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by Steph20021
Sun Apr 01, 2018 1:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3b with ovarian met recurrence and healthy now
Replies: 9
Views: 1358

Re: Stage 3b with ovarian met recurrence and healthy now

You're not alone! After a colon resection and six months Folfox, I thought I was done. At three-month checkup my CEA was up and I had mets on ovary and liver. More chemo, big operation, and waited another couple months. Another CEA jump and it was in both lungs. I've been stable for a while with lo...
by Steph20021
Sun Apr 01, 2018 1:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erythema ab igne
Replies: 9
Views: 1169

Re: Erythema ab igne

Steph: I am on Palliative Care and have been on narcotics for 2-3 years. Before considering a pain pump, I would think your Palliative Care team would offer you a long-acting narcotic such as the Fentanyl duragesic skin patch. It comes in several dosages, the medication absorbed through the skin (b...
by Steph20021
Fri Mar 30, 2018 8:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erythema ab igne
Replies: 9
Views: 1169

Re: Erythema ab igne

Steph: Your post is a valuable sharing of information for others to learn from. Erythema ab igne is not a common/routine finding and can escape diagnosis by physicians because it is not on their radar screen. I saw 3-4 cases of erythema ab igne during my years as a clinical physical therapist. Prol...
by Steph20021
Fri Mar 30, 2018 7:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erythema ab igne
Replies: 9
Views: 1169

Re: Erythema ab igne

I use a heating pad pretty often for abdominal. I knew you could get a burn, but I didn't know about the skin problems. I do make sure I have something like my PJ's between the heating pad and my skin. I hope yours clears up quickly. Sally 8) Hi sally, that’s good. I too always had sometching betwe...
by Steph20021
Fri Mar 30, 2018 7:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erythema ab igne
Replies: 9
Views: 1169

Re: Erythema ab igne

Hi Steph, for years I wondered about a condition I had been experiencing. Most of the time the palms of my hands are red. I have asked a lot of doctors but none were able , or willing to enlighten me. In recent times my nephrologist has come to believe that I am suffering from auto-immune hepatitis...
by Steph20021
Sat Mar 24, 2018 9:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Julie Yip Williams passed away last Monday, Mar 19th, 2018
Replies: 18
Views: 3907

Re: Julie Yip Williams passed away last Monday, Mar 19th, 2018

Very sad. I found similarities with her: both young, both diagnosed in our 30s, both lawyers.
She was a beautifully talented writer and I’ll miss reading her wisdom. Sending love and comfort to her husband and young girls. I’m greatful for all the awareness and money she raised to fight this disease.
by Steph20021
Fri Mar 23, 2018 8:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erythema ab igne
Replies: 9
Views: 1169

Erythema ab igne

For those who have chronic pain don’t make the mistake of prolonged overuse of the heat pad as you can get a skin condition called Erythema ab Igne which if severe enough doesn’t go away. It looks like mottled colored skin. I think I have this-I have to call on Monday to get it seen. Just a warning ...
by Steph20021
Mon Jan 01, 2018 11:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Number of lymph nodes removed excessive?
Replies: 10
Views: 1237

Re: Number of lymph nodes removed excessive?

I had just over 100 lymph nodes removed in my first surgery when I lost my entire colon and right ovary. Only six were cancerous. Silly me I figured that I had pretty good odds of being cured given how many were not cancerous. I was happy at the time that my surgeon took and tested as many as he did.
by Steph20021
Mon Jan 01, 2018 11:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sooo O/T - son got engaged today & Happy New Years!
Replies: 11
Views: 914

Re: Sooo O/T - son got engaged today & Happy New Years!

Congratulations on your son’s engagement, and your upcoming milestone anniversary. It sounds like 2018 has many blessings in store for you already!
by Steph20021
Sat Dec 30, 2017 4:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sad news about one of our 2017 Featured Survivors
Replies: 5
Views: 1184

Re: Sad news about one of our 2017 Featured Survivors

This is incredibly sad. My condolences to all who loved him. May you treasure your memories with Chris.
by Steph20021
Tue Dec 12, 2017 1:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSS and Nivolumab (Opdivo)
Replies: 9
Views: 1175

Re: MSS and Nivolumab (Opdivo)

Thanks Leon. Yes I used to follow Tom’s blog. It’s very sad he is no longer with us. I know Henry to be MSI but I am following his journey with opdivo and will continue to do so!!! Also following KElizabeth who is MSS and just had a combination trial fail her unfortunately. Hi Steph, Tom Marsilje, n...
by Steph20021
Tue Dec 12, 2017 1:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSS and Nivolumab (Opdivo)
Replies: 9
Views: 1175

Re: MSS and Nivolumab (Opdivo)

No I haven’t but I’m in Canada and not sure that my province would cover that? But I am meeting with my first hipec surgeon on Jan 8 for him to reconsider his position of no second hipec that he made after my hipec recurrence with lymph nodes. Hi Steph, Have you ever consulted with Dr. Sugarbaker? I...
by Steph20021
Mon Dec 11, 2017 9:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nephrostomy tube
Replies: 1
Views: 337

Nephrostomy tube

I got my nephrostomy tube today so another bag to empty along with my ileostomy.
It’s still quite painful and feels like I put my back out. I’ll have home care coming to change the bandage and teach me about it but I hope the tube is temporary and this back pain short lived.
by Steph20021
Sat Dec 09, 2017 6:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets
Replies: 7
Views: 1048

Re: Peri mets

Sounds like you need to get an opinion on having HIPEC. I would do that with the hope of getting to NED before chemo. Hi everybody - just found out I have several tiny peritoneal mets (SRC), so they didnt do my planned resection. Am scared out of my mind. Any advice on best treatment options/centers...

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