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by disco nap
Sun Jun 11, 2017 8:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T further adventures of BrownBagger
Replies: 8
Views: 1964

Re: O/T further adventures of BrownBagger

Awesome pics, thanks for sharing!

I pop on this forum every now and then to catch up with certain people and I'm glad to see so many in this particular thread, who were around when I first joined in 2010, are still doing well. This post made my day! :D
by disco nap
Tue May 10, 2016 6:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for some positive stories to pass on
Replies: 5
Views: 1368

Re: Looking for some positive stories to pass on

Well, I was diagnosed with Stage IIIC and I'm still around almost 6 years later. There is hope!
by disco nap
Sun Jul 19, 2015 1:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can anyone help me?
Replies: 37
Views: 4808

Re: Can anyone help me?

For your reference: I have lynch syndrome. My tumour was about 7cm, near the cecum, and i was staged at 3c due to lymph node spread. I had a right hemicolectomy. I just passed my 5 year "cured" mark, totally healthy and my quality of life is much the same as before diagnosis. I know it's t...
by disco nap
Mon Jul 06, 2015 9:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hey--What's up with NED Posters?
Replies: 31
Views: 4836

Re: Hey--What's up with NED Posters?

I think about you two - and also others in our demographic that were not fortunate - a lot. Good to hear from you John.
by disco nap
Wed Jun 10, 2015 8:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hey--What's up with NED Posters?
Replies: 31
Views: 4836

Re: Hey--What's up with NED Posters?

Every member here, NED or not, has a role. Some of us need things from this forum. Some of us give things to this forum. When I was diagnosed and in treatment, I needed things from this forum. I remember searching for people with similar staging as me and desperately looking for long term survivors ...
by disco nap
Wed Jun 10, 2015 8:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Will I ever stop thinking about cancer?
Replies: 16
Views: 2627

Re: Will I ever stop thinking about cancer?

Good to see that you are also doing well, H!
by disco nap
Wed Jun 10, 2015 7:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When do you stop seeing oncologist?
Replies: 9
Views: 1515

Re: When do you stop seeing oncologist?

I stopped in September 2011, about 6 months after completing chemo, and about 16 months after dx.. I wanted to be discharged to a regular family doctor for follow ups so I wouldn't have to go to the cancer clinic all the time. The oncologist agreed. I think it helped being out of the cancer care sys...
by disco nap
Wed Jun 10, 2015 7:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Will I ever stop thinking about cancer?
Replies: 16
Views: 2627

Re: Will I ever stop thinking about cancer?

I rarely think about it anymore. I really only think of it when I'm going in for a test.

Yes, it is possible that at some point you will have more days when you don't think about than days that you do. The key is to distract yourself with a very awesome life.
by disco nap
Mon Jun 08, 2015 4:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Toothpaste!
Replies: 13
Views: 1733

Re: Toothpaste!

Weleda makes a toothpaste out of aloe gel. Not only will it prevent the issue, it might actually help as aloe is a healing compound. Highly recommended. You can get it at health food stores, whole foods, or other such places.
by disco nap
Sat Apr 04, 2015 3:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is there anything more I should be doing?
Replies: 22
Views: 2293

Re: Is there anything more I should be doing?

I am also IIIC and almost to the 5 year mark. Here's what I do: Exercise. Almost every day, even if it's just for a walk. Find a way to build activity into your life if you don't like formal exercise. I walk to work. Eat organic, and a diet very heavy on plants and not so much on meat. Invest in the...
by disco nap
Thu Mar 12, 2015 4:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ct scan results
Replies: 6
Views: 903

Re: Ct scan results

Congratulations!!
by disco nap
Fri Dec 26, 2014 6:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2014 member update -- for all of us--please post!
Replies: 64
Views: 10110

Re: 2014 member update -- for all of us--please post!

I am still good. My next bloodwork is next week, my next big scan is in May. I'll hit my 5 year mark NED on July 6, 2015. I have had a few liver lump scares over the past year but so far everyone is saying benign.

I still check in here once in awhile. :)
by disco nap
Wed Nov 12, 2014 9:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newbie
Replies: 9
Views: 1687

Re: Newbie

While I don't have lung things, I do have liver things. Two of them, around 1.5cm each. They have been declared benign - one a hemangioma and another is some "hyper plastic blah blahblah" ...One of the things sometimes doesn't show on scans at all. and then, there it is again. But the poin...
by disco nap
Tue Nov 11, 2014 7:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Live tweeting of a colon cancer surgery: Nov 12, 8am EST
Replies: 0
Views: 1073

Live tweeting of a colon cancer surgery: Nov 12, 8am EST

Sunnybrook hospital in Toronto Canada is live tweeting a colon cancer surgery tomorrow morning at 8am EST in order to promote awareness:

https://twitter.com/Sunnybrook

#SBcancer
by disco nap
Sun Nov 02, 2014 5:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Survivor Depression...?
Replies: 14
Views: 2291

Re: Survivor Depression...?

I wouldn't say you have survivor depression. You've just been through a LOT, and it's all still very recent, and you need time to get past it. Take it easy on yourself, and know that every day is another day you are further away from the whole ordeal. Take whatever time you need to grieve, heal, and...

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