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by hawkowl
Mon Jul 09, 2018 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Salami
Replies: 33
Views: 966

Re: Salami

My parents were born in Austria; my wife is German, so there is a lot of salami and other traditionally unhealthy foods eaten by my family. I, on the other hand, always strove to be healthy...a largely plant based organic diet, avoided processed meat, lots of exercise, never overweight, minimal alco...
by hawkowl
Wed Jul 04, 2018 11:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Modifications to prevent/lessen chance of recurrence
Replies: 33
Views: 1137

Re: Modifications to prevent/lessen chance of recurrence

I had a healthy diet and lifestyle before diagnosis...active, mostly plant based, never overweight...but I have taken a few steps to hopefully improve my chances if long term survival: Exercise (I try for 18,000 steps a day plus biking) Curcumin 2g daily with black pepper Celebrex 400mg every am Asp...
by hawkowl
Fri Jun 29, 2018 9:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence, Surgery, and Post-Surgery CEA
Replies: 9
Views: 460

Re: Recurrence, Surgery, and Post-Surgery CEA

But how would I best be able to identify the best oncologist in my Kaisers in my area.. there are like 3 major Kaisers within 30 minutes. Do you have a primary care physician you know and trust? They will definitely have some insights about who the best local oncologist might be. And I found that t...
by hawkowl
Fri Jun 29, 2018 9:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone have experience with this???
Replies: 4
Views: 384

Re: Anyone have experience with this???

My cousin is still NED more than 4 years after her HIPEC surgery. So definitely don't give up hope!
by hawkowl
Fri Jun 29, 2018 11:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence, Surgery, and Post-Surgery CEA
Replies: 9
Views: 460

Re: Recurrence, Surgery, and Post-Surgery CEA

CEA does tend to bounce around a lot right after surgery, and may well still be in the process of dropping. Hopefully next month's value will reflect that and will be lower yet. There are certainly other chemo options (other than FOLFOX) and it is never a bad idea to consider a second opinion even i...
by hawkowl
Fri Jun 22, 2018 9:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Passing of a true hero
Replies: 2
Views: 650

Re: Passing of a true hero

Definitely a hero in every sense of the word
by hawkowl
Thu Jun 21, 2018 8:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo before or after surgery?
Replies: 17
Views: 617

Re: Chemo before or after surgery?

I actually lost all of my scalp hair and much of my facial and body hair from FOLFOX..came as a shock to me! It really fell out after the third cycle
by hawkowl
Wed Jun 20, 2018 11:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed with rectal cancer and terrified
Replies: 16
Views: 1064

Re: Just diagnosed with rectal cancer and terrified

Thank you all for your wonderful words of support! After talking with my doctors and getting scans out of the way, I am feeling calmer. I do have a question though: I had a pet scan that came back clear (except for my tumor), no spread to other organs. Is it still possible I could be staged at a fo...
by hawkowl
Tue Jun 19, 2018 1:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is the day that chemo treatment ...
Replies: 17
Views: 641

Re: Is the day that cheno treatment ...

My worst day was the day after disconnect, although the extreme fatigue started the evening after disconnect and persisted for about 36 hours before gradually improving.
by hawkowl
Mon Jun 18, 2018 12:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Better news, Neuropathy & questions
Replies: 29
Views: 1181

Re: Better news, Neuropathy & questions

My neuropathy continued to progress after treatment and now that I am more than three years out I assume it is permanent. But I also remain NED more than three years out, so at this point I have no regrets. It is (for me) definitely the lesser of two evils. I think my situation is not really the nor...
by hawkowl
Mon Jun 18, 2018 12:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A cautionary tale
Replies: 13
Views: 868

Re: A cautionary tale

Such a sad story. I was a physician before my diagnosis and unfortunately saw this over and over again...although the stakes are a lot higher when you are dealing with cancer
by hawkowl
Sat Jun 16, 2018 1:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Taste Change Advice
Replies: 18
Views: 637

Re: Taste Change Advice

For me, bland foods tasted metallic and even putrid, but spicy food such as Thai and Indian tasted good. Oral marinol really helped make food more appealing
by hawkowl
Thu Jun 14, 2018 11:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo before or after surgery?
Replies: 17
Views: 617

Re: Chemo before or after surgery?

It is always good to come up with a treatment plan! I hope that all goes well :-)
by hawkowl
Wed Jun 13, 2018 1:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another new diagnosis
Replies: 5
Views: 552

Re: Another new diagnosis

What a frightening experience! I am glad to hear that they weee able to remove the entire mass and that they only found cancer in one lymph node. It is terrifying to get a new cancer diagnosis, but you will find many stories to give you hope (I had cancer in at least 5 lymph nodes and that was more ...
by hawkowl
Wed Jun 13, 2018 1:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo before or after surgery?
Replies: 17
Views: 617

Re: Chemo before or after surgery?

I didn't know about the second part. I'll keep it mind and will probably eventually read about it in a paper. When I was first diagnosed in 2014 there were some preliminary data from the PROSPECT trial that showed (if I remember correctly) an 85% disease free survival at 4(?) years with neoadjuvant...

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