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by MsOgden
Mon Dec 19, 2016 10:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: During treatment, how often do you see your oncologist?
Replies: 13
Views: 3185

Re: During treatment, how often do you see your oncologist?

Thanks for your comments. After talking to the breast cancer patient, I thought this may be an expense I could cut. It looks like I'm just going to need to find a way to make some extra money.
by MsOgden
Sun Dec 18, 2016 9:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 year cancerversary TODAY!
Replies: 38
Views: 7847

Re: 5 year cancerversary TODAY!

Congratulations on your NED status and the addition to your family! This is awesome news. Thank you for sharing and offering hope to others.
by MsOgden
Sun Dec 18, 2016 9:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: During treatment, how often do you see your oncologist?
Replies: 13
Views: 3185

Re: During treatment, how often do you see your oncologist?

teri3 wrote:I go to chemo every other week one time I see my oncologist and the next I see his physicians assistant. But I talk to one or the other every time I go.
Teri


Thanks. This is good to know.
by MsOgden
Sun Dec 18, 2016 9:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: During treatment, how often do you see your oncologist?
Replies: 13
Views: 3185

Re: During treatment, how often do you see your oncologist?

I thought with trials the patient pays nothing out of pocket? With this trial, I am financially responsible for everything that is considered a normal part of treatment, and the sponsor doesn't offer travel reimbursements. The sponsor covers the drug and any tests that are considered beyond standar...
by MsOgden
Sun Dec 18, 2016 1:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: During treatment, how often do you see your oncologist?
Replies: 13
Views: 3185

During treatment, how often do you see your oncologist?

I am currently participating in a clinical trial and have been seeing the oncologist every two weeks. Appointments with the trial oncologist are pretty expensive compared to my local oncologist, who I still see on occasion. I was talking to someone who is in treatment for breast cancer, and she told...
by MsOgden
Thu Dec 15, 2016 1:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage I to NED to Stage IV in less than a year
Replies: 49
Views: 10477

Re: Stage I to NED to Stage IV in less than a year

ktwmn wrote:THx for the update, MsOgden! Are you on the Checkmate 142 trial?


Yes. That's the trial I'm in.
by MsOgden
Thu Dec 15, 2016 1:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage I to NED to Stage IV in less than a year
Replies: 49
Views: 10477

Re: Stage I to NED to Stage IV in less than a year

Hi. It's been a while so I just thought I'd give y'all an update. I've been receiving nivolumab treatments as part of a clinical trial for almost a year now. The trial oncologist says I've had a "tremendous" response. I was originally told the trial would last a year but am preparing to en...
by MsOgden
Fri Apr 01, 2016 11:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy clinical trial
Replies: 2
Views: 1277

Re: Immunotherapy clinical trial

Hi, Leslie. I'm currently in an immunotherapy trial for nivolumab. It's also known as Opdivo. I started the trial in January and had my second scan Monday. It showed I no longer have any signs of metastatic disease. My side effects haven't been bad at all. I've had some fatigue, but I'm not sure if ...
by MsOgden
Sat Mar 05, 2016 12:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy thread!!!
Replies: 1
Views: 1084

Re: Immunotherapy thread!!!

I thought it would be interesting to start a thread for those of us who have used or are currently using different immunotherapies. If you want to join in the conversation, please post with what drug you are on, how long you've been on it, ms status, results so far....etc. I'm hoping this thread wi...
by MsOgden
Sat Mar 05, 2016 12:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nivolumab and Nivolumab Plus Ipilimumab trial
Replies: 10
Views: 2840

Re: Nivolumab and Nivolumab Plus Ipilimumab trial

I started this trial Jan. 5 and had my first scan last month. The scan showed I'm responding to the treatment and have shrinkage in most of the areas of concern. There have been no horrible side effects. I even had a burst of energy after my first treatment. I have been battling some fatigue and itc...
by MsOgden
Sat Feb 13, 2016 6:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm starting Keytruda
Replies: 19
Views: 4017

Re: I'm starting Keytruda

Is Keytruda a standard treatment option for colon cancer patients? Before I got into a clinical trial, I thought FOLFOX, FOLFIRI, IROX or the trial were my only treatment options.

I hope you have an awesome response to the treatment!
by MsOgden
Sun Jan 24, 2016 1:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Metastatic Rectal, NED again in Jan. 2016!
Replies: 19
Views: 3880

Re: Stage 4 Metastatic Rectal, NED again in Jan. 2016!

Thanks for sharing this great news! I really needed to read this today.
by MsOgden
Sun Jan 03, 2016 7:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage I to NED to Stage IV in less than a year
Replies: 49
Views: 10477

Re: Stage I to NED to Stage IV in less than a year

I don't have a lot to offer, butt did want to wish you good luck. When I was in treatment (FOLFOX), I always ate prior to infusion. I feel it kept nausea at bay. Drinks lot of water, maybe bring an IPod or IPad for passing the time. (((HUGS))) Lee Thanks, Lee. Thanks for the tip about eating before...
by MsOgden
Sun Jan 03, 2016 4:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage I to NED to Stage IV in less than a year
Replies: 49
Views: 10477

Re: Stage I to NED to Stage IV in less than a year

I got into a clinical trial and have my first treatment Tuesday. I'll be getting nivolumab infusions once every other week. If anyone has any tips on preparing for treatment or things to take with me, I'd really appreciate you sharing them.
by MsOgden
Mon Dec 21, 2015 9:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nivolumab and Nivolumab Plus Ipilimumab trial
Replies: 10
Views: 2840

Re: Nivolumab and Nivolumab Plus Ipilimumab trial

Thanks, DK! If all goes well, I'll start the trial Jan. 5. I'll be sure to share my experiences while on the trial.

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