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by lpas
Thu Sep 06, 2018 10:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Concerned,,,,Elevated CA199
Replies: 7
Views: 391

Re: O/T: Welcome to the 1000 Club

CEA and CA19-9 can be all over the place during chemo as a result of inflammation and dying cancer cells. Mine rose significantly. If I recall correctly, my CA19-9 was 37 when they tested immediately after my 6th and final session of Oxi. It slooowly came back down in the weeks and months thereafte...
by lpas
Wed Sep 05, 2018 9:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Concerned,,,,Elevated CA199
Replies: 7
Views: 391

Re: Concerned,,,,Elevated CA199

CEA and CA19-9 can be all over the place during chemo as a result of inflammation and dying cancer cells. Mine rose significantly. If I recall correctly, my CA19-9 was 37 when they tested immediately after my 6th and final session of Oxi. It slooowly came back down in the weeks and months thereafter...
by lpas
Tue May 29, 2018 2:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying Keytruda Off-Label (MSS with a Twist)
Replies: 41
Views: 4572

Re: Trying Keytruda Off-Label (MSS with a Twist)

You're in my thoughts, Cynthia. Keeping fingers, toes and everything else crossed that a good response is still coming.
by lpas
Sat May 26, 2018 8:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA and the chicken pox virus?
Replies: 2
Views: 277

CEA and the chicken pox virus?

This is probably going to seem like an odd question, but does anyone know if exposure to the chicken pox virus could cause an increase in CEA? My CEA spiked a bit with this most recent blood draw (from 1.6 to 2.2). You can see from the numbers in my sig that somewhere between 1.3 and 1.6 is pretty m...
by lpas
Wed May 16, 2018 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED, 4.5 years after lung recurrence
Replies: 10
Views: 772

Re: Still NED, 4.5 years after lung recurrence

Awesome, awesome news!! So happy for you, Sophy!
by lpas
Wed May 16, 2018 9:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 years later, still here
Replies: 7
Views: 564

Re: 3 years later, still here

That's awesome, Lydia. So glad to hear all is still going well!!
by lpas
Wed May 16, 2018 9:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 38 with, single with baby stage 4
Replies: 10
Views: 1268

Re: 38 with, single with baby stage 4

I'm so sorry you're going through this. My youngest was only 10 months when my tumor was found, so I know how incredibly scary it can be to face a cancer diagnosis with young children. You've gotten some great advice. To echo what others have said, I would strongly recommend that you find a way to g...
by lpas
Tue Mar 27, 2018 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety: Anyone else having testing now?
Replies: 60
Views: 6296

Re: Scanxiety: Anyone else having testing now?

I’m with you, Diane! Am in the process of trying to get my annual scan scheduled for Friday or Monday. I know it needs to be done but boy am I not looking forward to it...
I guess ignorance is bliss.

You will be in my thoughts, for sure. Here’s hoping it’s a good outcome for all of us.
by lpas
Mon Mar 26, 2018 10:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 years war
Replies: 20
Views: 3133

Re: 8 years war

This is such an important story and there are too few here who know or understand it. I am in awe of what rp has accomplished on behalf of his wife. Some may question his methods but the proof is truly in the pudding.
by lpas
Mon Mar 26, 2018 5:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Julie Yip Williams passed away last Monday, Mar 19th, 2018
Replies: 19
Views: 4577

Re: Julie Yip Williams passed away last Monday, Mar 19th, 2018

Such a loss. Julie was an incredible advocate and spokeswoman for the CRC cause. I can only imagine the impact her writings will have when published.

My thoughts and prayers are with her husband and young daughters.
by lpas
Wed Nov 22, 2017 11:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA and thyroid
Replies: 13
Views: 1604

Re: CEA and thyroid

Yay!!! So happy for you!
by lpas
Wed Nov 22, 2017 11:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T The 4 Kinds Of Health Chatroom Users (Article)
Replies: 9
Views: 922

Re: O/T The 4 Kinds Of Health Chatroom Users (Article)

Interesting--thanks for posting. I didn't participate in any surveys but it sounds like they've definitely got me pegged as the Adventurer I am :).
by lpas
Wed Nov 22, 2017 11:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update: It's just a matter of time
Replies: 15
Views: 2363

Re: Update: It's just a matter of time

I'm so sorry to hear this. :( I know how incredibly hard you've worked to help your wife these last three years.
by lpas
Wed Nov 22, 2017 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA and thyroid
Replies: 13
Views: 1604

Re: CEA and thyroid

While searching for a reason for my CEA to have risen to 5.8, I found an article about hypothyroid and false elevations in CEA. I asked my onc for thyroid testing and the results came back that I do have an under active thyroid. I can't get in to see a doctor for over a month so have asked my oncol...
by lpas
Fri Nov 17, 2017 3:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tom marsilje
Replies: 40
Views: 4433

Re: Tom marsilje

Truly heartbroken to hear this. Some combination of denial and Tom's unrelenting positivity had convinced me that his recent challenges were a temporary setback. What a terrible loss for the CRC community and especially for his young family. :(

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