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by DebZ
Wed Aug 22, 2018 9:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with Kras G12V or G12D, NIH trial needs you
Replies: 19
Views: 4331

Re: Anyone with Kras G12V or G12D, NIH trial needs you

I was getting pre-screened for the trial, but my low platelets exclude me. Hoping to get them up and try again.
by DebZ
Mon Aug 20, 2018 3:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Platelets, Surgery, and Chemo Dilemma
Replies: 3
Views: 485

Re: Low Platelets, Surgery, and Chemo Dilemma

I did Foundation One testing three years ago, and actually it was your story here, Cynthia, that made me ask my oncologist if I need a retest after so much time. He was going to contact them. I'm not sure if I'd need a bioposy of a tumor, or just blood work. Does Keytruda effect platelet count a lot?
by DebZ
Sun Aug 19, 2018 5:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Platelets, Surgery, and Chemo Dilemma
Replies: 3
Views: 485

Low Platelets, Surgery, and Chemo Dilemma

I'm once again at the crossroads and uncertain which way to go. Hopefully some of you have experience or suggestions! My continuous low platelet counts caused me to sporadically get Folfox this past late winter into spring. With all the breaks, my CEA started climbing and is now 145. Scans show grow...
by DebZ
Tue Jun 12, 2018 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Platelets
Replies: 18
Views: 4138

Re: Low Platelets

My new norm for platelets is low 50s and I still get chemo. My oxali is around 60 to 70 % strength, and we have to stretch it out to every three weeks. We've been tossing around different things to try to get the platelets up because it's a real concern. Disqualifies me from some trials.
by DebZ
Mon Jun 04, 2018 9:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hand and foot syndrome
Replies: 9
Views: 526

Re: Hand and foot syndrome

I've had HFS so bad in past it's delayed my chemo by a week or two. It lessened slightly when we tried holding ice packs during my 5FU bolus, and off and on for next few days. I also have every lotion under the sun (helps a little with peeling but not much). Unrelated, my oncologist is experimenting...
by DebZ
Thu Apr 19, 2018 8:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling very anxious port removal this afternoon
Replies: 4
Views: 551

Re: Feeling very anxious port removal this afternoon

I had one taken out with just a local and it didn't bother me at all. Just a little tugging, but no pain. You will do great I'm sure!
by DebZ
Sun Mar 25, 2018 1:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3b with ovarian met recurrence and healthy now
Replies: 13
Views: 2151

Re: Stage 3b with ovarian met recurrence and healthy now

You're not alone! After a colon resection and six months Folfox, I thought I was done. At three-month checkup my CEA was up and I had mets on ovary and liver. More chemo, big operation, and waited another couple months. Another CEA jump and it was in both lungs. I've been stable for a while with lot...
by DebZ
Sat Mar 03, 2018 4:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm a mystery ... CEA rising, good scans
Replies: 3
Views: 827

I'm a mystery ... CEA rising, good scans

Due to continuous low platelets (hanging on at 60), I've been off oxalyplatin and have only had 5FU and avastin for last few infusions. My CEA has been creeping upward for last few months, from 18 to now 26, but both a CT and a PET showed nothing new and lung mets stable. So, anyone want to guess wh...
by DebZ
Sat Feb 17, 2018 10:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mr Ziggy has passed away
Replies: 17
Views: 4114

Re: Mr Ziggy has passed away

I'm so very sorry for your loss. We all mourn with you as yet another member is taken from us. Please know you're in my thoughts.
by DebZ
Wed Jan 31, 2018 10:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 160486

Re: TIL Immunotherapy at NCI

I'm so happy to hear of your continued good health! You're very inspiring to those of us still in the trenches. It's been a pretty rough year with all our losses on this board, so good news and celebrations are a bright light!
by DebZ
Thu Nov 16, 2017 10:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tom marsilje
Replies: 40
Views: 4551

Re: Tom marsilje

I'm just heartbroken over hearing this. It's been an incredibly bad year as we lose yet another beautiful soul. Rest In Peace, Tom, you were an inspiration to us all.
by DebZ
Wed Nov 01, 2017 2:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GOOD NEWS ON BEANSMAMA
Replies: 122
Views: 16149

Re: GOOD NEWS ON BEANSMAMA

One day at a time is right! Don't do too much and let your body heal. So excited you're home and doing well.
by DebZ
Tue Oct 24, 2017 5:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ovarian Cyst Question
Replies: 10
Views: 1736

Re: Ovarian Cyst Question

My colon cancer went to my ovary so please just make sure you follow up until you know for sure if a cyst or not. When I complained to oncologist about pain in that area, he said rare for cancer to spread there and kinda blew it off. MRI showed large mass. He's not my oncologist any more.
by DebZ
Fri Sep 15, 2017 3:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Chemo Lifers? Incurable Stage 4
Replies: 17
Views: 3026

Re: Any Chemo Lifers? Incurable Stage 4

Hi! I'm supposedly incurable with multiple, scattered lung mets. Folfiri was starting to fail so now I'm back to Folfox, which I had after original colon resection. To date I've had 40+ chemo treatments. You are amazing at 70+. It's as emotionally draining as it is physically, but every day I'm with...

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