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by hawkowl
Wed Aug 08, 2018 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectum cancer
Replies: 13
Views: 975

Re: Newly diagnosed rectum cancer

Those first few days are so hard...I had so much anxiety and couldn't ever imagine feeling normal again. But it does get easier as soon as you have a plan in place (and a care team that you trust). It is definitely worth seeking additional opinions if you have any doubts or concerns. Hang in there!
by hawkowl
Mon Jul 30, 2018 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Local Area Recurrence - chemo before or after surgery
Replies: 3
Views: 255

Re: Local Area Recurrence - chemo before or after surgery

I elected to have chemo first (FOLFOX for 8 cycles) prior to having surgery when I was diagnosed in 2014. My goal was not to avoid or minimize surgery (I knew I would eject to have an APR no matter what), but rather to address the rogue cells/micrometastses ASAP. At this point I have been stable off...
by hawkowl
Mon Jul 23, 2018 3:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking Out a Little
Replies: 11
Views: 522

Re: Freaking Out a Little

My oncologist didn't check mine when I was on chemo because he said it often fluctuates a lot during treatment
by hawkowl
Mon Jul 23, 2018 2:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PERMANENT COLOSTOMY/VS RESTRUCTURE
Replies: 9
Views: 336

Re: PERMANENT COLOSTOMY/VS RESTRUCTURE

I also had a very low lesion and opted for a permanent colostomy. It really doesn't slow me down at all, and I am able to travel and enjoy life. I didn't want to risk being tied to a bathroom with LARS or having to limit my diet. I use a convatec natura flange and wear a NuHope belt and can easily g...
by hawkowl
Mon Jul 09, 2018 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Salami
Replies: 33
Views: 1361

Re: Salami

My parents were born in Austria; my wife is German, so there is a lot of salami and other traditionally unhealthy foods eaten by my family. I, on the other hand, always strove to be healthy...a largely plant based organic diet, avoided processed meat, lots of exercise, never overweight, minimal alco...
by hawkowl
Wed Jul 04, 2018 11:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Modifications to prevent/lessen chance of recurrence
Replies: 33
Views: 1384

Re: Modifications to prevent/lessen chance of recurrence

I had a healthy diet and lifestyle before diagnosis...active, mostly plant based, never overweight...but I have taken a few steps to hopefully improve my chances if long term survival: Exercise (I try for 18,000 steps a day plus biking) Curcumin 2g daily with black pepper Celebrex 400mg every am Asp...
by hawkowl
Fri Jun 29, 2018 9:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence, Surgery, and Post-Surgery CEA
Replies: 9
Views: 593

Re: Recurrence, Surgery, and Post-Surgery CEA

But how would I best be able to identify the best oncologist in my Kaisers in my area.. there are like 3 major Kaisers within 30 minutes. Do you have a primary care physician you know and trust? They will definitely have some insights about who the best local oncologist might be. And I found that t...
by hawkowl
Fri Jun 29, 2018 9:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone have experience with this???
Replies: 4
Views: 473

Re: Anyone have experience with this???

My cousin is still NED more than 4 years after her HIPEC surgery. So definitely don't give up hope!
by hawkowl
Fri Jun 29, 2018 11:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence, Surgery, and Post-Surgery CEA
Replies: 9
Views: 593

Re: Recurrence, Surgery, and Post-Surgery CEA

CEA does tend to bounce around a lot right after surgery, and may well still be in the process of dropping. Hopefully next month's value will reflect that and will be lower yet. There are certainly other chemo options (other than FOLFOX) and it is never a bad idea to consider a second opinion even i...
by hawkowl
Fri Jun 22, 2018 9:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Passing of a true hero
Replies: 2
Views: 703

Re: Passing of a true hero

Definitely a hero in every sense of the word
by hawkowl
Thu Jun 21, 2018 8:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo before or after surgery?
Replies: 18
Views: 814

Re: Chemo before or after surgery?

I actually lost all of my scalp hair and much of my facial and body hair from FOLFOX..came as a shock to me! It really fell out after the third cycle
by hawkowl
Wed Jun 20, 2018 11:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed with rectal cancer and terrified
Replies: 16
Views: 1273

Re: Just diagnosed with rectal cancer and terrified

Thank you all for your wonderful words of support! After talking with my doctors and getting scans out of the way, I am feeling calmer. I do have a question though: I had a pet scan that came back clear (except for my tumor), no spread to other organs. Is it still possible I could be staged at a fo...
by hawkowl
Tue Jun 19, 2018 1:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is the day that chemo treatment ...
Replies: 17
Views: 795

Re: Is the day that cheno treatment ...

My worst day was the day after disconnect, although the extreme fatigue started the evening after disconnect and persisted for about 36 hours before gradually improving.
by hawkowl
Mon Jun 18, 2018 12:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Better news, Neuropathy & questions
Replies: 31
Views: 1664

Re: Better news, Neuropathy & questions

My neuropathy continued to progress after treatment and now that I am more than three years out I assume it is permanent. But I also remain NED more than three years out, so at this point I have no regrets. It is (for me) definitely the lesser of two evils. I think my situation is not really the nor...
by hawkowl
Mon Jun 18, 2018 12:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A cautionary tale
Replies: 15
Views: 1400

Re: A cautionary tale

Such a sad story. I was a physician before my diagnosis and unfortunately saw this over and over again...although the stakes are a lot higher when you are dealing with cancer

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