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by hawkowl
Sun Oct 21, 2018 1:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Isolation
Replies: 12
Views: 403

Re: Isolation

I have had a permanent colostomy for 3 years (my choice, as I didn’t want to do watch and wait or deal with LARS). There is definitely an adjustment period, but I really don’t think about it much anymore. I still travel (all over the world, including remote places in Africa, South America, and India...
by hawkowl
Sat Oct 20, 2018 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Confused Stage2 or Stage3
Replies: 15
Views: 379

Re: Confused Stage2 or Stage3

I had biopsy proven lymph node Mets before surgery, but after neoadjuvant folfox and chemoradiation plus targeted radiation to iliac nodes all were negative. Safest approach is to treat as if it were stage 3 based on pre op ct scan. But if the nodes responded well to pre op chemoradiation that is an...
by hawkowl
Thu Oct 18, 2018 12:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stay local or travel for Surgeon?
Replies: 17
Views: 751

Re: Stay local or travel for Surgeon?

Just to play devil’s advocate...Not every excellent/skilled/capable surgeon chooses to practice at a major teaching hospital (many choose to live and work in smaller communities for the same reasons the rest of us do)...but then again not every board-certified colorectal surgeon is equally capable. ...
by hawkowl
Wed Oct 03, 2018 9:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with peri mets who survived?
Replies: 12
Views: 1204

Re: Anyone with peri mets who survived?

My cousin (lives overseas) had peri Mets. She had HIPEC in 2013 and remains NED
by hawkowl
Mon Sep 17, 2018 9:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nik Colon - ritz75
Replies: 15
Views: 5147

Re: Nik Colon - ritz75

We were diagnosed at about the same time and lived in the same state. She also reached out to me and was very supportive and encouraged me to be more active in advocacy. I hate this disease :-(
by hawkowl
Sat Sep 08, 2018 4:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE 3 rectal cancer treatment without surgery
Replies: 25
Views: 4477

Re: STAGE 3 rectal cancer treatment without surgery

I was offered watch and wait because I had a complete response to neoadjuvant FOLFOX followed by chemoradiation...but I chickened out because I wanted to minimize any chance of recurrence. I also opted out of sphincter sparing surgery because my tumor was so distal. I enjoy an excellent quality of l...
by hawkowl
Wed Aug 08, 2018 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectum cancer
Replies: 34
Views: 9760

Re: Newly diagnosed rectum cancer

Those first few days are so hard...I had so much anxiety and couldn't ever imagine feeling normal again. But it does get easier as soon as you have a plan in place (and a care team that you trust). It is definitely worth seeking additional opinions if you have any doubts or concerns. Hang in there!
by hawkowl
Mon Jul 30, 2018 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Local Area Recurrence - chemo before or after surgery
Replies: 3
Views: 408

Re: Local Area Recurrence - chemo before or after surgery

I elected to have chemo first (FOLFOX for 8 cycles) prior to having surgery when I was diagnosed in 2014. My goal was not to avoid or minimize surgery (I knew I would eject to have an APR no matter what), but rather to address the rogue cells/micrometastses ASAP. At this point I have been stable off...
by hawkowl
Mon Jul 23, 2018 3:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking Out a Little
Replies: 11
Views: 717

Re: Freaking Out a Little

My oncologist didn't check mine when I was on chemo because he said it often fluctuates a lot during treatment
by hawkowl
Mon Jul 23, 2018 2:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PERMANENT COLOSTOMY/VS RESTRUCTURE
Replies: 9
Views: 496

Re: PERMANENT COLOSTOMY/VS RESTRUCTURE

I also had a very low lesion and opted for a permanent colostomy. It really doesn't slow me down at all, and I am able to travel and enjoy life. I didn't want to risk being tied to a bathroom with LARS or having to limit my diet. I use a convatec natura flange and wear a NuHope belt and can easily g...
by hawkowl
Mon Jul 09, 2018 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Salami
Replies: 33
Views: 5445

Re: Salami

My parents were born in Austria; my wife is German, so there is a lot of salami and other traditionally unhealthy foods eaten by my family. I, on the other hand, always strove to be healthy...a largely plant based organic diet, avoided processed meat, lots of exercise, never overweight, minimal alco...
by hawkowl
Wed Jul 04, 2018 11:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Modifications to prevent/lessen chance of recurrence
Replies: 33
Views: 5515

Re: Modifications to prevent/lessen chance of recurrence

I had a healthy diet and lifestyle before diagnosis...active, mostly plant based, never overweight...but I have taken a few steps to hopefully improve my chances if long term survival: Exercise (I try for 18,000 steps a day plus biking) Curcumin 2g daily with black pepper Celebrex 400mg every am Asp...
by hawkowl
Fri Jun 29, 2018 9:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence, Surgery, and Post-Surgery CEA
Replies: 9
Views: 784

Re: Recurrence, Surgery, and Post-Surgery CEA

But how would I best be able to identify the best oncologist in my Kaisers in my area.. there are like 3 major Kaisers within 30 minutes. Do you have a primary care physician you know and trust? They will definitely have some insights about who the best local oncologist might be. And I found that t...
by hawkowl
Fri Jun 29, 2018 9:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone have experience with this???
Replies: 4
Views: 602

Re: Anyone have experience with this???

My cousin is still NED more than 4 years after her HIPEC surgery. So definitely don't give up hope!
by hawkowl
Fri Jun 29, 2018 11:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence, Surgery, and Post-Surgery CEA
Replies: 9
Views: 784

Re: Recurrence, Surgery, and Post-Surgery CEA

CEA does tend to bounce around a lot right after surgery, and may well still be in the process of dropping. Hopefully next month's value will reflect that and will be lower yet. There are certainly other chemo options (other than FOLFOX) and it is never a bad idea to consider a second opinion even i...

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