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by hawkowl
Sat Nov 23, 2019 1:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Airline experiences?
Replies: 10
Views: 535

Re: Airline experiences?

Delta has always treated me very well.
by hawkowl
Sat Nov 23, 2019 1:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: “Near” Complete Clinical Response and what to do next
Replies: 10
Views: 811

Re: “Near” Complete Clinical Response and what to do next

I would definitely want definitive answers. Can they rebiopsy one of the bumps? I opted against watch and wait even though I had a complete clinical response (and it turns out a complete path one also). Permanent colostomy and no regrets. I would much rather ovrrtreat than under treat
by hawkowl
Sun Nov 10, 2019 7:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The 10 most obese states in the U.S.
Replies: 13
Views: 520

Re: The 10 most obese states in the U.S.

Who knows, maybe it IS ... something in the water ???? Just sayin' Cheers all CRguy I have actually seriously wondered if it actually is something in the water. I was living in a rural part of Minnesota when I was diagnosed, and had zero risk factors (thin, athletic, plant-based diet). And two of m...
by hawkowl
Thu Oct 03, 2019 1:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Do you have experience with CareOncology.com?
Replies: 7
Views: 960

Re: Do you have experience with CareOncology.com?

If you are interested in hearing from a big number of people using the COC protocol and other repurposed drugs, I suggest joining the Facebook group “repurposed drugs for cancer”. I have been in this group for a few years and have learned a lot. The discussions Are generally based on science and not...
by hawkowl
Sun Aug 11, 2019 10:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about wound under ostomy adhesive
Replies: 8
Views: 653

Re: Question about wound under ostomy adhesive

I have a lot of experience with wounds near my ostomy as I suffer from pyoderma gangrenosum. I have had the best luck bu compressing with dilute white vinegar and then applying a piece of a hydrofera blue ostomy ring over any open areas. I then apply a brava pad (cut to fit around my stoma and cover...
by hawkowl
Fri Jul 05, 2019 3:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bucket List
Replies: 43
Views: 3501

Re: Bucket List

Beautiful car! My bucket list priority was travel, and although I cancel more trips than I take these days I still get a kick out of planning them. Enjoy your ride!!
by hawkowl
Thu May 16, 2019 4:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: APR surgery for low rectal tumor
Replies: 16
Views: 1909

Re: APR surgery for low rectal tumor

I had an ultra low rectal tumor and a complete response to neoadjuvant chemo followed by chemo radiation. I was offered watch and wait but because I had suck extensve lymph node involvement including distant nodes I was more comfortable with surgery. LAR surgery would have almost certainly led to ba...
by hawkowl
Thu Nov 22, 2018 11:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No chemoradiation before surgery
Replies: 12
Views: 1419

Re: No chemoradiation before surgery

It is a balancing act. Neoadjuvant treatment can result in downstaging and an improved prognosis for any stage disease, but the benefit for very early stage patients is minimal. Radiation toxicity can be an issue (it is for me), but resurrect cancer would be a much worse outcome. When in doubt, get ...
by hawkowl
Thu Nov 22, 2018 11:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sad news
Replies: 17
Views: 2919

Re: Sad news

I’m so very sorry for your loss
by hawkowl
Fri Oct 26, 2018 2:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Internal Iliac Node involvement??
Replies: 18
Views: 2937

Re: Internal Iliac Node involvement??

Just saw your post... My oncologist preferred not to commit to stage 3 or 4 (I had several enlarged iliac nodes), and instead preferred to stage me as T3N2MX (I also had some presacral changes that were not biopsied) As you know, i underwent 8 cycles of FOLFOX followed by 28 days of chemoradiation p...
by hawkowl
Sun Oct 21, 2018 1:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Isolation
Replies: 14
Views: 2004

Re: Isolation

I have had a permanent colostomy for 3 years (my choice, as I didn’t want to do watch and wait or deal with LARS). There is definitely an adjustment period, but I really don’t think about it much anymore. I still travel (all over the world, including remote places in Africa, South America, and India...
by hawkowl
Sat Oct 20, 2018 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Confused Stage2 or Stage3
Replies: 16
Views: 2018

Re: Confused Stage2 or Stage3

I had biopsy proven lymph node Mets before surgery, but after neoadjuvant folfox and chemoradiation plus targeted radiation to iliac nodes all were negative. Safest approach is to treat as if it were stage 3 based on pre op ct scan. But if the nodes responded well to pre op chemoradiation that is an...
by hawkowl
Thu Oct 18, 2018 12:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stay local or travel for Surgeon?
Replies: 19
Views: 2718

Re: Stay local or travel for Surgeon?

Just to play devil’s advocate...Not every excellent/skilled/capable surgeon chooses to practice at a major teaching hospital (many choose to live and work in smaller communities for the same reasons the rest of us do)...but then again not every board-certified colorectal surgeon is equally capable. ...
by hawkowl
Wed Oct 03, 2018 9:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with peri mets who survived?
Replies: 22
Views: 6455

Re: Anyone with peri mets who survived?

My cousin (lives overseas) had peri Mets. She had HIPEC in 2013 and remains NED
by hawkowl
Mon Sep 17, 2018 9:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nik Colon - ritz75
Replies: 15
Views: 7056

Re: Nik Colon - ritz75

We were diagnosed at about the same time and lived in the same state. She also reached out to me and was very supportive and encouraged me to be more active in advocacy. I hate this disease :-(

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