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by lpas
Fri Dec 21, 2018 5:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED!!!!
Replies: 25
Views: 5124

Re: Still NED!!!!

Congratulations!! Really great news! I hope they find the cause of your abdominal pain soon--it seems like you've been dealing with this for a very long time now. Happy Holidays!
by lpas
Fri Dec 21, 2018 3:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 152
Views: 32712

Re: Keytruda....Working for MSS....Mutation Burden is the Key

This is just an FYI for anyone who has an older report from Foundation One. I had the Foundation One test done a few months after my initial diagnosis in January 2015. Decided to pull it out and check for TMB after seeing this thread, but couldn't find the information, so I thought I'd call them. My...
by lpas
Wed Oct 17, 2018 10:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried -genetic results are in. KRAS MSS
Replies: 18
Views: 2361

Re: Worried -genetic results are in KRAS MSS

Do you know the specific variant of KRAS? From what I've read, not all KRAS types have the same prognosis. Keep in mind that most people don't have their tumor tested for specific mutations until and unless they're stage 4, so those who were KRAS mutants at a lower stage and survived are generally ...
by lpas
Wed Oct 17, 2018 8:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Subtotal or Hemi...don’t know how to decide
Replies: 6
Views: 778

Re: Subtotal or Hemi...don’t know how to decide

I was in a similar position 4 years ago and opted for the colectomy. My biggest concern was the potential for major changes in bowel function with a sub-total. Basically, I didn't want to risk spending the rest of my life running to the bathroom.
by lpas
Wed Oct 17, 2018 8:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety and missing Bev!
Replies: 16
Views: 2426

Re: Scanxiety and missing Bev!

Your husband has a lovely voice, Diane. So happy for you that the blood work was clean! Enjoy!!
by lpas
Wed Oct 17, 2018 8:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried -genetic results are in. KRAS MSS
Replies: 18
Views: 2361

Re: Worried -genetic results are in.

Do you know the specific variant of KRAS? From what I've read, not all KRAS types have the same prognosis. Keep in mind that most people don't have their tumor tested for specific mutations until and unless they're stage 4, so those who were KRAS mutants at a lower stage and survived are generally o...
by lpas
Wed Oct 03, 2018 2:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with peri mets who survived?
Replies: 22
Views: 5814

Re: Anyone with peri mets who survived?

We must have cross-posted, Lydia--I just responded to your other thread. Yes! Search the archives for info on SkiFletch. I'm almost positive he had peri mets and survived with HIPEC. Do you have any idea if you're a candidate?
by lpas
Wed Oct 03, 2018 2:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Such a blow!
Replies: 9
Views: 1893

Re: Such a blow!

Oh no, Lydia--I'm so, so sorry. :( You've just had so much to deal with over the past 5 years. Was hoping maybe we'd both be lucky enough to escape this. I've read that local recurrences have better survival stats than distant metastasis. There's an article at the link below that discusses this. And...
by lpas
Thu Sep 06, 2018 10:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Concerned,,,,Elevated CA199
Replies: 8
Views: 1785

Re: O/T: Welcome to the 1000 Club

CEA and CA19-9 can be all over the place during chemo as a result of inflammation and dying cancer cells. Mine rose significantly. If I recall correctly, my CA19-9 was 37 when they tested immediately after my 6th and final session of Oxi. It slooowly came back down in the weeks and months thereafte...
by lpas
Wed Sep 05, 2018 9:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Concerned,,,,Elevated CA199
Replies: 8
Views: 1785

Re: Concerned,,,,Elevated CA199

CEA and CA19-9 can be all over the place during chemo as a result of inflammation and dying cancer cells. Mine rose significantly. If I recall correctly, my CA19-9 was 37 when they tested immediately after my 6th and final session of Oxi. It slooowly came back down in the weeks and months thereafter...
by lpas
Tue May 29, 2018 2:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying Keytruda Off-Label (MSS with a Twist)
Replies: 41
Views: 10232

Re: Trying Keytruda Off-Label (MSS with a Twist)

You're in my thoughts, Cynthia. Keeping fingers, toes and everything else crossed that a good response is still coming.
by lpas
Sat May 26, 2018 8:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA and the chicken pox virus?
Replies: 2
Views: 483

CEA and the chicken pox virus?

This is probably going to seem like an odd question, but does anyone know if exposure to the chicken pox virus could cause an increase in CEA? My CEA spiked a bit with this most recent blood draw (from 1.6 to 2.2). You can see from the numbers in my sig that somewhere between 1.3 and 1.6 is pretty m...
by lpas
Wed May 16, 2018 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED, 4.5 years after lung recurrence
Replies: 10
Views: 1264

Re: Still NED, 4.5 years after lung recurrence

Awesome, awesome news!! So happy for you, Sophy!
by lpas
Wed May 16, 2018 9:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 years later, still here
Replies: 7
Views: 987

Re: 3 years later, still here

That's awesome, Lydia. So glad to hear all is still going well!!
by lpas
Wed May 16, 2018 9:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 38 with, single with baby stage 4
Replies: 10
Views: 1827

Re: 38 with, single with baby stage 4

I'm so sorry you're going through this. My youngest was only 10 months when my tumor was found, so I know how incredibly scary it can be to face a cancer diagnosis with young children. You've gotten some great advice. To echo what others have said, I would strongly recommend that you find a way to g...

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