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by plastikos
Sun Sep 23, 2018 12:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 35
Views: 5388

Re: Switching back to Pembro

stu wrote:Brilliant news and dilemmas of that nature are welcome . I am sure you are giving the surgeon much to smile about .
It has been fantastic following your story and seeing how far you have come .
Take care,
Stu


Thanks Stu.
by plastikos
Sun Sep 23, 2018 12:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 35
Views: 5388

Re: Switching back to Pembro

You have come a long way plastikos. Immunotherapy a BIG DEAL...a real success story thus far & @ a young age. I hope you continue to update regarding dosing frequency (not clear on that) & decision re: stent. Sometimes I'm of the mind - If it ain't broke, don't fix it, however maybe you don...
by plastikos
Wed Sep 19, 2018 9:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 35
Views: 5388

Re: Switching back to Pembro

Just bumping this same thread as an update rather than create a new one. Been on Keytruda as monotherapy for 18 months now (with SIRT somewhere in the middle of it). PET-CT last Saturday still read as NED. Stretching intervals in between doses now a week at a time. GI and I wondering what to do with...
by plastikos
Wed Sep 19, 2018 9:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MRI shows 6 new liver Mets 2 weeks after clean CT scan? CEA normal.
Replies: 18
Views: 1684

Re: MRI shows 6 new liver Mets 2 weeks after clean CT scan? CEA normal.

Been following this. Hoping the results turn out to be favorable. By the way, have you been tested for MSI status?
by plastikos
Mon Aug 13, 2018 5:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Stage IV Diagnosis
Replies: 9
Views: 1024

Re: New Stage IV Diagnosis

Why is surgery not an option? Go to a major cancer center. Look for a team willing to do the surgery. Test her tumor for MSI status. If they can take everything out and if she is a candidate for immuno or even just aggressive chemo then I don’t see why “cure” is impossible.
by plastikos
Sun Aug 12, 2018 7:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage 4 long term survivors/cured ?
Replies: 23
Views: 2842

Re: Any Stage 4 long term survivors/cured ?

I believe there are a lot if cured survivors. Congrats. You are in a good place now. Have your tumor (if possible) tested for MSI.
by plastikos
Mon Aug 06, 2018 8:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 17
Views: 1923

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Amazing news. Hoping for your continued response to Keytruda.
by plastikos
Sat Jul 21, 2018 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need any suggestions
Replies: 13
Views: 786

Re: I need any suggestions

If it’s available where she lives I would tell her to look into SIRT to shrink here liver tumors.
by plastikos
Sat Jul 21, 2018 1:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon Cancer with mets to liver
Replies: 10
Views: 785

Re: Colon Cancer with mets to liver

No growth is better than progression (growth) but not as good as shrinkage. I think continuing chemo is the right step but only if the goal is to get to a point where surgery is an option. Ask your doctors if they plan to do surgery. Of course the decision on how aggressive you want to be will depen...
by plastikos
Mon Jun 11, 2018 8:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recommendations for stage 4/liver mets
Replies: 6
Views: 698

Re: Recommendations for stage 4/liver mets

Hi. Try to get into a major cancer center like MSK or MDA. Try looking into SIRT (Y90), immunothsrapy or even just a new chemo regimen. Lots of options. Good luck.
by plastikos
Wed Jun 06, 2018 10:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 47
Views: 8422

Re: Keytruda? What else is new?

henry123 wrote:Hello
Have been declared NED with clear CT and normal CEA Levels of 1.5 .
To continue with Opdivo for now.
May stop after 6 months or a year.
Oncologist doesn't want to risk a relapse and taking conservative approach.
Will update in detail later.

Amazing! Big congrats.
by plastikos
Tue May 29, 2018 12:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 35
Views: 5388

Re: Switching back to Pembro

Even my oncologist has asked me to be off any supplements. I only take aspirin on his advice and occasional curcumin tablets. These immunotherapy drugs are so new that doctors don't have data on drug interactions. If I understood the paper on Vit D and pdl1, it may be harmful at high doses. Please ...
by plastikos
Thu May 24, 2018 4:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 35
Views: 5388

Re: Switching back to Pembro

plasricos wrote: I have been taking Vit D3 supplements since diagnosis in 2014. Even my onc was on board with it. But I kept on getting recurrences. Now I read that Vit D3 actually affects the immune response negatively by reducing inflammation. Your words make me worried. My DH is also taking Vit ...
by plastikos
Wed May 23, 2018 8:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 35
Views: 5388

Re: Switching back to Pembro

Hi guys, Those of you who are on pembro or Opdivo, have you considered adding aspirin to your daily regime. Please discuss with your med oncologist. It seems at least opdivo gives a better bite for the buck in combination with aspirin. http://www.bioworld.com/content/nonsteroidal-anti-inflammatory-...

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