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by plastikos
Sat Mar 21, 2020 2:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Unsure how to proceed
Replies: 1
Views: 335

Re: Unsure how to proceed

Personally I would follow your onc. Have you looked into immunotherapy? It may be an option, albeit out of protocol, as well.
by plastikos
Sat Mar 21, 2020 2:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear scans!
Replies: 20
Views: 1076

Re: Clear scans!

This is awesome news Rob. Congrats! Celebrate!
by plastikos
Fri Mar 20, 2020 11:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver lesions
Replies: 2
Views: 392

Re: Liver lesions

Hi Karen. I’m not an expert but I don’t think they would do a biopsy in this case. A PET scan or PET-CT might be the next step.
by plastikos
Sun Mar 15, 2020 11:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 80
Views: 39471

Re: Switching back to Pembro

Finally after almost 3 years of immunotherapy and 2 years of clear CT and blood work , the onco team has decided to stop further infusions. It is still largely an uncharted territory but some data has emerged to suggest that it is time to remove the immunotherapy life jacket . Tighter monitoring re...
by plastikos
Sun Mar 15, 2020 8:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COVID19 and Immunotherapy
Replies: 2
Views: 417

COVID19 and Immunotherapy

Hi again. Have not checked in for a while. Happy to report that I am ok. Just some scans coming up. Little over 5 years from my Stage IV diagnosis and coming up on 3 years NED. Not sure if this has been discussed. But do you think being on or having been on any form of immunotherapy (i.e. checkpoint...
by plastikos
Wed Jan 01, 2020 7:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adventures in Immunotherapy - Hopeful beginnings
Replies: 10
Views: 2095

Re: Adventures in Immunotherapy - Hopeful beginnings

Hello from Maine! Just wanted to let you all know that I started Yervoy and Opdivo (Ipi – Nivo) combo immunotherapy for another recurrence in my liver. To recap, I’ve had a colon resection and two liver resections in the past 18 months, with the hopes of getting to NED. However, the cancer keeps po...
by plastikos
Sun Dec 22, 2019 7:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adventures in Immunotherapy - Hopeful beginnings
Replies: 10
Views: 2095

Re: Adventures in Immunotherapy - Hopeful beginnings

Hello from Maine! Just wanted to let you all know that I started Yervoy and Opdivo (Ipi – Nivo) combo immunotherapy for another recurrence in my liver. To recap, I’ve had a colon resection and two liver resections in the past 18 months, with the hopes of getting to NED. However, the cancer keeps po...
by plastikos
Thu Jun 20, 2019 5:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nine Year Anniversary
Replies: 13
Views: 2048

Re: Nine Year Anniversary

Hello friends, I just saw my oncologist for the now annual exam and I’ve cleared the nine year mark since my Stage 4 dx. I wanted to send an optimistic message to all who are doubting the possibility for themselves. Exactly how or why I’m doing so well, I don’t know. I remain cautiously optimistic ...
by plastikos
Tue Jun 11, 2019 7:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Probiotics while on Immunotherapy. Good or bad?
Replies: 4
Views: 723

Probiotics while on Immunotherapy. Good or bad?

Hi all. Title explains it all. I have been seeing conflicting data (well not super hard evidence since they aren’t from trials). Any opinions on this? I used to take probiotic pills while on Keytruda but stopped them now. My response on Keytruda has been splendid. Now just loading up on “natural” pr...
by plastikos
Tue Jun 11, 2019 7:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant immunotherapy
Replies: 24
Views: 3770

Re: Adjuvant immunotherapy

I am MSI-H as well. Did FOLFOX + Erbitux as well as FOLFIRI as adjuvant chemo after surgeries. Had recurrences after both. After that I was put on Keytruda and I am about to hit my 2 year mark on the drug. I have been NED for almost the whole time on immunotherapy. I know it’s useless to think abou...
by plastikos
Tue Jun 11, 2019 7:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 80
Views: 39471

Re: Switching back to Pembro

Hi all. Been gone for a while. Chemo took it's toll. As an update I have finished 4 rounds of chemo after a single dose of Keytruda in early December. Latest PET-CT showed almost all tumors (liver, nodes) have shrunk and are metabolically inactive save for one node (peripancreatic) which still has ...
by plastikos
Mon Mar 11, 2019 2:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 34
Views: 6083

Re: Starting immunotherapy next week

Hello, could those who have been on keytruda or mono immunotherapies of the like please chime in with your experiences based on the following?: colon cancer was diagnosed about 4 years ago, surgery to remove the mass and total colectomy was performed followed by 6 months of folfox and was NED for l...
by plastikos
Tue Mar 05, 2019 9:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 34
Views: 6083

Re: Starting immunotherapy next week

Trevor, best of luck on your immuno. Hope it works as well for you as it has for me.
by plastikos
Mon Feb 11, 2019 10:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 80
Views: 39471

Re: Switching back to Pembro

Updating my own thread: On my 2nd to the last dose of Keytruda as standard dosing (200mg every 3-4 weeks). I saw my oncologist in Singapore (I have 2 for multiple opinions) and he suggested that I stop treatment completely at the 2 year mark since that’s what he does with his other patients in compl...

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