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by Jacques
Fri Aug 16, 2019 10:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intro, and please give your feedback
Replies: 62
Views: 2989

Re: Intro, and please give your feedback

Can I ask you guys about CEA? How much weight does it carry? With mine being 22 last month and 11 now, I'm very confused because I've seen some signatures on this forum with CEAs in the triple digits. The fact that mine is low... I know that's a good thing, but what is the relevance? Since your CEA...
by Jacques
Fri Aug 16, 2019 2:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intro, and please give your feedback
Replies: 62
Views: 2989

Re: Intro, and please give your feedback

... I am having a scan in about a week from now... By now you should have had your scan. What were the results of your scan? Also, when is your next review by Care Oncology scheduled? Have you contacted them about your side-effects, and do they plan to make any changes to your COC protocol prescrip...
by Jacques
Thu Aug 15, 2019 10:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diarrhea and bloating and gas, oh my!
Replies: 51
Views: 1300

Re: Diarrhea and bloating and gas, oh my!

...They're prescribing me metformin, doxycycline, mebendazole, and atorvastatin... TinaFish - Are you still taking the four-drug cocktail that was prescribed for you earlier? If so, you should check on how all of these drugs interact with your current CAPEOX + Avastin regimen. I think this was sugg...
by Jacques
Thu Aug 15, 2019 12:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Normal Aches And Pains 19 days After Open Surgery?
Replies: 3
Views: 291

Re: Normal Aches And Pains 19 days After Open Surgery?

Since you had open surgery, there is a good chance that you have at least a few adhesions. Adhesions are scar tissues that cause parts of the intestine to adhere to each other and cause kinks that sometimes lead to a condition called Small Bowel Obstruction (SBO). You can read more about adhesions h...
by Jacques
Thu Aug 15, 2019 4:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How crucial is the HAI pump?
Replies: 38
Views: 1303

Re: How crucial is the HAI pump?

... Do you know what the suggested protocol after 6 rounds of oxaliplatin is for people who DON'T get the HAI pump? Just curious I think that the suggested next available protocols for you would be found in the NCCN Rectal Cancer Guidelines, in Section REC-E-2, which is found on page 35 of the PDF ...
by Jacques
Thu Aug 15, 2019 12:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ***News Stories Thread*** ONGOING 2019
Replies: 71
Views: 19617

ERAS: Enhanced Recovery after Surgery

ERAS: Enhanced Recovery after Surgery https://amp.greenvilleonline.com/amp/1879185001 ERAS includes ● More education for patients about what they're going to experience ● Better control of chronic medical conditions like diabetes prior to surgery ● Reducing anxiety ● Ways to control pain other than...
by Jacques
Wed Aug 14, 2019 10:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting Capox tomorrow
Replies: 6
Views: 157

Re: Starting Capox tomorrow

... Here's my diary starting with where I started CapeOx: http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=58447&start=480 NHMike - FYI, your CapeOx sessions started around 11 o'clock on December 20, 2017. Your first post after the start of your first CapeOx infusion was this one...
by Jacques
Wed Aug 14, 2019 5:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diarrhea and bloating and gas, oh my!
Replies: 51
Views: 1300

Re: Diarrhea and bloating and gas, oh my!

... drink a lot of water, and wait. ... You should be drinking a lot of fluid ... If you are losing a lot of fluid by diarrhea, then it is very, very important to drink a lot of fluids in order to maintain proper electrolyte balance. You may even need to supplement drinking water with oral rehydrat...
by Jacques
Wed Aug 14, 2019 5:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intro, and please give your feedback
Replies: 62
Views: 2989

Re: Intro, and please give your feedback

TinaFish, since this is still in the feedback thread... You have expressed a lot of completely understandable anxiety and confusion here. It seems to me that your confusion, which is based on lack of basic information, is exacerbating your anxiety. In addition, you have said you want to push for mo...
by Jacques
Wed Aug 14, 2019 1:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Take me away to that special place - Picture Thread
Replies: 108
Views: 7241

Re: Take me away to that special place - Picture Thread

... It seems Tiny Pic isn't working and my old pictures and Stu's have disappeared from the thread. :x FYI - There are a number of tinypic-hosted photos still displayed on this thread. Apparently, these photos will not be there forever. If there are any of these photos that you really want to save,...
by Jacques
Wed Aug 07, 2019 3:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diarrhea and bloating and gas, oh my!
Replies: 51
Views: 1300

Re: Diarrhea and bloating and gas, oh my!

(... love Emend and Ativan !)... Rob - I noticed that you mentioned Ativan above. I just wanted to say that Ativan is a benzodiazepine and should be taken with caution, only for short periods of time. See the links in the following post: https://coloncancersupport.colonclub.com/viewtopic.php?f=1&am...
by Jacques
Tue Aug 06, 2019 11:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diarrhea and bloating and gas, oh my!
Replies: 51
Views: 1300

Re: Diarrhea and bloating and gas, oh my!

...So the obvious question, everyone, is how long does a person need to be off of chemo before the side effects stop? I have no idea. I have been off chemo now for over 6 years, and I still have to watch what I eat very closely. I have a long list of "forbidden" foods that I don't eat any...
by Jacques
Tue Aug 06, 2019 11:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intro, and please give your feedback
Replies: 62
Views: 2989

Re: Intro, and please give your feedback

..."Ok, I'll talk to her on Wednesday when I go in for chemo." ... Hi Tina - Good luck on your talk with the oncologist. You could use this as an opportunity ask her for help in filling out the missing data items for your signature. Here is a preliminary draft of your signature: F 45, DX:...
by Jacques
Tue Aug 06, 2019 10:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Curematch.com - opinions, please
Replies: 18
Views: 1024

Re: Curematch.com - opinions, please

The genomic stuff is quite complicated. Here is a page which lists Colorectal Cencer tumor mutations and there are well in excess of 100 of them: http://targetedcancercare.massgeneral.org/My-Trial-Guide/Genes/KRAS/G12D-(c-35G-A).aspx The page describes what the mutation is and what it does but the ...

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