Search found 121 matches

Go to advanced search

by hawkowl
Sun Aug 11, 2019 10:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about wound under ostomy adhesive
Replies: 8
Views: 472

Re: Question about wound under ostomy adhesive

I have a lot of experience with wounds near my ostomy as I suffer from pyoderma gangrenosum. I have had the best luck bu compressing with dilute white vinegar and then applying a piece of a hydrofera blue ostomy ring over any open areas. I then apply a brava pad (cut to fit around my stoma and cover...
by hawkowl
Fri Jul 05, 2019 3:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bucket List
Replies: 43
Views: 2954

Re: Bucket List

Beautiful car! My bucket list priority was travel, and although I cancel more trips than I take these days I still get a kick out of planning them. Enjoy your ride!!
by hawkowl
Thu May 16, 2019 4:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: APR surgery for low rectal tumor
Replies: 16
Views: 1721

Re: APR surgery for low rectal tumor

I had an ultra low rectal tumor and a complete response to neoadjuvant chemo followed by chemo radiation. I was offered watch and wait but because I had suck extensve lymph node involvement including distant nodes I was more comfortable with surgery. LAR surgery would have almost certainly led to ba...
by hawkowl
Thu Nov 22, 2018 11:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No chemoradiation before surgery
Replies: 12
Views: 1272

Re: No chemoradiation before surgery

It is a balancing act. Neoadjuvant treatment can result in downstaging and an improved prognosis for any stage disease, but the benefit for very early stage patients is minimal. Radiation toxicity can be an issue (it is for me), but resurrect cancer would be a much worse outcome. When in doubt, get ...
by hawkowl
Thu Nov 22, 2018 11:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sad news
Replies: 17
Views: 2740

Re: Sad news

I’m so very sorry for your loss
by hawkowl
Fri Oct 26, 2018 2:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Internal Iliac Node involvement??
Replies: 18
Views: 2715

Re: Internal Iliac Node involvement??

Just saw your post... My oncologist preferred not to commit to stage 3 or 4 (I had several enlarged iliac nodes), and instead preferred to stage me as T3N2MX (I also had some presacral changes that were not biopsied) As you know, i underwent 8 cycles of FOLFOX followed by 28 days of chemoradiation p...
by hawkowl
Sun Oct 21, 2018 1:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Isolation
Replies: 14
Views: 1885

Re: Isolation

I have had a permanent colostomy for 3 years (my choice, as I didn’t want to do watch and wait or deal with LARS). There is definitely an adjustment period, but I really don’t think about it much anymore. I still travel (all over the world, including remote places in Africa, South America, and India...
by hawkowl
Sat Oct 20, 2018 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Confused Stage2 or Stage3
Replies: 16
Views: 1886

Re: Confused Stage2 or Stage3

I had biopsy proven lymph node Mets before surgery, but after neoadjuvant folfox and chemoradiation plus targeted radiation to iliac nodes all were negative. Safest approach is to treat as if it were stage 3 based on pre op ct scan. But if the nodes responded well to pre op chemoradiation that is an...
by hawkowl
Thu Oct 18, 2018 12:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stay local or travel for Surgeon?
Replies: 19
Views: 2554

Re: Stay local or travel for Surgeon?

Just to play devil’s advocate...Not every excellent/skilled/capable surgeon chooses to practice at a major teaching hospital (many choose to live and work in smaller communities for the same reasons the rest of us do)...but then again not every board-certified colorectal surgeon is equally capable. ...
by hawkowl
Wed Oct 03, 2018 9:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with peri mets who survived?
Replies: 22
Views: 6112

Re: Anyone with peri mets who survived?

My cousin (lives overseas) had peri Mets. She had HIPEC in 2013 and remains NED
by hawkowl
Mon Sep 17, 2018 9:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nik Colon - ritz75
Replies: 15
Views: 6819

Re: Nik Colon - ritz75

We were diagnosed at about the same time and lived in the same state. She also reached out to me and was very supportive and encouraged me to be more active in advocacy. I hate this disease :-(
by hawkowl
Sat Sep 08, 2018 4:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE 3 rectal cancer treatment without surgery
Replies: 25
Views: 6468

Re: STAGE 3 rectal cancer treatment without surgery

I was offered watch and wait because I had a complete response to neoadjuvant FOLFOX followed by chemoradiation...but I chickened out because I wanted to minimize any chance of recurrence. I also opted out of sphincter sparing surgery because my tumor was so distal. I enjoy an excellent quality of l...
by hawkowl
Wed Aug 08, 2018 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectum cancer
Replies: 39
Views: 14320

Re: Newly diagnosed rectum cancer

Those first few days are so hard...I had so much anxiety and couldn't ever imagine feeling normal again. But it does get easier as soon as you have a plan in place (and a care team that you trust). It is definitely worth seeking additional opinions if you have any doubts or concerns. Hang in there!
by hawkowl
Mon Jul 30, 2018 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Local Area Recurrence - chemo before or after surgery
Replies: 3
Views: 710

Re: Local Area Recurrence - chemo before or after surgery

I elected to have chemo first (FOLFOX for 8 cycles) prior to having surgery when I was diagnosed in 2014. My goal was not to avoid or minimize surgery (I knew I would eject to have an APR no matter what), but rather to address the rogue cells/micrometastses ASAP. At this point I have been stable off...
by hawkowl
Mon Jul 23, 2018 3:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking Out a Little
Replies: 11
Views: 1282

Re: Freaking Out a Little

My oncologist didn't check mine when I was on chemo because he said it often fluctuates a lot during treatment

Go to advanced search