I just wanted to let the colon community know about a new anti-emetic out there. It's called Varubi (rolapitant) and is in the same class as Emend. It's a NK-1 receptor antagonist. I have run the gamut of anti emetics over my 7 1/2 years of chemo and all failed miserably until I added Emend to my Al...

Stevieb I have been on Fofiri with Cetuximab for a total of 7 years next month. I cut back to every 3 week, 2 week, 3 week, 2 week etc. schedule when my cancer was stable. I did it for about a year and the 3 week interval were GREAT! Had to go back to every 2 weeks when little things "pop up&qu...

Pita, just wanted to relay my experience with radiation. In 2012 I was diagnosed with 2 brain mets. I had SRT and did absolutely fabulous with a complete response. In Oct of 2014 my PET scan showed a very small active lymph node in the left hilar region of my chest. Since it was the only new activit...

Just wanted you to know that the CEA is not always an indicator of disease. My initial CEA was 50 when I had 12 liver tumors. Then went down to no higher than 3 while I was NED. Then when I had my re occurrence in my brain, lungs, spine and cervix the CEA never went up above 3.5. So in my case CEA v...

Hello Suzanne Thanks for all the info. Tomorrow my SO will have completed her 26th cycle of Folfox + Avastin. That makes it 21 cycles of Oxaliplatin and 23 of Avastin. Her oncologist suggested yesterday that there may only be another 2 cycles of Oxi in her . He would then switch over to Irinotecan....

rp1954,
Great info. Thanks! It's nice to know i'm not alone out there!

Suzanne

Amandatrrii, I actually have an enormous amount of experience with FOLFIRI (Irinotecan/5FU). That's the chemo I've been on for almost seven years. Usually Drs put us on FOLFOX (Oxaliplatin/5FU) first but my Dr gave me a choice and I decided on FOLFIRI. I didn't know it at the time but you can get FO...

Hi everyone, This is a question for those of you who are long term stage iv terminal survivors. I am an 8 year survivor who has been on chemo for almost 7 years. My question is what chemo have you been on, for how long and how many different types? Are you on non stop or do you take breaks? Also, ho...

I have been doing Folfiri with cetuximab for a total of 5 1/2 years. The first time was for 3 years. I had a bit of nausea and a few vomiting episodes mostly in the beginning before I knew what to expect. I recieved Aloxi and Dexamethasone as my premeds but felt I needed more and tried every anti em...

rp1954, I can't say I do anything too special other than the chemo. I don't take any supplements other than Lysine for oral ulcers. Ironically I've been a vegetarian for 28 years since the age of 15, but I can't say that I'm too strict about what I eat. I remember when I was diagnosed there was talk...

Hi all! I haven't been very vocal about my cancer fight but I figure it's about time I let others know that there IS hope for those of us diagnosed terminal stage iv. I was diagnosed January 4th 2008 at the age of 36 with a sigmoid mass and 12 liver mets. I had the colon surgery and was told that th...