans!

This is awesome news Rob. Congrats! Celebrate!
by plastikos
Fri Mar 20, 2020 11:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver lesions
Replies: 14
Views: 3399

Re: Liver lesions

Hi Karen. I’m not an expert but I don’t think they would do a biopsy in this case. A PET scan or PET-CT might be the next step.
by plastikos
Sun Mar 15, 2020 11:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 81
Views: 43911

Re: Switching back to Pembro

Finally after almost 3 years of immunotherapy and 2 years of clear CT and blood work , the onco team has decided to stop further infusions. It is still largely an uncharted territory but some data has emerged to suggest that it is time to remove the immunotherapy life jacket . Tighter monitoring re...
by plastikos
Sun Mar 15, 2020 8:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COVID19 and Immunotherapy
Replies: 2
Views: 793

COVID19 and Immunotherapy

Hi again. Have not checked in for a while. Happy to report that I am ok. Just some scans coming up. Little over 5 years from my Stage IV diagnosis and coming up on 3 years NED. Not sure if this has been discussed. But do you think being on or having been on any form of immunotherapy (i.e. checkpoint...
by plastikos
Wed Jan 01, 2020 7:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adventures in Immunotherapy - Hopeful beginnings
Replies: 10
Views: 2405

Re: Adventures in Immunotherapy - Hopeful beginnings

Hello from Maine! Just wanted to let you all know that I started Yervoy and Opdivo (Ipi – Nivo) combo immunotherapy for another recurrence in my liver. To recap, I’ve had a colon resection and two liver resections in the past 18 months, with the hopes of getting to NED. However, the cancer keeps po...
by plastikos
Sun Dec 22, 2019 7:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adventures in Immunotherapy - Hopeful beginnings
Replies: 10
Views: 2405

Re: Adventures in Immunotherapy - Hopeful beginnings

Hello from Maine! Just wanted to let you all know that I started Yervoy and Opdivo (Ipi – Nivo) combo immunotherapy for another recurrence in my liver. To recap, I’ve had a colon resection and two liver resections in the past 18 months, with the hopes of getting to NED. However, the cancer keeps po...
by plastikos
Thu Jun 20, 2019 5:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nine Year Anniversary
Replies: 13
Views: 2210

Re: Nine Year Anniversary

Hello friends, I just saw my oncologist for the now annual exam and I’ve cleared the nine year mark since my Stage 4 dx. I wanted to send an optimistic message to all who are doubting the possibility for themselves. Exactly how or why I’m doing so well, I don’t know. I remain cautiously optimistic ...
by plastikos
Tue Jun 11, 2019 7:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Probiotics while on Immunotherapy. Good or bad?
Replies: 4
Views: 821

Probiotics while on Immunotherapy. Good or bad?

Hi all. Title explains it all. I have been seeing conflicting data (well not super hard evidence since they aren’t from trials). Any opinions on this? I used to take probiotic pills while on Keytruda but stopped them now. My response on Keytruda has been splendid. Now just loading up on “natural” pr...

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