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by teri3
Sun Jun 03, 2018 9:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV...NED....AGAIN
Replies: 10
Views: 768

Re: Stage IV...NED....AGAIN

Wow what wonderful news! Prayers for a long term NED.

Teri
by teri3
Wed May 09, 2018 9:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Teri's TIL trial at NCI
Replies: 10
Views: 496

Re: Teri's TIL trial at NCI

I've felt pretty good today post surgery. I hit a bit of a hick up last night I had to wear a monitor because of sleep apnea and my bloodox kept going below 85. But they put me on oxygen and I've been good but a little tired today. Apheresis Friday. Anyone else have apheresis? They say I can go home...
by teri3
Wed May 09, 2018 9:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Teri's TIL trial at NCI
Replies: 10
Views: 496

Re: Teri's TIL trial at NCI

Mhf1986 I'll wave back :). Thanks everyone for the encouragement. It helps.
Teri
by teri3
Tue May 08, 2018 6:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Teri's TIL trial at NCI
Replies: 10
Views: 496

Teri's TIL trial at NCI

Hey gang! I had VATS today at NCI to harvest TIL cells. The surgery went very well. They took my chest tube out at 3:30 :) I've been up and walking around feeling pretty good .....as the nurse said its probably the drugs LOL. Friday I scheduled for apheresis, I'll let you know how that goes. Now sta...
by teri3
Wed May 02, 2018 9:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 591
Views: 103926

Re: TIL Immunotherapy at NCI

Thanks guys. I'm pretty excited to become part of something like this.
Teri
by teri3
Wed May 02, 2018 7:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 591
Views: 103926

Re: TIL Immunotherapy at NCI

Going this Sunday May 6th to be admitted for my TIL harvest surgery, apheresis is scheduled for Friday 11. Then the wait begins! I'll update as I know more.
Teri
by teri3
Fri Apr 27, 2018 10:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL trial at NIH going for initial testing
Replies: 8
Views: 1196

Re: TIL trial at NIH going for initial testing

Thank you sdino. I'm waiting for my call Monday, I'm pretty excited and nervous. I believe things went well but you never know. I liked the nurse I'm assigned, Lori and my fellow Dr. Shindorf both very nice and helpful. My attending will be Dr.Goff.
Teri
by teri3
Sat Apr 21, 2018 11:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL trial at NIH going for initial testing
Replies: 8
Views: 1196

Re: TIL trial at NIH going for initial testing

Thank you Betsy for your insight into the facility. That sounds like as minimally stress less as possible. So far anyone I've talked to seem beyond nice and helpful.
Nhmike thanks for the encouragement.
Teri
by teri3
Sat Apr 21, 2018 12:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL trial at NIH going for initial testing
Replies: 8
Views: 1196

TIL trial at NIH going for initial testing

I'm to be at NIH 6 am Monday for my initial testing for the TIL trial. Who else has gone and can you give me some idea what to expect? I know the first day is all scans and pulmonary testing, then meeting with team Tuesday and Wednesday met thoracic surgeon. I'm pretty excited.
Thanks
Teri
by teri3
Tue Mar 13, 2018 2:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment options
Replies: 16
Views: 2382

Re: Treatment options

Hi! No i am not currently NED. I have had 8 mets show up on my last 2 scans. I just got a new oncologist the beginning of Feb. and she already has referred me to NCI for 2 trials. The first one 10-C-0166 - Immunotherapy Using Tumor Infiltrating Lymphocytes for Patients With Metastatic Cancer....I am...
by teri3
Thu Mar 08, 2018 5:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trial at NCI any one hear of results?
Replies: 2
Views: 421

Trial at NCI any one hear of results?

Administering Peripheral Blood Lymphocytes Transduced With a Murine T-Cell Receptor Recognizing the G12V Variant of Mutated RAS in HLA-A*1101 Patients. I've been contacted about this trial and the TIL trial and am trying to make an informed decision between the two. I know about the Til trial and th...
by teri3
Fri Oct 20, 2017 7:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am now five years cancer free after my lung recurrence
Replies: 13
Views: 1361

Re: I am now five years cancer free after my lung recurrence

Congrats! Five years cancer free is major. I also had lung recurrence after being 3c, I had my mets removed in April via VATS. I hope to join you in another 4 years :).
Teri
by teri3
Wed Oct 18, 2017 11:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV long term survivors here?
Replies: 38
Views: 5817

Re: Any Stage IV long term survivors here?

I'm coming up on my 3 year anniversary and I'm still rockin! I went through 11 rounds FOLFOX and 11 rounds FOLFIRI then decided I was done fooling around and went for VATS surgery to the mets in my lungs. I had the first one removed from my left lung April 10th and April 24th the one removed from my...
by teri3
Wed Oct 18, 2017 11:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GOOD NEWS ON BEANSMAMA
Replies: 122
Views: 14465

Re: GOOD NEWS ON BEANSMAMA

I've been off of here for a while and this is GREAT news to come back to!! Cuss on Beansmama! Sending prayers, good vibes and hugs! and if you need some new cuss words I might be able to help out LOL
Teri

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