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by Steph20021
Mon Sep 24, 2018 8:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New hope for BRAF mutation?
Replies: 7
Views: 1208

Re: New hope for BRAF mutation?

I’ve never heard of getting the fraction before. I thought we either had the mutation or we didn’t. I’ll have to ask about this and do some research. They haven’t asked me for a liquid biopsy to do the trial I’m going through the prep for, just whether I have the mutation or not. I’m curious to know...
by Steph20021
Tue Sep 18, 2018 8:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any body knows of Clinical trials for BRAF 600?
Replies: 4
Views: 459

Re: Any body knows of Clinical trials for BRAF 600?

Thanks Mike. I will for sure check in often and keep you all posted.
by Steph20021
Tue Sep 18, 2018 6:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any body knows of Clinical trials for BRAF 600?
Replies: 4
Views: 459

Re: Any body knows of Clinical trials for BRAF 600?

My wife had 8 rounds of FOLFOX + ERBUTAX and 4 rounds of FOLFIRI + ERBUTAX but the recent scans showed new tumors in the peritoneum. Oncologist wants her to stop Conventional Chemo and start with clinical trials. We live in DFW area. Does any one know of promising clinical trials for BRAF mutation ...
by Steph20021
Tue Sep 18, 2018 5:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 186
Views: 39738

Re: any peeps with BRAF mutation on here?

I just learned I probably still have the brafv600e mutation and I’ll be starting the beacon trial soon in Toronto once my mutation is confirmed from my 2015 surgery sample. Not sure which arm I’ll get into since it’s random assignment. Apparently the mutation is rare, only 5-10% of people have it so...
by Steph20021
Wed Sep 05, 2018 8:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Phase 2 vs Phase 3 trials
Replies: 4
Views: 431

Re: Phase 2 vs Phase 3 trials

Thank you. I just re-read them. There’s two phase 3 trials in Toronto and participants are told whether they are getting the controlled standard treatment or the experimental one. That’s what I was hoping and expecting. What’s the difference between a phase 2 and a phase 3 trial? Also, is there a ch...
by Steph20021
Wed Sep 05, 2018 7:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Phase 2 vs Phase 3 trials
Replies: 4
Views: 431

Re: Phase 2 vs Phase 3 trials

I just found this explanation of each phase which is pretty helpful!

http://www.cancer.ca/en/cancer-informat ... ?region=on
by Steph20021
Tue Sep 04, 2018 10:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Phase 2 vs Phase 3 trials
Replies: 4
Views: 431

Phase 2 vs Phase 3 trials

What’s the difference between a phase 2 and a phase 3 trial? Also, is there a chance you get a placebo in either one?

Thanks for the help in advance.
by Steph20021
Sat Sep 01, 2018 2:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Short Term (5 Days) Radiation - Side Effects?
Replies: 21
Views: 4771

Re: Short Term (5 Days) Radiation - Side Effects?

I got my scan results on Thursday and the tumour in my left abdominal wall that is growing into muscle has gown from 3.9cm to 4.5 cm which is a lot by my standards. The infected lymph nodes and the rumours in my pelvis/bottom of my small intestine where it meets my rectum all thy other stuff is stab...
by Steph20021
Thu Aug 30, 2018 7:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Homemade salad dressing recipes
Replies: 13
Views: 712

Re: Homemade salad dressing recipes

Omg I love tacos haha, mmm... Thanks stewsbetty, I’ll add this one to the list! Powdered ranch is harder for me to find for some reason, i know I’ve seen it at Costco but who needs that much ranch powder!? I guess maybe in the grocery store it’s kept with the dry packets of gravies and hollandaise s...
by Steph20021
Wed Aug 29, 2018 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Short Term (5 Days) Radiation - Side Effects?
Replies: 21
Views: 4771

Re: Short Term (5 Days) Radiation - Side Effects?

Well the radiation doctor said we could hope for a bit of shrinkage, and I may have gotten minimal shrinkage but mostly we were hoping it to help with the pain that I was having which was increasing at the time in that area. So for pain management is really what we were after and anything else would...
by Steph20021
Wed Aug 29, 2018 5:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 20
Views: 5641

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Thanks Dionca, I don’t know why foundation one quoted me more- unless cost has gone up or she quoted me for a different test. Either way I can’t afford it. So my plan is that I will start with getting a test done through a trial at PMH. I’ll speak with my oncologist tomorrow about it. Hoping I can g...
by Steph20021
Wed Aug 29, 2018 1:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Homemade salad dressing recipes
Replies: 13
Views: 712

Re: Homemade salad dressing recipes

Kudos to you, I have such difficulty meal planning. I’ll do it for one week and then I get side tracked or off schedule and don’t do it the next week, or my wife will grab groceries before I get my meal planning done and it throws everything off schedule! I love beets and goat cheese but dislike aru...
by Steph20021
Wed Aug 29, 2018 1:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Homemade salad dressing recipes
Replies: 13
Views: 712

Re: Homemade salad dressing recipes

CR, Oops chemo brain! Correction made abive! I saw your name funny enough but don’t recall reading your actual suggestion. I must have fallen asleep on the sofa! No, not because you were boring me! Now I am going to go back and actually read yours. And unless it has anchovies in it I’ll be trying it...
by Steph20021
Wed Aug 29, 2018 12:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 20
Views: 5641

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Heard back already from Foundation One. “ The price for our FoundationOne® test is $6193.60 CAD for patients of Canadian ordering physicians.“ However, it looks like there’s a trial still recruiting right now, and one location is at Princess Margaret Hospital in Toronto, it’s one of the OCTANE test ...
by Steph20021
Mon Aug 27, 2018 10:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Short Term (5 Days) Radiation - Side Effects?
Replies: 21
Views: 4771

Re: Short Term (5 Days) Radiation - Side Effects?

Hi rwightman, My first 5 rounds of radiation were for my abdominal wall and it didn’t get rid of it, it was mostly to try and help with pain as it’s growing into my muscle. The more recent 5 rounds we’re to pelvis to deal with some small spots where my small intestine meets my rectum. Also to try an...

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