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by DebZ
Tue Jun 12, 2018 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Platelets
Replies: 18
Views: 960

Re: Low Platelets

My new norm for platelets is low 50s and I still get chemo. My oxali is around 60 to 70 % strength, and we have to stretch it out to every three weeks. We've been tossing around different things to try to get the platelets up because it's a real concern. Disqualifies me from some trials.
by DebZ
Mon Jun 04, 2018 9:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hand and foot syndrome
Replies: 9
Views: 412

Re: Hand and foot syndrome

I've had HFS so bad in past it's delayed my chemo by a week or two. It lessened slightly when we tried holding ice packs during my 5FU bolus, and off and on for next few days. I also have every lotion under the sun (helps a little with peeling but not much). Unrelated, my oncologist is experimenting...
by DebZ
Thu Apr 19, 2018 8:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling very anxious port removal this afternoon
Replies: 4
Views: 496

Re: Feeling very anxious port removal this afternoon

I had one taken out with just a local and it didn't bother me at all. Just a little tugging, but no pain. You will do great I'm sure!
by DebZ
Sun Mar 25, 2018 1:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3b with ovarian met recurrence and healthy now
Replies: 9
Views: 1355

Re: Stage 3b with ovarian met recurrence and healthy now

You're not alone! After a colon resection and six months Folfox, I thought I was done. At three-month checkup my CEA was up and I had mets on ovary and liver. More chemo, big operation, and waited another couple months. Another CEA jump and it was in both lungs. I've been stable for a while with lot...
by DebZ
Sat Mar 03, 2018 4:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm a mystery ... CEA rising, good scans
Replies: 3
Views: 750

I'm a mystery ... CEA rising, good scans

Due to continuous low platelets (hanging on at 60), I've been off oxalyplatin and have only had 5FU and avastin for last few infusions. My CEA has been creeping upward for last few months, from 18 to now 26, but both a CT and a PET showed nothing new and lung mets stable. So, anyone want to guess wh...
by DebZ
Sat Feb 17, 2018 10:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mr Ziggy has passed away
Replies: 17
Views: 2490

Re: Mr Ziggy has passed away

I'm so very sorry for your loss. We all mourn with you as yet another member is taken from us. Please know you're in my thoughts.
by DebZ
Wed Jan 31, 2018 10:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 595
Views: 106935

Re: TIL Immunotherapy at NCI

I'm so happy to hear of your continued good health! You're very inspiring to those of us still in the trenches. It's been a pretty rough year with all our losses on this board, so good news and celebrations are a bright light!
by DebZ
Thu Nov 16, 2017 10:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tom marsilje
Replies: 40
Views: 4153

Re: Tom marsilje

I'm just heartbroken over hearing this. It's been an incredibly bad year as we lose yet another beautiful soul. Rest In Peace, Tom, you were an inspiration to us all.
by DebZ
Wed Nov 01, 2017 2:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GOOD NEWS ON BEANSMAMA
Replies: 122
Views: 15156

Re: GOOD NEWS ON BEANSMAMA

One day at a time is right! Don't do too much and let your body heal. So excited you're home and doing well.
by DebZ
Tue Oct 24, 2017 5:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ovarian Cyst Question
Replies: 10
Views: 1639

Re: Ovarian Cyst Question

My colon cancer went to my ovary so please just make sure you follow up until you know for sure if a cyst or not. When I complained to oncologist about pain in that area, he said rare for cancer to spread there and kinda blew it off. MRI showed large mass. He's not my oncologist any more.
by DebZ
Fri Sep 15, 2017 3:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Chemo Lifers? Incurable Stage 4
Replies: 17
Views: 2828

Re: Any Chemo Lifers? Incurable Stage 4

Hi! I'm supposedly incurable with multiple, scattered lung mets. Folfiri was starting to fail so now I'm back to Folfox, which I had after original colon resection. To date I've had 40+ chemo treatments. You are amazing at 70+. It's as emotionally draining as it is physically, but every day I'm with...
by DebZ
Wed Sep 13, 2017 8:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom's journey is over
Replies: 31
Views: 4075

Re: My mom's journey is over

I'm so sorry to hear this sad news. I lost my mom a year ago and though I know it was a blessing, it's still hard every day without her. My thoughts are with you.
by DebZ
Sat Aug 19, 2017 8:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BeansMama - I'm still kicking (butt that is)
Replies: 20
Views: 3585

Re: BeansMama - I'm still kicking (butt that is)

Thanks for checking in! We worry when we don't hear from you in a while! Go have a great vacation and forget all the other stuff. I just got back today from a week away. Leaving it all behind is absolutely necessary for you and Bean.
by DebZ
Sat Aug 19, 2017 8:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-fu pump disconnect question
Replies: 13
Views: 1563

Re: 5-fu pump disconnect question

I have a visiting nurse service that disconnects me at home. Seems like standard protocol at my cancer center. Is that an option for you?

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