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by Suze
Sat Jan 12, 2013 8:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone who has had your port more than 3 years...
Replies: 21
Views: 3027

Re: Anyone who has had your port more than 3 years...

I've had mine 5 years, almost to the day. No problems. Susan
by Suze
Tue Nov 06, 2012 10:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New and scared from Oregon
Replies: 16
Views: 2909

Re: New and scared from Oregon

Hey fellow Oregonian! I'm sorry you had to find your way here, but it is a good place to find info and friends. I have found a good support group here in Portland. It is at my Kaiser location, but all are welcome, for free. There is a "sticky" at the top of the forum about where to find su...
by Suze
Tue Oct 30, 2012 12:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news, or, it could be worse
Replies: 13
Views: 1946

Good news, or, it could be worse

Last April my scans showed that chemo was no longer working for me. Since then I have had no chemo, and have felt great, but worried. When rego was approved by the FDA, I called and got an appt. with my onc. I had a ct scan and blood work right before so we would know what is my current condition. I...
by Suze
Fri Oct 19, 2012 11:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib experiences
Replies: 85
Views: 13529

Re: Regorafenib experiences

A research doctor that I talked to said that 50% of the patients on rego after 8 weeks showed progression and had to discontinue, and 50% showed stable or better. She said that they had no idea why some benefited and others didn't. Has any one else heard this? I see my onc next Friday and if all loo...
by Suze
Mon Oct 08, 2012 9:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Zaltrap - anyone on it?
Replies: 4
Views: 1084

Re: Zaltrap - anyone on it?

I noticed that Kathryn in on Zaltrap and irinotecan only, and KarMel is on folfiri and zaltrap. I am curious about that. It seems like eliminating the 5Fu would make it easier to tolerate, but is it as effective? I am assuming that both of you have failed on 5Fu and irinotecan, but still get it now ...
by Suze
Sun Oct 07, 2012 7:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib experiences
Replies: 85
Views: 13529

Re: Regorafenib experiences

KarMel, I think you are the first one here who is on folfiri and zaltrap. Since that seems to come next after rego, I would like to hear more about what that is like. Is it easier to deal with than rego? If so, does it make more sense to go with folfiri and zaltrap, and then rego? Hope your are doin...
by Suze
Sat Oct 06, 2012 10:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What the heck is happening here?
Replies: 32
Views: 3609

Re: What the heck is happening here?

Lori, I couldn't agree with you more, esp, the part about not beinging able to spell! (and I have made some boners myself!) Maybe it has to do with phases of the moon, but every once in a while, otherwise sensible people go nuts. It is either entertaining (hand me the popcorn) or upsetting, dependin...
by Suze
Sun Sep 23, 2012 10:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Picking treatment center
Replies: 13
Views: 1556

Re: Picking treatment center

I agree with that you should get a third opinion. If you decide on chemo you should be able to get that locally, and not have to travel to Sloan Kettering. Best wishes, Susan
by Suze
Sun Sep 16, 2012 11:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon and liver resection at the same time?
Replies: 6
Views: 1222

Re: Colon and liver resection at the same time?

I had a port inserted, a part of my liver resected, one liver met RFA'ed, and part of my colon resected all in one surgery. The first 48 hours after surgery were awful, but after that I had a quick recovery. It was done laparoscopicly, and that makes for an easier recovery. I wanted it all at once, ...
by Suze
Thu Aug 09, 2012 4:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any stage IV considered delaying chemo?
Replies: 20
Views: 2307

Re: Any stage IV considered delaying chemo?

For me, as long as there was a chance of a cure, I was willing to go all out, chemo, surgery, SBRT, etc. Once I knew I was incurable, it became a matter of quality versus quanity. I ran out of chemo options in April, and Kaiser had no suitable trials for me. I had a long talk with a trial oncologist...
by Suze
Wed Aug 01, 2012 11:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Late stages of this Disease
Replies: 8
Views: 1859

Re: Late stages of this Disease

Sone of our members have shared with us their final months. Not easy reading, but if you really want to know do a search on our forum on justsing, starbuck, and terry. justsing and starbuck's partners posted under their names towards the end. Terry's daughter posted under her own user name 3sweeties...
by Suze
Tue Jul 17, 2012 6:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clinical Trials - good or bad?
Replies: 1
Views: 686

Re: Clinical Trials - good or bad?

This is a tough one. I was unresectable at dx, so I had six months on a trial with Folfox, Erbitux and Avastin. At that point I became a candidate for surgery with curative intent, followed by six more months of Folfox and Avastin. Didn't lead to a cure, but that is another story. Since your situati...
by Suze
Thu Jun 28, 2012 5:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib week #2
Replies: 21
Views: 2172

Re: Regorafenib week #2

I, too, really appreciate your updates on Regorafenib. I am hoping (if that is the right word) to go on it later this summer, so I am following your progress with keen interest. We are all hoping you get good results with this one. Susan
by Suze
Sat Jun 09, 2012 6:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Antioxidants And Chemotherapy
Replies: 14
Views: 2573

Re: Antioxidants And Chemotherapy

I read the article, and it said what my onc. says. It is good to eat a healthy diet with lots of fruits and veggies, but talk to your doctor or oncology pharmatist before taking supplements. You can't eat too much broccoli, but it is very easy to mega-dose with pills, and there is a risk that too mu...
by Suze
Fri Jun 01, 2012 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV Living with Cancer 3 or more years
Replies: 32
Views: 4153

Re: Stage IV Living with Cancer 3 or more years

Dx'ed May 2007. My history is in my signature. I was doing pretty well until April 2011 when the scan showed 30 to 40 lung mets. After a year of chemo I am out of chemo options. I am currently off chemo and feel good, no symptoms of cancer. I am looking at trials, or, my first choice, regorafenib. T...

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