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by hawkowl
Mon Oct 05, 2020 3:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Strange question for the group
Replies: 7
Views: 1998

Re: Strange question for the group

I bought my wife a big red Yukon Denali lol. I’m sure she would have been fine with nothing but I wanted to totally knock her socks off with a gift I knew she would love
by hawkowl
Mon Jul 27, 2020 2:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT and Celebrex - What happened?
Replies: 28
Views: 7987

Re: ADAPT and Celebrex - What happened?

Seems like Celecoxib increases heart risk, but I guess for most of us this is an acceptable risk. JC I have been on Celebrex 400 daily for more than five years. Initially with xeloda for maintenance and then just Celebrex. I have had a good oncological outcome (Stanley Scans for five years off chem...
by hawkowl
Mon Jul 27, 2020 2:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 515
Views: 202184

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

there have been many long term survivors who elected to have ostomies in order to STAY alive with a quality of life, to see them through to the next stage of their Journey. Many of us have had temporary -ostomies to get us through what we needed to get through. Please don't reject or give up on any...
by hawkowl
Fri Jun 19, 2020 4:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: W&W or Surgery Dilemma
Replies: 3
Views: 1367

Re: W&W or Surgery Dilemma

Totally depends on one’s risk tolerance and personality. I was offered w/w, but for me, it would have been more stressful. I opted for APR, have a permanent ostomy that is really no big deal and doesn’t limit or alter my life in any significant way, and 5 years later I am very happy with my decision...
by hawkowl
Fri Jun 19, 2020 3:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 6 month scans clear
Replies: 21
Views: 3105

Re: 6 month scans clear

Great news Rob! I am not on this forum much, but came back to update my own status, and I’m happy to see a familiar name. This week’s scan (in spite of the detour to the emergency room) was a big one for me. I am now 5 years out from completion of chemo and have had 5 years of stable scans. It has b...
by hawkowl
Sat Nov 23, 2019 1:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Airline experiences?
Replies: 10
Views: 1093

Re: Airline experiences?

Delta has always treated me very well.
by hawkowl
Sat Nov 23, 2019 1:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: “Near” Complete Clinical Response and what to do next
Replies: 10
Views: 1569

Re: “Near” Complete Clinical Response and what to do next

I would definitely want definitive answers. Can they rebiopsy one of the bumps? I opted against watch and wait even though I had a complete clinical response (and it turns out a complete path one also). Permanent colostomy and no regrets. I would much rather ovrrtreat than under treat
by hawkowl
Sun Nov 10, 2019 7:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The 10 most obese states in the U.S.
Replies: 13
Views: 1104

Re: The 10 most obese states in the U.S.

Who knows, maybe it IS ... something in the water ???? Just sayin' Cheers all CRguy I have actually seriously wondered if it actually is something in the water. I was living in a rural part of Minnesota when I was diagnosed, and had zero risk factors (thin, athletic, plant-based diet). And two of m...
by hawkowl
Thu Oct 03, 2019 1:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Do you have experience with CareOncology.com?
Replies: 7
Views: 1326

Re: Do you have experience with CareOncology.com?

If you are interested in hearing from a big number of people using the COC protocol and other repurposed drugs, I suggest joining the Facebook group “repurposed drugs for cancer”. I have been in this group for a few years and have learned a lot. The discussions Are generally based on science and not...
by hawkowl
Sun Aug 11, 2019 10:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about wound under ostomy adhesive
Replies: 8
Views: 993

Re: Question about wound under ostomy adhesive

I have a lot of experience with wounds near my ostomy as I suffer from pyoderma gangrenosum. I have had the best luck bu compressing with dilute white vinegar and then applying a piece of a hydrofera blue ostomy ring over any open areas. I then apply a brava pad (cut to fit around my stoma and cover...
by hawkowl
Fri Jul 05, 2019 3:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bucket List
Replies: 45
Views: 7091

Re: Bucket List

Beautiful car! My bucket list priority was travel, and although I cancel more trips than I take these days I still get a kick out of planning them. Enjoy your ride!!
by hawkowl
Thu May 16, 2019 4:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: APR surgery for low rectal tumor
Replies: 16
Views: 2578

Re: APR surgery for low rectal tumor

I had an ultra low rectal tumor and a complete response to neoadjuvant chemo followed by chemo radiation. I was offered watch and wait but because I had suck extensve lymph node involvement including distant nodes I was more comfortable with surgery. LAR surgery would have almost certainly led to ba...
by hawkowl
Thu Nov 22, 2018 11:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No chemoradiation before surgery
Replies: 12
Views: 1852

Re: No chemoradiation before surgery

It is a balancing act. Neoadjuvant treatment can result in downstaging and an improved prognosis for any stage disease, but the benefit for very early stage patients is minimal. Radiation toxicity can be an issue (it is for me), but resurrect cancer would be a much worse outcome. When in doubt, get ...
by hawkowl
Thu Nov 22, 2018 11:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sad news
Replies: 17
Views: 3508

Re: Sad news

I’m so very sorry for your loss
by hawkowl
Fri Oct 26, 2018 2:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Internal Iliac Node involvement??
Replies: 18
Views: 3555

Re: Internal Iliac Node involvement??

Just saw your post... My oncologist preferred not to commit to stage 3 or 4 (I had several enlarged iliac nodes), and instead preferred to stage me as T3N2MX (I also had some presacral changes that were not biopsied) As you know, i underwent 8 cycles of FOLFOX followed by 28 days of chemoradiation p...

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