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by lpas
Wed Oct 17, 2018 10:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried -genetic results are in. KRAS MSS
Replies: 12
Views: 362

Re: Worried -genetic results are in KRAS MSS

Do you know the specific variant of KRAS? From what I've read, not all KRAS types have the same prognosis. Keep in mind that most people don't have their tumor tested for specific mutations until and unless they're stage 4, so those who were KRAS mutants at a lower stage and survived are generally ...
by lpas
Wed Oct 17, 2018 8:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Subtotal or Hemi...don’t know how to decide
Replies: 6
Views: 241

Re: Subtotal or Hemi...don’t know how to decide

I was in a similar position 4 years ago and opted for the colectomy. My biggest concern was the potential for major changes in bowel function with a sub-total. Basically, I didn't want to risk spending the rest of my life running to the bathroom.
by lpas
Wed Oct 17, 2018 8:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety and missing Bev!
Replies: 14
Views: 974

Re: Scanxiety and missing Bev!

Your husband has a lovely voice, Diane. So happy for you that the blood work was clean! Enjoy!!
by lpas
Wed Oct 17, 2018 8:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried -genetic results are in. KRAS MSS
Replies: 12
Views: 362

Re: Worried -genetic results are in.

Do you know the specific variant of KRAS? From what I've read, not all KRAS types have the same prognosis. Keep in mind that most people don't have their tumor tested for specific mutations until and unless they're stage 4, so those who were KRAS mutants at a lower stage and survived are generally o...
by lpas
Wed Oct 03, 2018 2:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with peri mets who survived?
Replies: 12
Views: 1086

Re: Anyone with peri mets who survived?

We must have cross-posted, Lydia--I just responded to your other thread. Yes! Search the archives for info on SkiFletch. I'm almost positive he had peri mets and survived with HIPEC. Do you have any idea if you're a candidate?
by lpas
Wed Oct 03, 2018 2:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Such a blow!
Replies: 9
Views: 975

Re: Such a blow!

Oh no, Lydia--I'm so, so sorry. :( You've just had so much to deal with over the past 5 years. Was hoping maybe we'd both be lucky enough to escape this. I've read that local recurrences have better survival stats than distant metastasis. There's an article at the link below that discusses this. And...
by lpas
Thu Sep 06, 2018 10:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Concerned,,,,Elevated CA199
Replies: 7
Views: 531

Re: O/T: Welcome to the 1000 Club

CEA and CA19-9 can be all over the place during chemo as a result of inflammation and dying cancer cells. Mine rose significantly. If I recall correctly, my CA19-9 was 37 when they tested immediately after my 6th and final session of Oxi. It slooowly came back down in the weeks and months thereafte...
by lpas
Wed Sep 05, 2018 9:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Concerned,,,,Elevated CA199
Replies: 7
Views: 531

Re: Concerned,,,,Elevated CA199

CEA and CA19-9 can be all over the place during chemo as a result of inflammation and dying cancer cells. Mine rose significantly. If I recall correctly, my CA19-9 was 37 when they tested immediately after my 6th and final session of Oxi. It slooowly came back down in the weeks and months thereafter...
by lpas
Tue May 29, 2018 2:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying Keytruda Off-Label (MSS with a Twist)
Replies: 41
Views: 8255

Re: Trying Keytruda Off-Label (MSS with a Twist)

You're in my thoughts, Cynthia. Keeping fingers, toes and everything else crossed that a good response is still coming.
by lpas
Sat May 26, 2018 8:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA and the chicken pox virus?
Replies: 2
Views: 300

CEA and the chicken pox virus?

This is probably going to seem like an odd question, but does anyone know if exposure to the chicken pox virus could cause an increase in CEA? My CEA spiked a bit with this most recent blood draw (from 1.6 to 2.2). You can see from the numbers in my sig that somewhere between 1.3 and 1.6 is pretty m...
by lpas
Wed May 16, 2018 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED, 4.5 years after lung recurrence
Replies: 10
Views: 803

Re: Still NED, 4.5 years after lung recurrence

Awesome, awesome news!! So happy for you, Sophy!
by lpas
Wed May 16, 2018 9:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 years later, still here
Replies: 7
Views: 632

Re: 3 years later, still here

That's awesome, Lydia. So glad to hear all is still going well!!
by lpas
Wed May 16, 2018 9:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 38 with, single with baby stage 4
Replies: 10
Views: 1367

Re: 38 with, single with baby stage 4

I'm so sorry you're going through this. My youngest was only 10 months when my tumor was found, so I know how incredibly scary it can be to face a cancer diagnosis with young children. You've gotten some great advice. To echo what others have said, I would strongly recommend that you find a way to g...
by lpas
Tue Mar 27, 2018 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety: Anyone else having testing now?
Replies: 60
Views: 10426

Re: Scanxiety: Anyone else having testing now?

I’m with you, Diane! Am in the process of trying to get my annual scan scheduled for Friday or Monday. I know it needs to be done but boy am I not looking forward to it...
I guess ignorance is bliss.

You will be in my thoughts, for sure. Here’s hoping it’s a good outcome for all of us.
by lpas
Mon Mar 26, 2018 10:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 years war
Replies: 20
Views: 4962

Re: 8 years war

This is such an important story and there are too few here who know or understand it. I am in awe of what rp has accomplished on behalf of his wife. Some may question his methods but the proof is truly in the pudding.

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