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by plastikos
Mon Jun 11, 2018 8:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recommendations for stage 4/liver mets
Replies: 6
Views: 365

Re: Recommendations for stage 4/liver mets

Hi. Try to get into a major cancer center like MSK or MDA. Try looking into SIRT (Y90), immunothsrapy or even just a new chemo regimen. Lots of options. Good luck.
by plastikos
Wed Jun 06, 2018 10:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 41
Views: 5156

Re: Keytruda? What else is new?

henry123 wrote:Hello
Have been declared NED with clear CT and normal CEA Levels of 1.5 .
To continue with Opdivo for now.
May stop after 6 months or a year.
Oncologist doesn't want to risk a relapse and taking conservative approach.
Will update in detail later.

Amazing! Big congrats.
by plastikos
Tue May 29, 2018 12:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 29
Views: 4390

Re: Switching back to Pembro

Even my oncologist has asked me to be off any supplements. I only take aspirin on his advice and occasional curcumin tablets. These immunotherapy drugs are so new that doctors don't have data on drug interactions. If I understood the paper on Vit D and pdl1, it may be harmful at high doses. Please ...
by plastikos
Thu May 24, 2018 4:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 29
Views: 4390

Re: Switching back to Pembro

plasricos wrote: I have been taking Vit D3 supplements since diagnosis in 2014. Even my onc was on board with it. But I kept on getting recurrences. Now I read that Vit D3 actually affects the immune response negatively by reducing inflammation. Your words make me worried. My DH is also taking Vit ...
by plastikos
Wed May 23, 2018 8:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 29
Views: 4390

Re: Switching back to Pembro

Hi guys, Those of you who are on pembro or Opdivo, have you considered adding aspirin to your daily regime. Please discuss with your med oncologist. It seems at least opdivo gives a better bite for the buck in combination with aspirin. http://www.bioworld.com/content/nonsteroidal-anti-inflammatory-...
by plastikos
Thu May 03, 2018 8:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 29
Views: 4390

Re: Switching back to Pembro

Hi. Things are good overall I think. Recent developments. Had a PET scan last week which showed a small area of FDG uptake with no corresponding lesion on CT. They ordered an MRI with liver specific contrast which is supposedly the most sensitive/specific imaging for liver mets and it showed nothin...
by plastikos
Thu May 03, 2018 8:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 29
Views: 4390

Re: Switching back to Pembro

Hi. Things are good overall I think. Recent developments. Had a PET scan last week which showed a small area of FDG uptake with no corresponding lesion on CT. They ordered an MRI with liver specific contrast which is supposedly the most sensitive/specific imaging for liver mets and it showed nothin...
by plastikos
Tue Apr 24, 2018 2:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Loco-Regional Hyperthermia
Replies: 4
Views: 630

Re: Loco-Regional Hyperthermia

I’d say there’s no evidence to either support or debunk the practice. But my take on all these non-conventional therapies is as long as it doesnt hurt you or interfere with conventional therapy (the assumption is you are getting evidence-based treatment) then it’s ok. Anecdotally, at one point I pur...
by plastikos
Mon Apr 23, 2018 11:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 29
Views: 4390

Re: Switching back to Pembro

Plastikos you might like this thread form Big Rob here http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=55586 He started it with that mention of that trial but ended up with pembro /Keytruda. Wonderfullymade , I do know you already have read that thread. Thanks Maia. Sorry between wo...
by plastikos
Mon Apr 09, 2018 9:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lentin/Biobran/MGN3
Replies: 5
Views: 636

Re: Lentin/Biobran/MGN3

Just looking for non-toxic supplements that may boost immune function to (in theory) act synergistically with immunotherapy. Open to suggestions.
by plastikos
Mon Apr 09, 2018 12:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lentin/Biobran/MGN3
Replies: 5
Views: 636

Re: Lentin/Biobran/MGN3

O Stoma Mia wrote:Try searching the Forum for:

LENTINAN

or

SHIITAKE

I’ll do that. Thanks.
by plastikos
Mon Apr 09, 2018 12:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lentin/Biobran/MGN3
Replies: 5
Views: 636

Lentin/Biobran/MGN3

Hi all. I have used the search function of the forum and have not come up with any results. Has anyone by any chance had any experience with these supplements which supposedly boost one’s immune system specifically NK cell function? As far as I can tell they all seem to be one and the same. Thanks.
by plastikos
Fri Feb 23, 2018 12:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon resection now abcessed
Replies: 3
Views: 562

Re: Colon resection now abcessed

Sorry to hear this. Had a somewhat similar experience with an abscess after liver resection. Treatment is to drain and give antibiotics. If it’s any consolation some people say the stimulation of one’s immune system caused by the infection can “theoretically” improve one’s odds of cure. Hope it goes...

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