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by Jacques
Sat Jun 24, 2017 1:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET Scan Results - More Cancer???
Replies: 14
Views: 998

Re: PET Scan Results - More Cancer???

Husband and I met with his oncologist yesterday. She spoke with his surgeon and gastroenterologist and they all agree that he needs another colonoscopy asap to get definitive answers about whether or not there is additional adenocarcinoma in the colon. Since we have appointments for 2nd and 3rd opi...
by Jacques
Fri Jun 23, 2017 4:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just got post-surgery results and they aren't good
Replies: 25
Views: 1955

Re: Just got post-surgery results and they aren't good

I just did some follow up research at asco.org, trying to find a citation for the information the oncologist gave us yesterday. (She claimed that the data was provided at a recent ASCO conference.) I have found nothing that supports her claims. Per my husband's request, I called her office and left...
by Jacques
Fri Jun 23, 2017 1:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What to expect?
Replies: 5
Views: 316

Re: What to expect?

Welcome to the Forum, and I'm sorry you have to be here. There are lots of questions you could ask your doctor, and there are threads here that cover those topics. I'll just mention one question right now that you can ask: You can ask where, exactly, is the lesion is located. This is usually express...
by Jacques
Wed Jun 21, 2017 1:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Entering into a clinical trial
Replies: 4
Views: 449

Re: Entering into a clinical trial

All in all, we are looking at a first treatment date of June 28th. I will get an hour infusion on day 1, day, 8, and a break on day 15. The cyle then starts over. I will have screening tests on June 21st with an EKG and. CT scan. They will be repeating a CT before cycle 4 starts. ! Good luck on you...
by Jacques
Tue Jun 20, 2017 11:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET Scan Results - More Cancer???
Replies: 14
Views: 998

Re: PET Scan Results - More Cancer???

Before your meeting on Thursday you may want to read a few of the articles on "brown fat" and PET scan mis-interpretation, e.g. :

http://pubs.rsna.org/doi/full/10.1148/radiol.12100683
by Jacques
Tue Jun 20, 2017 11:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A sore bottom- diaper rash med recommendation?
Replies: 10
Views: 306

Re: A sore bottom- diaper rash med recommendation?

Preventing butt pain http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=48881&p=371885#p371885 PS: You should update your Signature so that it shows your Stage and your TNM code: https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52681&p=421597#p421597
by Jacques
Tue Jun 20, 2017 11:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Qeustions
Replies: 5
Views: 176

Re: Reversal Questions

... Can anyone let me know how the procedures are? ... Leak Test http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=53593&p=426107#p426107 Reversal and takedown info http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=53157&p=420069#p420069 Low residue diet info: ht...
by Jacques
Mon Jun 19, 2017 12:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET Scan Results - More Cancer???
Replies: 14
Views: 998

Re: PET Scan Results - More Cancer???

We just received husband's PET scan results from the hospital portal. The report states that "there is a hypermetabolic focus within the proximal transverse colon. This is worrisome for an additional colon carcinoma." The surgeon had stated that he had scoped the entire colon when he was ...
by Jacques
Sun Jun 18, 2017 1:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dana Farber versus Mass General
Replies: 8
Views: 467

Re: Dana Farber versus Mass General

...Does anyone have any opinions about Dana Farber and/or Mass General? My only opinion on Mass General pertains to the time when I wanted to get a second opinion on a PET/CT scan that I had had, so I sent my PET/CT CD-ROM via FedEx to Mass General Imaging Department for a 2nd opinion. I was very s...
by Jacques
Wed Jun 14, 2017 11:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1 year follow up after LAR
Replies: 1
Views: 211

Re: 1 year follow up after LAR

I noticed that you have a signature, but you haven't mentioned your stage.

Would you be able to update your signature so that we can see your stage?

Thank you.

http://coloncancersupport.colonclub.com/ucp.php?i=ucp_profile&mode=signature
by Jacques
Tue Jun 13, 2017 11:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Today is my last day of Chemo!
Replies: 24
Views: 656

Re: Today is my last day of Chemo!

Since you have been under the care of MD Anderson, I would imagine that you would be setting up your five-year surveillance program when you meet with the Survivorship Care Team. I think that it would probably be better to set up a comprehensive followup program.rather than a program that just looks...
by Jacques
Mon Jun 12, 2017 11:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Today is my last day of Chemo!
Replies: 24
Views: 656

Re: Today is my last day of Chemo!

...What is he missing? Is there anything I should additionally request? I have excellent coverage and it pays for everything. Beckster I'm not an expert on this, but off-hand I would say that what's missing are the tests for systemic inflammation, since they can serve as early warning that a metast...
by Jacques
Mon Jun 12, 2017 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to site . . . VRE infection after LAR
Replies: 2
Views: 184

Re: New to site . . . VRE infection after LAR

Hello. My husband had surgery 3 weeks ago to remove a tumor from his sigmoid. There was some spreading to nearby lymph nodes, and 1 regional lymph node. Surgeon is very confident that he got everything out. After 16 days in the hospital, he finally came home for a week, but is back in the hospital ...
by Jacques
Mon Jun 12, 2017 9:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Today is my last day of Chemo!
Replies: 24
Views: 656

Re: Today is my last day of Chemo!

... Thanks for the info....No, he did not say anything about the Survivorship Care Team. All I know right now is that he said CT every 6 months for 2-3 years and bloodwork every 3 months. Maybe he is waiting for my appt the end of June. I have a CT and bloodwork scheduled next week. If he doesn't s...
by Jacques
Mon Jun 12, 2017 12:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Today is my last day of Chemo!
Replies: 24
Views: 656

Re: Today is my last day of Chemo!

.Long Term Effects of Chemotherapy on Your Body http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=54613&p='432997#p432997 Post Treatment Questions to Ask http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=55492&p=440268#p440191 Note: The MD Anderson (New Jersey) we...

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